{"id":3769,"date":"2020-12-03T09:38:38","date_gmt":"2020-12-03T15:38:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3769"},"modified":"2024-02-09T14:24:25","modified_gmt":"2024-02-09T14:24:25","slug":"individual-with-lgmd-saira","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","title":{"rendered":"LGMD\u3092\u6301\u3064\u500b\u4eba - \u30b5\u30a4\u30e9"},"content":{"rendered":"

\"\"<\/a><\/strong><\/p>\n

\u540d\u79f0<\/strong>: \u30b5\u30a4\u30e9<\/p>\n

\u5e74\u9f62<\/strong>: 29<\/p>\n

\u56fd\u540d<\/strong>:UAE\u5728\u4f4f\u306e\u30a4\u30f3\u30c9\u4eba<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong> (\u65e2\u77e5\u306e\u5834\u5408\uff09\uff1aLGMD 2B\/R2 \u30c7\u30a3\u30b9\u30d5\u30a7\u30ea\u30f3\u95a2\u9023<\/p>\n

\u00a0<\/strong><\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f16\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u30022020\u5e742\u6708\u306b\u907a\u4f1d\u5b50\u306e\u78ba\u8a8d\u3092\u53d7\u3051\u307e\u3057\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u7a81\u7136\u5012\u308c\u305f\u308a\u3001\u5730\u9762\u306b\u5ea7\u3063\u305f\u72b6\u614b\u304b\u3089\u8d77\u304d\u4e0a\u304c\u3063\u305f\u308a\u3059\u308b\u306e\u304c\u6700\u521d\u306e\u75c7\u72b6\u3060\u3063\u305f\u3002<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f <\/strong><\/p>\n

\u3044\u3044\u3048\u3001\u79c1\u306e\u5bb6\u65cf\u306f\u8ab0\u3082LGMD\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3002LGMD\u3068\u8a3a\u65ad\u3055\u308c\u305f\u306e\u306f\u79c1\u3060\u3051\u3067\u3059\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong><\/p>\n

\u74b0\u5883\u30d0\u30ea\u30a2\u3068\u8eca\u6905\u5b50\u3078\u306e\u30a2\u30af\u30bb\u30b7\u30d3\u30ea\u30c6\u30a3\u3002\u79c1\u306e\u6301\u3064\u80fd\u529b\u306b\u6c5a\u540d\u3092\u7740\u305b\u306a\u3044\u96c7\u7528\u6a5f\u4f1a\u3002 LGMD\u306b\u95a2\u5fc3\u3092\u6301\u3064\u795e\u7d4c\u79d1\u533b\u306e\u4e0d\u8db3\u3068\u8fc5\u901f\u306a\u8a3a\u65ad\u5bfe\u5fdc\u3002LGMD\u306e\u9032\u884c\u3068\u3001\u75c5\u6c17\u306b\u4f34\u3046\u7d99\u7d9a\u7684\u306a\u8ab2\u984c\u3078\u306e\u5bfe\u51e6\u65b9\u6cd5\u3002\u65e5\u5e38\u751f\u6d3b\u306b\u5f79\u7acb\u3064\u5668\u5177\u306e\u7a2e\u985e\u306b\u3064\u3044\u3066\u306e\u6307\u5c0e\u304c\u307b\u3068\u3093\u3069\u306a\u3044\u3053\u3068\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u30a2\u30e9\u30d6\u9996\u9577\u56fd\u9023\u90a6\u306e\u4f1a\u793e\u3067\u65b0\u3057\u3044\u4ed5\u4e8b\u3092\u59cb\u3081\u3001\u79c1\u3092\u53d7\u3051\u5165\u308c\u308b\u305f\u3081\u306b\u30a2\u30af\u30bb\u30b7\u30d6\u30eb\u306a\u5bbf\u6cca\u65bd\u8a2d\u3068\u3057\u3066\u5728\u5b85\u52e4\u52d9\u3092\u8a31\u53ef\u3057\u3066\u304f\u308c\u307e\u3057\u305f\u3002\u4eca\u3001\u79c1\u306fInclusive\u3067\u30b0\u30ed\u30fc\u30d0\u30eb\u306a\u30a4\u30f3\u30d1\u30af\u30c8\u3092\u4e0e\u3048\u3001\u30aa\u30f3\u30e9\u30a4\u30f3\u3067\u3082\u30aa\u30d5\u30e9\u30a4\u30f3\u3067\u3082\u3053\u306e\u4e16\u754c\u3092\u3088\u308a\u30a2\u30af\u30bb\u30b7\u30d6\u30eb\u306b\u3059\u308b\u305f\u3081\u306b\u6bce\u65e5\u50cd\u3044\u3066\u3044\u307e\u3059\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f <\/strong><\/p>\n

\u4eba\u751f\u306b\u5bfe\u3059\u308b\u65b0\u305f\u306a\u8996\u70b9\u3092\u4e0e\u3048\u3066\u304f\u308c\u305f\u3057\u3001\u81ea\u5206\u306e\u6642\u9593\u3068\u73fe\u5728\u306e\u80fd\u529b\u3092\u5927\u5207\u306b\u3057\u3088\u3046\u3068\u601d\u308f\u305b\u3066\u304f\u308c\u305f\u3002<\/p>\n

\u3057\u304b\u3057\u3001\u3060\u304b\u3089\u3068\u3044\u3063\u3066\u3001\u79c1\u305f\u3061\u304c\u7b49\u3057\u304f\u5171\u6709\u3057\u3066\u3044\u308b\u4e16\u754c\u306b\u30a4\u30f3\u30d1\u30af\u30c8\u3092\u4e0e\u3048\u308b\u305f\u3081\u306b\u8ca2\u732e\u3067\u304d\u308b\u3053\u3068\u304c\u4f55\u3082\u306a\u3044\u308f\u3051\u3067\u306f\u306a\u3044\u3002<\/p>\n

LGMD\u306f\u3001\u4ee5\u524d\u306b\u3082\u5897\u3057\u3066\u5bb6\u65cf\u3078\u306e\u611f\u8b1d\u306e\u6c17\u6301\u3061\u3092\u6559\u3048\u3066\u304f\u308c\u305f\u3002<\/p>\n

\u305d\u306e\u304a\u304b\u3052\u3067\u3001\u79c1\u306f\u3059\u3079\u3066\u306e\u77ac\u9593\u3092\u3053\u308c\u307e\u3067\u4ee5\u4e0a\u306b\u611b\u3057\u3001\u751f\u304d\u308b\u3053\u3068\u304c\u3067\u304d\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002<\/p>\n

\u5909\u6027\u75be\u60a3\u3067\u3042\u308b\u4ee5\u4e0a\u3001\u9032\u884c\u3057\u3066\u3044\u304f\u3082\u306e\u3060\u304b\u3089\u3001\u4eca\u65e5\u3067\u304d\u3066\u3044\u305f\u3053\u3068\u304c\u3001\u6765\u5e74\u306b\u306f\u3067\u304d\u306a\u304f\u306a\u3063\u3066\u3044\u308b\u304b\u3082\u3057\u308c\u306a\u3044\u3002\u3060\u304b\u3089\u3001\u79c1\u306f\u4eca\u65e5\u3001\u4eca\u3067\u304d\u308b\u3059\u3079\u3066\u306e\u8eab\u4f53\u7684\u306a\u52d5\u304d\u3092\u697d\u3057\u3080\u3088\u3046\u306b\u3057\u3066\u3044\u308b\u3002\u9aea\u3092\u3068\u304b\u3059\u3053\u3068\u304b\u3089\u59cb\u307e\u3063\u3066\u3001\u81ea\u5206\u306e\u305f\u3081\u306b\u304a\u8336\u3092\u5165\u308c\u308b\u3053\u3068\u307e\u3067\u3001\u79c1\u306f\u305d\u308c\u3092\u5927\u5207\u306b\u3057\u3066\u3044\u308b\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n

\u3053\u306e\u75c5\u6c17\u304c\u7a00\u306a\u75c5\u6c17\u3067\u3042\u308b\u3053\u3068\u3092\u77e5\u3063\u3066\u307b\u3057\u3044\u3002\u8ab0\u306b\u3067\u3082\u8d77\u3053\u308b\u53ef\u80fd\u6027\u304c\u3042\u308b\u3002\u3053\u308c\u3092\u8aad\u3093\u3067\u3044\u308b\u3042\u306a\u305f\u304b\u3082\u3057\u308c\u306a\u3044\u3057\u3001\u3042\u306a\u305f\u306e\u77e5\u3089\u306a\u3044\u8ab0\u304b\u304b\u3082\u3057\u308c\u306a\u3044\u3002\u3057\u304b\u3057\u3001\u4eba\u3005\u306f\u3053\u306e\u7b4b\u8089\u3092\u8870\u3048\u3055\u305b\u308b\u75c5\u6c17\u3068\u3068\u3082\u306b\u751f\u304d\u3066\u304a\u308a\u3001\u6cbb\u7642\u6cd5\u3092\u5f85\u3061\u671b\u3093\u3067\u3044\u308b\u306e\u3060\u3002\u30d1\u30f3\u30c7\u30df\u30c3\u30af\uff08\u4e16\u754c\u7684\u5927\u6d41\u884c\uff09\u306e\u4f8b\u3092\u6319\u3052\u308c\u3070\u3001\u4e16\u754c\u4e2d\u306e\u79d1\u5b66\u8005\u304c\u30ef\u30af\u30c1\u30f3\u3092\u898b\u3064\u3051\u3088\u3046\u3068\u8e8d\u8d77\u306b\u306a\u3063\u3066\u3044\u308b\u3002\u4e00\u65b9\u3001LGMD\u306b\u3064\u3044\u3066\u306f\u3001\u4f55\u5341\u5e74\u3082\u306e\u9593\u3001\u7814\u7a76\u7d50\u679c\u304c\u51fa\u305a\u3001\u8cc7\u91d1\u4e0d\u8db3\u3084\u653f\u5e9c\u306e\u652f\u63f4\u4e0d\u8db3\u304c\u305d\u306e\u7406\u7531\u306e\u3044\u304f\u3064\u304b\u3067\u3042\u308b\u3002\u75c7\u72b6\u304b\u3089\u8a3a\u65ad\u306b\u81f3\u308b\u307e\u3067\u3001\u305d\u3057\u3066LGMD\u3092\u53d7\u3051\u5165\u308c\u3001\u5171\u306b\u751f\u304d\u59cb\u3081\u308b\u65e5\u307e\u3067\u3001\u5b64\u72ec\u306a\u65c5\u3067\u3057\u305f\u3002\u592b\u3084\u5bb6\u65cf\u3001\u53cb\u4eba\u305f\u3061\u306e\u652f\u3048\u306f\u3001\u79c1\u306b\u6bce\u65e5\u52c7\u6c17\u3092\u4e0e\u3048\u3066\u304f\u308c\u308b\u3082\u306e\u3067\u3059\u3002\u5c02\u9580\u533b\u304c\u3044\u306a\u3044\u3053\u3068\u3001\u6b63\u3057\u3044\u77e5\u8b58\u304c\u306a\u3044\u3053\u3068\u306f\u3001\u8a3a\u5bdf\u306e\u305f\u3073\u306b\u76f4\u9762\u3059\u308b\u3053\u3068\u3067\u3059\u3002\u969c\u58c1\u306e\u306a\u3044\u74b0\u5883\u3067\u306e\u5171\u611f\u304c\u5fc5\u8981\u306a\u306e\u3067\u3059\u3002\u6628\u65e5\u307e\u3067\u6b69\u3044\u3066\u3044\u305f\u306e\u306b\u3001\u4eca\u65e5\u306f\u8eca\u6905\u5b50\u304c\u5fc5\u8981\u3060\u3002\u4eba\u3005\u304cLGMD\u306b\u3064\u3044\u3066\u77e5\u3063\u3066\u304f\u308c\u308c\u3070\u3001\u79c1\u306e\u75c5\u72b6\u3092\u6b63\u5f53\u5316\u3059\u308b\u3053\u3068\u304c\u5bb9\u6613\u306b\u306a\u308b\u3067\u3057\u3087\u3046\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u304c\u7b54\u3048\u3066\u3044\u308b\u8cea\u554f\u306f\u4eee\u5b9a\u306e\u8a71\u3060\u3002\u73fe\u5b9f\u7684\u3067\u3042\u308b\u304b\u306e\u3088\u3046\u306b\u7b54\u3048\u3001\u524d\u5411\u304d\u3067\u5e0c\u671b\u306b\u6e80\u3061\u305f\u65e5\u3092\u5f85\u3061\u671b\u3093\u3067\u3044\u308b\u3002<\/p>\n

\u305d\u306e\u65e5\u306f\u9060\u3044\u304b\u3082\u3057\u308c\u306a\u3044\u3057\u3001\u8fd1\u3044\u304b\u3082\u3057\u308c\u306a\u3044\u3002\u79c1\u306e\u4fe1\u4ef0\u3059\u308b\u5b97\u6559\u306e\u3088\u3046\u306b\u3001\u3072\u3056\u307e\u305a\u3044\u3066\u7948\u308a\u305f\u3044\u3002\u30c0\u30f3\u30b9\u3084\u30b9\u30b1\u30fc\u30c8\u3082\u3057\u305f\u3044\u3002LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u306e\u3067\u3001\u4eca\u306f\u3082\u3046\u3067\u304d\u306a\u3044\u3051\u3069\u3002\u8eca\u306e\u904b\u8ee2\u3082\u3057\u305f\u3044\u3002\u3082\u3046\u4e00\u5ea6\u81ea\u7acb\u3057\u305f\u3044\u3002<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":3836,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3769","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-12-03T15:38:38+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD – 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