{"id":5413,"date":"2021-08-04T01:40:31","date_gmt":"2021-08-04T01:40:31","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?page_id=5413"},"modified":"2021-08-26T16:05:21","modified_gmt":"2021-08-26T16:05:21","slug":"lgmd-day-2021","status":"publish","type":"page","link":"https:\/\/www.lgmd-info.org\/ja\/lgmd-day-2021\/","title":{"rendered":"LGMD\u30c7\u30fc2021"},"content":{"rendered":"

\u7b2c7\u56deLGMD\u5553\u767a\u30c7\u30fc - 2021\u5e749\u670830\u65e5<\/h1><\/div><\/div><\/div>

 <\/p>\n

\u4eca\u5e74\u30677\u56de\u76ee\u3092\u8fce\u3048\u308b LGMD\u5553\u767a\u30c7\u30fc<\/strong> \u30aa\u30f3 2021\u5e749\u670830\u65e5<\/strong>\u79c1\u305f\u3061\u306f\u3001\u7686\u69d8\u306e\u3054\u5354\u529b\u3092\u304a\u9858\u3044\u3044\u305f\u3057\u307e\u3059\u3002 \u64c1\u8b77 - \u6559\u80b2 - \u795d\u798f<\/b>!<\/span><\/p>\n

\u8a8d\u8b58\u3001\u7406\u89e3\u3001\u56e3\u7d50\u306b\u306f\u5927\u304d\u306a\u529b\u304c\u3042\u308a\u307e\u3059\u3002LGMD\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u306f\u6bce\u5e74\u3001\u56db\u80a2\u5e2f\u72b6\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\uff08LGMD\uff09\u306e\u8a8d\u77e5\u5ea6\u3092\u9ad8\u3081\u3001\u5171\u306b\u30ad\u30e3\u30f3\u30da\u30fc\u30f3\u3092\u884c\u3046\u3053\u3068\u3067\u3001\u4e16\u754c\u7684\u306a\u3064\u306a\u304c\u308a\u3092\u793a\u3057\u3066\u3044\u307e\u3059\u3002LGMD\u306b\u306f30\u7a2e\u985e\u4ee5\u4e0a\u306e\u907a\u4f1d\u7684\u30bf\u30a4\u30d7\u304c\u3042\u308a\u3001\u4e16\u754c\u7684\u306b\u5354\u529b\u3059\u308b\u3053\u3068\u3067\u3001\u79c1\u305f\u3061\u306f\u4e00\u4eba\u3067\u306f\u3067\u304d\u306a\u3044\u307b\u3069\u5f37\u304f\u306a\u308b\u306e\u3067\u3059\u30022021\u5e74LGMD\u5553\u767a\u30c7\u30fc\u306e\u6d3b\u52d5\u3078\u306e\u53c2\u52a0\u306f\u3001\u9577\u5e74\u306e\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u30e1\u30f3\u30d0\u30fc\u3067\u3042\u308c\u3001\u65b0\u3057\u3044\u30e1\u30f3\u30d0\u30fc\u3067\u3042\u308c\u3001\u91cd\u8981\u3067\u3059\u3002LGMD\u5553\u767a\u30b9\u30c6\u30c3\u30ab\u30fc\u306e\u30ea\u30dd\u30b9\u30c8\u3084\u30b7\u30e3\u30a6\u30c8\u30a2\u30a6\u30c8\u3001\u304a\u6c17\u306b\u5165\u308a\u306e\u30d7\u30e9\u30c3\u30c8\u30d5\u30a9\u30fc\u30e0\u3078\u306e\u30b9\u30ca\u30c3\u30d7\u306a\u3069\u3092\u901a\u3058\u3066\u3001\u3088\u308a\u591a\u304f\u306e\u500b\u4eba\u304c\u3001\u4e16\u754c\u4e2d\u306e\u3042\u3089\u3086\u308b\u5834\u6240\u304b\u3089\u3001\u30ea\u30e2\u30fc\u30c8\u3067\u305d\u306e\u7cbe\u795e\u3092\u5171\u6709\u3059\u308b\u3053\u3068\u3067\u3001\u5553\u767a\u306f\u3088\u308a\u65e9\u304f\u5e83\u307e\u308b\u3067\u3057\u3087\u3046\u3002\u884c\u52d5\u306b\u306f\u529b\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n<\/div><\/div><\/div>

<\/span><\/div><\/div><\/div><\/div><\/div>

\u5171\u306b\u5f37\u304f\u306a\u308d\u3046<\/h2><\/div>

\u4eca\u65e5\u3001LGMD\u5553\u767a\u306e\u91cd\u8981\u6027\u306b\u5149\u3092\u5f53\u3066\u3066\u307f\u307e\u305b\u3093\u304b\uff01<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"LGMD<\/span><\/div><\/div><\/div>

\u30a2\u30c9\u30dc\u30b1\u30fc\u30c8<\/h1><\/div>

2021\u5e74\u30ac\u30fc\u30c7\u30a3\u30fc\u30fb\u30b9\u30c6\u30c3\u30ab\u30fc\u30fb\u30ad\u30e3\u30f3\u30da\u30fc\u30f3<\/h3><\/div>

9\u670830\u65e5\u524d\u5f8c\u306b\u3001\u3042\u306a\u305f\u3068\u30ac\u30fc\u30c7\u30a3\u30fb\u30b9\u30c6\u30c3\u30ab\u30fc\u306e\u5199\u771f\u3092\u30bd\u30fc\u30b7\u30e3\u30eb\u30e1\u30c7\u30a3\u30a2\u306b\u30a2\u30c3\u30d7\u30ed\u30fc\u30c9\u3057\u3066\u304f\u3060\u3055\u3044\u3002\u305d\u306e\u969b\u3001\u304a\u4f4f\u307e\u3044\u306e\u5730\u57df\u3001#LGMDawareness\u306e\u30cf\u30c3\u30b7\u30e5\u30bf\u30b0\u3001\u305d\u3057\u3066@LGMDawareness\u306e\u30bf\u30b0\u3092\u304a\u5fd8\u308c\u306a\u304f\uff01<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\u6559\u80b2\u3059\u308b\uff1a<\/h1><\/div>

LGMD\u306e\u4e8b\u5b9f\u3092\u77e5\u308a\u3001\u610f\u8b58\u5411\u4e0a\u306b\u8ca2\u732e\u3059\u308b<\/h3><\/div>

\u30ac\u30fc\u30c7\u30a3\u304cLGMD\u3092\u4e16\u754c\u306b\u5e83\u3081\u308b\u304a\u624b\u4f1d\u3044\u3092\u3057\u307e\u3059\u3002\u3053\u308c\u3089\u306e\u4e8b\u5b9f\u3092\u5bb6\u65cf\u3001\u53cb\u4eba\u3001\u540c\u50da\u3001\u5730\u57df\u793e\u4f1a\u3068\u5171\u6709\u3057\u3066\u304f\u3060\u3055\u3044\u3002<\/p>\n<\/div><\/div><\/div>

1.\u80a2\u5e2f\u578b\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\uff08LGMD\uff09\u306f\u3001\u91cd\u5ea6\u306e\u7b4b\u529b\u4f4e\u4e0b\u3092\u5f15\u304d\u8d77\u3053\u3059\u307e\u308c\u306a\u795e\u7d4c\u7b4b\u75be\u60a3\u3067\u3042\u308a\u3001\u4e16\u754c\u4e2d\u306e\u4eba\u3005\u304c\u7f79\u60a3\u3057\u3066\u3044\u308b\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

2.\u56db\u80a2\u5e2f\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\uff08LGMD\uff09\u306e\u521d\u671f\u75c7\u72b6\u306b\u306f\u3001\u968e\u6bb5\u306e\u6607\u964d\u56f0\u96e3\u3001\u983b\u7e41\u306a\u8ee2\u5012\u3001\u5ea7\u4f4d\u304b\u3089\u306e\u7acb\u3061\u4e0a\u304c\u308a\u56f0\u96e3\u3001\u3042\u308b\u3044\u306f\u3064\u307e\u5148\u7acb\u3061\u304c\u3067\u304d\u306a\u3044\u3053\u3068\u306a\u3069\u304c\u3042\u308b\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

3.\u73fe\u5728\u3001\u6cbb\u7642\u6cd5\u306f\u78ba\u7acb\u3055\u308c\u3066\u3044\u306a\u3044\u304c\u3001\u79d1\u5b66\u8005\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u30fc\u306e\u30e1\u30f3\u30d0\u30fc\u3084\u305d\u306e\u7814\u7a76\u52aa\u529b\u306b\u8cc7\u91d1\u3092\u63d0\u4f9b\u3059\u308b\u56e3\u4f53\u306e\u304a\u304b\u3052\u3067\u3001\u79d1\u5b66\u306f\u5e74\u3005\u3001\u80a2\u5e2f\u578b\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\uff08LGMD\uff09\u306e\u6cbb\u7642\u6cd5\u306b\u8fd1\u3065\u3044\u3066\u3044\u308b\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

4.\u80a2\u5e2f\u578b\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\uff08LGMD\uff09\u306b\u306f30\u7a2e\u985e\u4ee5\u4e0a\u306e\u75c5\u578b\u304c\u3042\u308a\u3001\u305d\u308c\u305e\u308c\u7570\u306a\u308b\u907a\u4f1d\u5b50\u306e\u5909\u7570\u306b\u3088\u3063\u3066\u5f15\u304d\u8d77\u3053\u3055\u308c\u307e\u3059\u3002LGMD\u306e\u7570\u306a\u308b\u578b\u306f\u81e8\u5e8a\u691c\u67fb\u3067\u306f\u975e\u5e38\u306b\u3088\u304f\u4f3c\u3066\u3044\u308b\u305f\u3081\u3001\u8a3a\u65ad\u3092\u78ba\u5b9a\u3059\u308b\u305f\u3081\u306b\u306f\u907a\u4f1d\u5b50\u691c\u67fb\u304c\u5fc5\u8981\u3067\u3059\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

LGMD\u306e\u8a73\u7d30\u306b\u3064\u3044\u3066\u306f\u3001\u30af\u30ea\u30c3\u30af\u3057\u3066\u304f\u3060\u3055\u3044\u3002 \u3053\u308c<\/a>.<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"71091057<\/span><\/div><\/div><\/div>

\u795d\u3046\uff1a<\/h1><\/div>

\u30e9\u30a4\u30e0\u30fb\u30b0\u30ea\u30fc\u30f3\u30fb\u30d5\u30a9\u30fc\u80a2\u5e2f\u5553\u767a\u30ad\u30e3\u30f3\u30da\u30fc\u30f3<\/h3><\/div>

\u30e9\u30a4\u30e0\u30b0\u30ea\u30fc\u30f3\u8272\u306e\u670d\u88c5\u3084\u30ea\u30b9\u30c8\u30d0\u30f3\u30c9\u3092\u8eab\u306b\u7740\u3051\u3066\u3001\u610f\u8b58\u5411\u4e0a\u306b\u3054\u5354\u529b\u304f\u3060\u3055\u3044\u3002\u30bd\u30fc\u30b7\u30e3\u30eb\u30e1\u30c7\u30a3\u30a2\u306b\u5199\u771f\u3092\u6295\u7a3f\u3059\u308b\u969b\u306f\u3001\u64ae\u5f71\u5834\u6240\u3001#LGMDawareness\u306e\u30cf\u30c3\u30b7\u30e5\u30bf\u30b0\u3001\u305d\u3057\u3066@LGMDawareness\u306e\u30bf\u30b0\u3092\u304a\u5fd8\u308c\u306a\u304f\u3002<\/p>\n<\/div>

2021\u5e74LGMD\u5553\u767a\u30c7\u30fc\u306e\u30c1\u30e9\u30b7\u3092\u30c0\u30a6\u30f3\u30ed\u30fc\u30c9\u3059\u308b<\/span><\/a><\/div><\/div><\/div><\/div><\/div>
<\/div><\/div>

LGMD\u5553\u767a\u8ca1\u56e3\u304a\u3088\u3073LGMD\u8ca1\u56e3\u30b3\u30f3\u30bd\u30fc\u30b7\u30a2\u30e0<\/strong><\/h3><\/div><\/div><\/div>

\u30ab\u30eb\u30d1\u30a4\u30f33\u6cbb\u7642\u9023\u5408<\/p>\n

CureLGMD2i\u8ca1\u56e3<\/p>\n

\u30b8\u30e3\u30a4\u30f3\u8ca1\u56e3<\/p>\n

\u30af\u30eb\u30c8\uff0b\u30d4\u30fc\u30bf\u30fc\u8ca1\u56e3<\/p>\n

LGMD-1D DNAJB6\u8ca1\u56e3<\/p>\n

LGMD2D\u8ca1\u56e3<\/p>\n<\/div><\/div><\/div>

LGMD2i\u7814\u7a76\u57fa\u91d1<\/p>\n

LGMD2L\u8ca1\u56e3<\/p>\n

\u30de\u30c3\u30b3\u30fc\u30eb\u30fb\u30ed\u30c3\u30af\u30a6\u30c3\u30c9\u533b\u5b66\u7814\u7a76\u6240<\/p>\n

\u30b7\u30e5\u30d4\u30a8\u30eb\u30af\u30e9\u30d2\u30c8<\/p>\n

\u30b9\u30d4\u30fc\u30af\u8ca1\u56e3<\/p>\n<\/div><\/div><\/div><\/div><\/div>

<\/div><\/div>

\u30a2\u30c9\u30dc\u30ab\u30b7\u30fc\u30fb\u30d1\u30fc\u30c8\u30ca\u30fc<\/strong><\/h3><\/div><\/div><\/div>

\u30a2\u30eb\u30bc\u30f3\u30c1\u30f3ADM - \u30a2\u30eb\u30bc\u30f3\u30c1\u30f3LGMD\u30b0\u30eb\u30fc\u30d7<\/p>\n

\u30d7\u30ed\u30b8\u30a7\u30af\u30c8\u30fb\u30a2\u30eb\u30d5\u30a1\u5354\u4f1a<\/p>\n

\u30a2\u30e6\u30b7\u30e5\u30ab\u30de\u8ca1\u56e3<\/p>\n

\u30ab\u30e0\u30ed\u30f3\u30b9\u30ad\u30e5\u30a2<\/p>\n

\u30b3\u30f3\u30ad\u30b9\u30bf\u30f3\u30c9\u30fb\u30a8\u30b9\u30ab\u30ed\u30cd\u30b9ODV<\/p>\n

\u30c0\u30cb\u30a8\u30eb\u30fb\u30d5\u30a1\u30fc\u30ac\u30bd\u30f3LGMD\u8ca1\u56e3<\/p>\n

GFB\u30aa\u30f3\u30e9\u30a4\u30f3<\/p>\n

AFM-TELETHON\u306eLGMD\u30b0\u30eb\u30fc\u30d7<\/p>\n

\u30a4\u30f3\u30c9\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u5354\u4f1a<\/p>\n

LGMD\u30cd\u30c3\u30c8\u30ef\u30fc\u30afCAB<\/p>\n<\/div><\/div><\/div>

\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u5354\u4f1a<\/p>\n

NZ\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u5354\u4f1a<\/p>\n

\u82f1\u56fd\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u5354\u4f1a<\/p>\n

\u30cd\u30a4\u30b7\u30e7\u30f3\u30ef\u30a4\u30c9\u5c0f\u5150\u75c5\u9662<\/p>\n

\u30cb\u30e5\u30fc\u30ab\u30c3\u30b9\u30eb\u5927\u5b66<\/p>\n

\u30ed\u30b7\u30a2LGMD\u60a3\u8005\u30b0\u30eb\u30fc\u30d7<\/p>\n

\u30b7\u30cd\u30aa\u30b9\u30fb\u30d8\u30eb\u30b9<\/p>\n

TREAT-NMD\u795e\u7d4c\u7b4b\u30cd\u30c3\u30c8\u30ef\u30fc\u30af\u682a\u5f0f\u4f1a\u793e<\/p>\n

UILDM - \u30bb\u30c4\u30a3\u30aa\u30fc\u30cd\u30fb\u30df\u30e9\u30ce - \u30b0\u30eb\u30c3\u30dd\u30fb\u30c1\u30f3\u30b4\u30ea<\/p>\n<\/div><\/div><\/div><\/div><\/div>

<\/div><\/div>

\u611f\u8b1d\u306e\u610f\u3092\u8868\u3059\u308b<\/strong><\/h3><\/div>
\"Sarepta<\/span><\/div>

\u4eca\u5e74\u306e\u30ac\u30fc\u30c7\u30a3\u30fb\u30b9\u30c6\u30c3\u30ab\u30fc\u30fb\u30ad\u30e3\u30f3\u30da\u30fc\u30f3\u3092\u5feb\u304f\u5f15\u304d\u53d7\u3051\u3066\u304f\u3060\u3055\u3063\u305f\u3002<\/strong><\/h3><\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5415,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-5413","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nLGMD Day 2021 - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/lgmd-day-2021\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Day 2021 - 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