{"id":2727,"date":"2019-06-12T14:29:32","date_gmt":"2019-06-12T19:29:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2727"},"modified":"2019-06-12T14:29:32","modified_gmt":"2019-06-12T19:29:32","slug":"individual-with-lgmd-jillena","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30b8\u30ec\u30fc\u30ca"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD\n\u300c\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc<\/strong><\/p>\n\n\n\n

\u540d\u79f0<\/strong>: \u30b8\u30ec\u30fc\u30ca\n \u5e74\u9f62<\/strong>:32\u6b73<\/p>\n\n\n\n

\u56fd\u540d<\/strong>: \u7c73\u56fd\n\u7c73\u56fd<\/p>\n\n\n\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD2A-\u30ab\u30eb\u30d1\u30a4\u30f3\u75c7\u306e\u4e00\u7a2e<\/p>\n\n\n\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u304b <\/strong>:<\/p>\n\n\n\n

\u79c1\u304cLGMD\u3068\u8a3a\u65ad\u3055\u308c\u305f\u306e\u306f21\u6b73\u306e\u6642\u3060\u3063\u305f\u3002\n21\u6b73\u306e\u3068\u304d\u306b\u306d\u3002 \u305d\u3057\u3066\u3001\u6570\u30ab\u6708\u524d\u306b\n\u6570\u30f6\u6708\u524d\u306bLGMD2A\u30b5\u30d6\u30bf\u30a4\u30d7\u3067\u3042\u308b\u3053\u3068\u304c\u78ba\u8a8d\u3055\u308c\u307e\u3057\u305f\u3002<\/p>\n\n\n\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f <\/strong>:<\/p>\n\n\n\n

2\u4eba\u76ee\u3092\u51fa\u7523\u3057\u305f\u5f8c\u3001\u79c1\u306f\u968e\u6bb5\u304c\u3064\u3089\u304f\u306a\u3063\u305f\u3053\u3068\u306b\u6c17\u3065\u304d\u59cb\u3081\u305f\u3002\n\u968e\u6bb5\u304c\u8f9b\u304f\u306a\u3063\u305f\u3002\u5b9f\u969b\u3001\u30cf\u30a4\u30cf\u30a4\u3067\u4e0a\u3063\u3066\u3044\u305f\u3002I\n\u79c1\u306f\u810a\u67f1\u5074\u6e7e\u75c7\u3060\u3063\u305f\u306e\u3067\u3001\u968e\u6bb5\u304c\u82e6\u624b\u306a\u306e\u306f\u810a\u67f1\u5074\u6e7e\u75c7\u306e\u305b\u3044\u3060\u3068\u601d\u3063\u3066\u3044\u307e\u3057\u305f\u3002\n\u3057\u304b\u3057\u30012\u4eba\u76ee\u306e\u5b50\u4f9b\u3092\u7523\u3093\u3067\u304b\u3089\u3001\u7e01\u77f3\u306b\u8db3\u3092\u4e0a\u3052\u308b\u3053\u3068\u304c\u3067\u304d\u306a\u304f\u306a\u3063\u305f\u3002\n\u7c21\u5358\u306b\u3002 \u307e\u305f\u3001\u79c1\u306f\u3044\u3064\u3082\u75e9\u305b\u3066\u3044\u305f\u3002\n\u305d\u306e\u7406\u7531\u3082\u308f\u304b\u3089\u306a\u304b\u3063\u305f\u3002\u6bcd\u306f\u4f55\u304b\u304a\u304b\u3057\u3044\u3068\u5fc3\u914d\u3057\u3001\u79c1\u306b\u533b\u8005\u306b\u8a3a\u3066\u3082\u3089\u3046\u3088\u3046\u8aac\u5f97\u3057\u305f\u3002\n\u533b\u8005\u306b\u8a3a\u3066\u3082\u3089\u3063\u305f\u3002<\/p>\n\n\n\n

\u5bb6\u65cf\u306bLGMD\u60a3\u8005\u306f\u3044\u307e\u3059\u304b\uff1f\nLGMD\u3092\u6301\u3063\u3066\u3044\u308b\uff1a<\/strong><\/p>\n\n\n\n

\u79c1\u306e\u5bb6\u65cf\u3067LGMD\u3068\u8a3a\u65ad\u3055\u308c\u305f\u8005\u306f\u3044\u306a\u3044\u304c\u3001\u6bcd\u306b\u306f\u8eab\u4f53\u7684\u306a\u969c\u5bb3\u3092\u62b1\u3048\u3066\u751f\u304d\u3066\u3044\u305f\u5144\u304c\u3044\u305f\u3002 \u5f7c\u306f\u30c7\u30e5\u30b7\u30a7\u30f3\u30cc\u578b\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u3060\u3063\u305f\u3068\u601d\u3044\u307e\u3059\u3002<\/p>\n\n\n\n

LGMD\u3068\u5171\u306b\u751f\u304d\u308b\u4e0a\u3067\nLGMD\u3068\u5171\u306b\u751f\u6d3b\u3059\u308b\u4e0a\u3067\u6700\u3082\u56f0\u96e3\u306a\u3053\u3068 <\/strong>:<\/p>\n\n\n\n

\u307e\u305a\u7b2c\u4e00\u306b\u3001\u79c1\u304c\u3053\u306e\u75c5\u6c17\u3067\u306a\u3051\u308c\u3070\u5473\u308f\u3046\u3053\u3068\u306e\u306a\u304b\u3063\u305f\u5bb6\u65cf\u306e\u82e6\u52b4\u304c\u3042\u308b\u3002\n\u79c1\u304c\u3053\u306e\u75c5\u6c17\u3067\u306a\u304b\u3063\u305f\u3089\u3001\u5bb6\u65cf\u304c\u5473\u308f\u3046\u3053\u3068\u306e\u306a\u304b\u3063\u305f\u82e6\u52b4\u3060\u3002\u4e8c\u3064\u76ee\u306f\u3001\u4ee5\u524d\u306e\u3088\u3046\u306b\u305f\u3060\u884c\u3063\u3066\u3001\u884c\u3063\u3066\u3001\u884c\u3063\u3066\u3001\u3068\u3044\u3046\u3053\u3068\u304c\u3067\u304d\u306a\u3044\u3053\u3068\u3060\u3002\n\u624b\u8db3\u304c\u5f31\u304f\u306a\u3063\u305f\u3002\u624b\u8db3\u304c\u5f31\u304f\u306a\u308a\u3001\u591a\u304f\u306e\u3053\u3068\u3092\u3059\u308b\u306e\u306b\u75b2\u308c\u3066\u3057\u307e\u3046\u3002<\/p>\n\n\n\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b <\/strong>:<\/p>\n\n\n\n

\u79c1\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u3001\u6700\u8fd1\u306e\u614b\u5ea6\u306e\u5909\u5316\u3060\u3002 I\n\u81ea\u5206\u306e\u75c5\u6c17\u3084\u904b\u547d\u306b\u3064\u3044\u3066\u5426\u5b9a\u7684\u3067\u3044\u308b\u3053\u3068\u306f\u3001\u8ab0\u306e\u5f79\u306b\u3082\u7acb\u305f\u306a\u3044\u3068\u6c17\u3065\u3044\u305f\u3002 \u79c1\u306f\u5225\u306e\u30e1\u30ac\u30cd\u3092\u304b\u3051\u306a\u304c\u3089\u4eba\u751f\u3092\u751f\u304d\u308b\u3068\u6c7a\u3081\u305f\u3060\u3051\u3067\u306a\u304f\n\u305d\u306e\u773c\u93e1\u3092\u3001\u30d5\u30a7\u30a4\u30b9\u30d6\u30c3\u30af\u3067\u79c1\u306e\u4eba\u751f\u306e\u65c5\u3092\u901a\u3057\u3066\u4e16\u754c\u4e2d\u306e\u4eba\u305f\u3061\u3068\u5206\u304b\u3061\u5408\u3046\u3053\u3068\u306b\u3057\u305f\u3002\n\u79c1\u304c\u4f5c\u3063\u305f\u30d5\u30a7\u30a4\u30b9\u30d6\u30c3\u30af\u306e\u30da\u30fc\u30b8\u3067\u3001\u79c1\u306e\u4eba\u751f\u306e\u65c5\u3092\u901a\u3057\u3066\u305d\u306e\u30e1\u30ac\u30cd\u3092\u4e16\u754c\u3068\u5171\u6709\u3059\u308b\u3053\u3068\u306b\u3057\u305f\u3002<\/p>\n\n\n\n

LGMD\u306f\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u307e\u3057\u305f\u304b\uff1f\n\u4eca\u306e\u3042\u306a\u305f\u304c\u3042\u308b\uff1a<\/strong><\/p>\n\n\n\n

\u81ea\u5206\u304c\u3053\u306e\u75c5\u6c17\u3067\u3042\u308b\u3053\u3068\u3092\u53d7\u3051\u5165\u308c\nFacebook\u306b\u30da\u30fc\u30b8\u3092\u4f5c\u3063\u305f\u3093\u3060\u3002 \u524d\u5411\u304d\u306b\u306a\u308b\u305f\u3081\u306e\u30a2\u30c9\u30d0\u30a4\u30b9\u3092\u59cb\u3081\u305f\u3093\u3060\u3002\n\u3092\u30a2\u30c9\u30d0\u30a4\u30b9\u3057\u59cb\u3081\u305f\u3093\u3060\u3002\u305d\u308c\u4ee5\u6765\u3001\u305d\u308c\u4ee5\u4e0a\u306e\u3082\u306e\u306b\u306a\u3063\u305f\u3002\u4eca\u3067\u306fFacebook\u306e\u53cb\u9054\u304c\u305f\u304f\u3055\u3093\u3044\u3066\n\u7d20\u6674\u3089\u3057\u3044\u30b5\u30dd\u30fc\u30c8\u30b7\u30b9\u30c6\u30e0\u306b\u306a\u3063\u3066\u3044\u308b\u3002\u3055\u3089\u306b\u3001MDA\u306e\u30b7\u30e3\u30e0\u30ed\u30c3\u30af\u306e\u52df\u91d1\u6d3b\u52d5\u306e\u30b9\u30d4\u30fc\u30c1\u3067\u3001\u79c1\u306e\u8a71\u3092\u3057\u305f\u3053\u3068\u3082\u3042\u308a\u307e\u3059\u3002\n\u306e\u52df\u91d1\u6d3b\u52d5\u3067\u81ea\u5206\u306e\u8a71\u3092\u3057\u307e\u3057\u305f\u3002 \u79c1\u306f\u958b\u82b1\u3057\u307e\u3057\u305f\n\u81ea\u5206\u306e\u4fa1\u5024\u3092\u307f\u3093\u306a\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3068\u9858\u3046\u3088\u3046\u306b\u306a\u308a\u307e\u3057\u305f\uff0110\u5e74\u524d\u306e\u79c1\u306f\n\u81ea\u5206\u306e\u3053\u3068\u306a\u3069\u6c17\u306b\u3082\u7559\u3081\u3066\u3044\u306a\u304b\u3063\u305f\u3002<\/p>\n\n\n\n

\u4e16\u754c\u306b\u4f55\u3092\u77e5\u3063\u3066\u307b\u3057\u3044\u304b\nLGMD\u306b\u3064\u3044\u3066 <\/strong>:<\/p>\n\n\n\n

\u79c1\u306f\u3001LGMD\u304c\u81ea\u7acb\u3092\u596a\u3046\u975e\u5e38\u306b\u56f0\u96e3\u306a\u75c5\u6c17\u3067\u3042\u308b\u3053\u3068\u3092\u77e5\u3063\u3066\u307b\u3057\u3044\u3002\n\u306a\u305c\u306a\u3089\u3001\u81ea\u7acb\u5fc3\u3092\u596a\u3046\u304b\u3089\u3067\u3059\u3002\u5e74\u3092\u53d6\u308b\u306b\u3064\u308c\u3066\n\u5e74\u3092\u53d6\u308b\u3068\u7b4b\u8089\u304c\u5f31\u304f\u306a\u308a\u3001\u904b\u52d5\u80fd\u529b\u304c\u4f4e\u4e0b\u3057\u307e\u3059\u3002\u305d\u308c\u306f\u5927\u5909\u306a\u3053\u3068\u3067\u3059\u3001\n\u7279\u306b\u3001\u8d70\u308a\u56de\u308b3\u4eba\u306e\u5b50\u4f9b\u304c\u3044\u308b\u5834\u5408\u306f\u306d\u3002<\/p>\n\n\n\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\n\u660e\u65e5\u306b\u3067\u3082\u300c\u6cbb\u308b\u300d\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f <\/strong>:<\/p>\n\n\n\n

\u5bb6\u65cf\u3068\u30b3\u30ed\u30e9\u30c9\u306e\u5c71\u306b\u30cf\u30a4\u30ad\u30f3\u30b0\u306b\u884c\u304f\n\u5bb6\u65cf\u3068\u30b3\u30ed\u30e9\u30c9\u306e\u5c71\u306b\u30cf\u30a4\u30ad\u30f3\u30b0\u306b\u884c\u304f\u3093\u3060\uff01<\/p>\n\n\n\n

* LGMD \u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u300d\u3092\u3082\u3063\u3068\u8aad\u307f\u305f\u3044\u65b9\u3001\u307e\u305f\u306f\u30dc\u30e9\u30f3\u30c6\u30a3\u30a2\u3068\u3057\u3066\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\u306b\u53c2\u52a0\u3057\u305f\u3044\u65b9\u306f\u3001\u4ee5\u4e0b\u306e\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\u3002 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight interview\u201d Name:  Jillena  Age: 32 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2728,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jillena - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jillena - 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