{"id":1293,"date":"2016-08-17T12:31:33","date_gmt":"2016-08-17T17:31:33","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1293"},"modified":"2016-08-17T12:31:33","modified_gmt":"2016-08-17T17:31:33","slug":"melanie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/08\/17\/melanie\/","title":{"rendered":"LGMD \uac1c\uc778: \uba5c\ub77c\ub2c8"},"content":{"rendered":"

LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/p>\n

\n
\uc774\ub984<\/strong>: \uba5c\ub77c\ub2c8 \u00a0 AGE<\/strong>: 33\"LGMD2B<\/a><\/div>\n<\/div>\n
\n
\uad6d\uac00:<\/strong> \ubbf8\uad6d<\/span><\/span><\/div>\n<\/div>\n
\n
LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2b (\ub514\uc2a4\ud398\ub9b0 \ubcd1\uc99d\/\ubbf8\uc694\uc2dc \uadfc\ubcd1\uc99d) <\/span><\/span><\/div>\n<\/div>\n
\n
\u00a0<\/span><\/strong><\/div>\n<\/div>\n
\n
\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc73c\uc168\ub098\uc694?<\/strong><\/div>\n<\/div>\n
\n
\uc800\ub294 29\uc0b4 \uc0dd\uc77c \uc77c\uc8fc\uc77c \uc804\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694? <\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\uc800\ub294 \ubc1c\uac00\ub77d\uc73c\ub85c \uc77c\uc5b4\uc124 \uc218 \uc5c6\uc5c8\uace0, \ub9dd\uce58 \ubc1c\uac00\ub77d(\ubc1c \uae30\ud615)\uc774 \uc788\uc5b4 \ud56d\uc0c1 \ud1b5\uc99d\uacfc \ud53c\ub85c\uc5d0 \uc2dc\ub2ec\ub838\uc2b5\ub2c8\ub2e4.<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong> <\/span><\/span><\/div>\n<\/div>\n
\n
\uc544\ub2c8\uc694, \ud558\ub098\ub3c4 \uc5c6\uc2b5\ub2c8\ub2e4!<\/div>\n<\/div>\n
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\u00a0<\/span><\/div>\n<\/div>\n
\n
LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\ub098\uc694? <\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\uc77c\uc0c1\uc801\uc778 \uc791\uc5c5\uacfc \ud65c\ub3d9\uc744 \ud560 \uc218 \uc5c6\uac8c \ub418\ub2c8 \uc0b6\uc774 \uc0c1\ub2f9\ud788 \uc5b4\ub824\uc6cc\uc84c\uc2b5\ub2c8\ub2e4. \ubaa8\ub4e0 \uc0ac\uc18c\ud55c \uc77c\uc744 \ubbf8\ub9ac \uacc4\ud68d\ud574\uc57c \ud569\ub2c8\ub2e4. \ub610\ud55c \uc0ac\ub78c\ub4e4\uc774 \uc774 \uc0ac\uc2e4\uc744 \uc774\ud574\ud558\uc9c0 \ubabb\ud558\uba74 \ud798\ub4e4\uc5b4\uc9d1\ub2c8\ub2e4. \uc544\ud504\uc9c0 \uc54a\uc544 \ubcf4\uc774\uba74 \uc0ac\ub78c\ub4e4\uc740 \uc5ec\ub7ec\ubd84\uc758 \ud544\uc694\ub97c \uc9c4\uc9c0\ud558\uac8c \ubc1b\uc544\ub4e4\uc774\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.<\/div>\n<\/div>\n
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\u00a0<\/span><\/div>\n<\/div>\n
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\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694? <\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\uc11d\uc0ac \ud559\uc704\ub97c \ucde8\ub4dd\ud558\uace0 \uc5f0\ubc29 \uc815\ubd80\uc5d0\uc11c \uc88b\uc740 \uc9c1\uc7a5\uc744 \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4(\ub9e4\uc77c \uc544\ud504\uba74\uc11c\ub3c4).<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? <\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\ucc98\uc74c \uc9c4\ub2e8\uc744 \ubc1b\uc740 \ud6c4 \uc800\ub294 \ubb34\ub825\uac10\uacfc \uc678\ub85c\uc6c0\uc744 \ub290\uaf08\uc2b5\ub2c8\ub2e4. \uc774\ub7f0 \ud615\ud0dc\uc758 \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \ud55c \uba85\ub3c4 \uc5c6\uc5c8\uae30 \ub54c\ubb38\uc5d0 \ub450\ub824\uc6e0\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \ud22c\ub35c\ub300\uac70\ub098 \uc88c\uc808\ud558\uae30\ubcf4\ub2e4\ub294 \"\ub098\uac00\uc11c \ubb54\uac00 \ud574\ubcf4\ub294 \uac74 \uc5b4\ub5a8\uae4c?\"\ub77c\uace0 \uc0dd\uac01\ud588\uc5b4\uc694. \uadf8\ub798\uc11c \uc800\ub294 MDA\uc640 \ubaa8\uae08 \ubc29\ubc95\uc744 \uc54c\uc544\ubcf4\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4. \uc800\ub294 MDA \uba38\uc2ac \uc6cc\ud06c \ud300\uc744 \uc2dc\uc791\ud588\uace0 \uadf8 \uc774\ud6c4\ub85c \ub9e4\ub144 \uba38\uc2ac \uc6cc\ud06c\uc5d0 \ucc38\uac00\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \uc800\ub294 (\uac77\ub294 \ub2a5\ub825\uc744 \uc783\uc5b4\uac00\uace0 \uc788\uc73c\ub2c8) \uc544\uc9c1 \ud560 \uc218 \uc788\uc744 \ub54c \ud560 \uc218 \uc788\ub294 \ubaa8\ub4e0 \uc77c\uc744 \ud558\uae30\ub85c \uacb0\uc2ec\ud588\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \uadf8\ub807\uac8c \ud588\uc8e0. \uc804 \uc138\uacc4 \uacf3\uacf3\uc744 \uc5ec\ud589\ud588\uace0 \ud63c\uc790 \uc5ec\ud589\ud55c \uacf3\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \uc2ec\uc9c0\uc5b4 \uc2a4\uce74\uc774 \ub2e4\uc774\ube59\ub3c4 \ud574\ubd24\uc5b4\uc694. \uc800\ub294 \uc774 \uc9c4\ub2e8\uc774 \uc800\ub97c \ub354\uc6b1 \uae0d\uc815\uc801\uc778 \uc0ac\ub78c\uc73c\ub85c \ub9cc\ub4e4\uc5c8\ub2e4\uace0 \ubbff\uc2b5\ub2c8\ub2e4. \ud655\uc2e4\ud788 \uc800\ub97c \ub354 \uac15\ud55c \uc0ac\ub78c\uc73c\ub85c \ub9cc\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \uc9c0\ub09c 4\ub144 \ub3d9\uc548 \uc81c\uac00 \uacaa\uc740 \ub9ce\uc740 \uacbd\ud5d8\uc740 \uc81c\uac00 LGMD\ub97c \uace0\uc218\ud558\uace0 \uadf8 \ud655\ub960\uc774 \ud2c0\ub838\ub2e4\ub294 \uac83\uc744 \uc99d\uba85\ud55c \uc9c1\uc811\uc801\uc778 \uacb0\uacfc\uc785\ub2c8\ub2e4.<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/strong><\/div>\n<\/div>\n
\n
\uc138\uc0c1\uc774 LGMD\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uac83\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\uccab\uc9f8, \uc774 \uc9c8\ubcd1\uc740 \uc6b0\ub9ac\ub97c \uc815\uc758\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \uc6b0\ub9ac \uc790\uc2e0\uc774\uba70 \uc774 \ub054\ucc0d\ud55c \uc9c8\ubcd1\uc5d0 \uac78\ub838\uc744 \ubfd0\uc785\ub2c8\ub2e4. \ub458\uc9f8, \uc6b0\ub9ac\uac00 \uad1c\ucc2e\uc544 \ubcf4\uc778\ub2e4\uace0 \ud574\uc11c \uc6b0\ub9ac\uac00 \uad1c\ucc2e\ub2e4\uace0 \ub290\ub07c\ub294 \uac83\uc740 \uc544\ub2d9\ub2c8\ub2e4. \uc14b\uc9f8, \uadfc\uc774\uc601\uc591\uc99d\uc740 \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d\uc774 \uc544\ub2d9\ub2c8\ub2e4.<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
\ub0b4\uc77c LGMD\uac00 '\uc644\uce58'\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ubb34\uc5c7\uc744 \ud558\uc2dc\uaca0\uc2b5\ub2c8\uae4c?<\/span><\/span><\/strong><\/div>\n<\/div>\n
\n
\uc608\uc804\ucc98\ub7fc \ucda4\uc744 \ucd94\uc138\uc694! \uadf8\ub7f0 \ub2e4\uc74c \ubaa8\ub4e0 \uad6d\ub9bd\uacf5\uc6d0\uc5d0\uc11c \ud558\uc774\ud0b9\uc744 \ud558\uace0 \uba4b\uc9c4 \uc0ac\uc9c4\uc744 \ub9ce\uc774 \ucc0d\uc73c\uc138\uc694. \uadf8\ub7f0 \ub2e4\uc74c \ub9c8\ub77c\ud1a4\uc744 \ub6f0\uac70\ub098 \uc7a5\uc560\ubb3c \uacbd\uc8fc\ub97c \ud574\ubcf4\uc138\uc694.<\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
\u00a0<\/span><\/div>\n<\/div>\n
\n
\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694(https:\/\/www.lgmd-info.org\/spotlight-interviews). <\/span><\/span><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

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