{"id":544,"date":"2015-04-03T14:49:59","date_gmt":"2015-04-03T19:49:59","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=544"},"modified":"2015-04-03T14:49:59","modified_gmt":"2015-04-03T19:49:59","slug":"lacey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30ec\u30a4\u30b7\u30fc"},"content":{"rendered":"

04\/03\/2015<\/p>\n

\u540d\u524d<\/strong>: \u30ec\u30a4\u30b7\u30fc \u00a0\u00a0\u00a0\u5e74\u9f62<\/strong>:\u00a042\"LGMD2i<\/a><\/p>\n

\u56fd\u540d<\/strong>:\u30a2\u30e1\u30ea\u30ab<\/p>\n

LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD2i<\/p>\n

 <\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u304b<\/strong>:<\/p>\n

\u79c1\u306f16\u6b73\u3067\u7b4b\u30b8\u30b9\u30c8\u30ed\u30d5\u30a3\u30fc\u300134\u6b73\u3067LGMD2i\u3068\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u3002\u8a3a\u65ad\u306f\u3069\u3061\u3089\u3082\u96fb\u8a71\u3067\u53d7\u3051\u305f\u3002\u4eca\u306b\u3057\u3066\u601d\u3048\u3070\u3001\u533b\u5e2b\u304c\u76f4\u63a5\u6559\u3048\u3066\u304f\u308c\u308c\u3070\u3088\u304b\u3063\u305f\u306e\u306b\u3068\u601d\u3044\u307e\u3059\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n

\u6700\u521d\u306b\u6c17\u3065\u3044\u305f\u75c7\u72b6\u306f\u3001\u8d70\u308b\u3068\u8db3\u304c\u3064\u308b\u3053\u3068\u3068\u3001\u4ed6\u306e\u5b50\u306b\u3064\u3044\u3066\u884c\u3051\u306a\u3044\u3053\u3068\u3060\u3063\u305f\u3002\u4f53\u80b2\u3067\u3082\u30bd\u30d5\u30c8\u30dc\u30fc\u30eb\u3067\u3082\u3001\u6020\u3051\u3066\u3044\u308b\u304b\u3089\u3082\u3063\u3068\u9811\u5f35\u308c\u3068\u8a00\u308f\u308c\u305f\u3002\u79c1\u306f\u3067\u304d\u308b\u9650\u308a\u52aa\u529b\u3057\u3066\u3044\u308b\u306e\u306b\u3001\u3069\u3046\u3057\u305f\u3089\u4ed6\u306e\u5b50\u306e\u3088\u3046\u306b\u901f\u304f\u8d70\u308c\u308b\u306e\u3060\u308d\u3046\uff1f\"\u3068\u601d\u3063\u305f\u3053\u3068\u3092\u899a\u3048\u3066\u3044\u308b\u3002<\/p>\n

\u5bb6\u65cf\u306bLGMD\u60a3\u8005\u304c\u3044\u307e\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u3044\u3044\u3048\u3001\u79c1\u306b\u306fLGMD\u306e\u5bb6\u65cf\u306f\u3044\u307e\u305b\u3093\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u308b\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u7d76\u3048\u9593\u306a\u3044\u5909\u5316\u3068\u3001\u65b0\u3057\u3044\u65e5\u5e38\u306b\u9069\u5fdc\u3059\u308b\u65b9\u6cd5\u3092\u898b\u3064\u3051\u3088\u3046\u3068\u3059\u308b\u3053\u3068\u3002<\/p>\n

\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b<\/strong>:<\/p>\n

\u79c1\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u3001\u601d\u3044\u3084\u308a\u3068\u52c7\u6c17\u3092\u3082\u3063\u3066\u305d\u306e\u65e5\u305d\u306e\u65e5\u3092\u751f\u304d\u308b\u3053\u3068\u3001\u652f\u3048\u3066\u304f\u308c\u308b\u592b\u306e\u59bb\u3067\u3042\u308b\u3053\u3068\u3001\u305d\u3057\u3066\u611b\u3059\u308b\u5a18\u305f\u3061\u306e\u6bcd\u89aa\u3067\u3042\u308b\u3053\u3068\u3067\u3059\u3002<\/p>\n

LGMD\u306f\u73fe\u5728\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong>:<\/p>\n

LGMD\u306f\u79c1\u306b\u30b9\u30d4\u30fc\u30c9\u3092\u843d\u3068\u3057\u3001\u73fe\u5728\u306b\u610f\u8b58\u3092\u5411\u3051\u308b\u3053\u3068\u3092\u4f59\u5100\u306a\u304f\u3055\u305b\u305f\u3002\u3053\u306e\u75c5\u6c17\u306e\u304a\u304b\u3052\u3067\u3001\u79c1\u306f\u3088\u308a\u5f37\u304f\u3001\u3088\u308a\u5171\u611f\u7684\u306a\u4eba\u9593\u306b\u306a\u3063\u305f\u3002\u6ce3\u3044\u3066\u3001\u540c\u6642\u306b\u7b11\u3046\u3053\u3068\u3092\u5b66\u3093\u3060\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u4f55\u3092\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n

\u79c1\u306fLGMD\u306b\u3064\u3044\u3066\u3001\u7279\u306b\u533b\u5e2b\u3092\u4e2d\u5fc3\u306b\u3001\u4e16\u306e\u4e2d\u306b\u3082\u3063\u3068\u8a8d\u77e5\u3057\u3066\u3082\u3089\u3044\u305f\u3044\u3068\u601d\u3063\u3066\u3044\u307e\u3059\u3002\u591a\u304f\u306e\u4eba\u306b\u3068\u3063\u3066\u3001\u8a3a\u65ad\u3092\u53d7\u3051\u308b\u307e\u3067\u306e\u9053\u306e\u308a\u306f\u9577\u3044\u3082\u306e\u3060\u3068\u601d\u3044\u307e\u3059\u304c\u3001\u305d\u3046\u3067\u3042\u308b\u5fc5\u8981\u306f\u3042\u308a\u307e\u305b\u3093\u3002LGMD\u306e\u4e2d\u306b\u306f\u5fc3\u81d3\u3084\u80ba\u306b\u554f\u984c\u3092\u62b1\u3048\u3066\u3044\u308b\u4eba\u3082\u3044\u308b\u306e\u3067\u3001\u77e5\u8b58\u306e\u3042\u308b\u533b\u5e2b\u304c\u76e3\u8996\u3057\u3001\u30b5\u30dd\u30fc\u30c8\u3092\u63d0\u4f9b\u3059\u308b\u3053\u3068\u304c\u4e0d\u53ef\u6b20\u3060\u3068\u601d\u3044\u307e\u3059\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c\u300c\u6cbb\u308b\u300d\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>: \u3069\u3093\u306a\u611f\u3058\u304b\u601d\u3044\u51fa\u305b\u305f\u3089\u3044\u3044\u3093\u3060\u3051\u3069\u3002 \u30b9\u30af\u30fc\u30bf\u30fc\u3067\u8d70\u3063\u3066\u3044\u308b\u3068\u304d\u3001\u76ee\u3092\u3064\u3076\u3063\u3066\u8d70\u3063\u3066\u3044\u308b\u3075\u308a\u3092\u3059\u308b\u3053\u3068\u304c\u3042\u308b\u3093\u3060\u3051\u3069\u3001\u3061\u3087\u3063\u3068\u5371\u306a\u3044\u3093\u3060\u1642\u3002<\/p>","protected":false},"excerpt":{"rendered":"

04\/03\/2015 NAME: \u00a0Lacey \u00a0\u00a0\u00a0AGE:\u00a042 COUNTRY:\u00a0United States LGMD Sub-Type:\u00a0LGMD2i   AT […]<\/p>","protected":false},"author":1,"featured_media":542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Lacey<\/title>\n<meta name=\"description\" content=\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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