{"id":1192,"date":"2016-04-30T08:00:30","date_gmt":"2016-04-30T13:00:30","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1192"},"modified":"2016-04-30T08:00:30","modified_gmt":"2016-04-30T13:00:30","slug":"rebecca","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/04\/30\/rebecca\/","title":{"rendered":"LGMD \uac1c\uc778: \ub808\ubca0\uce74"},"content":{"rendered":"<p><strong>04\/30\/2016 \u00a0<\/strong><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uc774\ub984<\/strong>:\u00a0 Rebecca\u00a0\u00a0\u00a0 <strong>AGE<\/strong>: 29\uc138<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Becc.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1193 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Becc-300x169.png\" alt=\"LGMD2A - Becc\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\uad6d\uac00<\/strong>:\u00a0 Australia<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: \u00a0\u00a0LGMD2A \/ Calpainopathy<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>I was diagnosed with LGMD2A when I was 26 years old.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>My first symptoms included:\u00a0 difficult climbing stairs and inclines as well as not being able to rise without using my hands to me up.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>I am the only one out of 4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>The greatest challenge for me is battling fatigue.\u00a0 It can become really hard to find a balance between doing too much and not doing enough.\u00a0 I have found that I\u2019m adapting to change basically every year.\u00a0 It is also a challenge to not be so hard on myself when I see others doing activities which I can\u2019t do.\u00a0 It can be challenging to ask for help when I cannot fulfill a task on my own.\u00a0 Pain \u2013 I can\u2019t remember the last time that I woke up and felt no pain, discomfort and feeling fragile.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>My daughter is 10 years old and she is my greatest accomplishment.\u00a0 I might not be good at some things in life but I can honestly say I\u2019m the best Mum!\u00a0 She is my life.\u00a0 And, as she is growing up, she is starting to look after me in more ways than one.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>I might be becoming physically weaker in my body but I have become stronger mentally.<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>That is strips away everything that you know.<\/p>\n<p>I also want them to know about Coalition to Cure Calpain 3 \u2013 the organization focused on finding a cure and treatment for LGMD2A.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>If I was \u201ccured\u201d tomorrow, I would go out with my family with not limits.\u00a0 I would run around with my daughter and climb 100 stairs.<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694:\u00a0 <a href=\"https:\/\/www.lgmd-info.org\/ko\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>04\/30\/2016 \u00a0LGMD \u201cSpotlight Interview\u201d &nbsp; NAME:\u00a0 Rebecca\u00a0\u00a0\u00a0 AGE: 29 years [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1193,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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