{"id":5356,"date":"2021-06-08T19:13:33","date_gmt":"2021-06-08T19:13:33","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5356"},"modified":"2024-02-09T14:24:05","modified_gmt":"2024-02-09T14:24:05","slug":"individual-with-lgmd-jasmine","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30b8\u30e3\u30b9\u30df\u30f3"},"content":{"rendered":"

\"Jasmine\"<\/p>\n

\u540d\u79f0<\/strong>:\u30b8\u30e3\u30b9\u30df\u30f3<\/p>\n

\u5e74\u9f62<\/strong>24\u6b73<\/p>\n

\u56fd\u540d<\/strong>:\u30a2\u30e1\u30ea\u30ab<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD 2A\/R1 \u30ab\u30eb\u30d1\u30a4\u30f33\u95a2\u9023<\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>?<\/p>\n

\u79c1\u306f\u3064\u3044\u6700\u8fd1\u300124\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3070\u304b\u308a\u3060\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\u3069\u306e\u3088\u3046\u306a\u3082\u306e\u3067\u3057\u305f\u304b\uff1f <\/strong><\/p>\n

\u3064\u307e\u5148\u6b69\u304d\u304c\u6700\u521d\u306e\u75c7\u72b6\u3060\u3063\u305f\u3002\u79c1\u306f\u5c0f\u3055\u3044\u9803\u304b\u3089\u8db3\u304c\u5f31\u3044\u3053\u3068\u306b\u6c17\u3065\u3044\u3066\u3044\u305f\u3002\u5c0f\u5b66\u751f\u306e\u9803\u3001\u76f8\u624b\u30c1\u30fc\u30e0\u3068\u30d0\u30b9\u30b1\u30c3\u30c8\u30dc\u30fc\u30eb\u3092\u3059\u308b\u756a\u304c\u56de\u3063\u3066\u304d\u305f\u3068\u304d\u3001\u5e8a\u304b\u3089\u7acb\u3061\u4e0a\u304c\u3063\u3066\u30b3\u30fc\u30c8\u306e\u53cd\u5bfe\u5074\u307e\u3067\u99c6\u3051\u4e0b\u308a\u308b\u306e\u306b\u6642\u9593\u304c\u304b\u304b\u3063\u305f\u3053\u3068\u3092\u899a\u3048\u3066\u3044\u308b\u3002\u79c1\u306f\u819d\u306e\u4e0a\u306b\u624b\u3092\u7f6e\u3044\u3066\u7acb\u3061\u4e0a\u304c\u3063\u3066\u3044\u305f\u3002\u4e2d\u5b66\u751f\u306b\u306a\u308b\u3068\u3001\u968e\u6bb5\u306e\u4e0a\u308a\u4e0b\u308a\u3067\u8db3\u304c\u5f31\u304f\u306a\u3063\u3066\u3044\u308b\u3053\u3068\u306b\u6c17\u3065\u304d\u3001\u6bb5\u5dee\u3092\u907f\u3051\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002\u305d\u3057\u3066\u7a81\u7136\u3001\u6b69\u9053\u3084\u7e01\u77f3\u3092\u4e0a\u308b\u3053\u3068\u304c\u3067\u304d\u306a\u304f\u306a\u3063\u305f\u3002\u30ba\u30dc\u30f3\u3067\u811a\u3092\u3064\u307e\u3093\u3067\u4e0a\u304c\u3089\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u304b\u3063\u305f\u3002<\/p>\n

LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u5bb6\u65cf\u304c\u4ed6\u306b\u3044\u307e\u3059\u304b\uff1f<\/strong>?<\/strong><\/p>\n

\u79c1\u306e\u5bb6\u65cf\u3067LGMD\u3068\u8a3a\u65ad\u3055\u308c\u305f\u306e\u306f\u79c1\u3060\u3051\u3067\u3059\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>?<\/p>\n

LGMD\u3068\u3068\u3082\u306b\u751f\u304d\u308b\u4e0a\u3067\u306e\u6700\u5927\u306e\u8ab2\u984c\u306f\u3001\u3067\u304d\u308b\u9650\u308a\u81ea\u7acb\u3092\u4fdd\u3064\u3053\u3068\u3060\u3002<\/p>\n

\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f <\/strong><\/p>\n

\u79c1\u306f\u6700\u8fd1\u3001\u30b8\u30e7\u30fc\u30b8\u30a2\u30df\u30ea\u30bf\u30ea\u30fc\u30ab\u30ec\u30c3\u30b8\u3067\u4e2d\u5b66\u5e74\u6559\u80b2\u306e\u6e96\u5b66\u58eb\u53f7\u3092\u53d6\u5f97\u3057\u3066\u5352\u696d\u3057\u307e\u3057\u305f\u3002\u79c1\u306f\u4eca\u3001\u6700\u9ad8\u306e\u300c\u30b8\u30e7\u30fc\u30b8\u30a2\u5927\u5b66\u300d\u3067\u4e2d\u5b66\u5e74\u6559\u80b2\u3092\u5c02\u653b\u3059\u308b\u65b0\u3057\u3044\u7de8\u5165\u751f\u3067\u3059\u3002\u826f\u3044\u30cb\u30e5\u30fc\u30b9\u306f\u3001\u79c1\u306f\u5b66\u58eb\u53f7\u3068\u540c\u6642\u306b\u4fee\u58eb\u53f7\u3092\u53d6\u5f97\u3059\u308b\u30c0\u30d6\u30eb\u30e1\u30b8\u30e3\u30fc\u30fb\u30d7\u30ed\u30b0\u30e9\u30e0\u3092\u8ffd\u6c42\u3057\u3066\u3044\u308b\u3053\u3068\u3067\u3059\uff01\u79c1\u306f\u6570\u5b66\u306e\u6559\u5e2b\u306b\u306a\u308b\u3053\u3068\u3092\u8a08\u753b\u3057\u3066\u3044\u307e\u3059\uff08\u597d\u304d\u306a\u79d1\u76ee\uff09\u3002\u6700\u7d42\u7684\u306b\u306f\u3001MD\u306e\u9032\u307f\u5177\u5408\u306b\u3088\u3063\u3066\u3001\u3082\u3046\u5c11\u3057\u30ad\u30e3\u30ea\u30a2\u76ee\u6a19\u3092\u9032\u3081\u308b\u3064\u3082\u308a\u3067\u3059\u3002\u4e88\u5099\u7684\u306a\u3001\u3042\u308b\u3044\u306f\u6700\u7d42\u7684\u306a\u9078\u629e\u80a2\u3068\u3057\u3066\u3001\u30aa\u30f3\u30e9\u30a4\u30f3\u5927\u5b66\u306e\u6559\u6388\u306b\u306a\u308a\u3001\u5927\u534a\u306e\u6642\u9593\u306f\u5bb6\u306b\u3044\u3066\u3001\u82f1\u8a9e\u304b\u6570\u5b66\u306e\u3069\u3061\u3089\u304b\u306e\u524d\u63d0\u79d1\u76ee\u3092\u6559\u3048\u308b\u3064\u3082\u308a\u3067\u3059\u3002<\/p>\n

LGMD\u306f\u3001\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u305f\u306e\u3067\u3059\u304b\uff1f<\/strong>?<\/strong><\/p>\n

LGMD\u3092\u6301\u3064\u3053\u3068\u3067\u3001\u79c1\u306f\u3068\u3066\u3082\u8b19\u865a\u306b\u306a\u308a\u3001\u3069\u3093\u306a\u72b6\u6cc1\u3067\u3082\u6211\u6162\u5f37\u304f\u306a\u308a\u307e\u3057\u305f\u3002\u52a0\u3048\u3066\u3001\u5bb6\u306b\u3044\u308b\u3068\u304d\u3084\u5916\u51fa\u3059\u308b\u3068\u304d\u306b\u81ea\u5206\u81ea\u8eab\u3092\u9069\u5fdc\u3055\u305b\u308b\u305f\u3081\u306e\u30af\u30fc\u30eb\u306a\u30cf\u30c3\u30af\u3082\u305f\u304f\u3055\u3093\u5b66\u3093\u3060\uff01<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>?<\/p>\n

LGMD\u3092\u6301\u3064\u3053\u3068\u306f\u3001\u4ed6\u306e\u591a\u304f\u306e\u969c\u5bb3\u3068\u306f\u9055\u3046\u3068\u3044\u3046\u3053\u3068\u3092\u4e16\u9593\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3002\u8ee2\u3093\u3060\u3089\u3001\u5730\u9762\u304b\u3089\u8d77\u304d\u4e0a\u304c\u308b\u3053\u3068\u306f\u3067\u304d\u306a\u3044\u3002\u3060\u304b\u3089\u3068\u3044\u3063\u3066\u3001\u8155\u3092\u4f7f\u3063\u3066\u8d77\u304d\u4e0a\u304c\u308d\u3046\u3068\u3057\u3066\u3082\u3001\u307b\u3068\u3093\u3069\u306e\u4eba\u306f\u3046\u307e\u304f\u3044\u304b\u306a\u3044\u3002\u6587\u5b57\u901a\u308a\u3001\u4f53\u3092\u30ed\u30c3\u30af\u3057\u3066\u7acb\u3066\u308b\u3088\u3046\u306b\u306a\u308b\u307e\u3067\u3001\u8170\u3092\u5f15\u3063\u5f35\u3089\u308c\u3066\u7acb\u3061\u4e0a\u304c\u3089\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3002\u4f53\u3092\u9177\u4f7f\u3057\u305f\u5834\u5408\u3001\u56de\u5fa9\u306b\u6570\u65e5\u304b\u304b\u308b\u3053\u3068\u3082\u3042\u308b\u3002\u5065\u5e38\u8005\u304c\u3053\u306a\u3059\u7c21\u5358\u306a\u4ed5\u4e8b\u3067\u3082\u3001\u79c1\u305f\u3061\u306b\u306f\u3067\u304d\u306a\u3044\u3053\u3068\u304c\u3042\u308b\u3002\u307e\u305f\u3001\u5b9f\u969b\u306b\u305d\u306e\u4f5c\u696d\u3092\u3059\u308b\u524d\u306b\u3001\u8003\u3048\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u3053\u3068\u3082\u3042\u308b\u3002\u3053\u306e\u75c5\u6c17\u3067\u306f\u3001\u884c\u304f\u524d\u306b\u3042\u3089\u3086\u308b\u5834\u6240\u3092\u30c1\u30a7\u30c3\u30af\u3057\u3066\u3001\u30a2\u30af\u30bb\u30b9\u3057\u3084\u3059\u3044\u304b\u3069\u3046\u304b\u3001\u4fbf\u5b9c\u3092\u56f3\u3063\u3066\u3082\u3089\u3048\u308b\u304b\u3069\u3046\u304b\u3092\u78ba\u8a8d\u3057\u306a\u3051\u308c\u3070\u306a\u3089\u306a\u3044\u50be\u5411\u304c\u3042\u308b\u3002<\/p>\n

\u3082\u3057\u3042\u306a\u305f\u306eLGMD\u304c <\/strong>\"<\/strong>\u660e\u65e5\u300c\u6cbb\u3063\u305f\u300d\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3060\u308d\u3046\u304b\uff1f<\/strong>?<\/p>\n

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