{"id":1068,"date":"2015-12-10T11:56:42","date_gmt":"2015-12-10T17:56:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1068"},"modified":"2015-12-10T11:56:42","modified_gmt":"2015-12-10T17:56:42","slug":"michal","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2015\/12\/10\/michal\/","title":{"rendered":"INDIVIDUAL WITH LGMD:  Michal"},"content":{"rendered":"<p><strong>12\/10\/2015<\/strong><\/p>\n<p><strong>\uc774\ub984<\/strong>:\u00a0 Michal \u00a0\u00a0<strong>AGE<\/strong>: 35 yrs. old<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/12\/Unknown-Michal-R.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1069 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/12\/Unknown-Michal-R-300x169.png\" alt=\"Unknown -Michal R\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\uad6d\uac00<\/strong>: Poland<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: Unknown<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>I was diagnosed when I was 25 years old.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>When I was a baby, my neck muscles were too weak and I had difficulty holding my head up.\u00a0 I was delayed and didn\u2019t start to walk until I was 4year old.\u00a0 I stopped walking at the age of 14.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694? <\/strong><\/p>\n<p>NO , I&#8217;m the only person in my family who has this disease.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>: For me the greatest challenge is that I cannot do some things such as walking, running. stand without help, get dressed, etc. \u00a0\u00a0I tried to control my activities so that I have enough energy to do the activities that I want to do.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>One of the biggest achievement in my life is that I have real great parents, friends, and colleagues who encourage me to live a fairly optimistic life and let me forget about my disability.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>I have become more insensitive to pain and I&#8217;m not fearful of any challenges<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>I want the world to know that people with LGMD may need more help to live independently \u2013 such as a personal care attendant, \u00a0improved access to adaptive and assistive equipment as well as medicines.\u00a0 A cure and treatment is needed to treat all the LGMD patients.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>I think if I were cure tomorrow, I would run and do everything I never could do!<\/p>\n<p>&nbsp;<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc9c0\uc6d0\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694(https:\/\/www.lgmd-info.org\/spotlight-interviews).<\/p>","protected":false},"excerpt":{"rendered":"<p>12\/10\/2015 NAME:\u00a0 Michal \u00a0\u00a0AGE: 35 yrs. old COUNTRY: Poland LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1069,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[57,47],"class_list":["post-1068","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-poland","tag-unknown-sub-type"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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