{"id":3732,"date":"2020-10-26T21:27:47","date_gmt":"2020-10-27T02:27:47","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3732"},"modified":"2024-02-09T14:24:27","modified_gmt":"2024-02-09T14:24:27","slug":"organization-stichting-spierkracht","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/lgmd2d\/2020\/10\/26\/organization-stichting-spierkracht\/","title":{"rendered":"\u56e3\u4f53\u540d\uff1aStichting Spierkracht"},"content":{"rendered":"

\"\"<\/a><\/p>\n

lgmd\u306e\u7d44\u7e54\uff1a\u00a0 \u00a0\u00a0\u00a0 <\/strong>\u30b7\u30e5\u30d4\u30eb\u30af\u30e9\u30d5\u30c8<\/p>\n

\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8<\/strong>\u00a0 \u00a0www.stichtingSpierKracht.com<\/a><\/p>\n

FACEBOOK\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong>https:\/\/www.facebook.com\/stichtingspierkracht.nl<\/a><\/p>\n

\u30a4\u30f3\u30b9\u30bf\u30b0\u30e9\u30e0\u00a0\u00a0\u00a0\u00a0 <\/strong> https:\/\/www.instagram.com\/stichting_spierkracht<\/a><\/p>\n

\u3042\u306a\u305f\u306e\u7d44\u7e54\u306f\u3069\u306e\u3088\u3046\u306aLGMD\u30b5\u30d6\u30bf\u30a4\u30d7\u306b\u91cd\u70b9\u3092\u7f6e\u3044\u3066\u3044\u307e\u3059\u304b\uff1a\u00a0 <\/strong><\/p>\n

\u6211\u3005\u306f\u3001LGMD2D \/ R3\u03b1\u30b5\u30eb\u30b3\u30b0\u30ea\u30ab\u30f3\u95a2\u9023\u306b\u7126\u70b9\u3092\u5f53\u3066\u3066\u3044\u308b\u3002<\/p>\n

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\u5168\u3066\u306eLGMD2D\u60a3\u8005\u306b\u3001https:\/\/lgmd2d.org\/patient-resources\/register\/\u3002DNA\u306b\u3088\u308b\u78ba\u5b9a\u8a3a\u65ad\u3092\u53d7\u3051\u308b\u3053\u3068\u306f\u975e\u5e38\u306b\u91cd\u8981\u3067\u3059\u3002\u3082\u3057\u5909\u7570\u304c\u78ba\u8a8d\u3055\u308c\u306a\u3051\u308c\u3070\u3001\u6cbb\u7642\u306b\u5f71\u97ff\u3092\u53ca\u307c\u3059\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n

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\u7d44\u7e54\u5275\u8a2d\u306e\u304d\u3063\u304b\u3051<\/strong>:<\/p>\n

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LGMD2D\u60a3\u8005\u306e\u8fd1\u89aa\u8005\u306e\u305f\u3081\u306b\u3001\u60a3\u8005\u306e\u4eba\u751f\u306e\u69d8\u3005\u306a\u6bb5\u968e\u306b\u304a\u3051\u308b\u3059\u3079\u3066\u306e\u9069\u5207\u306a\u4e3b\u984c\u306b\u95a2\u3059\u308b\u4fe1\u983c\u3067\u304d\u308b\u60c5\u5831\u3092\u63d0\u4f9b\u3059\u308b\u3002\u307e\u305f\u3001\u79c1\u305f\u3061\u306f1\u540d\u306e\u6709\u8cc7\u683c\u306e\u60a3\u8005\u5c02\u9580\u5bb6\u3092\u64c1\u3057\u3001\u30aa\u30e9\u30f3\u30c0\u306e\u60a3\u8005\u3060\u3051\u3067\u306a\u304f\u3001\u4e16\u754c\u4e2d\u306e\u60a3\u8005\u306e\u305f\u3081\u306b\u65e9\u671f\u8a3a\u65ad\u3068\u60a3\u8005\u6307\u5c0e\u306b\u53d6\u308a\u7d44\u3093\u3067\u3044\u307e\u3059\u3002<\/p>\n

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LGMD2D\u3068\u8a3a\u65ad\u3055\u308c\u3066\u3082\u3001\u305d\u308c\u3067\u7d42\u308f\u308a\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3002LGMD2D\u3068\u8a3a\u65ad\u3055\u308c\u305f\u304b\u3089\u3068\u3044\u3063\u3066\u3001\u305d\u308c\u3067\u7d42\u308f\u308a\u3067\u306f\u306a\u3044\u306e\u3067\u3059\u3002LGMD2D\u3068\u3044\u3046\u75c5\u6c17\u306f\u3001\u60a3\u8005\u3055\u3093\u306b\u3088\u3063\u3066\u75c7\u72b6\u306f\u7570\u306a\u308a\u307e\u3059\u304c\u3001\u79c1\u305f\u3061\u306b\u306f\u591a\u304f\u306e\u5171\u901a\u70b9\u304c\u3042\u308a\u307e\u3059\u3002\u75c5\u6c17\u304c\u3042\u306a\u305f\u3092\u5b9a\u7fa9\u3057\u305f\u308a\u5236\u9650\u3057\u305f\u308a\u3059\u308b\u3053\u3068\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u3042\u306a\u305f\u306f\u3042\u306a\u305f\u3089\u3057\u304f\u3001\u5922\u3092\u8ffd\u3044\u304b\u3051\u3066\u304f\u3060\u3055\u3044\u3002<\/p>\n

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\u5f53\u9662\u306e\u60a3\u8005\u30a8\u30ad\u30b9\u30d1\u30fc\u30c8 stichtingspierkracht@ziggo.nl \u306b\u96fb\u5b50\u30e1\u30fc\u30eb\u3092\u304a\u9001\u308a\u3044\u305f\u3060\u304f\u304b\u3001\u5f53\u9662\u30a6\u30a7\u30d6\u30b5\u30a4\u30c8 http:\/\/stichtingspierkracht.com\/ \u306e\u304a\u554f\u3044\u5408\u308f\u305b\u30d5\u30a9\u30fc\u30e0\u306b\u3054\u8a18\u5165\u304f\u3060\u3055\u3044\u3002<\/p>\n

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