The LGMD Awareness Foundation, Inc. is a 501(c)(3) non-profit advocacy organization committed to raising global awareness about limb-girdle muscular dystrophy (LGMD), a group of rare and often debilitating neuromuscular diseases.<\/strong><\/p>\n<\/div> Our mission is strengthened through collaborative efforts with other LGMD foundations, as we unite to provide curated educational resources and support for both the LGMD community and the public.<\/p>\n \uc800\ud76c\ub294 \uc774 \uc9c4\ud589\uc131 \uc9c8\ud658\uc5d0 \ub300\ud55c \uc778\uc2dd\uc744 \ud655\ub300\ud558\uace0 \uc601\ud5a5\uc744 \ubc1b\ub294 \uc0ac\ub78c\ub4e4\uc744 \uc639\ud638\ud568\uc73c\ub85c\uc368 \uc774 \uc9c8\ud658\uc5d0 \uc9c1\uba74\ud55c \uc0ac\ub78c\ub4e4\uc774 \uc9c4\ub2e8, \uad00\ub9ac \ubc0f \uce58\ub8cc\uc758 \uacbd\ub85c\ub97c \ubcf4\ub2e4 \uc27d\uac8c \ud0d0\uc0c9\ud560 \uc218 \uc788\ub3c4\ub85d \ub178\ub825\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc774\ub7ec\ud55c \uc639\ud638 \ud65c\ub3d9\uc758 \uc911\uc694\ud55c \ud558\uc774\ub77c\uc774\ud2b8\ub294 \ub9e4\ub144 9\uc6d4 30\uc77c\uc5d0 \uc5f4\ub9ac\ub294 '\uc0ac\uc9c0-\uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d \uc778\uc2dd\uc758 \ub0a0'\ub85c, \uc774 \ub0a0\uc740 \uc9c0\uc2dd\uc744 \uc804\ud30c\ud558\uace0 \ucee4\ubba4\ub2c8\ud2f0 \ucc38\uc5ec\ub97c \ucd09\uc9c4\ud558\ub294 \uc911\uc694\ud55c \ud50c\ub7ab\ud3fc \uc5ed\ud560\uc744 \ud569\ub2c8\ub2e4.<\/p>\n<\/div><\/div><\/div> \uc6b0\ub9ac\ub294 \ud568\uaed8 LGMD\uc758 \uc601\ud5a5\uc744 \ubc1b\ub294 \uc0ac\ub78c\ub4e4\uc758 \uc0b6\uc744 \ubcc0\ud654\uc2dc\ud0ac \uc218 \uc788\uc73c\uba70, \ubaa8\ub450\uac00 \uc774 \uc911\uc694\ud55c \ub300\uc758\uc5d0 \ub3d9\ucc38\ud560 \uac83\uc744 \uad8c\uc7a5\ud569\ub2c8\ub2e4.<\/p>\n (EIN: 85-1504937)\ub294 501(c)(3) \ube44\uacfc\uc138 \uacf5\uc775 \uc790\uc120 \ub2e8\uccb4\uc785\ub2c8\ub2e4. \ub530\ub77c\uc11c \ubaa8\ub4e0 \uae30\ubd80\uae08\uc740 \uc804\uc561 \uc138\uae08 \uacf5\uc81c \ub300\uc0c1\uc785\ub2c8\ub2e4.<\/p>\n<\/div> LGMD \uc778\uc2dd\uc758 \ub0a0 \ucc3d\ub9bd\uc790<\/p>\n<\/div><\/li> \uad6d\uc81c \uc0ac\uc9c0-\uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d \ucee8\ud37c\ub7f0\uc2a4 \uacf5\ub3d9 \uc758\uc7a5<\/p>\n<\/div><\/li> \ub9c8\uc6b4\ud2b8 \uba54\ub9ac \ub300\ud559\uad50 \ud559\uc0ac<\/p>\n<\/div><\/li> \uc804\uc9c1 \uacf5\uc778 \uc791\uc5c5 \uce58\ub8cc\uc0ac(OTR)<\/p>\n<\/div><\/li> \uc218\uc2ed \ub144 \ub3d9\uc548 \uc7a5\uc560\uc778\uc744 \uc704\ud55c \uc639\ud638\uc790\ub85c \ud65c\ub3d9\ud574 \uc654\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li> LGMD2A\/R1 \uce7c\ud30c\uc778 3 \uad00\ub828 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li><\/ul><\/div><\/div><\/div> \"LGMD\ub97c \uc704\ud55c \ub77c\uc784 \uadf8\ub9b0\" \ucea0\ud398\uc778 \ucf54\ub514\ub124\uc774\ud130<\/p>\n<\/div><\/li> \ub178\ub358 \uc77c\ub9ac\ub178\uc774 \ub300\ud559\uad50 \ud559\uc0ac<\/p>\n<\/div><\/li> \uc804 \ucd08\ub4f1 \uad50\uc0ac \ubc0f \uc885\uad50 \uad50\uc721 \ucf54\ub514\ub124\uc774\ud130<\/p>\n<\/div><\/li> LGMD \uc804\ub2f4 \ud658\uc790 \uc639\ud638\uc790<\/p>\n<\/div><\/li> LGMD2i\/R9 \ub514\uc2a4\ud2b8\ub85c\uae00\ub9ac\uce78 \uad00\ub828 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li><\/ul><\/div><\/div><\/div> LGMD2B\/R2 \ub514\uc2a4\ud398\ub9b0 \uad00\ub828 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li> \uc13c\ud2b8\ub7f4 \uc624\ud074\ub77c\ud638\ub9c8 \ub300\ud559\uad50\uc5d0\uc11c \ud559\uc0ac \ud559\uc704 \ucde8\ub4dd<\/p>\n<\/div><\/li> \uc758\ub8cc \ubc0f \ube44\uc601\ub9ac \ubd84\uc57c\uc5d0\uc11c \uc218\uc2ed \ub144\uac04\uc758 \ud64d\ubcf4 \ubc0f \ub9c8\ucf00\ud305 \uacbd\ud5d8\uc744 \uc313\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li> LGMD \uc804\ub2f4 \ud658\uc790 \uc639\ud638\uc790<\/p>\n<\/div><\/li> LGMD2B\/R2 \ub514\uc2a4\ud398\ub9b0 \uad00\ub828 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/li><\/ul><\/div><\/div><\/div><\/div><\/div><\/div><\/div> \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d \uc778\uc2dd\uc758 \ub0a0\uc740 \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d(LGMD)\uc73c\ub85c \uc54c\ub824\uc9c4 \ud76c\uadc0 \uc2e0\uacbd\uadfc\uc721 \uc9c8\ud658\uc5d0 \ub300\ud55c \uc778\uc2dd\uc744 \ub192\uc774\uace0 \ub9ce\uc740 \uc5b4\ub9b0\uc774\uc640 \uc131\uc778\uc758 \uc0b6\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce58\ub294 \uc774 \ud76c\uadc0 \uc9c8\ud658\uc5d0 \ub300\ud55c \uad00\uc2ec\uc744 \uc774\ub04c\uc5b4\ub0b4\uae30 \uc704\ud55c \uacf5\ub3d9\uc758 \ub178\ub825\uc785\ub2c8\ub2e4. \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d \uc778\uc2dd\uc758 \ub0a0\uc740 \ub9e4\ub144 9\uc6d4 30\uc77c\uc5d0 \uc804 \uc138\uacc4\uc801\uc73c\ub85c \uae30\ub150\ud558\uace0 \uc778\uc815\ud558\ub294 \ub0a0\uc785\ub2c8\ub2e4. \uc6f9\uc0ac\uc774\ud2b8\uc640 \ub2e4\uc591\ud55c \uc18c\uc15c \ubbf8\ub514\uc5b4 \ub9e4\uccb4\ub97c \ud1b5\ud574 \uc77c \ub144 \ub0b4\ub0b4 \uad11\ubc94\uc704\ud55c \ubc94\uc704\uc640 \uc601\ud5a5\ub825\uc744 \uac00\uc9c4 LGMD \uc639\ud638 \ud65c\ub3d9\uc744 \ud3bc\uce58\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\ud76c\ub294 \uc6f9\uc0ac\uc774\ud2b8, \uc18c\uc15c \ubbf8\ub514\uc5b4 \ubc0f \ub2e4\uc591\ud55c LGMD \uad00\ub828 \ud589\uc0ac\ub97c \ud1b5\ud574 LGMD \ucee4\ubba4\ub2c8\ud2f0\uc640 \ub300\uc911\uc744 \uc704\ud574 \uc5c4\uc120\ub41c \uad50\uc721 \uc815\ubcf4\uc640 \ub9ac\uc18c\uc2a4\ub97c \uc81c\uacf5\ud558\ub294 \ub370 \uc911\uc810\uc744 \ub450\uace0 \uc788\uc2b5\ub2c8\ub2e4. <\/p>\n \uccab \ubc88\uc9f8 \uc5f0\ub840 LGMD \uc778\uc2dd\uc758 \ub0a0\uc740 2015\ub144 LGMD2A\/R1 \uce7c\ud398\uc778 3 \uad00\ub828 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\ub294 \uce90\ub864 \uc5d0\uc774\ube0c\ub7ec\ud584\uc774 \ucc3d\uc124\ud55c \ub0a0\uc785\ub2c8\ub2e4.<\/p><\/p><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div> \ucf08\ub9ac \ube0c\ub77c\uc870<\/strong> \ub808\uc774\uccbc \ub4dc\ucf58\ud2f0<\/strong> \uc0ac\ub77c \uc5d0\ubaac\uc2a4<\/strong> \ucf04\ud2b8 \ud504\ub8e8\uc789<\/strong> \uc2a4\ucf67 \ud504\ub8e8\uc789<\/strong> \uc7a5 \ud53c\uc5d0\ub974 \ub85c\ub791<\/strong> \uc54c\ub809\uc0b0\ub4dc\ub77c \ub808\uc774\uc820\ud638\uc2a4\ud2b8<\/b> \uc81c\ub2c8\ud37c \ub808\ube44<\/strong>![](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2025\/08\/Screenshot-2025-08-.jpg\")
<\/span><\/div><\/div><\/div><\/div>![](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/Girdie.png\" "\\"Girdie\\"")
<\/span><\/div>LGMD \ud64d\ubcf4\ub300\uc0ac Girdie\ub97c \ub9cc\ub098\ubcf4\uc138\uc694.<\/strong><\/h3><\/div>
LEARN MORE ><\/h5><\/div><\/div><\/div><\/div><\/div>
\uc774\uc0ac\ud68c<\/h3><\/div>
![\"Laf](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LAF-Board-Members-3.png\" "\\"\ub77c\ud504")
<\/span><\/div><\/div><\/div>\uce90\ub864 \uc544\ube0c\ub77c\ud568, \uc0ac\uc7a5\/\uc7ac\ubb34\uc774\uc0ac<\/h4><\/div>
![\"Laf](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2022\/02\/LAF-Board-Members-karen-2.png\" "\\"\ub77c\ud504")
<\/span><\/div><\/div><\/div>\uce74\ub80c \ucf5c, \ubd80\uc0ac\uc7a5<\/h4><\/div>
![\"Img](\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2023\/10\/IMG_4928.jpeg\" "\\"\uc774\ubbf8\uc9c0")
\uc2ec\uc720\ubbf8, \ube44\uc11c<\/h4><\/div>
![\"Laf](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2022\/04\/LAF-Board-Members-Rebecca.png\" "\\"\ub77c\ud504")
<\/span><\/div><\/div><\/div>\ub808\ubca0\uce74 \uadf8\ub808\uadf8, \ub9c8\ucf00\ud305 \uc774\uc0ac<\/h4><\/div>
LGMD \uc778\uc2dd\uc758 \ub0a0<\/h3><\/div>
LGMD \uc790\ubb38 \uc704\uc6d0\ud68c<\/h3><\/div>
\n\uce58\ub8cc LGMD2i \uc7ac\ub2e8<\/a> (LGMD 2I\/R9)<\/p>\n<\/div>\n
\nLGMD2D \uc7ac\ub2e8<\/a> (LGMD 2D\/R3)<\/p>\n<\/div>\n
\n\uc790\uc778 \uc7ac\ub2e8<\/a> (LGMD 2B\/R2)<\/p>\n<\/div>\n
\n\ucee4\ud2b8+\ud53c\ud130 \uc7ac\ub2e8<\/a> (LGMD 2C\/R5)<\/p>\n<\/div>\n
\n\ucee4\ud2b8+\ud53c\ud130 \uc7ac\ub2e8<\/a> (LGMD 2C\/R5)<\/p>\n
\nLGMD2i \ud380\ub4dc<\/a> (LGMD 2I\/R9)<\/p>\n<\/div>\n
\n\uc2a4\ud2f0\uce6d \uc2a4\ud53c\uc5b4\ud06c\ub77c\ud750\ud2b8<\/a> (LGMD 2D\/R3)<\/p>\n<\/div>\n
\n\uce7c\ud398\uc778 \uce58\ub8cc\ub97c \uc704\ud55c \uc5f0\ud569 3<\/a> (LGMD 2A\/R1)<\/p>\n<\/div>\n