{"id":1506,"date":"2017-07-28T08:37:52","date_gmt":"2017-07-28T13:37:52","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1506"},"modified":"2017-07-28T08:37:52","modified_gmt":"2017-07-28T13:37:52","slug":"nicole","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30cb\u30b3\u30eb"},"content":{"rendered":"

\u540d\u524d<\/strong> \u30cb\u30b3\u30eb \u5e74\u9f6237<\/p>\n

\u56fd\uff1a<\/strong> \u7c73\u56fd\"\"<\/a><\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD 2J\uff08\u30bf\u30a4\u30c1\u30ce\u30d1\u30b7\u30fc\uff09<\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f24\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u5e7c\u3044\u9803\u3001\u79c1\u306f\u904b\u52d5\u304c\u82e6\u624b\u3067\u3001\u3044\u3064\u3082\u81ea\u5206\u306f\u4e0d\u5668\u7528\u306a\u3093\u3060\u3068\u601d\u3063\u3066\u3044\u305f\u3002\u5c0f\u4e2d\u5b66\u6821\u3067\u306f\u30b9\u30dd\u30fc\u30c4\u3092\u3057\u3088\u3046\u3068\u3057\u305f\u304c\u3001\u81ea\u5206\u306f\u5354\u8abf\u6027\u304c\u306a\u3055\u3059\u304e\u3066\u3001\u7d44\u7e54\u5316\u3055\u308c\u305f\u30b9\u30dd\u30fc\u30c4\u30c1\u30fc\u30e0\u306b\u306f\u5165\u308c\u306a\u3044\u3068\u3044\u3064\u3082\u601d\u3063\u3066\u3044\u305f\u300210\u4ee3\u524d\u534a\u304b\u3089\u3064\u307e\u5148\u7acb\u3061\u3067\u6b69\u304f\u3088\u3046\u306b\u306a\u308a\u3001\u305d\u308c\u304c\u968e\u6bb5\u3067\u8ee2\u3076\u539f\u56e0\u306b\u306a\u3063\u305f\u3002\u79c1\u306f\u81ea\u5206\u304c\u6975\u5ea6\u306e\u4e0d\u5668\u7528\u306a\u3060\u3051\u3060\u3068\u601d\u3044\u305f\u304b\u3063\u305f\u304c\u3001\u5fc3\u306e\u5965\u5e95\u306b\u306f\u3044\u3064\u3082\u3001\u81ea\u5206\u306f\u300c\u666e\u901a\u300d\u3067\u306f\u306a\u3044\u306e\u3060\u3068\u3044\u3046\u4f55\u304b\u304c\u3042\u3063\u305f\u30022003\u5e74\u3001\u79c1\u306f\u30b7\u30a7\u30a4\u30d7\u30a2\u30c3\u30d7\u306e\u305f\u3081\u306b\u30e9\u30f3\u30cb\u30f3\u30b0\u3092\u59cb\u3081\u3088\u3046\u3068\u601d\u3044\u7acb\u3063\u305f\u3002\u79cb\u306e#3\u3092\u8d70\u308b\u307e\u3067\u30011\u30d6\u30ed\u30c3\u30af\u306e1\/4\u3082\u8d70\u3089\u306a\u304b\u3063\u305f\u3002\u305d\u306e\u3068\u304d\u3001\u79c1\u306f\u5fc3\u306e\u4e2d\u306e\u5c0f\u3055\u306a\u58f0\u306b\u8033\u3092\u50be\u3051\u59cb\u3081\u305f\u3002<\/p>\n

LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u5bb6\u65cf\u304c\u4ed6\u306b\u3044\u307e\u3059\u304b\uff1f<\/strong>: <\/strong><\/p>\n

\u5144\u306e\u30dd\u30fc\u30eb\u3082LGMD 2J\u3060\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u308b\u4e0a\u3067\u6700\u3082\u96e3\u3057\u3044\u306e\u306f\u3001\u79c1\u306e\u5fc3\u3068\u4f53\u304c\u30b7\u30f3\u30af\u30ed\u3057\u3066\u3044\u306a\u3044\u3053\u3068\u3060\u3002\u79c1\u306e\u5fc3\u306f \"\u884c\u3051\uff01\"\u3068\u8a00\u3044\u3001\u79c1\u306e\u4f53\u306f \"\u4f55\u3092\u8003\u3048\u3066\u3044\u308b\u3093\u3060\u3001\u305d\u3093\u306a\u3053\u3068\u306f\u3067\u304d\u306a\u3044 \"\u3068\u53eb\u3076\u3002\u79c1\u306e\u982d\u306e\u4e2d\u3067\u306f\u3001\u968e\u6bb5\u3092\u4e0a\u3063\u305f\u308a\u3001\u30ad\u30e9\u30fc\u30d2\u30fc\u30eb\u3092\u5c65\u3044\u305f\u308a\u3001\u6b69\u9053\u3092\u512a\u96c5\u306b\u6b69\u3044\u305f\u308a\u3001\u98df\u6599\u54c1\u3092\u904b\u3093\u3060\u308a\u3001\u30de\u30e9\u30bd\u30f3\u3092\u8d70\u3063\u305f\u308a\u3067\u304d\u308b\u3002\u3057\u304b\u3057\u3001\u79c1\u306e\u8eab\u4f53\u306f\u305d\u308c\u306b\u540c\u610f\u3057\u306a\u3044\u3002\u79c1\u306f\u968e\u6bb5\u3092\u5168\u529b\u3067\u907f\u3051\u3001\u30d5\u30e9\u30c3\u30c8\u30b7\u30e5\u30fc\u30ba\u3092\u5c65\u304b\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3002\u96a3\u306b\u4eba\u304c\u3044\u306a\u3044\u3068\u3001\u6b69\u9053\u3092\u6b69\u304f\u3060\u3051\u3067\u8a00\u3044\u77e5\u308c\u306c\u4e0d\u5b89\u611f\u306b\u8972\u308f\u308c\u308b\u3002\u5bb6\u306b\u98df\u6599\u54c1\u3092\u904b\u3076\u306e\u306f\u3001\u81ea\u5206\u306e\u4e21\u624b\u3067\u5c71\u3092\u52d5\u304b\u305d\u3046\u3068\u3057\u3066\u3044\u308b\u3088\u3046\u306a\u6c17\u5206\u3060\u3002\u30de\u30e9\u30bd\u30f3\u3092\u8d70\u308b\u306e\u306f\u3001\u8c61\u3092\u3057\u3064\u3051\u308b\u306e\u3068\u540c\u3058\u304f\u3089\u3044\u96e3\u3057\u3044\u3002\u982d\u3067\u306f\u5341\u5206\u306a\u80fd\u529b\u304c\u3042\u308b\u3068\u8a00\u3063\u3066\u3044\u308b\u306e\u306b\u3001\u4f53\u304c\u305d\u308c\u306b\u5fdc\u3048\u3088\u3046\u3068\u3057\u306a\u3044\u3002\u307e\u305f\u3001\u884c\u3063\u305f\u3053\u3068\u306e\u306a\u3044\u5834\u6240\u306b\u8a98\u308f\u308c\u308b\u3068\u3001\u3068\u3066\u3064\u3082\u306a\u3044\u6050\u6016\u304c\u4f34\u3046\u3002\u30a4\u30d9\u30f3\u30c8\u306b\u62db\u5f85\u3055\u308c\u305f\u308a\u3001\u4ed5\u4e8b\u306e\u6253\u3061\u5408\u308f\u305b\u304c\u3042\u3063\u305f\u308a\u3001\u884c\u3063\u305f\u3053\u3068\u306e\u306a\u3044\u5834\u6240\u306b\u884c\u304b\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3068\u304d\u3001\u79c1\u306f\u30b0\u30fc\u30b0\u30eb\u30a2\u30fc\u30b9\u304c\u6700\u3082\u8eab\u8fd1\u306a\u5473\u65b9\u3067\u3042\u308b\u3053\u3068\u306b\u6c17\u3065\u304f\u3002\u30b0\u30fc\u30b0\u30eb\u30a2\u30fc\u30b9\u3067\u5efa\u7269\u306e\u914d\u7f6e\u3092\u8abf\u3079\u308b\u3002\u99d0\u8eca\u5834\u306f\u3069\u3053\uff1f\u7384\u95a2\u307e\u3067\u3069\u308c\u304f\u3089\u3044\u306e\u8ddd\u96e2\u3092\u6b69\u304b\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u306e\u304b\uff1f\u7384\u95a2\u306b\u6bb5\u5dee\u3084\u30b9\u30ed\u30fc\u30d7\u306f\u3042\u308b\u304b\uff1f\u5730\u5f62\u7684\u306b\u30ca\u30d3\u30b2\u30fc\u30b7\u30e7\u30f3\u3092\u59a8\u3052\u305d\u3046\u306a\u3082\u306e\u306f\u306a\u3044\u304b\uff1f\u30ea\u30b5\u30fc\u30c1\u306f\u5f79\u306b\u7acb\u3064\u304c\u3001\u300c\u65b0\u3057\u3044\u5834\u6240\u300d\u306b\u3064\u304d\u3082\u306e\u306e\u6050\u6016\u5fc3\u306f\u3001\u3053\u3046\u3057\u305f\u4e8b\u524d\u5bfe\u7b56\u3067\u306f\u307b\u3093\u306e\u5c11\u3057\u3057\u304b\u6e1b\u3089\u306a\u3044\u3002\u79c1\u306b\u3068\u3063\u3066\u306f\u3001\u305d\u306e\u3068\u304d\u304c\u672c\u5f53\u306e\u6050\u6016\u306a\u306e\u3060\u3002\u4e0a\u8a18\u306e\u5404\u8ab2\u984c\u4ee5\u4e0a\u306b\u79c1\u306e\u6700\u5927\u306e\u8ab2\u984c\u306f\u3001\u52a9\u3051\u3092\u6c42\u3081\u308b\u5fc5\u8981\u304c\u3042\u308b\u3053\u3068\u3092\u8a8d\u3081\u308b\u3053\u3068\u3060\u3002\u30b4\u30df\u51fa\u3057\u3001\u96fb\u7403\u306e\u4ea4\u63db\u3001\u624b\u3059\u308a\u306e\u306a\u3044\u968e\u6bb5\u306e\u6607\u308a\u964d\u308a\u3001\u3064\u304b\u307e\u308b\u3082\u306e\u306e\u306a\u3044\u6b69\u9053\u3001\u6905\u5b50\u304b\u3089\u7acb\u3061\u4e0a\u304c\u308b\u3053\u3068\u3001\u90e8\u5c4b\u3092\u6a2a\u5207\u308b\u3053\u3068\u3055\u3048\u3082\u3002<\/p>\n

\u4f53\u304c\u52d5\u3044\u3066\u3044\u3066\u3001\u975e\u5354\u529b\u7684\u306a\u306e\u306f\u5fc3\u3060\u3063\u305f\u3089\u3001\u3082\u3063\u3068\u697d\u306a\u306e\u306b\u3068\u3088\u304f\u601d\u3046\u3002\u76ee\u306e\u524d\u306e\u30bf\u30b9\u30af\u304c\u65e5\u5e38\u7684\u306a\u3053\u3068\u3060\u3068\u982d\u3067\u308f\u304b\u3063\u3066\u3044\u3066\u3082\u3001\u52a9\u3051\u3092\u6c42\u3081\u308b\u306e\u306f\u96e3\u3057\u3044\u3002<\/p>\n

LGMD\u306b\u306f\u52dd\u3066\u306a\u3044\u3068\u3044\u3046\u3053\u3068\u3092\u81ea\u5206\u306b\u8a3c\u660e\u3057\u305f\u3044--\u3053\u306e\u75c5\u6c17\u306b\u6253\u3061\u52dd\u3064\u65b9\u6cd5\u304c\u3042\u308b\u3068\u3044\u3046\u3053\u3068\u3092\u3002\u305d\u306e\u77ac\u9593\u304c\u6765\u308b\u3068\u3001\u79c1\u306f\u81ea\u5206\u3092\u8ffd\u3044\u8fbc\u307f\u3059\u304e\u3066\u3057\u307e\u3046\u3002\u6700\u7d42\u7684\u306b\u306f\u30d9\u30c3\u30c9\u306b\u5bdd\u305f\u304d\u308a\u306b\u306a\u308a\u3001\u75db\u307f\u304c\u7d9a\u304f\u3068\u308f\u304b\u3063\u3066\u3044\u308b\u3053\u3068\u3092\u3084\u3063\u3066\u3057\u307e\u3046\u3002\u79c1\u306b\u3068\u3063\u3066\u3001\u3053\u306e\u75c5\u6c17\u306f\u5468\u671f\u7684\u306a\u3082\u306e\u3060\u3002\u3084\u308c\u3070\u3084\u308b\u307b\u3069\u75db\u3080\u3002\u3084\u308c\u3070\u3084\u308b\u307b\u3069\u75db\u304f\u306a\u308a\u3001\u3084\u3089\u306a\u3051\u308c\u3070\u3084\u3089\u306a\u3044\u307b\u3069\u3001\u81ea\u5206\u306e\u80fd\u529b\u304c\u5341\u5206\u3067\u306a\u3044\u3068\u81ea\u5206\u3092\u8cac\u3081\u308b\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u4f53\u529b\u9762\u3067\u3082\u7cbe\u795e\u9762\u3067\u3082\u3001\u79c1\u306e\u6700\u5927\u306e\u9054\u6210\u611f\u306f2013\u5e74\u306b5\u30ad\u30ed\u306e\u30ab\u30e9\u30fc\u30e9\u30f3\u3092\u5b8c\u8d70\u3057\u305f\u3053\u3068\u3060\u3002\u79c1\u306f \"\u3053\u308c\u4ee5\u4e0a\u9032\u3081\u306a\u3044 \"\u3068\u4f55\u5ea6\u3082\u8a00\u3063\u305f\u304b\u3082\u3057\u308c\u306a\u3044\u3002\u30b4\u30fc\u30eb\u30e9\u30a4\u30f3\u3092\u6700\u5f8c\u306b\u901a\u904e\u3057\u305f\u306e\u306f\u79c1\u3060\u3063\u305f\u304b\u3082\u3057\u308c\u306a\u3044\u3002\u3057\u304b\u3057\u3001\u79c1\u306f\u30ec\u30fc\u30b9\u3092\u30b9\u30bf\u30fc\u30c8\u3057\u3001\u89d2\u3092\u4e00\u672c\u3082\u66f2\u304c\u3089\u305a\u306b\u5b8c\u8d70\u3057\u305f\u306e\u3060\u3002<\/p>\n

\u500b\u4eba\u7684\u306b\u306f\u3001\u6700\u8fd1\u306e\u52d5\u304d\u3092\u975e\u5e38\u306b\u8a87\u308a\u306b\u601d\u3063\u3066\u3044\u308b\u3002LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u3068\u3001\u4ed6\u306e\u4eba\u305f\u3061\u304b\u3089\u306e\u52a9\u3051\u304c\u5fc5\u8981\u306b\u306a\u308b\u3002\u79c1\u306f\u305d\u308c\u3092\u53d7\u3051\u5165\u308c\u3064\u3064\u3082\u3001\u305d\u308c\u306b\u3088\u3063\u3066\u81ea\u5206\u306e\u751f\u304d\u65b9\u3092\u6c7a\u3081\u308b\u3053\u3068\u306f\u3057\u306a\u3044\u3002\u79c1\u306f\u6700\u8fd1\u3001\u77e5\u308a\u5408\u3044\u5168\u54e1\u304b\u3089900\u30de\u30a4\u30eb\uff08\u7d048.6km\uff09\u96e2\u308c\u305f\u5834\u6240\u306b\u5358\u8eab\u5f15\u3063\u8d8a\u3057\u305f\u3002\u79c1\u306f\u81ea\u5206\u306e \"\u7b4b\u8089 \"\u3092\u7f6e\u304d\u53bb\u308a\u306b\u3057\u3001\u3059\u3079\u3066\u3092\u8377\u9020\u308a\u3057\u3001\u81ea\u5206\u304c\u3069\u308c\u3060\u3051\u5065\u5e38\u8005\u3067\u3042\u308b\u304b\u3092\u77e5\u308b\u305f\u3081\u306b\u306f\u3001\u672c\u5f53\u306b\u4e00\u4eba\u3067\u98db\u3073\u7acb\u3064\u3057\u304b\u306a\u3044\u3068\u6c7a\u5fc3\u3057\u305f\u3002<\/p>\n

\u4ed5\u4e8b\u4e0a\u3067\u306f\u3001\u30e1\u30ea\u30fc\u30e9\u30f3\u30c9\u5dde\u306e\u5973\u6027\u30c8\u30c3\u30d7100\u3068\u30de\u30a4\u30ce\u30ea\u30c6\u30a3\u30fb\u30d3\u30b8\u30cd\u30b9\u30fb\u30a8\u30f3\u30bf\u30fc\u30d7\u30e9\u30a4\u30ba\u306e\u30c8\u30c3\u30d7100\u306b\u9078\u3070\u308c\u307e\u3057\u305f\u3002MD\u304c\u9032\u6b69\u3059\u308b\u4e2d\u3067\u30d7\u30ed\u3068\u3057\u3066\u306e\u30a2\u30a4\u30c7\u30f3\u30c6\u30a3\u30c6\u30a3\u3092\u7dad\u6301\u3059\u308b\u3053\u3068\u306f\u3001\u79c1\u306b\u3068\u3063\u3066\u521d\u65e5\u304b\u3089\u306e\u512a\u5148\u4e8b\u9805\u3067\u3057\u305f\u306e\u3067\u3001\u81ea\u5206\u306e\u4ed5\u4e8b\u3092\u975e\u5e38\u306b\u8a87\u308a\u306b\u601d\u3063\u3066\u3044\u307e\u3059\u3002 \u307e\u305f\u30012016\u5e74\u306b\u306fMDA\u52c7\u6c17\u8cde\u3092\u53d7\u8cde\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3057\u305f\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f <\/strong><\/p>\n

LGMD\u3092\u60a3\u3063\u305f\u3053\u3068\u3067\u3001\u4ed6\u4eba\u3078\u306e\u601d\u3044\u3084\u308a\u3084\u5171\u611f\u306b\u5927\u304d\u306a\u5f71\u97ff\u3092\u53d7\u3051\u305f\u3002\u6c17\u5206\u304c\u512a\u308c\u306a\u3044\u3053\u3068\u306e\u610f\u5473\u3092\u5341\u5206\u306b\u7406\u89e3\u3057\u3066\u3044\u308b\u3002\u5e38\u306b\u50b7\u3064\u304d\u3001\u75db\u307f\u306b\u8010\u3048\u3066\u3044\u308b\u3068\u3001\u6d88\u8017\u3057\u3066\u3057\u307e\u3046\u3053\u3068\u3082\u7406\u89e3\u3057\u3066\u3044\u307e\u3059\u3002\u5e38\u65e5\u9803\u3001\u81ea\u5206\u81ea\u8eab\u306b\u5bfe\u3059\u308b\u5fcd\u8010\u529b\u3092\u5931\u3063\u3066\u3044\u307e\u3059\u304c\u3001LGMD\u3092\u60a3\u3063\u305f\u3053\u3068\u3067\u3001\u8a3a\u65ad\u3055\u308c\u308b\u524d\u306b\u306f\u6301\u3063\u3066\u3044\u306a\u304b\u3063\u305f\u3001\u4ed6\u4eba\u306b\u5bfe\u3059\u308b\u5fcd\u8010\u529b\u3092\u6301\u3064\u3053\u3068\u304c\u3067\u304d\u305f\u3068\u601d\u3063\u3066\u3044\u307e\u3059\u3002<\/p>\n

\u3053\u306e\u8a3a\u65ad\u306b\u4f34\u3046\u3042\u3089\u3086\u308b\u56f0\u96e3\u306e\u4e2d\u3067\u3001\u79c1\u306f\u81ea\u5206\u306e\u9650\u754c\u306b\u3064\u3044\u3066\u30e6\u30fc\u30e2\u30a2\u306e\u611f\u899a\u3092\u4fdd\u3064\u3088\u3046\u52aa\u529b\u3057\u3066\u3044\u308b\u3002\u5bb6\u65cf\u3084\u53cb\u4eba\uff08\u305d\u3057\u3066\u81ea\u5206\u81ea\u8eab\u306b\u3082\u8a00\u3048\u308b\u3053\u3068\u3060\u304c\uff09\u306e\u7cbe\u795e\u7684\u30fb\u8089\u4f53\u7684\u8ca0\u62c5\u3092\u8efd\u304f\u3059\u308b\u3053\u3068\u304c\u3067\u304d\u308b\u306e\u3067\u3042\u308c\u3070\u3001\"\u4eca\u65e5\u306f\u3072\u3069\u3044\u6c17\u5206\u3060 \"\u3067\u306f\u306a\u304f\u3001\"\u4eca\u65e5\u306f\u30bf\u30b3\u304c\u6307\u306c\u304d\u306b\u5165\u308d\u3046\u3068\u3057\u3066\u3044\u308b\u3088\u3046\u306a\u6c17\u5206\u3060 \"\u3068\u8a00\u3046\u306e\u304c\u30d9\u30b9\u30c8\u3060\u3002<\/p>\n

LGMD\u306f\u307e\u305f\u3001\u5275\u9020\u6027\u3092\u3082\u3063\u3066\u72b6\u6cc1\u306b\u5bfe\u51e6\u3059\u308b\u80fd\u529b\u3082\u57f9\u3063\u3066\u304d\u305f\u3002\"\u3067\u304d\u306a\u3044 \"\u3068\u3055\u3055\u3084\u304f\u5c0f\u3055\u306a\u58f0\u306b\u5c11\u3057\u529b\u3092\u4e0e\u3048\u308b\u3060\u3051\u3067\u3001\u79c1\u306f\u3059\u3079\u3066\u3092 \"\u578b\u7834\u308a\u306a\u65b9\u6cd5\u3092\u53d6\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u304c\u3001\u3067\u304d\u308b \"\u306b\u5909\u3048\u308b\u3088\u3046\u306b\u3057\u3066\u3044\u308b\u3002\u5065\u5e38\u8005\u3068\u540c\u3058\u65b9\u6cd5\u3067A\u5730\u70b9\u304b\u3089B\u5730\u70b9\u306b\u5230\u9054\u3059\u308b\u3053\u3068\u306f\u3067\u304d\u306a\u3044\u304b\u3082\u3057\u308c\u306a\u3044\u304c\u3001\u3069\u3093\u306a\u306b\u7a81\u98db\u306a\u65b9\u6cd5\u3067\u3042\u308d\u3046\u3068\u3001\u79c1\u306f\u7269\u4e8b\u3092\u6210\u3057\u9042\u3052\u308b\u65b9\u6cd5\u3092\u898b\u3064\u3051\u308b\u3060\u308d\u3046\u3002<\/p>\n

\u4e16\u754c\u306b\u4f55\u3092\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u304b<\/strong> \u672c\u571f\u30df\u30b5\u30a4\u30eb\u9632\u885b<\/strong>:<\/p>\n

\u79c1\u306f \"\u30a4\u30f3\u30b9\u30d4\u30ec\u30fc\u30b7\u30e7\u30f3 \"\u3067\u306f\u306a\u3044\uff1a \u79c1\u304cLGMD\u3068\u3068\u3082\u306b\u6bce\u65e5\u3092\u751f\u304d\u3066\u3044\u308b\u304b\u3089\u3068\u3044\u3063\u3066\u3001\u79c1\u304c\u3042\u3089\u3086\u308b\u4eba\u306b\u30a4\u30f3\u30b9\u30d4\u30ec\u30fc\u30b7\u30e7\u30f3\u3092\u4e0e\u3048\u3066\u3044\u308b\u308f\u3051\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3002LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u4eba\u306b\u3001\u30e6\u30fc\u30e2\u30a2\u3068\u6c7a\u610f\u3092\u3082\u3063\u3066\u8a3a\u65ad\u306b\u81e8\u3080\u3088\u3046\u4fc3\u3059\u3053\u3068\u306f\u3067\u304d\u308b\u3060\u308d\u3046\u304b\uff1f\u3082\u3061\u308d\u3093\u3067\u3059\u3002\u3067\u3082\u3001LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u304b\u3089\u3001\u305d\u3057\u3066\u81ea\u5206\u306e\u4eba\u751f\u3092\u751f\u304d\u7d9a\u3051\u3066\u3044\u308b\u304b\u3089\u3068\u8a00\u3063\u3066\u3001\u79c1\u304c\u751f\u307e\u308c\u306a\u304c\u3089\u306b\u3057\u3066\u30a4\u30f3\u30b9\u30d4\u30ec\u30fc\u30b7\u30e7\u30f3\u3092\u4e0e\u3048\u3066\u3044\u308b\u308f\u3051\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u79c1\u306fLGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u5973\u6027\u3067\u3042\u308a\u3001\u4eba\u751f\u306e\u3055\u307e\u3056\u307e\u306a\u56f0\u96e3\u306b\u9069\u5fdc\u3057\u3066\u3044\u308b\u4eba\u305f\u3061\u3068\u540c\u3058\u3088\u3046\u306b\u3001\u81ea\u5206\u306e\u5883\u9047\u306b\u9069\u5fdc\u3057\u3066\u3044\u308b\u3002\u8155\u306e\u9aa8\u3092\u6298\u3063\u305f\u4eba\u306f\u3001\u77ed\u671f\u9593\u3067\u3082\u9055\u3046\u3084\u308a\u65b9\u3092\u5b66\u3070\u306a\u3051\u308c\u3070\u306a\u308a\u307e\u305b\u3093\u3002\u540c\u3058\u3088\u3046\u306b\u3001\u79c1\u3082\u6bce\u65e5\u3001\u3069\u3046\u3059\u308c\u3070\u9069\u5fdc\u3067\u304d\u308b\u304b\u3092\u5b66\u3093\u3067\u3044\u308b......\u305d\u3057\u3066\u518d\u9069\u5fdc\u3057\u3066\u3044\u308b\u3002\u79c1\u3068\u8155\u3092\u9aa8\u6298\u3057\u305f\u4eba\u3068\u306e\u552f\u4e00\u306e\u9055\u3044\u306f\u3001\u6700\u7d42\u7684\u306b\u306f\u30ae\u30d7\u30b9\u304c\u5916\u308c\u3001\u8155\u306e\u6a5f\u80fd\u3092\u5b8c\u5168\u306b\u53d6\u308a\u623b\u3059\u3053\u3068\u304c\u3067\u304d\u308b\u3068\u3044\u3046\u3053\u3068\u3067\u3059\u3002LGMD\u306f\u9032\u884c\u6027\u306a\u306e\u3067\u3001\u79c1\u306f\u5e38\u306b\u518d\u8abf\u6574\u306e\u6642\u671f\u306b\u3042\u308b\u3002<\/p>\n

\u79c1\u306e\uff08\u3042\u308b\u3044\u306f\u8ab0\u306e\uff09\u80fd\u529b\u306b\u3064\u3044\u3066\u6c7a\u3081\u3064\u3051\u306a\u3044\u3067\u307b\u3057\u3044\uff1a\u00a0 <\/strong>\u5ea7\u3063\u3066\u3044\u308b\u3068\u304d\u306f\u300c\u666e\u901a\u300d\u306b\u898b\u3048\u308b\u4eba\u3092\u898b\u3066\u3082\u3001\u5224\u65ad\u3092\u4fdd\u7559\u3057\u3066\u304f\u3060\u3055\u3044\u3002\u305d\u306e\u4eba\u304c\u7acb\u3063\u305f\u3068\u304d\u306b\u3069\u3093\u306a\u56f0\u96e3\u306b\u76f4\u9762\u3057\u3066\u3044\u308b\u304b\u308f\u304b\u308a\u307e\u305b\u3093\u3002\u8eca\u6905\u5b50\u306b\u4e57\u3063\u3066\u3044\u305f\u308a\u3001\u88dc\u52a9\u5668\u5177\u3092\u4f7f\u7528\u3057\u3066\u3044\u308b\u4eba\u3092\u898b\u304b\u3051\u305f\u3089\u3001\u79c1\u305f\u3061\u306f\u8033\u304c\u9060\u3044\u3001\u7518\u3048\u308b\u5fc5\u8981\u304c\u3042\u308b\u3001\u540c\u60c5\u3084\u54c0\u308c\u307f\u3092\u6c42\u3081\u3066\u3044\u308b\u306a\u3069\u3068\u6c7a\u3081\u3064\u3051\u306a\u3044\u3067\u304f\u3060\u3055\u3044\u3002\u3053\u308c\u306f\u79c1\u305f\u3061\u306e \"\u666e\u901a \"\u3067\u3042\u308a\u3001\u56f0\u96e3\u3067\u306f\u3042\u308a\u307e\u3059\u304c\u3001\u79c1\u305f\u3061MD\u60a3\u8005\u3092\u4ed6\u306e\u4eba\u3068\u540c\u3058\u3088\u3046\u306b\u6271\u3046\u5fc5\u8981\u306f\u3042\u308a\u307e\u305b\u3093\u3002<\/p>\n

\u79c1\u304c\u52a9\u3051\u3092\u5fc5\u8981\u3068\u3057\u3066\u3044\u308b\u3068\u601d\u308f\u306a\u3044\u3067\u304f\u3060\u3055\u3044\uff1aLGMD\u3068\u3068\u3082\u306b\u751f\u304d\u308b\u3068\u3044\u3046\u3053\u3068\u306f\u3001\u4e00\u898b\u7c21\u5358\u306a\u3053\u3068\u3067\u3082\u3001\u6642\u306b\u306f\u52a9\u3051\u3092\u6c42\u3081\u308b\u5fc5\u8981\u304c\u3042\u308b\u3068\u3044\u3046\u3053\u3068\u3060\u3002\u3060\u304b\u3089\u3068\u3044\u3063\u3066\u3001\u79c1\u306b\u52a9\u3051\u304c\u5fc5\u8981\u3060\u3068\u6c7a\u3081\u3064\u3051\u308b\u306e\u306f......\u4fae\u8fb1\u3067\u3059\u3002\u78ba\u304b\u306b\u3001\u79c1\u306f\u3042\u306a\u305f\u304c\u671b\u3080\u3088\u3046\u306b\u7d20\u65e9\u304f\u3001\u3042\u308b\u3044\u306f\u512a\u96c5\u306b\u4f55\u304b\u3092\u3059\u308b\u3053\u3068\u306f\u3067\u304d\u306a\u3044\u304b\u3082\u3057\u308c\u307e\u305b\u3093\u3002\u3057\u304b\u3057\u3001\u305d\u308c\u306f\u79c1\u304c\u305d\u308c\u3092\u3067\u304d\u306a\u3044\u3068\u3044\u3046\u610f\u5473\u3067\u306f\u306a\u3044\u3002\u79c1\u306b\u3084\u3089\u305b\u3066\u304f\u3060\u3055\u3044--\u3042\u306a\u305f\u306e\u52a9\u3051\u304c\u5fc5\u8981\u306a\u3089\u983c\u307f\u307e\u3059\u3002\u7c21\u5358\u306a\u3053\u3068\u3060\u3002\u305d\u3057\u3066\u3001\u3082\u3057\u79c1\u304c\u7121\u7406\u3092\u3057\u3066\u3067\u3082\u3001\u3042\u306a\u305f\u304c\u79c1\u306b\u3067\u304d\u306a\u3044\u3068\u601d\u3046\u3053\u3068\u306b\u6311\u6226\u3057\u305f\u3044\u306e\u306a\u3089\u3001\u305d\u3046\u3055\u305b\u3066\u307b\u3057\u3044\uff01\u305d\u308c\u3067\u3046\u307e\u304f\u3044\u304b\u306a\u304b\u3063\u305f\u3068\u3057\u3066\u3082\u3001\u305d\u308c\u304c\u3069\u3046\u3057\u305f\u3002\u79c1\u306b\u3068\u3063\u3066\u306f\u3001\u305d\u308c\u306f\u5931\u6557\u3067\u306f\u306a\u3044\u3002\u6311\u6226\u3057\u305f\u3068\u3044\u3046\u3053\u3068\u3067\u3042\u308a\u3001\u305d\u308c\u3067\u5341\u5206\u306a\u65e5\u3082\u3042\u308b\u3002<\/p>\n

\u8cea\u554f\u3059\u308b\u3053\u3068\u3092\u6050\u308c\u3066\u306f\u3044\u3051\u306a\u3044\uff1a\u00a0 <\/strong>\u77e5\u8b58\u306f\u529b\u3067\u3042\u308b\u3002\u77e5\u8b58\u306f\u7406\u89e3\u3067\u3042\u308b\u3002\u77e5\u8b58\u306f\u601d\u3044\u3084\u308a\u3002MD\u306b\u95a2\u3059\u308b\u8cea\u554f\u306f\u4e0d\u5feb\u3067\u306f\u306a\u3044\u3002\u3042\u306a\u305f\u304c\u79c1\u3092\u898b\u3064\u3081\u3066\u3044\u308b\u306e\u3092\u898b\u3066\u3001\u79c1\u306e\u65e5\u5e38\u751f\u6d3b\u304c\u3069\u3093\u306a\u3082\u306e\u306a\u306e\u304b\u3068\u601d\u3063\u3066\u3044\u308b\u3053\u3068\u3092\u77e5\u308b\u306e\u306f\u4e0d\u5feb\u306a\u3053\u3068\u3060\u3002\u4e0d\u5feb\u306a\u306e\u306f \u60f3\u5b9a\u3059\u308b <\/em>\u3042\u306a\u305f\u306f\u79c1\u306e\u4eba\u751f\u304c\u3069\u3093\u306a\u3082\u306e\u304b\u77e5\u3063\u3066\u3044\u308b\u3002\u79c1\u306e\u56f0\u96e3\u3092\u7406\u89e3\u3057\u3066\u304f\u308c\u308b\u3068\u306f\u601d\u3063\u3066\u3044\u306a\u3044\u3002LGMD\u3068\u66ae\u3089\u3057\u305f\u3053\u3068\u306e\u306a\u3044\u3042\u306a\u305f\u306b\u306f\u308f\u304b\u3089\u306a\u3044\u3067\u3057\u3087\u3046......\u3069\u3046\u3057\u3066\u308f\u304b\u308b\u306e\uff1f\u4f55\u3067\u3082\u805e\u3044\u3066\u304f\u3060\u3055\u3044\uff01MD\u306b\u8a73\u3057\u3044\u4eba\u305f\u3061\u306b\u56f2\u307e\u308c\u3066\u3044\u308b\u3053\u3068\u3067\u3001\u79c1\u306e\u751f\u6d3b\u306f\u5c11\u3057\u306f\u697d\u306b\u306a\u3063\u3066\u3044\u308b-\u3067\u3082\u3001\u805e\u304b\u306a\u3051\u308c\u3070\u308f\u304b\u3089\u306a\u3044\u3002 \u76ee\u3092\u305d\u3089\u3057\u3066\u79c1\u3092\u54c0\u308c\u307e\u306a\u3044\u3067\u304f\u3060\u3055\u3044-\u81ea\u5df1\u7d39\u4ecb\u3057\u3066\u3001\u3042\u306a\u305f\u304c\u6301\u3063\u3066\u3044\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u3069\u3093\u306a\u71c3\u3048\u308b\u8cea\u554f\u3067\u3082\u5c0b\u306d\u3066\u304f\u3060\u3055\u3044\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u8d70\u308b\u3002\u30e9\u30f3\u30cb\u30f3\u30b0\u30b7\u30e5\u30fc\u30ba\u3092\u5c65\u3044\u3066\u3001\u811a\u3068\u80ba\u304c\u8a31\u3059\u9650\u308a\u901f\u304f\u3001\u9060\u304f\u307e\u3067\u8d70\u308b\u3002\u305d\u306e\u5f8c\u3001\u7d20\u6674\u3089\u3057\u3044\u30d2\u30fc\u30eb\u3092\u5c65\u3044\u3066\u3001\u4e00\u6669\u4e2d\u8e0a\u3063\u305f\u3002\u30c0\u30f3\u30b9......\u30c0\u30f3\u30b9\u304c\u4e00\u756a\u61d0\u304b\u3057\u3044\uff01<\/p>\n

 <\/p>\n

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc \"\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30dc\u30e9\u30f3\u30c6\u30a3\u30a2\u3067\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u53c2\u52a0\u3057\u305f\u3044\u65b9\u306f\u3001\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name: Nicole\u00a0\u00a0 AGE: 37 COUNTRY: United States LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":1505,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[78],"class_list":["post-1506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Nicole - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Nicole - 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