{"id":419,"date":"2015-03-12T21:50:04","date_gmt":"2015-03-13T02:50:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=312"},"modified":"2015-03-12T21:50:04","modified_gmt":"2015-03-13T02:50:04","slug":"donavon","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/03\/12\/donavon\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30c9\u30ca\u30f4\u30a9\u30f3"},"content":{"rendered":"

03\/12\/2015:<\/p>\n

\u540d\u79f0<\/strong>:\u30c9\u30ca\u30dc\u30f3\u00a0 \u5e74\u9f62<\/strong>: 52\"LGMD2D<\/a><\/p>\n

\u56fd\u540d<\/strong>:\u30a2\u30e1\u30ea\u30ab<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD2D<\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f16\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u6c7a\u3057\u3066\u901f\u304f\u8d70\u308b\u3053\u3068\u306f\u3067\u304d\u306a\u304b\u3063\u305f\u3057\u3001\u968e\u6bb5\u3092\u99c6\u3051\u4e0a\u304c\u308b\u306e\u306b\u3082\u554f\u984c\u304c\u3042\u3063\u305f\u3002\u8fb2\u5834\u3067\u66ae\u3089\u3057\u3066\u3044\u305f\u6642\u671f\u3082\u3042\u3063\u305f\u304c\u3001\u5bb6\u4e8b\u3092\u3059\u308b\u3068\u304d\u306f\u3001\u98fc\u6599\u3092\u8a70\u3081\u305f\u888b\u3092\u6301\u3061\u4e0a\u3052\u308b\u3053\u3068\u304c\u3067\u304d\u306a\u304b\u3063\u305f\u3002<\/p>\n

\u3054\u5bb6\u65cf\u306bLGMD\u306e\u65b9\u306f\u3044\u3089\u3063\u3057\u3083\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u305d\u3046\u3001\u79c1\u306b\u306fLGMD\u306e4\u4eba\u306e\u59c9\u59b9\u30682\u4eba\u306e\u59ea\u304c\u3044\u308b\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u9577\u5e74\u306b\u308f\u305f\u3063\u3066\u5fc5\u8981\u3068\u3057\u3066\u304d\u305f\u3059\u3079\u3066\u306e\u52a9\u3051\u306f\u3001\u5e74\u3005\u5897\u3048\u7d9a\u3051\u3066\u3044\u308b\u3002\u7d20\u6674\u3089\u3057\u3044\u59bb\u3068\u3001\u9577\u5e74\u306b\u308f\u305f\u3063\u3066\u79c1\u3092\u52a9\u3051\u3066\u304f\u308c\u305f\u7d20\u6674\u3089\u3057\u3044\u53cb\u4eba\u305f\u3061\u306b\u3068\u3066\u3082\u611f\u8b1d\u3057\u3066\u3044\u308b\u3002\u59b9\u306e\u30e2\u30cb\u30ab\u306f2012\u5e74\u306bLGMD\u306e\u5408\u4f75\u75c7\u3067\u4ea1\u304f\u306a\u3063\u305f\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u306e\u907a\u4f1d\u5b50\u6cbb\u7642\u3092\u53d7\u3051\u305f\u6700\u521d\u306e\u4eba\u3067\u3059\u3002\u79c1\u306f\u81ea\u5206\u306e\u907a\u4f1d\u5b50\u7570\u5e38\u304c\u5224\u660e\u3057\u3066\u304b\u3089\u6bce\u6708\u533b\u5e2b\u306b\u96fb\u8a71\u3092\u304b\u3051\u3001\u6700\u521d\u306e\u6cbb\u9a13\u304c\u59cb\u307e\u308b\u3053\u3068\u306b\u306a\u3063\u305f\u3068\u304d\u306b\u5fd7\u9858\u3057\u305f\u3002\u3053\u306e\u907a\u4f1d\u5b50\u6cbb\u7642\u306f\u3001\u79c1\u306b\u591a\u304f\u306e\u30c1\u30e3\u30f3\u30b9\u3092\u4e0e\u3048\u3066\u304f\u308c\u307e\u3057\u305f\u3002\u30ef\u30b7\u30f3\u30c8\u30f3DC\u3067\u306f\u3001\u6700\u521d\u306eMD\u30b1\u30a2\u6cd5\u306e\u30ed\u30d3\u30fc\u6d3b\u52d5\u3092\u624b\u4f1d\u3044\u307e\u3057\u305f\u3002\u307e\u305f\u3001\u56fd\u7acb\u885b\u751f\u7814\u7a76\u6240\u306e\u76e3\u8996\u59d4\u54e1\u4f1a\u306e\u59d4\u54e1\u30926\u5e74\u9593\u52d9\u3081\u307e\u3057\u305f\u3002<\/p>\n

LGMD\u306f\u3001\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u305f\u306e\u3067\u3059\u304b\uff1f<\/strong>:<\/strong><\/p>\n

\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u3068\u805e\u3044\u305f\u308a\u3001\u8eca\u6905\u5b50\u306b\u4e57\u3063\u3066\u3044\u308b\u79c1\u3092\u898b\u3066\u3001\u4f55\u3082\u3067\u304d\u306a\u3044\u3068\u601d\u3046\u4eba\u3082\u3044\u308b\u3002\u305d\u306e\u7d50\u679c\u3001\u79c1\u306f\u4eba\u751f\u306e\u3055\u307e\u3056\u307e\u306a\u5834\u9762\u3067\u3001\u975e\u5e38\u306b\u65ad\u56fa\u3068\u3057\u305f\u697d\u89b3\u7684\u306a\u30a2\u30d7\u30ed\u30fc\u30c1\u3092\u8eab\u306b\u3064\u3051\u308b\u3053\u3068\u304c\u3067\u304d\u305f\u3002\u4ed6\u306e\u969c\u5bb3\u8005\u304c\u65e5\u5e38\u7684\u306b\u62b1\u3048\u3066\u3044\u308b\u82e6\u52b4\u3092\u77e5\u3063\u3066\u3044\u308b\u306e\u3067\u3001\u4ed6\u306e\u969c\u5bb3\u8005\u3092\u898b\u308b\u76ee\u3082\u5909\u308f\u3063\u3066\u304d\u305f\u3002\u751f\u304d\u3066\u3044\u308b\u9593\u306b\u6cbb\u7642\u6cd5\u304c\u898b\u3064\u304b\u3089\u306a\u3051\u308c\u3070\u3001\u5929\u56fd\u3067\u306f\u3069\u3093\u306a\u75c5\u6c17\u3082\u306a\u3044\u3067\u3057\u3087\u3046\u304b\u3089\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n

\u79c1\u306f\u3001\u79c1\u305f\u3061\u304c\u6cbb\u7642\u3084\u6cbb\u7652\u306b\u975e\u5e38\u306b\u8fd1\u3065\u3044\u3066\u3044\u308b\u3068\u4fe1\u3058\u3066\u3044\u308b\u3002\u79c1\u306f1999\u5e74\u306b\u6700\u521d\u306e\u907a\u4f1d\u5b50\u6cbb\u7642\u306e\u81e8\u5e8a\u8a66\u9a13\u306b\u95a2\u308f\u3063\u3066\u304a\u308a\u3001\u65b0\u3057\u3044\u30d9\u30af\u30bf\u30fc\u3092\u8840\u6db2\u30b7\u30b9\u30c6\u30e0\u3092\u4f7f\u3063\u3066\u6295\u4e0e\u3059\u308b\u6b21\u306e\u907a\u4f1d\u5b50\u6cbb\u7642\u306e\u81e8\u5e8a\u8a66\u9a13\u304c\u59cb\u307e\u308b\u306e\u3092\u3068\u3066\u3082\u697d\u3057\u307f\u306b\u3057\u3066\u3044\u308b\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u30d0\u30f3\u3092\u904b\u8ee2\u3059\u308b\u4ee3\u308f\u308a\u306b\u8eca\u3084\u30d4\u30c3\u30af\u30a2\u30c3\u30d7\u3092\u904b\u8ee2\u3059\u308b\u3002\u3044\u3064\u304b\u30dd\u30f3\u30c6\u30a3\u30a2\u30c3\u30afGTO\u3092\u3082\u30461\u53f0\u6301\u3061\u305f\u3044\u3002<\/p>","protected":false},"excerpt":{"rendered":"

03\/12\/2015: Name: Donavon\u00a0 Age: 52 Country: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":313,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[29,16],"class_list":["post-419","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Donavon<\/title>\n<meta name=\"description\" content=\"Donavon, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/03\/12\/donavon\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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