{"id":1176,"date":"2016-04-08T12:01:28","date_gmt":"2016-04-08T17:01:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1176"},"modified":"2016-04-08T12:01:28","modified_gmt":"2016-04-08T17:01:28","slug":"mary","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/04\/08\/mary\/","title":{"rendered":"LGMD \uac1c\uc778: Mary"},"content":{"rendered":"<p>04\/08\/2016 &#8211;\u00a0LGMD \u201cSpotlight Interview\u201d<\/p>\n<p><strong>\uc774\ub984<\/strong>:\u00a0 Mary\u00a0\u00a0 <strong>\ub098\uc774<\/strong>: 46<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG.png\" rel=\"attachment wp-att-1177\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1177 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG-300x169.png\" alt=\"LGMD2A - Mary BG\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2A \/ \ucc99\ucd94\ud1b5\uc99d\uc99d\ud6c4\uad70<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>I was diagnosed with LGMD when I was 25 years old.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>My first symptoms were being unable to rise from a seated position without placing weight on my arms for support and difficulty in climbing stairs.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>No, I am the only family member to ever be diagnosed with LGMD.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>The greatest challenges for me are trying to remain independent with daily activities.\u00a0 The disease progression is slow but not being able to do what you once were able to do is hard to adjust to.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>My greatest accomplishment was marrying my husband. I became a widow in 2014.\u00a0 He was one of my greatest supporters.\u00a0 He inspired me to be the best person I could be.\u00a0 My family and friends are encouraging and a great support.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>I take nothing for granted.\u00a0 Each day is a gift \u2013 some better than others.\u00a0 I became more outgoing once my mobility became limited as I still want to experience and be active in life despite my diagnosis.<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>LGMD is a muscle wasting disease.<\/p>\n<p>Help those you can, become educated and treat everyone respectfully.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>If a cure was found tomorrow, I would run, dance and jump!\u00a0 All the things that I can no longer physically do would be top priorities!<\/p>\n<p>&nbsp;<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc9c0\uc6d0\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694(https:\/\/www.lgmd-info.org\/spotlight-interviews).<\/p>","protected":false},"excerpt":{"rendered":"<p>04\/08\/2016 &#8211;\u00a0LGMD \u201cSpotlight Interview\u201d NAME:\u00a0 Mary\u00a0\u00a0 Age: 46 COUNTRY: United [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-1176","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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