{"id":1618,"date":"2017-10-16T19:18:11","date_gmt":"2017-10-17T00:18:11","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1618"},"modified":"2017-10-16T19:18:11","modified_gmt":"2017-10-17T00:18:11","slug":"vicki","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2017\/10\/16\/vicki\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30f4\u30a3\u30c3\u30ad\u30fc"},"content":{"rendered":"

LGMD \"\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\"<\/strong><\/span><\/p>\n

\u540d\u79f0<\/strong><\/span>:\u00a0 \u30f4\u30a3\u30c3\u30ad\u30fc \u00a0\u00a0\u5e74\u9f62<\/strong>:44\u6b73\"\"<\/a><\/span><\/p>\n

\u56fd\u540d<\/strong>: \u30ab\u30ca\u30c0<\/span><\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>: LGMD2A \/ \u30ab\u30eb\u30d1\u30a4\u30f3\u969c\u5bb3<\/span><\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:\u00a0<\/span><\/p>\n

\u79c1\u306f22\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/span><\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/span><\/p>\n

\u79c1\u306f\u968e\u6bb5\u306e\u6607\u308a\u964d\u308a\u304c\u56f0\u96e3\u3060\u3063\u305f\u3002 \u533b\u5e2b\u306f\u3001\u8db3\u9996\u306e\u8171\u304c\u77ed\u3044\u3068\u8a00\u3044\u3001\u30bb\u30ab\u30f3\u30c9\u30aa\u30d4\u30cb\u30aa\u30f3\u3068\u3057\u3066\u795e\u7d4c\u79d1\u533b\u306b\u8a3a\u3066\u3082\u3089\u3063\u305f\u3002 <\/span>\u65b9\u6cd5 \u77ed\u304b\u3063\u305f\u3093\u3067\u3059\u3002 \u795e\u7d4c\u79d1\u533b\u304c\u30e2\u30f3\u30c8\u30ea\u30aa\u30fc\u30eb\u3067\u7b4b\u751f\u691c\u3092\u53d7\u3051\u3055\u305b\u307e\u3057\u305f\u3002<\/span><\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f\u00a0 <\/strong><\/span><\/p>\n

\u3044\u3044\u3048\u3001\u79c1\u306e\u5bb6\u65cf\u3067LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u306e\u306f\u79c1\u3060\u3051\u3067\u3059\u3002<\/span><\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:\u00a0<\/span><\/p>\n

\u5bb6\u306e\u4e2d\u3067\u4e00\u4eba\u3067\u81ea\u7acb\u3057\u3066\u3044\u308b\u3053\u3068\u3001\u5730\u57df\u793e\u4f1a\u3084\u53cb\u4eba\u3068\u30a2\u30af\u30c6\u30a3\u30d6\u306b\u904e\u3054\u3059\u3053\u3068\u3002 \u65b0\u3057\u3044\u5834\u6240\u306b\u884c\u304f\u8a08\u753b\u3092\u7acb\u3066\u308b\u306e\u306f\u96e3\u3057\u3044\u3002 \u8eca\u6905\u5b50\u3067\u884c\u3051\u308b\u304b\u3069\u3046\u304b\u78ba\u8a8d\u3057\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3057\u3001\u6d17\u9762\u6240\u306e\u8a2d\u5099\u306b\u3064\u3044\u3066\u3082\u805e\u304b\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3002 \u4f55\u6c17\u306a\u3044\u3053\u3068\u304c\u3067\u304d\u306a\u304b\u3063\u305f\u308a\u3001\u884c\u304d\u305f\u3044\u5834\u6240\u306b\u884c\u3051\u306a\u304b\u3063\u305f\u308a\u3001\u4eba\u524d\u3067\u4ed6\u306e\u4eba\u304c\u7c21\u5358\u306b\u52d5\u3044\u3066\u3044\u308b\u306e\u3092\u898b\u305f\u308a\u3059\u308b\u3060\u3051\u3067\u3082\u3001\u524d\u5411\u304d\u306b\u306a\u308b\u306e\u306f\u96e3\u3057\u3044\u3002\u00a0<\/span><\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/span><\/p>\n

\u592b\u306e\u30c7\u30a3\u30fc\u30f3\u3068\u606f\u5b50\u306e\u30bf\u30a4\u30e9\u30fc\u3002 \u5f7c\u3089\u306f\u79c1\u306e\u751f\u304d\u7532\u6590\u3067\u3042\u308a\u3001\u4f55\u3067\u3082\u3067\u304d\u308b\u3088\u3046\u306a\u6c17\u6301\u3061\u306b\u3055\u305b\u3066\u304f\u308c\u308b\u3002 \u79c1\u306f\u3068\u3066\u3082\u6075\u307e\u308c\u3066\u3044\u308b\u3002 \u307e\u305f\u3001\u79c1\u306fMD\u306e\u8cc7\u91d1\u8abf\u9054\u306b\u3082\u5927\u304d\u306a\u8a87\u308a\u3092\u6301\u3063\u3066\u3044\u308b\u3002 MD\u3067\u306f <\/span>\u904e\u53bb\u6bce\u5e74\u30aa\u30fc\u30af\u30b7\u30e7\u30f3\u3092\u958b\u50ac\u3057\u305f\u308a\u3001FB\u306e\u30aa\u30f3\u30e9\u30a4\u30f3\u30aa\u30fc\u30af\u30b7\u30e7\u30f3\u3001\u5ead\u5148\u3067\u306e\u8ca9\u58f2\u3001\u62bd\u9078\u4f1a\u306a\u3069\u3092\u884c\u3063\u3066\u304d\u305f\u3002 \u6700\u8fd1\u306e\u79c1\u306e\u30a2\u30a4\u30c7\u30a2\u306f\u3001\u30d5\u30a7\u30eb\u30c8\u306e\u30aa\u30fc\u30ca\u30e1\u30f3\u30c8\u3092\u4f5c\u3063\u3066\u58f2\u308b\u3053\u3068\u3067\u3059\u3002 2016\u5e741\u6708\u304b\u3089\u4f5c\u308a\u59cb\u3081\u307e\u3057\u305f\u3002 \u30d1\u30bf\u30fc\u30f3\u3092\u30c7\u30b6\u30a4\u30f3\u3057\u3001\u30d5\u30a7\u30eb\u30c8\u306b\u5207\u308a\u629c\u304d\u3001\u624b\u7e2b\u3044\u3067\u7e2b\u3044\u5408\u308f\u305b\u3066\u3001\u30d5\u30a7\u30a4\u30b9\u30d6\u30c3\u30af\u3067\u8ca9\u58f2\u3057\u3066\u3044\u307e\u3059\u3002\u81ea\u5206\u306eFB\u30da\u30fc\u30b8\u3092\u6301\u3063\u3066\u3044\u307e\u3059\uff1a\u300cVicki's Handmade Ornaments for MD \"\u3067\u3059\u3002 \u592b\u3068\u79c1\u306f\u3001\u30aa\u30fc\u30ca\u30e1\u30f3\u30c8\u3092\u4f5c\u308b\u305f\u3081\u306e\u3059\u3079\u3066\u306e\u6750\u6599\u3092\u5bc4\u4ed8\u3057\u3001\u540d\u523a\u307e\u3067\u3044\u305f\u3060\u304d\u307e\u3057\u305f\u3002 \u30aa\u30fc\u30ca\u30e1\u30f3\u30c8\u306e\u58f2\u308a\u4e0a\u3052\u306f\u3059\u3079\u3066\u3001\u6bce\u5e746\u6708\u306b\u884c\u308f\u308c\u308b\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u64b2\u6ec5\u306e\u305f\u3081\u306e\u30a6\u30a9\u30fc\u30ad\u30f3\u30b0\u306e\u305f\u3081\u306b\u30ab\u30ca\u30c0MD\u306b\u5bc4\u4ed8\u3055\u308c\u307e\u3059\u3002 \u30aa\u30fc\u30ca\u30e1\u30f3\u30c8\u3092\u4f5c\u308a\u59cb\u3081\u3066\u304b\u3089\u3001$4000\u76f8\u5f53\u306e\u30aa\u30fc\u30ca\u30e1\u30f3\u30c8\u304c\u58f2\u308c\u307e\u3057\u305f\u3002 \u79c1\u306eMD\u30a6\u30a9\u30fc\u30af\u3078\u306e\u52df\u91d1\u76ee\u6a19\u306f\u3001\u904e\u53bb\u4f55\u5e74\u9593\u3082$6000\u3067\u3059\u3002 \u79c1\u306f\u3044\u3064\u3082\u76ee\u6a19\u3092\u4e0a\u56de\u308b\u65b9\u6cd5\u3092\u898b\u3064\u3051\u3066\u3044\u307e\u3059\u3002<\/span><\/p>\n

\u592b\u3068\u79c1\u306f3\u6708\u304b\u3089\u5065\u5eb7\u7684\u306a\u98df\u751f\u6d3b\u3092\u59cb\u3081\u305f\u3002 \u305d\u306e\u304a\u304b\u3052\u3067\u4e8c\u4eba\u3068\u3082\u4f53\u304c\u8efd\u304f\u306a\u308a\u3001\u5065\u5eb7\u7684\u306b\u306a\u308a\u307e\u3057\u305f\u3002 \u79c1\u306f\u708e\u75c7\u3001\u75db\u307f\u3001\u9ad8\u8840\u5727\u306e\u305f\u3081\u306b\u98f2\u3093\u3067\u3044\u305f3\u7a2e\u985e\u306e\u85ac\u3092\u3084\u3081\u308b\u3053\u3068\u304c\u3067\u304d\u307e\u3057\u305f\u3002 \u79c1\u305f\u3061\u306f\u6700\u9ad8\u306e\u6c17\u5206\u3067\u3001\u3053\u306e\u3053\u3068\u3092\u5e83\u3081\u308b\u306e\u304c\u5927\u597d\u304d\u3067\u3059\uff01<\/span><\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f\u00a0 <\/strong><\/span><\/p>\n

\u79c1\u306f\u65e5\u3005\u3001\u81ea\u5206\u81ea\u8eab\u306b\u3064\u3044\u3066\u5b66\u3093\u3067\u3044\u308b\u3002 \u79c1\u306e\u6311\u6226\u3068\u904e\u53bb\u306e\u7d4c\u9a13\u306f\u3001\u79c1\u81ea\u8eab\u306b\u3064\u3044\u3066\u591a\u304f\u306e\u3053\u3068\u3092\u5b66\u3070\u305b\u3066\u304f\u308c\u305f\u3002 \u4f55\u304c\u3067\u304d\u308b\u304b\u3067\u304d\u306a\u3044\u304b\u3067\u306f\u306a\u304f\u3001\u3042\u308a\u306e\u307e\u307e\u306e\u81ea\u5206\u3092\u611b\u3059\u308b\u3053\u3068\u3092\u5b66\u3093\u3060\u3002 \u79c1\u306f\u5f37\u304f\u3001\u81ea\u4fe1\u306b\u6e80\u3061\u305f\u4eba\u9593\u306b\u306a\u3063\u305f\u3002 \u79c1\u306f\u79c1\u3067\u3042\u308a\u3001\u8eca\u6905\u5b50\u306f\u79c1\u3092\u5b9a\u7fa9\u3059\u308b\u3082\u306e\u3067\u306f\u306a\u3044\u3053\u3068\u306b\u6c17\u3065\u304d\u307e\u3057\u305f\uff01 \u79c1\u306f\u5730\u5143\u306e\u969c\u5bb3\u8005\u56e3\u4f53\u306b\u3082\u6240\u5c5e\u3057\u3066\u3044\u307e\u3059\u3002 \u79c1\u305f\u3061\u306f\u6bce\u5e74\u6625\u306b\u4e2d\u5b66\u6821\u306b\u884c\u304d\u3001\u969c\u5bb3\u3068\u3068\u3082\u306b\u751f\u304d\u308b\u3053\u3068\u3084\u3001\u969c\u5bb3\u8005\u3092\u3069\u306e\u3088\u3046\u306b\u52a9\u3051\u308b\u3053\u3068\u304c\u3067\u304d\u308b\u304b\u306b\u3064\u3044\u3066\u8a71\u3057\u3066\u3044\u307e\u3059\u3002 \u305d\u306e\u304a\u304b\u3052\u3067\u3001\u4eba\u524d\u3067\u8a71\u3059\u3053\u3068\u304c\u3067\u304d\u308b\u3088\u3046\u306b\u306a\u308a\u307e\u3057\u305f\u3002\u00a0<\/span><\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:\u00a0<\/span><\/p>\n

\u307e\u308c\u3067\u306f\u3042\u308b\u304c\u3001\u3088\u304f\u3042\u308b\u969c\u5bb3\u3067\u3082\u3042\u308b\u3002 \u624b\u3092\u5dee\u3057\u4f38\u3079\u3066\u3082\u3089\u3046\u306e\u304c\u597d\u304d\u306a\u4eba\u3082\u3044\u308c\u3070\u3001\u3069\u3093\u306a\u306b\u96e3\u3057\u304f\u3066\u3082\u81ea\u5206\u3067\u3084\u308a\u305f\u3044\u4eba\u3082\u3044\u308b\u3002 \u307f\u3093\u306a\u9055\u3046\u306e\u3060\u3002 \u8ab0\u304b\u3092\u52a9\u3051\u308b\u524d\u306b\u5c0b\u306d\u3001\u5426\u5b9a\u7684\u306a\u614b\u5ea6\u3084\u6027\u683c\u306e\u4eba\u306b\u306f\u6c7a\u3057\u3066\u632f\u308a\u56de\u3055\u308c\u306a\u3044\u3002 LGMD\u306f\u79c1\u304b\u3089\u7b11\u9854\u3092\u596a\u3046\u3053\u3068\u306f\u3067\u304d\u307e\u305b\u3093\uff01<\/span><\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:\u00a0<\/span><\/p>\n

\u65c5\u884c\u3001\u6c34\u6cf3\u3001\u30e9\u30f3\u30cb\u30f3\u30b0\u3001\u4e00\u4eba\u3067\u8cb7\u3044\u7269\u306b\u884c\u304f\u3001\u4ed5\u4e8b\u3001\u904b\u52d5\u3001\u968e\u6bb5\u306e\u3042\u308b\u53cb\u4eba\u5b85\u3092\u8a2a\u554f\u3059\u308b\u3001\u4e57\u308a\u964d\u308a\u3059\u308b\u3001\u306a\u3069\u306a\u3069\u3002 <\/span>\u30d0\u30b9\u30bf\u30d6\u3053\u308c\u3089\u306e\u3053\u3068\u306e\u591a\u304f\u306f\u3001\u4eca\u3067\u304d\u308b\u3053\u3068\u3067\u306f\u3042\u308b\u3051\u308c\u3069\u3001\u5c11\u3057\u306f\u624b\u3092\u52a0\u3048\u3066\u3044\u308b\u3002 \u3053\u308c\u3089\u306e\u3053\u3068\u3092\u4f55\u3082\u8003\u3048\u305a\u306b\u3001\u3082\u3063\u3068\u6c17\u697d\u306a\u611f\u3058\u3067\u3067\u304d\u305f\u3089\u3044\u3044\u306a\u3068\u601d\u3046\u3002<\/span><\/p>\n

 <\/p>\n

* LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u300d\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u5fd7\u9858\u3057\u305f\u3044\u65b9\u306f\u3001LGMD\u306e\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\u3002 <\/span>\u3067 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/span><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Vicki \u00a0\u00a0Age: 44 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1617,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[38,82],"class_list":["post-1618","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-canada","tag-lgmd2a-calpainopathy"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Vicki - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2017\/10\/16\/vicki\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Vicki - 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