{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"LGMD \uac1c\uc778: \uc178\ub9ac"},"content":{"rendered":"

09\/08\/2015<\/p>\n

 <\/p>\n

\uc774\ub984<\/strong>: \uc178\ub9ac \ub098\uc774: 50\"LGMD2A<\/a><\/p>\n

\uad6d\uac00<\/strong>: \uce90\ub098\ub2e4<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2A \/ \ucc99\ucd94\ud1b5\uc99d\uc99d\ud6c4\uad70<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 11\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\uccab \ubc88\uc9f8 \uc99d\uc0c1\uc73c\ub85c\ub294 \ubc1c\ub05d\uc774 \uc090\ub6a4\uc5b4\uc9c0\uace0 \uacc4\ub2e8\uc744 \uc624\ub974\uae30 \ud798\ub4e4\uc5b4\uc84c\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\uc608, \uc81c \ud615\uc81c\uc790\ub9e4 \ubaa8\ub450 \uc601\ud5a5\uc744 \ubc1b\uc2b5\ub2c8\ub2e4. \uc81c \uc5ec\ub3d9\uc0dd \ubbf8\uc178\uacfc \uc624\ube60 \uc874\uc740 \ubaa8\ub450 LGMD2A\ub97c \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

20\ub300\uc758 \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0 \uc911 \ud558\ub098\ub294 \uc2e0\uccb4\uc801\uc73c\ub85c \uc57d\ud574\uc838 \uc544\uc774\ub97c \ub0b3\uace0 \uae30\ub97c \uc218 \uc5c6\ub2e4\ub294 \uac83\uc774\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub300\ud559 \ubc0f \uc804\ubb38\ub300\ud559 \ud559\uc704\uac00 \uc788\uc74c\uc5d0\ub3c4 \ubd88\uad6c\ud558\uace0 \uc758\ubbf8 \uc788\ub294 \uc77c\uc790\ub9ac\ub97c \ucc3e\ub294 \uac83\ub3c4 \uc5b4\ub824\uc6e0\uc2b5\ub2c8\ub2e4. \uace0\uc6a9\uc8fc\uc640 \uc9c1\uc6d0\ub4e4\uc774 \uc7a5\uc560\uc778\uc758 \ud544\uc694\ub97c \uc774\ud574\ud558\uc9c0 \ubabb\ud558\ub294 \uac83\ub3c4 \ubb38\uc81c\uc600\uc2b5\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc800\uc758 \uac00\uc7a5 \ud070 \uc131\ucde8 \uc911 \ud558\ub098\ub294 LGMD\uc640 \ud568\uaed8 \uc0b4\uba74\uc11c \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc774 \uc790\uc2e0\uc758 \ub2e4\uc591\uc131\uc744 \uadf9\ubcf5\ud558\ub3c4\ub85d \ub3d5\ub294 \uac83\uc5d0 \ub300\ud55c \ud68c\uace0\ub85d\uc744 \uc4f4 \uac83\uc785\ub2c8\ub2e4. \ub300\ud559\uc744 \uc878\uc5c5\ud55c \uac83\ub3c4 \uc131\uacfc\uc600\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

\uc800\ub294 \uc81c\uac00 \ud560 \uc218 \uc788\ub294 \uc77c\ub4e4\uc744 \ub2f9\uc5f0\ud558\uac8c \uc0dd\uac01\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc81c \uc7a5\uc560\ub97c \ud68c\uace0\ub85d\uacfc \uc601\uac10\uc744 \uc8fc\ub294 \uc5f0\uc124\uc744 \ud1b5\ud574 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc744 \uad50\uc721\ud558\ub294 \ub370 \ud65c\uc6a9\ud569\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n

LGMD\ub294 \uc790\ubc1c\uc801 \uadfc\uc721\uc758 \ud798\uc744 \ube7c\uc557\uc544 \uac00\uc9c0\ub9cc \uc9c0\ub2a5\uc5d0\ub294 \uc601\ud5a5\uc744 \ubbf8\uce58\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc2e0\uccb4\uc801 \uc7a5\uc560\uac00 \uc788\ub294 \uac83\ub3c4 \ub9e4\uc6b0 \uc2e4\ub9dd\uc2a4\ub7ec\uc6b8 \uc218 \uc788\uc9c0\ub9cc, \uc7a5\uc560\ub85c \uc778\ud574 \ud0c0\uc778\uc758 \ud3c9\uac00\ub97c \ubc1b\ub294 \uac83\uc740 \ud6e8\uc52c \ub354 \ub098\uc060 \uc218 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\ud53c\uaca8 \uc2a4\ucf00\uc774\ud2b8\ub97c \uc2e0\uace0 \uba87 \uc2dc\uac04 \ub3d9\uc548 \uc2a4\ucf00\uc774\ud2b8\ub97c \ud0c0\uace4 \ud588\uc8e0. 39\ub144 \uc804 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc744 \ub54c\ub294 \uad6c\ucd95\uc774 \uc0dd\uaca8\uc11c \ubc1c\ub4a4\uafc8\uce58 \ud798\uc904\uc774 \uae38\uc5b4\uc838 \ub354 \uc774\uc0c1 \uc2a4\ucf00\uc774\ud2b8\ub97c \ud0c8 \uc218 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. \uc815\ub9d0 \uac00\uc2b4\uc774 \uc544\ud320\uc5b4\uc694!<\/p>\n

\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

09\/08\/2015   Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD […]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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