{"id":1192,"date":"2016-04-30T08:00:30","date_gmt":"2016-04-30T13:00:30","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1192"},"modified":"2016-04-30T08:00:30","modified_gmt":"2016-04-30T13:00:30","slug":"rebecca","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/04\/30\/rebecca\/","title":{"rendered":"LGMD\u60a3\u8005\uff1a\u30ec\u30d9\u30c3\u30ab"},"content":{"rendered":"

04\/30\/2016 \u00a0<\/strong>LGMD \"\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\"<\/strong><\/p>\n

 <\/p>\n

\u540d\u524d<\/strong>: \u30ec\u30d9\u30c3\u30ab\u00a0\u00a0\u00a0 \u5e74\u9f62<\/strong>29\u6b73\"LGMD2A<\/a><\/p>\n

\u56fd\u540d<\/strong>: \u30aa\u30fc\u30b9\u30c8\u30e9\u30ea\u30a2<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>: LGMD2A \/ \u30ab\u30eb\u30d1\u30a4\u30f3\u969c\u5bb3<\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f26\u6b73\u306e\u3068\u304d\u306bLGMD2A\u3068\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u3068\u3057\u3066\u306f\u3001\u968e\u6bb5\u3084\u50be\u659c\u306e\u3042\u308b\u5834\u6240\u3092\u767b\u308b\u306e\u304c\u56f0\u96e3\u3067\u3001\u624b\u3092\u4f7f\u308f\u306a\u3044\u3068\u7acb\u3061\u4e0a\u304c\u308c\u306a\u3044\u3068\u3044\u3046\u3082\u306e\u304c\u3042\u3063\u305f\u3002<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

4\u4eba\u4e2d\u3001\u79c1\u4e00\u4eba\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306b\u3068\u3063\u3066\u6700\u5927\u306e\u8ab2\u984c\u306f\u75b2\u52b4\u3068\u306e\u6226\u3044\u3060\u3002 \u3084\u308a\u3059\u304e\u3068\u3001\u5341\u5206\u3067\u306a\u3044\u3053\u3068\u306e\u30d0\u30e9\u30f3\u30b9\u3092\u53d6\u308b\u306e\u304c\u672c\u5f53\u306b\u96e3\u3057\u304f\u306a\u308b\u3002 \u57fa\u672c\u7684\u306b\u6bce\u5e74\u3001\u5909\u5316\u306b\u9069\u5fdc\u3057\u3066\u3044\u308b\u3053\u3068\u304c\u308f\u304b\u3063\u305f\u3002 \u307e\u305f\u3001\u4ed6\u306e\u4eba\u304c\u81ea\u5206\u306b\u3067\u304d\u306a\u3044\u6d3b\u52d5\u3092\u3057\u3066\u3044\u308b\u306e\u3092\u898b\u305f\u3068\u304d\u306b\u3001\u81ea\u5206\u306b\u53b3\u3057\u304f\u3057\u306a\u3044\u3053\u3068\u3082\u8ab2\u984c\u3060\u3002 \u81ea\u5206\u3072\u3068\u308a\u3067\u30bf\u30b9\u30af\u3092\u3053\u306a\u305b\u306a\u3044\u3068\u304d\u306b\u52a9\u3051\u3092\u6c42\u3081\u308b\u306e\u306f\u96e3\u3057\u3044\u3053\u3068\u3060\u3002 \u75db\u307f - \u75db\u307f\u3084\u4e0d\u5feb\u611f\u3001\u3082\u308d\u3055\u3092\u611f\u3058\u305a\u306b\u76ee\u899a\u3081\u305f\u306e\u306f\u3044\u3064\u4ee5\u6765\u3060\u308d\u3046\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306e\u5a18\u306f10\u6b73\u3067\u3001\u79c1\u306e\u6700\u5927\u306e\u529f\u7e3e\u3067\u3059\u3002 \u4eba\u751f\u3067\u5f97\u610f\u3067\u306a\u3044\u3053\u3068\u3082\u3042\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u304c\u3001\u6b63\u76f4\u8a00\u3063\u3066\u6700\u9ad8\u306e\u6bcd\u89aa\u3060\u3068\u8a00\u3048\u308b\uff01 \u5a18\u306f\u79c1\u306e\u4eba\u751f\u305d\u306e\u3082\u306e\u3067\u3059\u3002 \u305d\u3057\u3066\u3001\u5a18\u304c\u6210\u9577\u3059\u308b\u306b\u3064\u308c\u3066\u3001\u3044\u308d\u3044\u308d\u306a\u610f\u5473\u3067\u79c1\u306e\u4e16\u8a71\u3092\u3057\u3066\u304f\u308c\u308b\u3088\u3046\u306b\u306a\u308a\u307e\u3057\u305f\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u8089\u4f53\u7684\u306b\u306f\u5f31\u304f\u306a\u3063\u3066\u3044\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u304c\u3001\u7cbe\u795e\u7684\u306b\u306f\u5f37\u304f\u306a\u3063\u305f\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n

\u305d\u308c\u306f\u3001\u3042\u306a\u305f\u304c\u77e5\u3063\u3066\u3044\u308b\u3053\u3068\u3092\u3059\u3079\u3066\u53d6\u308a\u53bb\u308b\u3053\u3068\u3060\u3002<\/p>\n

\u307e\u305f\u3001LGMD2A\u306e\u6cbb\u7642\u6cd5\u3092\u898b\u3064\u3051\u308b\u3053\u3068\u306b\u7126\u70b9\u3092\u5f53\u3066\u305f\u7d44\u7e54\u3067\u3042\u308bCoalition to Cure Calpain 3\u306b\u3064\u3044\u3066\u3082\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u3082\u3057\u660e\u65e5 \"\u6cbb\u3063\u305f \"\u3068\u3057\u305f\u3089\u3001\u5236\u9650\u306a\u304f\u5bb6\u65cf\u3068\u51fa\u304b\u3051\u308b\u3060\u308d\u3046\u3002 \u5a18\u3068\u8d70\u308a\u56de\u308a\u3001100\u6bb5\u306e\u968e\u6bb5\u3092\u4e0a\u308b\u3060\u308d\u3046\u3002<\/p>\n

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc \"\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30dc\u30e9\u30f3\u30c6\u30a3\u30a2\u3067\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u53c2\u52a0\u3057\u305f\u3044\u65b9\u306f\u3001\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\uff1a\u00a0 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

04\/30\/2016 \u00a0LGMD \u201cSpotlight Interview\u201d   NAME:\u00a0 Rebecca\u00a0\u00a0\u00a0 AGE: 29 years […]<\/p>","protected":false},"author":1,"featured_media":1193,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Rebecca - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/04\/30\/rebecca\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Rebecca - 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