{"id":1138,"date":"2016-01-30T12:59:17","date_gmt":"2016-01-30T18:59:17","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1138"},"modified":"2016-01-30T12:59:17","modified_gmt":"2016-01-30T18:59:17","slug":"thomas","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/01\/30\/thomas\/","title":{"rendered":"LGMD \uac1c\uc778: Thomas"},"content":{"rendered":"<p>01\/30\/2016<\/p>\n<p><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n<p><strong>\uc774\ub984<\/strong>:  Thomas\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <strong>AG<\/strong>E: 31<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/01\/LGMD2B-Thomas.png\" rel=\"attachment wp-att-1139\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1139 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/01\/LGMD2B-Thomas-300x169.png\" alt=\"LGMD2B - Thomas\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\uad6d\uac00<\/strong>: \uc2a4\uc704\uc2a4<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2B \/ \ubbf8\uc694\uc2dc \uadfc\ubcd1\uc99d<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>\uccab \uc9c4\ub2e8(\uc0dd\uac80)\uc740 28\uc138\uc5d0 \ubc1b\uc558\uace0, 1\ub144 \ud6c4 \uc720\uc804\uc790 \uac80\uc0ac\ub85c \ud655\uc9c4 \ud310\uc815\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>\uadf8\ub807\uac8c \ub9d0\ud558\uae30\ub294 \uc27d\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc5b4\ub9b0 \uc2dc\uc808 \uc9d1 \uc8fc\ubcc0\uc5d0 \uac00\ud30c\ub974\uac8c \uc62c\ub77c\uac00\ub294 \uacc4\ub2e8\uc774 \uc788\uc5c8\ub294\ub370, \uacc4\ub2e8\uc774 \ub9e4\uc6b0 \uc9e7\uc544\uc11c \ud56d\uc0c1 \uc624\ub974\uae30\uac00 \uc5b4\ub824\uc6e0\ub294\ub370 \uc774\uc81c\uc57c \uae30\uc5b5\uc5d0\uc11c \ub9ce\uc740 \uc608\uac00 \ub5a0\uc62c\ub790\uc2b5\ub2c8\ub2e4. \uc2ed\ub300 \ub54c \uc2a4\ub178\ubcf4\ub4dc\ub97c \ud0c0\uae30 \uc2dc\uc791\ud588\ub294\ub370, \ubcf4\ub4dc \uc55e\ucabd \uac00\uc7a5\uc790\ub9ac\uc5d0 \ud070 \ud798\uc744 \uc904 \uc218 \uc5c6\uc5c8\uc8e0. \uc80a\uc740 \uc131\uc778\uc73c\ub85c\uc11c \uc800\ub294 \ub514\uc2a4\ucf54\uc5d0\uc11c \uc74c\uc545\uc5d0 \ub9de\ucdb0 \uc810\ud504\ud560 \uc218 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. 24\/25\uc0b4 \ub54c \uc800\ub294 \ubc1c\uac00\ub77d\uc73c\ub85c \uc124 \uc218 \uc5c6\uace0 \uc885\uc544\ub9ac \uadfc\uc721\uc774 \uc2e4\uc81c\ub85c \uc874\uc7ac\ud558\uc9c0 \uc54a\ub294\ub2e4\ub294 \uac83\uc744 \uae68\ub2ec\uc558\uc2b5\ub2c8\ub2e4. \uc9c0\ub09c \uba87 \ub144 \ub3d9\uc548 \ub2e4\ub9ac\uc640 \ud314 \uadfc\uc721\uc774 \uc9e7\uc544\uc9c0\ub294 \uac83\uc744 \ubcf4\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p>18\uc0b4 \ub54c \uc758\uc0ac\ub294 \uc81c \ud608\uc911 \ud06c\ub808\uc544\ud2f4 \ud0a4\ub098\uc544\uc81c \uc218\uce58\uac00 \ub108\ubb34 \ub192\ub2e4\uace0 \ub9d0\ud588\uc2b5\ub2c8\ub2e4. \uc218\uce58\uac00 250~300 \uc815\ub3c4\uc600\ub294\ub370, \uc798 \uc54c\ub824\uc9c4 \uc9c8\ubcd1\uc5d0 \ube44\ud574\uc11c\ub294 \ub108\ubb34 \ub0ae\uace0 \uc815\uc0c1\uc774\ub77c\uace0 \ud558\uae30\uc5d0\ub294 \ub108\ubb34 \ub192\uc558\uc8e0. \uc774\uc81c \uc800\ub294 \uc774\uac83\uc774 \ubbf8\uc694\uc2dc\uc5d0\uac8c \uccab \ubc88\uc9f8 \uc758\ud559\uc801 \uc9c0\ud45c\uc600\ub2e4\ub294 \uac83\uc744 \uc54c\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\ub124, \uc81c \uc5ec\ub3d9\uc0dd\ub3c4 LGMD\ub97c \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uadf8\ub140\uc758 \uc99d\uc0c1(\ubc1c\ub05d\uc73c\ub85c \uc11c\uae30, \ud06c\ub808\uc544\ud2f4 \ud0a4\ub098\uc544\uc81c)\uc740 \ub3d9\uc77c\ud558\uc9c0\ub9cc \uc601\ud5a5\uc744 \ub35c \ubc1b\ub294 \uac83 \uac19\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc81c \uc0dd\uac01\uc5d0 \uac00\uc7a5 \ud070 \ub3c4\uc804\uc740 \uc774 \ub3c4\uc804\uc744 \ubc1b\uc544\ub4e4\uc774\ub294 \uac83\uc785\ub2c8\ub2e4! \uc9c4\ub2e8 \ud6c4 \ucc98\uc74c\uc5d4 \ubc1b\uc544\ub4e4\uc774\uae30 \uc5b4\ub824\uc6e0\uc2b5\ub2c8\ub2e4. \uc774\ub97c \uadf9\ubcf5\ud558\ub824\uba74 \uc815\uc2e0\uc801\uc778 \ud798\uc774 \ud544\uc694\ud569\ub2c8\ub2e4. \ub610\ud55c \uc9c8\ubcd1\uc758 \uacbd\uacfc\ub97c \ubcfc \ub54c \uc99d\uc0c1\uacfc \uc601\ud5a5\uc744 \uacfc\ub300\ud3c9\uac00\ud558\uac70\ub098 \uacfc\uc18c\ud3c9\uac00\ud558\uc9c0 \uc54a\uc544\uc57c \ud569\ub2c8\ub2e4. 5\ub144, 7\ub144, 10\ub144 \ud6c4 \ud720\uccb4\uc5b4\uac00 \ud544\uc694\ud560 \uc218\ub3c4 \uc788\ub2e4\ub294 \uac83\uc744 \uc5fc\ub450\uc5d0 \ub450\uace0 \ud56d\uc0c1 \ubbf8\ub798\ub97c \ub0b4\ub2e4\ubcf4\uba70 \uacc4\ud68d\uc744 \uc138\uc6cc\uc57c \ud569\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>LGMD\ub97c \ubc1b\uc544\ub4e4\uc774\uace0 \uc55e\uc73c\ub85c\ub294 \ud560 \uc218 \uc5c6\uac8c \ub420 \uc77c\ub4e4\uc744 \uc990\uae30\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>\uc81c \uc9c4\ub2e8\uc740 \uc11d\uc0ac \uacfc\uc815\uc744 \uc2dc\uc791\ud560 \ubb34\ub835\uc5d0 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \ud559\uc0ac \ubc0f \uc11d\uc0ac \uacfc\uc815(\ud480\ud0c0\uc784 \uacf5\ubd80) \uc678\uc5d0 \uc8fc\ub9d0\uacfc \ubc29\ud559\uc5d0\ub3c4 \uc77c\uc744 \ud558\uace0 \uc788\uc5c8\uc5b4\uc694. \uc9c0\uae08\uc740 \ud30c\ud2b8\ud0c0\uc784\uc73c\ub85c \uc77c\ud558\uba70 \uc544\ub0b4, \ubc18\ub824\uacac, \uc815\uc6d0\uacfc \ud568\uaed8 \uc5ec\uac00\ub97c \uc990\uae38 \uc218 \uc788\ub294 \uc5ec\uc720\uac00 \uc0dd\uacbc\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc9c0\uae08 \uc81c\uac00 \uac00\uc9c4 \uac83\uc744 \ub354 \uc18c\uc911\ud558\uac8c \uc0dd\uac01\ud569\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>\uc874\uc7ac\ud55c\ub2e4\ub294 \uac83\uc744\uc694. \uae30\ub85d\ub418\uc9c0 \uc54a\uc740 LGMD \uc0ac\ub840\uac00 \ub9ce\ub2e4\uace0 \uc0dd\uac01\ud569\ub2c8\ub2e4.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\ubbf8\uc694\uc2dc \ub54c\ubb38\uc5d0 \ud2b8\ub7ed\uacfc \ubc84\uc2a4 \uc6b4\uc804\uba74\ud5c8\ub97c \uc783\uc5c8\uc2b5\ub2c8\ub2e4. \uc6b4\uc804\uc740 \ud559\ube44\ub97c \ubc8c\uae30 \uc704\ud55c \uc9c1\uc5c5\uc77c \ubfd0\ub9cc \uc544\ub2c8\ub77c \ucde8\ubbf8\uc774\uae30\ub3c4 \ud588\uc5b4\uc694. \uadf8\ub798\uc11c \ub2e4\uc2dc \uba74\ud5c8\ub97c \ub530\uc11c \uc6b4\uc804\uc744 \ud558\uace4 \ud588\uc8e0.<\/p>\n<p>&nbsp;<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc9c0\uc6d0\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694(https:\/\/www.lgmd-info.org\/spotlight-interviews).<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>01\/30\/2016 LGMD \u201cSpotlight interview\u201d Name:\u00a0 Thomas\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 AGE: 31 COUNTRY: Switzerland [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1139,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,55,58],"class_list":["post-1138","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-miyoshi-myopathy","tag-switzerland"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Thomas - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, 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