{"id":1382,"date":"2016-10-26T14:12:37","date_gmt":"2016-10-26T19:12:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1382"},"modified":"2016-10-26T14:12:37","modified_gmt":"2016-10-26T19:12:37","slug":"amie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/10\/26\/amie\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30a2\u30df\u30fc"},"content":{"rendered":"<p><strong>LGMD \"\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\"<\/strong><\/p>\n<p><strong>\u540d\u79f0<\/strong>:  \u30a2\u30df\u30fc\u00a0 <strong>\u5e74\u9f62<\/strong>:31\u6b73<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/10\/LGMD2J-Amie.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1381 alignright\" 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\"\u5973\u306e\u5b50\u3089\u3057\u304f\u6226\u3046 \"\u3053\u3068\u304c\u3067\u304d\u308b\u306e\u306f\u3001\u5f7c\u5973\u305f\u3061\u306e\u304a\u304b\u3052\u3067\u3059\uff01\u79c1\u304c\u305a\u3063\u3068\u671b\u3093\u3067\u3044\u305f\u306e\u306f\u3001\u6bcd\u89aa\u306b\u306a\u3063\u3066\u611b\u3059\u308b\u5bb6\u65cf\u3092\u6301\u3064\u3053\u3068\u3060\u3063\u305f\uff01\u79c1\u306f\u9593\u9055\u3044\u306a\u304f\u6075\u307e\u308c\u3066\u3044\u308b\uff01<\/p>\n<p><strong>LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n<p>\u79c1\u306e\u8a3a\u65ad\u306f\u304b\u306a\u308a\u65b0\u3057\u3044\u3082\u306e\u3060\u304c\u3001\u5fc3\u306e\u5e95\u3067\u306f\u5e38\u306b\u4f55\u304b\u304c\u304a\u304b\u3057\u3044\u3068\u601d\u3063\u3066\u3044\u305f\u3002\u5b9f\u306f\u795e\u7d4c\u79d1\u533b\u306e\u8a3a\u65ad\u3092\u53d7\u3051\u308b\u524d\u306b\u3001LGMD\u3068\u81ea\u5df1\u8a3a\u65ad\u3057\u3066\u3044\u305f\u3093\u3060\u3002\u3060\u304b\u3089\u3001\u691c\u67fb\u7d50\u679c\u304c\u51fa\u305f\u3068\u304d\u306f\u3001\u304e\u3053\u3061\u306a\u3044\u559c\u3073\u3092\u611f\u3058\u305f\u3002\u3084\u3063\u3068\u8a3a\u65ad\u304c\u3064\u3044\u305f\u306e\u3060\uff01\u79c1\u306f\u3001\u307e\u3060\u7b54\u3048\u304c\u898b\u3064\u304b\u3063\u3066\u3044\u306a\u3044\u7406\u7531\u304c\u3042\u3063\u3066\u3001\u3053\u306e\u75c5\u6c17\u3092\u6388\u304b\u3063\u305f\u306e\u3060\u3068\u611f\u3058\u3066\u3044\u307e\u3059\u3002\u3059\u3079\u3066\u306e\u3053\u3068\u306b\u306f\u7406\u7531\u304c\u3042\u308a\u3001\u30bf\u30a4\u30df\u30f3\u30b0\u304c\u3059\u3079\u3066\u3060\u3068\u5fc3\u304b\u3089\u4fe1\u3058\u3066\u3044\u307e\u3059\u3002LGMD\u306f\u79c1\u306e\u4f4f\u3093\u3067\u3044\u308b\u5730\u57df\u3067\u306f\u77e5\u3089\u308c\u3066\u3044\u306a\u3044\u73cd\u3057\u3044\u75c5\u6c17\u306a\u306e\u3067\u3001\u3067\u304d\u308b\u3060\u3051\u591a\u304f\u306e\u3053\u3068\u3092\u8abf\u3079\u3001\u3067\u304d\u308b\u3060\u3051\u591a\u304f\u306e\u4eba\u306b\u8a34\u3048\u3066\u3044\u304d\u305f\u3044\u3068\u601d\u3063\u3066\u3044\u307e\u3059\u3002\u305f\u3068\u3048\u7b4b\u8089\u304c\u8870\u3048\u3066\u3044\u3066\u3082\u3001\u79c1\u306f\u5f37\u3044\u3002\u79c1\u306f\u4eba\u751f\u306e\u4e9b\u7d30\u306a\u3053\u3068\u3092\u697d\u3057\u307f\u3001\u305d\u306e\u77ac\u9593\u3092\u5927\u5207\u306b\u751f\u304d\u3066\u3044\u307e\u3059\uff01\u79c1\u306f\u307e\u305f\u3001\u3069\u3093\u306a\u72b6\u6cc1\u3067\u3082\u30dd\u30b8\u30c6\u30a3\u30d6\u306a\u3082\u306e\u3092\u6c42\u3081\u307e\u3059\u3002\u30cd\u30ac\u30c6\u30a3\u30d6\u306a\u3053\u3068\u306b\u76ee\u3092\u5411\u3051\u308b\u306b\u306f\u3001\u4eba\u751f\u306f\u77ed\u3059\u304e\u308b\uff01<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n<p>43,000\u4eba\u306b1\u4eba\u304c\u56db\u80a2\u5e2f\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u3067\u3042\u308b\u3053\u3068\u3092\u4e16\u754c\u306b\u77e5\u3063\u3066\u307b\u3057\u3044\u3002\u6b8b\u5ff5\u306a\u304c\u3089\u3001\u3053\u306e\u75c5\u6c17\u306b\u306f\u6cbb\u7642\u6cd5\u304c\u3042\u308a\u307e\u305b\u3093\u3002  \u305d\u306e\u5e0c\u5c11\u6027\u3086\u3048\u306b\u3001\u7814\u7a76\u3078\u306e\u8cc7\u91d1\u63f4\u52a9\u3082\u5c11\u306a\u304f\u3001\u6cbb\u7642\u304c\u53d7\u3051\u3089\u308c\u308b\u307e\u3067\u3055\u3089\u306b\u6642\u9593\u304c\u304b\u304b\u308b\u306e\u3067\u3059\u3002LGMD\u306f\u3069\u3093\u306a\u5bb6\u65cf\u306b\u3082\u5fcd\u3073\u5bc4\u308b\u53ef\u80fd\u6027\u304c\u3042\u308a\u3001\u65e5\u5e38\u7684\u306b\u751f\u6d3b\u306b\u5f71\u97ff\u3092\u53ca\u307c\u3057\u307e\u3059\u3002\u6700\u7d42\u7684\u306b\u306f\u3001\u3053\u306e\u75c5\u6c17\u304c\u79c1\u306e\u6b69\u884c\u80fd\u529b\u3092\u596a\u3046\u3053\u3068\u306b\u306a\u308b\u3068\u601d\u3044\u307e\u3059\u304c\u3001\u79c1\u306f\u3067\u304d\u308b\u9650\u308a\u95d8\u3046\u3064\u3082\u308a\u3067\u3059\uff01<\/p>\n<p><strong>\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n<p>\u4f55\u304b\u3089\u59cb\u3081\u3088\u3046\u304b\uff1f\u5a18\u305f\u3061\u3092\u30c7\u30a3\u30ba\u30cb\u30fc\u30ef\u30fc\u30eb\u30c9\u306b\u9023\u308c\u3066\u884c\u3063\u3066\u3001\u305d\u308c\u304b\u3089\u30b3\u30ed\u30e9\u30c9\u3067\u30cf\u30a4\u30ad\u30f3\u30b0\uff01\u3067\u304d\u308b\u3053\u3068\u306a\u3089\u3001\u968e\u6bb5\u3092\u4e0a\u3063\u3066\u6b69\u304d\u305f\u3044\uff01\u8cb7\u3044\u7269\u3084\u30c0\u30f3\u30b9\u3001\u304a\u98a8\u5442\u306a\u3069\u3001\u3061\u3087\u3063\u3068\u3057\u305f\u3053\u3068\u304c\u604b\u3057\u3044\uff01\u81ea\u7531\u304c\u5931\u308f\u308c\u3066\u521d\u3081\u3066\u6c17\u3065\u304f\u3082\u306e\u3060\uff01<\/p>\n<p>&nbsp;<\/p>\n<p>LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc \"\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30dc\u30e9\u30f3\u30c6\u30a3\u30a2\u3067\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u53c2\u52a0\u3057\u305f\u3044\u65b9\u306f\u3001\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\uff1a <a href=\"https:\/\/www.lgmd-info.org\/ja\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Amie\u00a0 Age: 31 yrs old Country: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1381,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[68,16],"class_list":["post-1382","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-titinopathy","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Amie - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2016\/10\/26\/amie\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" 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