{"id":615,"date":"2015-04-29T08:06:42","date_gmt":"2015-04-29T13:06:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=615"},"modified":"2015-04-29T08:06:42","modified_gmt":"2015-04-29T13:06:42","slug":"alicia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ja\/individuals-with-lgmd-interviews\/2015\/04\/29\/alicia\/","title":{"rendered":"INDIVIDUAL WITH LGMD:  Alicia"},"content":{"rendered":"<p>04\/29\/2015<\/p>\n<p><strong>\u540d\u524d<\/strong>\u00a0 Alicia<\/p>\n<p><strong>\u5e74\u9f62<\/strong>:\u00a0 38 yrs. old<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/04\/LGMD2A-Alicia.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-616 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/04\/LGMD2A-Alicia-300x169.png\" alt=\"LGMD2A - Alicia\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\u56fd\u540d<\/strong>:\u30a2\u30e1\u30ea\u30ab<\/p>\n<p><strong>LGMD\u30b5\u30d6\u30bf\u30a4\u30d7<\/strong>:LGMD2A \/ \u30ab\u30eb\u30d1\u30a4\u30f3\u969c\u5bb3<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4f55\u6b73\u3067\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u304b<\/strong>:<\/p>\n<p>I was diagnosed at age 35 after years &amp; years of being misdiagnosed.<\/p>\n<p><strong>\u6700\u521d\u306e\u75c7\u72b6\u306f\uff1f<\/strong>:<\/p>\n<p>Walking &amp; running on my toes and climbing stairs were the first symptoms.<\/p>\n<p><strong>Do you have other family members who have LGMD:\u00a0 No<\/strong><\/p>\n<p><strong>LGMD\u3068\u5171\u306b\u751f\u304d\u3066\u3044\u304f\u4e0a\u3067\u3001\u6700\u3082\u56f0\u96e3\u3060\u3068\u611f\u3058\u308b\u3053\u3068\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n<p>One of the biggest challenges for me has been finding physicians who are educated when it comes to LGMD and the challenges &amp; symptoms that come along with the disease.\u00a0 Many doctors didn\u2019t take my issues seriously (muscle pains, loss in strength, problems walking\/stairs) or thought I had an autoimmune disease before I found a doctor that finally sent me to the Mayo Clinic. After an EMG, blood tests &amp; a muscle biopsy I was finally diagnosed but it took many years and many doctors to get where I am at.<\/p>\n<p><strong>\u3042\u306a\u305f\u306e\u6700\u5927\u306e\u529f\u7e3e\u306f\u4f55\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n<p>Raising two amazing daughters with my husband of 14years has been an accomplishment and a blessing. Teaching them kindness and to be more empathetic towards people since we never really know the struggles of those around us.<\/p>\n<p><strong>LGMD\u306f\u4eca\u306e\u3042\u306a\u305f\u306b\u3069\u306e\u3088\u3046\u306a\u5f71\u97ff\u3092\u4e0e\u3048\u3066\u3044\u307e\u3059\u304b\uff1f \u00a0<\/strong><\/p>\n<p>It has taught be to be kinder, listen more and laugh every day. \u00a0Sometimes all you can do is laugh.<\/p>\n<p><strong>LGMD\u306b\u3064\u3044\u3066\u4e16\u754c\u306b\u77e5\u3063\u3066\u3082\u3089\u3044\u305f\u3044\u3053\u3068\u306f\uff1f<\/strong>:<\/p>\n<p>That there are currently no treatments or cure for LGMD and if you have a family member or even a friend who has been diagnosed please educate yourself about the disease.\u00a0 It could mean the world to someone.<\/p>\n<p><strong>\u3082\u3057\u660e\u65e5\u3001\u3042\u306a\u305f\u306eLGMD\u304c \"\u6cbb\u308b \"\u3068\u3057\u305f\u3089\u3001\u307e\u305a\u4f55\u3092\u3057\u305f\u3044\u3067\u3059\u304b\uff1f<\/strong>:<\/p>\n<p>Dance all night!<\/p>","protected":false},"excerpt":{"rendered":"<p>04\/29\/2015 Name:\u00a0 Alicia Age:\u00a0 38 yrs. old Country: United States [&hellip;]<\/p>","protected":false},"author":1,"featured_media":616,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-615","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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