{"id":1651,"date":"2018-01-08T10:22:50","date_gmt":"2018-01-08T16:22:50","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1651"},"modified":"2018-01-08T10:22:50","modified_gmt":"2018-01-08T16:22:50","slug":"jill-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30b8\u30eb"},"content":{"rendered":"

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc<\/strong><\/span><\/p>\n

\u540d\u79f0<\/strong><\/span>:\u00a0 \u00a0 \u30b8\u30eb\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0\u00a0\u5e74\u9f62<\/strong>:33\u6b73\"\"<\/a><\/span><\/p>\n

\u56fd\u540d<\/strong>: \u30a2\u30e1\u30ea\u30ab<\/span><\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>: LGMD2i<\/span><\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/span><\/p>\n

\u79c1\u306f27\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/span><\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/span><\/p>\n

\u5c0f\u5b66\u6821\u306e\u9803\u3001\u79c1\u306f\u3044\u3064\u3082\u4e00\u756a\u6700\u5f8c\u306b\u30b4\u30fc\u30eb\u30e9\u30a4\u30f3\u3092\u8d8a\u3048\u3066\u3044\u305f\u3002 <\/span>\u30b8\u30e0.\u8db3\u304c\u3064\u3063\u3066\u5b66\u6821\u884c\u4e8b\u3092\u6b20\u5e2d\u3057\u305f\u3053\u3068\u3082\u899a\u3048\u3066\u3044\u308b\u3002\u3057\u304b\u3057\u3001\u79c1\u306f\u30c0\u30f3\u30b9\u30c1\u30fc\u30e0\u306b\u6240\u5c5e\u3057\u3066\u3044\u305f\u3002 <\/span>\u30b9\u30fc\u30d1\u30fc\u30ce\u30fc\u30de\u30eb \u5c0f\u5150\u671f2008\u5e74\u306b23\u6b73\u3067\u7b2c\u4e00\u5b50\u3092\u51fa\u7523\u3057\u305f\u5f8c\u3001\u79c1\u306f\u75b2\u52b4\u3068\u75db\u307f\u3067ER\u3092\u4f55\u5ea6\u3082\u8a2a\u308c\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002\u592b\u306b\u3001\"\u79c1\u306e\u4f53\u306f\u3069\u3053\u304b\u304a\u304b\u3057\u3044\u3001\u3044\u3064\u304b\u539f\u56e0\u304c\u308f\u304b\u308b\u3060\u308d\u3046 \"\u3068\u8a71\u3057\u3066\u3044\u305f\u306e\u3092\u899a\u3048\u3066\u3044\u308b\u30022010\u5e74\u306b\u6b21\u5973\u3092\u51fa\u7523\u3057\u305f\u5f8c\u3001\u79c1\u306f\u5e7c\u5150\u3068\u65b0\u751f\u5150\u3092\u62b1\u3048\u308b\u4f53\u529b\u3068\u683c\u95d8\u3057\u305f\u3002\u968e\u6bb5\u3092\u4e00\u6bb5\u4e00\u6bb5\u82e6\u52b4\u3057\u3066\u767b\u308b\u3053\u3068\u3082\u3067\u304d\u306a\u304f\u306a\u3063\u305f\u3002\u305d\u308c\u3067\u3082\u3001\"\u75b2\u308c\u305f\u6bcd\u89aa\u306f\u3053\u3093\u306a\u611f\u3058\u306a\u306e\u304b\u3082\u3057\u308c\u306a\u3044 \"\u3068\u601d\u3063\u3066\u3044\u305f\u3002\u305d\u3057\u30662011\u5e74\u3001\u79c1\u306f\u30a6\u30a4\u30eb\u30b9\u306b\u611f\u67d3\u3057\u3066\u71b1\u3092\u51fa\u3057\u305f\u5f8c\u3001\u6a2a\u7d0b\u7b4b\u878d\u89e3\u75c7\u306b\u306a\u3063\u305f\u3002\u3072\u3069\u3044\u8131\u529b\u611f\u3067\u533b\u8005\u306b\u884c\u304f\u3068\u3001CPK\u304c11,000\u3082\u3042\u3063\u305f\u3002\u305d\u306e\u7d50\u679c\u3001LGMD2I\u3068\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u3002\u7686\u3055\u3093\u3068\u540c\u3058\u3088\u3046\u306b\u3001\u8a3a\u65ad\u307e\u3067\u306e\u9053\u306e\u308a\u306f\u9577\u304b\u3063\u305f\u3002<\/span><\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/span><\/p>\n

\u3044\u3044\u3048\u3001\u79c1\u306f\u30db\u30e2\u63a5\u5408\u6027\u52a3\u6027\u907a\u4f1d\u306a\u306e\u3067\u3001\u4e21\u89aa\u3068\u3082\u4fdd\u56e0\u8005\u3067\u3059\u3002\u3042\u308a\u304c\u305f\u3044\u3053\u3068\u306b\u3001\u79c1\u306e\u5144\u3068\u59c9\u306f\u767a\u75c7\u3057\u3066\u3044\u307e\u305b\u3093\u3002<\/span><\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/span><\/p>\n

\u79c1\u304c\u8a3a\u65ad\u3055\u308c\u305f\u3068\u304d\u3001\u5a18\u305f\u3061\u306f\u8d64\u3061\u3083\u3093\u3067\u3057\u305f\u3002\u305d\u306e1\u5e74\u5f8c\u3001\u592b\u304c\u8133\u816b\u760d\u3068\u8a3a\u65ad\u3055\u308c\u305f\u3002\u79c1\u306f\u5bb6\u65cf\u306e\u4e16\u8a71\u304c\u3067\u304d\u306a\u304f\u306a\u308b\u306e\u3067\u306f\u306a\u3044\u304b\u3068\u5fc3\u914d\u3057\u305f\u3002\u79c1\u305f\u3061\u306b\u4f55\u304c\u8d77\u3053\u308b\u306e\u304b\u3001\u4f55\u6642\u9593\u3082\u5fc3\u914d\u3057\u307e\u3057\u305f\u3002\u79c1\u306f\u4eca\u3092\u5927\u5207\u306b\u3057\u3001\u697d\u3057\u3044\u6642\u3092\u697d\u3057\u3080\u3088\u3046\u306b\u3057\u3066\u3044\u307e\u3059\u3002\u81ea\u5206\u306e\u8870\u3048\u3092\u4e88\u671f\u3057\u305f\u308a\u3001\u82db\u7acb\u3061\u3084\u75db\u307f\u306b\u82db\u307e\u308c\u308b\u3053\u3068\u306a\u304f\u3001\u300c\u30b2\u30fc\u30e0\u306b\u96c6\u4e2d\u300d\u3057\u7d9a\u3051\u308b\u306e\u306f\u96e3\u3057\u3044\u3053\u3068\u3067\u3059\u3002 <\/span>\u3078\u306e \u30d9\u30c3\u30c9\u3002\u3067\u3082\u3001\u79c1\u306f\u4eca\u65e5\u3001\u3053\u3053\u306b\u3044\u308b\u3002\u592b\u306f\u4eca\u65e5\u3082\u3053\u3053\u306b\u3044\u308b\u3002\u5b50\u4f9b\u305f\u3061\u306f\u7d20\u6674\u3089\u3057\u304f\u3001\u56de\u5fa9\u529b\u304c\u3042\u308b\u3002\u3060\u304b\u3089\u3001\u79c1\u306f\u611f\u8b1d\u3057\u7d9a\u3051\u3001\u79c1\u305f\u3061\u306f\u524d\u9032\u3057\u3066\u3044\u308b\u3002<\/span><\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/span><\/p>\n

\u79c1\u306e\u500b\u4eba\u7684\u306a\u6700\u5927\u306e\u529f\u7e3e\u306f\u3001\u81ea\u5206\u306e\u5e78\u305b\u3060\u3002\u56f0\u96e3\u306b\u76f4\u9762\u3057\u306a\u304c\u3089\u3082\u3001\u79c1\u306f\u5e78\u305b\u306b\u306a\u308b\u305f\u3081\u306b\u61f8\u547d\u306b\u50cd\u3044\u3066\u304d\u305f\u3002\u305d\u308c\u3092\u672c\u5f53\u306b\u8a87\u308a\u306b\u601d\u3046\u3002 \u305d\u308c\u306f\u6bce\u65e5\u5fc3\u304c\u3051\u3066\u3044\u308b\u9078\u629e\u306a\u3093\u3060\u3002<\/span><\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/span><\/p>\n

\u8a3a\u65ad\u5f8c\u306f\u3001\u3088\u308a\u6709\u610f\u7fa9\u306a\u4eba\u751f\u3092\u9001\u3063\u3066\u3044\u308b\u3068\u611f\u3058\u3066\u3044\u308b\u3002\u4ef2\u9593\u3092\u3088\u308a\u5f37\u304f\u611b\u3057\u3066\u3044\u308b\u3002\u30da\u30fc\u30b9\u3092\u843d\u3068\u3059\u3053\u3068\u3082\u5b66\u3093\u3060\u3002\u307e\u305f\u3001\u6162\u6027\u75be\u60a3\u3001\u75db\u307f\u3001\u60b2\u3057\u307f......\u6020\u60f0\u3084\u52aa\u529b\u4e0d\u8db3\u3068\u8aa4\u89e3\u3055\u308c\u3084\u3059\u3044\u76ee\u306b\u898b\u3048\u306a\u3044\u75c5\u6c17\u3059\u3079\u3066\u3092\u62b1\u3048\u308b\u4eba\u305f\u3061\u3092\u7406\u89e3\u3057\u3001\u5171\u611f\u3059\u308b\u6a5f\u4f1a\u3092\u4e0e\u3048\u3066\u304f\u308c\u305f\u3053\u3068\u306b\u3082\u611f\u8b1d\u3057\u3066\u3044\u308b\u3002\u304a\u8f9b\u3044\u3067\u3057\u3087\u3046\u3002<\/span><\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/span><\/p>\n

LGMD\u306f\u907a\u4f1d\u7684\u306b\u53d7\u3051\u7d99\u304c\u308c\u308b\u75c5\u6c17\u3067\u3042\u308a\u3001\"\u6804\u990a\u4e0d\u8db3 \"\u3084 \"\u30b8\u30e0\u306b\u884c\u304b\u306a\u304b\u3063\u305f\u7d50\u679c \"\u3067\u306f\u306a\u3044\u3053\u3068\u3092\u4e16\u9593\u306b\u77e5\u3063\u3066\u307b\u3057\u3044\u3002\u3053\u308c\u306f\u4eba\u304c\u9078\u3076\u75c5\u6c17\u3067\u306f\u306a\u3044\u306e\u3067\u3059\u3002\u9032\u884c\u6027\u3067\u3001\u6cbb\u7642\u6cd5\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u524d\u5411\u304d\u306b\u6d3b\u52d5\u3057\u7d9a\u3051\u308b\u3053\u3068\u306f\u52a9\u3051\u306b\u306a\u308b\u304c\u3001\u9032\u884c\u3092\u6b62\u3081\u308b\u3053\u3068\u306f\u3067\u304d\u306a\u3044\u3002\u79c1\u306e\u8003\u3048\u3067\u306f\u3001LGMD\u306e\u4eba\u306b\u8a00\u3046\u3079\u304d\u6700\u9ad8\u306e\u8a00\u8449\u306f\u3001\"\u5927\u5909\u3060\u3068\u601d\u3046\u3051\u3069\u3001\u3042\u306a\u305f\u306f\u3068\u3066\u3082\u9811\u5f35\u3063\u3066\u3044\u308b \"\u3067\u3059\u3002\u5c06\u6765\u3001\u6cbb\u7642\u6cd5\u3084\u6cbb\u7642\u6cd5\u304c\u898b\u3064\u304b\u308c\u3070\u3068\u3066\u3082\u7d20\u6674\u3089\u3057\u3044\u3053\u3068\u3067\u3059\u3002\u5e0c\u671b\u3092\u6301\u3061\u7d9a\u3051\u308b\u3053\u3068\u306f\u826f\u3044\u3053\u3068\u3067\u3059\u3002<\/span><\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/span><\/p>\n

\u5a18\u305f\u3061\u3092\u304a\u3093\u3076\u3057\u3066\u5b66\u6821\u306b\u9001\u308a\u3001\u76db\u5927\u306a\u30d1\u30fc\u30c6\u30a3\u30fc\u3092\u958b\u304d\u3001\u304a\u6c17\u306b\u5165\u308a\u306e\u6e56\u306e\u5468\u308a\u3092\u5bb6\u65cf\u3067\u30b5\u30a4\u30af\u30ea\u30f3\u30b0\u3059\u308b\u3002<\/span><\/p>\n

 <\/p>\n

 <\/p>\n

* LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u300d\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u5fd7\u9858\u3057\u305f\u3044\u65b9\u306f\u3001LGMD\u306e\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\u3002 <\/span>\u3067 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0<\/span><\/p>\n

* LGMD\u306e\u8a8d\u77e5\u5ea6\u3092\u9ad8\u3081\u308b\u305f\u3081\u3001\u3053\u306e\u6295\u7a3f\u306b\u300c\u3044\u3044\u306d\uff01\u300d\u300c\u30b3\u30e1\u30f3\u30c8\u300d\u300c\u30b7\u30a7\u30a2\u300d\u3092\u304a\u9858\u3044\u3057\u307e\u3059\uff01<\/span><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight Interview Name:\u00a0 \u00a0 Jill\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1650,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1651","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jill - 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