{"id":1915,"date":"2018-04-27T10:04:04","date_gmt":"2018-04-27T15:04:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1915"},"modified":"2018-04-27T10:04:04","modified_gmt":"2018-04-27T15:04:04","slug":"zia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","title":{"rendered":"LGMD\u3092\u6301\u3064\u500b\u4eba\uff1a\u30b8\u30a2"},"content":{"rendered":"

LGMD\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc<\/strong><\/p>\n

\u540d\u79f0<\/strong>: Zia \u00a0\u00a0\u5e74\u9f62<\/strong>: 26\"\"<\/a><\/p>\n

\u56fd\u540d<\/strong>:\u30aa\u30fc\u30b9\u30c8\u30e9\u30ea\u30a2<\/p>\n

LGMD \u30b5\u30d6\u30bf\u30a4\u30d7<\/strong> Limb-Girdle Muscular Dystrophy type 2i<\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u304b<\/strong>:<\/p>\n

I was diagnosed with Muscular Dystrophy at the age of two. After many tests and doctor\u00a0visits, I was fully diagnosed Limb-Girdle Muscular Dystrophy type 2i at the age of 22.<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

At the age of 1, Mum noticed that my twin sister and I weren\u2019t walking, we weren\u2019t even\u00a0crawling properly more like shuffling on our bottoms. It was then that our Mum knew\u00a0something wasn\u2019t right.<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u304c\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

Only my twin sister Cyanne has Limb-Girdle Muscular Dystrophy type 2i.<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u308b\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

Every day is the greatest challenge for me as I have to fully rely on my Mum and caregivers to get me out of bed in the mornings and everything in between so I can live my life.<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b<\/strong>:<\/p>\n

Oh, I have many accomplishments in my life with many more to come! My greatest\u00a0accomplishment would be being able to study. I am currently studying a Certificate IV in Legal Services. In 2016 I received my Certificate IV in Small Business Management and started my own editing and proofreading business called Wondrous Words with Zia. I also have an Advanced Diploma in Arts (Professional Writing), a Certificate in Professional Editing and Proofreading, as well as a Society of Editors (SA) Award for Highest Achievement in Editing. \u00a0I also had the pleasure in working at the library for 6 months with some amazing people.\u00a0 I am also actively involved in the community. I, and about 15 other people are a part of the Youth Advisory Committee (YAC). We work closely with Council members, attend Council meetings, voice our concerns and opinions for local young people in Whyalla, and plan and organize events.<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

I focus on what I can do rather than what I cannot do. My motto is: \u201cI do what I can and love what I can do!\u201d<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u4f55\u3092\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

I would like the world to know that living with LGMD is challenging. LGMD affects your<\/p>\n

muscles not your mind and that I am still capable of being a part of everyday life.<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c\u300c\u6cbb\u308b\u300d\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

I would just run and run and run and run and… well, I think you get the picture lol ?<\/p>\n

 <\/p>\n

* * * To read more “LGMD Spotlight Interviews” or to volunteer to be featured in an upcoming interview, please visit our website at\u00a0 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>\n

* LGMD\u306e\u8a8d\u77e5\u5ea6\u3092\u9ad8\u3081\u308b\u305f\u3081\u3001\u3053\u306e\u6295\u7a3f\u306b\u300c\u3044\u3044\u306d\uff01\u300d\u300c\u30b3\u30e1\u30f3\u30c8\u300d\u300c\u30b7\u30a7\u30a2\u300d\u3092\u304a\u9858\u3044\u3057\u307e\u3059\uff01<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":1913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[96],"class_list":["post-1915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-australia"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-04-27T15:04:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Zia\",\"datePublished\":\"2018-04-27T15:04:04+00:00\",\"dateModified\":\"2018-04-27T15:04:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"},\"wordCount\":484,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2i; Australia\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2I\"],\"inLanguage\":\"ja\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\",\"url\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\",\"name\":\"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2018-04-27T15:04:04+00:00\",\"dateModified\":\"2018-04-27T15:04:04+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb\"},\"inLanguage\":\"ja\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"ja\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Zia\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"ja\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ja\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"ja\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","og_locale":"ja_JP","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","og_description":"LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]","og_url":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2018-04-27T15:04:04+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Zia","datePublished":"2018-04-27T15:04:04+00:00","dateModified":"2018-04-27T15:04:04+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"},"wordCount":484,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2i; Australia"],"articleSection":["Individuals with LGMD - Interviews","LGMD2I"],"inLanguage":"ja"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","url":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","name":"INDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage"},"thumbnailUrl":"","datePublished":"2018-04-27T15:04:04+00:00","dateModified":"2018-04-27T15:04:04+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb"},"inLanguage":"ja","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/"]}]},{"@type":"ImageObject","inLanguage":"ja","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Zia"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"ja"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"ja","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"ja","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/posts\/1915","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/comments?post=1915"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/posts\/1915\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/media?parent=1915"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/categories?post=1915"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/ja\/wp-json\/wp\/v2\/tags?post=1915"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}