{"id":1282,"date":"2016-07-26T15:59:21","date_gmt":"2016-07-26T20:59:21","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1282"},"modified":"2016-07-26T15:59:21","modified_gmt":"2016-07-26T20:59:21","slug":"maram","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/07\/26\/maram\/","title":{"rendered":"LGMD\u3092\u6301\u3064\u500b\u4eba\uff1a\u30de\u30e9\u30e0"},"content":{"rendered":"

07\/26\/2016 –\u00a0<\/strong>LGMD \"\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\"<\/p>\n

\u540d\u524d<\/strong>: \u30de\u30e9\u30e0\u00a0\u00a0\u00a0 \u5e74\u9f62<\/strong>26\u6b73\"LGMD2E<\/a><\/p>\n

\u56fd\u540d<\/strong>:\u30d1\u30ec\u30b9\u30c1\u30ca<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD2E<\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f10\u6b73\u3067\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u3068\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u3002 26\u6b73\u306e\u3068\u304d\u3001LGMD2E\u3067\u3042\u308b\u3053\u3068\u304c\u907a\u4f1d\u5b50\u5b66\u7684\u306b\u78ba\u8a8d\u3055\u308c\u307e\u3057\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u79c1\u304c3\u6b73\u306e\u3068\u304d\u3001\u4e21\u89aa\u306f\u79c1\u306e\u6b69\u884c\u304c\u4e0d\u5b89\u5b9a\u3067\u3001\u5730\u9762\u304b\u3089\u7acb\u3061\u4e0a\u304c\u308b\u306e\u304c\u96e3\u3057\u3044\u3053\u3068\u306b\u6c17\u3065\u3044\u305f\u3002<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u3044\u3084\u3001\u79c1\u306e\u5bb6\u65cf\u306b\u306f\u79c1\u3057\u304b\u3044\u306a\u3044\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u8ab2\u984c\u306f\u305f\u304f\u3055\u3093\u3042\u308b\u3002 \u591a\u304f\u306e\u4eba\u306b\u3068\u3063\u3066\u5358\u7d14\u306a\u3053\u3068\u304c\u79c1\u306b\u3068\u3063\u3066\u6700\u5927\u306e\u8ab2\u984c\u3060\u304c\u3001\u30c8\u30a4\u30ec\u306b\u884c\u3063\u305f\u308a\u3001\u5bdd\u3066\u3044\u308b\u9593\u306b\u4f53\u52e2\u3092\u5de6\u53f3\u306b\u5909\u3048\u305f\u308a\u3059\u308b\u3068\u3001\u3068\u3066\u3082\u5f31\u304f\u611f\u3058\u308b\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306e\u56fd\u3067\u306f\u3001\u4eba\u3005\u306fLGMD\u306b\u3064\u3044\u3066\u4f55\u3082\u77e5\u308a\u307e\u305b\u3093\u3002 \u79c1\u306f\u6bce\u65e5\u3001\u30bd\u30fc\u30b7\u30e3\u30eb\u30e1\u30c7\u30a3\u30a2\u3092\u901a\u3058\u3066\u3053\u306e\u75c5\u6c17\u306e\u8a8d\u77e5\u5ea6\u3092\u9ad8\u3081\u308b\u52aa\u529b\u3092\u3057\u3066\u3044\u307e\u3059\u3002 \u79c1\u306f\u3001\u79c1\u306e\u56fd\u3084\u30a2\u30e9\u30d6\u4e16\u754c\u306e\u591a\u304f\u306e\u60a3\u8005\u3092\u907a\u4f1d\u5b50\u691c\u67fb\u3067\u8a3a\u65ad\u3057\u3001\u79c1\u305f\u3061\u306e\u751f\u6d3b\u3092\u5c11\u3057\u3067\u3082\u697d\u306b\u3059\u308b\u305f\u3081\u306b\u5fc5\u8981\u306a\u6a5f\u5668\u3092\u624b\u306b\u5165\u308c\u308b\u624b\u52a9\u3051\u3092\u3057\u3066\u304d\u307e\u3057\u305f\u3002 \u307e\u305f\u3001\u4e16\u754c\u4e2d\u306e\u60a3\u8005\u3068\u9023\u7d61\u3092\u53d6\u308a\u5408\u3044\u3001\u89aa\u3057\u3044\u53cb\u4eba\u306b\u3082\u306a\u308a\u307e\u3057\u305f\u3002 \u5f7c\u3089\u306f\u79c1\u306e\u6700\u5927\u306e\u529f\u7e3e\u3067\u3059\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u3042\u308b\u610f\u5473\u3001\u81ea\u5206\u3092\u5f37\u304f\u3057\u3066\u304f\u308c\u305f\u3068\u601d\u3046\u3002 \u5468\u308a\u306e\u4eba\u305f\u3061\u306b\u5bfe\u3057\u3066\u3001\u3088\u308a\u601d\u3044\u3084\u308a\u304c\u6301\u3066\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002\u7d20\u6674\u3089\u3057\u3044\u5bb6\u65cf\u3092\u542b\u3081\u3001\u81ea\u5206\u306e\u4eba\u751f\u306b\u304a\u3051\u308b\u3069\u3093\u306a\u5c0f\u3055\u306a\u6075\u307f\u306b\u3082\u611f\u8b1d\u3059\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002 \u79c1\u306f\u795e\u306b\u8fd1\u3065\u3044\u305f\u3002 \u3044\u3044\u610f\u5473\u3067\u81ea\u5206\u3092\u5909\u3048\u3066\u304f\u308c\u305f\u3068\u601d\u3046\u3057\u3001\u4eca\u306e\u81ea\u5206\u304c\u597d\u304d\u3060\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n

\u79c1\u305f\u3061\u306f\u666e\u901a\u306e\u4eba\u3068\u305d\u3046\u5909\u308f\u3089\u306a\u3044\u3068\u3044\u3046\u3053\u3068\u3092\u77e5\u3063\u3066\u307b\u3057\u3044\u3002 \u5358\u7d14\u306a\u907a\u4f1d\u7684\u30a8\u30e9\u30fc\u3084\u7a81\u7136\u5909\u7570\u304c\u3001\u5f7c\u3089\u304c\u52d5\u3051\u308b\u306e\u306b\u79c1\u304c\u52d5\u304d\u306b\u304f\u3044\u539f\u56e0\u306b\u306a\u3063\u3066\u3044\u308b\u3002 \u539f\u56e0\u306f\u305d\u308c\u307b\u3069\u8907\u96d1\u3067\u306f\u306a\u3044\u3057\u3001\u305d\u308c\u3092\u7406\u89e3\u3059\u308c\u3070\u6cbb\u7642\u6cd5\u3082\u898b\u3064\u304b\u308b\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u4e21\u89aa\u3092\u5f37\u304f\u62b1\u304d\u3057\u3081\u3066\u96e2\u3057\u305f\u304f\u306a\u3044\u3002 \u4e21\u89aa\u306e\u3044\u306a\u3044\u4eba\u751f\u306f\u3069\u3093\u306a\u306b\u3064\u3089\u3044\u3060\u308d\u3046\u3063\u3066\u3002<\/p>\n

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u300d\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u4eca\u5f8c\u306e\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u5fd7\u9858\u3057\u305f\u3044\u65b9\u306f\u3001\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8https:\/\/www.lgmd-info.org\/spotlight-interviews\u3002<\/p>","protected":false},"excerpt":{"rendered":"

07\/26\/2016 –\u00a0LGMD “Spotlight Interview” NAME:\u00a0 Maram\u00a0\u00a0\u00a0 AGE: 26 years old […]<\/p>","protected":false},"author":1,"featured_media":1281,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,62],"tags":[63],"class_list":["post-1282","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2e","tag-lgmd2e-palestine"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Maram - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/07\/26\/maram\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Maram - 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