{"id":5561,"date":"2021-11-07T23:51:06","date_gmt":"2021-11-07T23:51:06","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5561"},"modified":"2024-02-09T14:23:59","modified_gmt":"2024-02-09T14:23:59","slug":"individual-with-lgmd-osman","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","title":{"rendered":"LGMD\u500b\u4eba\uff1a\u30aa\u30b9\u30de\u30f3"},"content":{"rendered":"

\"\"<\/p>\n

LGMD \"\u30b9\u30dd\u30c3\u30c8\u30e9\u30a4\u30c8\u30fb\u30a4\u30f3\u30bf\u30d3\u30e5\u30fc\"<\/p>\n

\u540d\u524d<\/strong>\u00a0 \u30aa\u30b9\u30de\u30f3<\/p>\n

\u5e74\u9f62<\/strong>: 30\u6b73<\/p>\n

\u56fd<\/strong>\u00a0 \u30c8\u30eb\u30b3<\/p>\n

LGMD \u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>\u00a0 LGMD2D\/R3 \u30a2\u30eb\u30d5\u30a1\u30fb\u30b5\u30eb\u30b3\u30b0\u30ea\u30ab\u30f3\u95a2\u9023<\/p>\n

\u4f55\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u307e\u3057\u305f\u304b\uff1f<\/strong><\/p>\n

\u79c1\u306f16\u6b73\u3067\u8a3a\u65ad\u3055\u308c\u305f\u3002<\/p>\n

\u6700\u521d\u306e\u75c7\u72b6\u306f\u3069\u306e\u3088\u3046\u306a\u3082\u306e\u3067\u3057\u305f\u304b\uff1f<\/strong><\/p>\n

\u75c7\u72b6\u304c\u51fa\u59cb\u3081\u305f\u306e\u306f17\u6b73\u9803\u3002\u5c11\u3057\u8d70\u3063\u305f\u3060\u3051\u3067\u4f11\u307f\u305f\u304f\u306a\u3063\u305f\u3002\u968e\u6bb5\u306e\u6607\u308a\u964d\u308a\u3067\u75b2\u308c\u305f\u3002 \u6570\u5e74\u5f8c\u3001\u968e\u6bb5\u3092\u4e0a\u308b\u3068\u304d\u3084\u5ea7\u3063\u305f\u72b6\u614b\u304b\u3089\u7acb\u3061\u4e0a\u304c\u308b\u3068\u304d\u306b\u3064\u304b\u307e\u308b\u3088\u3046\u306b\u306a\u3063\u305f\u3002 25\u6b73\u306e\u6642\u3001\u524d\u304b\u304c\u307f\u306b\u306a\u308c\u306a\u304f\u306a\u308a\u3001\u8ee2\u3070\u306a\u3044\u3088\u3046\u306b\u3086\u3063\u304f\u308a\u6b69\u304f\u3088\u3046\u306b\u306a\u3063\u305f\u3002<\/p>\n

LGMD\u3092\u60a3\u3063\u3066\u3044\u308b\u5bb6\u65cf\u304c\u4ed6\u306b\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u3048\u3048\u3001\u79c1\u306e\u59b9\u3082LGMD2D\/R3\u3068\u8a3a\u65ad\u3055\u308c\u3066\u3044\u307e\u3059\u3002<\/p>\n

LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong><\/p>\n

\u6700\u5927\u306e\u8ab2\u984c\u306f\u65e5\u5e38\u751f\u6d3b\u52d5\u4f5c\u3060\u3002\u5bb6\u65cf\u3068\u4e00\u7dd2\u306b\u597d\u304d\u306a\u5834\u6240\u306b\u884c\u304f\u3053\u3068\u304c\u3067\u304d\u306a\u3044\u3057\u3001\u4f55\u304b\u306b\u3064\u304b\u307e\u3089\u306a\u3044\u3068\u968e\u6bb5\u3092\u4e0a\u308c\u306a\u3044\u3002<\/p>\n

\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong><\/p>\n

\u79c1\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u3001\u30b3\u30f3\u30d4\u30e5\u30fc\u30bf\u30fc\u30fb\u30a8\u30f3\u30b8\u30cb\u30a2\u3068\u3057\u3066\u3001LGMD\u30c8\u30eb\u30b3\u5354\u4f1a\u306e\u8a2d\u7acb\u306b\u8ca2\u732e\u3057\u305f\u3053\u3068\u3060\u3002<\/p>\n

LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

\u79c1\u306f\u9ad8\u3044\u610f\u8b58\u3092\u6301\u3064\u4eba\u9593\u306b\u306a\u3063\u305f\u3002\u3069\u3093\u306a\u72b6\u6cc1\u3067\u3082\u3001\u81ea\u5206\u306e\u3067\u304d\u308b\u7bc4\u56f2\u3067\u4ed6\u306e\u4eba\u3092\u52a9\u3051\u3088\u3046\u3068\u3059\u308b\u3002\u81ea\u5206\u306e\u75c5\u6c17\u3084\u4ed6\u306e\u75c5\u6c17\u306b\u3064\u3044\u3066\u3001\u4ed6\u306e\u4eba\u305f\u3061\u306b\u516c\u8868\u3059\u308b\u3088\u3046\u306b\u3057\u3066\u3044\u307e\u3059\u3002<\/p>\n

LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong><\/p>\n

LGMD\u306e\u75c7\u72b6\u3001\u8ab2\u984c\u3001\u7ba1\u7406\u3001\u30ea\u30cf\u30d3\u30ea\u30c6\u30fc\u30b7\u30e7\u30f3\u3001\u6700\u65b0\u306e\u79d1\u5b66\u7684\u7814\u7a76\u3001\u305d\u3057\u3066\u3053\u306e\u9032\u884c\u6027\u306e\u795e\u7d4c\u7b4b\u75be\u60a3\u306e\u5f71\u97ff\u3092\u53d7\u3051\u3066\u3044\u308b\u4eba\u3005\u3084\u5bb6\u65cf\u306b\u5c11\u3057\u3067\u3082\u5b89\u5fc3\u611f\u3092\u4e0e\u3048\u3001\u8a8d\u77e5\u5ea6\u3092\u9ad8\u3081\u308b\u305f\u3081\u306b\u6d3b\u52d5\u3057\u3066\u3044\u308b\u7d44\u7e54\u306a\u3069\u3001LGMD\u306b\u95a2\u3059\u308b\u3042\u3089\u3086\u308b\u3053\u3068\u3092\u4e16\u306e\u4e2d\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3002<\/p>\n

\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong><\/p>\n

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