{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30b7\u30a7\u30ea\u30fc"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

\u540d\u79f0<\/strong>: \u30b7\u30a7\u30ea\u30fc \u5e74\u9f62 50\"LGMD2A<\/a><\/p>\n

\u56fd\u540d<\/strong>: \u30ab\u30ca\u30c0<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>: LGMD2A \/ \u30ab\u30eb\u30d1\u30a4\u30f3\u969c\u5bb3<\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f11\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\u3001\u3064\u307e\u5148\u7acb\u3061\u3067\u6b69\u3044\u305f\u308a\u3001\u968e\u6bb5\u3092\u4e0a\u308b\u306e\u304c\u56f0\u96e3\u306b\u306a\u3063\u305f\u308a\u3057\u305f\u3053\u3068\u3060\u3002<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u306f\u3044\u3001\u79c1\u306e\u5144\u5f1f\u306f\u5168\u54e1\u767a\u75c7\u3057\u3066\u3044\u307e\u3059\u3002 \u59b9\u306e\u30df\u30b1\u30fc\u30ec\u3068\u5f1f\u306e\u30b8\u30e7\u30f3\u306fLGMD2A\u3067\u3059\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306e20\u4ee3\u306b\u304a\u3051\u308b\u6700\u5927\u306e\u96e3\u95a2\u306e\u3072\u3068\u3064\u306f\u3001\u8eab\u4f53\u304c\u5f31\u304f\u3001\u5b50\u3069\u3082\u3092\u7523\u3080\u3053\u3068\u304c\u3067\u304d\u306a\u3044\u3053\u3068\u3001\u51fa\u7523\u3001\u305d\u3057\u3066\u5b50\u3069\u3082\u3092\u8eab\u3054\u3082\u308b\u3053\u3068\u3060\u3063\u305f\u3002<\/p>\n

\u307e\u305f\u3001\u5927\u5b66\u3084\u5c02\u9580\u5b66\u6821\u306e\u5b66\u4f4d\u3092\u6301\u3063\u3066\u3044\u308b\u306b\u3082\u304b\u304b\u308f\u3089\u305a\u3001\u6709\u610f\u7fa9\u306a\u96c7\u7528\u3092\u898b\u3064\u3051\u308b\u3053\u3068\u3082\u56f0\u96e3\u3067\u3042\u3063\u305f\u3002 \u96c7\u7528\u4e3b\u3084\u5f93\u696d\u54e1\u304c\u969c\u5bb3\u8005\u3067\u3042\u308b\u3053\u3068\u306e\u5fc5\u8981\u6027\u3092\u7406\u89e3\u3057\u3088\u3046\u3068\u3057\u306a\u3044\u3053\u3068\u3082\u8ab2\u984c\u3067\u3042\u3063\u305f\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306e\u6700\u3082\u5927\u304d\u306a\u529f\u7e3e\u306e\u3072\u3068\u3064\u306f\u3001LGMD\u3068\u3068\u3082\u306b\u751f\u304d\u308b\u3053\u3068\u306b\u3064\u3044\u3066\u306e\u624b\u8a18\u3092\u66f8\u304d\u3001\u4ed6\u306e\u4eba\u3005\u304c\u591a\u69d8\u6027\u3092\u514b\u670d\u3059\u308b\u306e\u3092\u52a9\u3051\u305f\u3053\u3068\u3067\u3059\u3002 \u5927\u5b66\u3092\u5352\u696d\u3057\u305f\u3053\u3068\u3082\u5927\u304d\u306a\u6210\u679c\u3067\u3059\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u79c1\u306f\u81ea\u5206\u304c\u3067\u304d\u308b\u3053\u3068\u3092\u5f53\u305f\u308a\u524d\u3060\u3068\u306f\u601d\u3063\u3066\u3044\u306a\u3044\u3002 \u79c1\u306f\u81ea\u5206\u306e\u969c\u5bb3\u3092\u5229\u7528\u3057\u3066\u3001\u56de\u9867\u9332\u3084\u611f\u52d5\u7684\u306a\u8b1b\u6f14\u3092\u901a\u3057\u3066\u4eba\u3005\u3092\u6559\u80b2\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n

LGMD\u306f\u968f\u610f\u7b4b\u306e\u7b4b\u529b\u3092\u596a\u3046\u304c\u3001\u77e5\u6027\u306b\u306f\u5f71\u97ff\u3057\u306a\u3044\u3002 \u8eab\u4f53\u7684\u306a\u969c\u5bb3\u3092\u6301\u3064\u3053\u3068\u306f\u975e\u5e38\u306b\u30d5\u30e9\u30b9\u30c8\u30ec\u30fc\u30b7\u30e7\u30f3\u306e\u305f\u307e\u308b\u3053\u3068\u3067\u3059\u304c\u3001\u969c\u5bb3\u3092\u7406\u7531\u306b\u4ed6\u4eba\u304b\u3089\u6279\u5224\u3055\u308c\u308b\u3053\u3068\u306f\u3001\u306f\u308b\u304b\u306b\u60aa\u3044\u3053\u3068\u3067\u3059\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u30d5\u30a3\u30ae\u30e5\u30a2\u30b9\u30b1\u30fc\u30c8\u3092\u5c65\u3044\u3066\u4f55\u6642\u9593\u3082\u6ed1\u3063\u305f\u3082\u306e\u3060\u3002 39\u5e74\u524d\u306b\u8a3a\u65ad\u3055\u308c\u305f\u3068\u304d\u3001\uff08\u62d8\u7e2e\u304c\u9032\u884c\u3057\u3066\uff09\u8e35\u306e\u8171\u304c\u4f38\u3073\u3066\u3057\u307e\u3044\u3001\u30b9\u30b1\u30fc\u30c8\u304c\u3067\u304d\u306a\u304f\u306a\u3063\u3066\u3057\u307e\u3063\u305f\u3002 \u5fc3\u304c\u6298\u308c\u305d\u3046\u306b\u306a\u3063\u305f\uff01<\/p>\n

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc \"\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30dc\u30e9\u30f3\u30c6\u30a3\u30a2\u3067\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u53c2\u52a0\u3057\u305f\u3044\u65b9\u306f\u3001\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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