{"id":1378,"date":"2016-10-11T11:29:46","date_gmt":"2016-10-11T16:29:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1378"},"modified":"2016-10-11T11:29:46","modified_gmt":"2016-10-11T16:29:46","slug":"anna","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/10\/11\/anna\/","title":{"rendered":"LGMD \uac1c\uc778: Anna"},"content":{"rendered":"

LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0<\/strong><\/p>\n

\uc774\ub984<\/strong>: Anna \u00a0\u00a0\ub098\uc774<\/strong>: 36\uc138\"lgmd2i-anna\"<\/a><\/p>\n

\uad6d\uac00<\/strong>: \uce90\ub098\ub2e4<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2I<\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 \uc5b4\ub838\uc744 \ub54c(\ucd08\ub4f1\ud559\uad50 \ub54c\ucbe4) \ucc98\uc74c\uc5d0 '\ube44\ud2b9\uc774\uc801 \uadfc\uc721 \uadfc\ubcd1\uc99d' \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \ub098\uc911\uc5d0 26\uc0b4 \ub54c, \uc800\ub294 LGMD\uc5d0 \ub300\ud55c '\uc791\uc5c5 \uc9c4\ub2e8'\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \ub9c8\uce68\ub0b4 36\uc138\uc5d0 \uc720\uc804\uc790 \uac80\uc0ac\ub97c \ud1b5\ud574 \uacf5\uc2dd\uc801\uc73c\ub85c\/\uc784\uc0c1\uc801\uc73c\ub85c LGMD 2I \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\ud0dc\uc5b4\ub0a0 \ub54c\ubd80\ud130 \uc774 \ubcd1\uc744 \uc553\uace0 \uc788\uc5c8\uc9c0\ub9cc \ubd80\ubaa8\ub2d8\uc740 \uc800\uc5d0\uac8c \uc774 \ubcd1\uc5d0 \ub300\ud574 \uc774\uc57c\uae30\ud55c \uc801\uc774 \uc5c6\uc5c8\uae30 \ub54c\ubb38\uc5d0 \uccab \uc99d\uc0c1\uc774 \ubb34\uc5c7\uc774\uc5c8\ub294\uc9c0 \uc798 \ubaa8\ub974\uaca0\uc2b5\ub2c8\ub2e4. \ubd80\ubaa8\ub2d8\uc740 \uc81c \uc99d\uc0c1\uc774 \uc758\ud559\uc801\uc73c\ub85c \uc81c \uc0b6\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce58\uc9c0 \uc54a\uc558\uae30 \ub54c\ubb38\uc5d0 \uad73\uc774 \uc2e0\uacbd \uc4f8 \ud544\uc694\uac00 \uc5c6\ub2e4\uace0 \uc0dd\uac01\ud558\uc168\uc8e0. \ub3cc\uc774\ucf1c\ubcf4\uba74 \uc81c\uac00 \uae30\uc5b5\ud560 \uc218 \uc788\ub294 \uac00\uc7a5 \ucd08\uae30\uc758 \uc99d\uc0c1\uc740 \ubc1c\uac00\ub77d\uc73c\ub85c \uac77\ub294 \uac83\uacfc \uc885\uc544\ub9ac \ud1b5\uc99d\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \ub610\ud55c \ud06c\ub85c\uc2a4 \ucee8\ud2b8\ub9ac \ub2ec\ub9ac\uae30\ub098 \uccb4\uc870\uc640 \uac19\uc740 \uc77c\ubd80 \uccb4\uc721\uad00 \ud65c\ub3d9\uc5d0 \uc27d\uac8c \ucc38\uc5ec\ud560 \uc218 \uc5c6\uc5c8\ub358 \uac83\ub3c4 \uae30\uc5b5\ub0a9\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\uc800\ub294 \ud615\uc81c\uac00 \uc14b\uc785\ub2c8\ub2e4. \ud765\ubbf8\ub85c\uc6b4 \uc810\uc740 \uc800\uc640 \ub098\uc774\uac00 \uac00\uc7a5 \uac00\uae4c\uc6b4 \ub450 \ud615\uc81c\ub294 LGMD\ub97c \uc553\uace0 \uc788\uc9c0\ub9cc, 7\uc0b4 \uc5b4\ub9b0 \ub9c9\ub0b4 \ub3d9\uc0dd\uc740 \uc804\ud600 \uc601\ud5a5\uc744 \ubc1b\uc9c0 \uc54a\uace0 \uc624\ud788\ub824 \ub9e4\uc6b0 \uc6b4\ub3d9\uc2e0\uacbd\uc774 \ub6f0\uc5b4\ub098\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc800\uc5d0\uac8c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \uc774 \uc9c8\ud658\uc758 \uc694\uad6c\uc0ac\ud56d\uc774 \ub04a\uc784\uc5c6\uc774 \ubcc0\ud654\ud55c\ub2e4\ub294 \uc810\uc785\ub2c8\ub2e4. \ub54c\ub85c\ub294 \ub530\ub77c\uc7a1\uae30\uac00 \uc5b4\ub835\uc2b5\ub2c8\ub2e4! \uc608\ub97c \ub4e4\uc5b4, \ud2b9\uc815 \uc791\uc5c5\uc744 \ud55c \uac00\uc9c0 \ubc29\ubc95\uc73c\ub85c \ud558\ub294 \ub370 \uc775\uc219\ud574\uc9c0\ub2e4\uac00 \uc5b4\ub290 \ub0a0 \uac11\uc790\uae30 \ub354 \uc774\uc0c1 \uadf8\ub7f0 \ubc29\uc2dd\uc73c\ub85c \ud560 \uc218 \uc5c6\uac8c \ub418\uac70\ub098 \uc544\uc608 \uadf8 \uc791\uc5c5\uc744 \ud560 \uc218 \uc5c6\ub2e4\ub294 \uac83\uc744 \uc54c\uac8c \ub420 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \ub610\ud55c, \ub3c4\uc6c0\uc744 \uc8fc\uae30 \uc704\ud574 \uc7a5\ube44\ub97c \uad6c\uc785\ud588\ub294\ub370 \ud55c\ub3d9\uc548\uc740 \ud6a8\uacfc\uac00 \uc788\uc5c8\uc9c0\ub9cc \ub354 \uc774\uc0c1 \ub3c4\uc6c0\uc774 \ub418\uc9c0 \uc54a\uc544 \ub2e4\ub978 \uc7a5\ube44\ub97c \uad6c\uc785\ud558\uac70\ub098 \ub2e4\ub978 \ubc29\ubc95\uc744 \uc0dd\uac01\ud574\uc57c \ud558\ub294 \uc0c1\ud669\uc5d0 \ub3c4\ub2ec\ud558\uae30\ub3c4 \ud569\ub2c8\ub2e4.<\/p>\n

\ub8e8\uac8c\ub9ad\ubcd1\uc744 \uc553\uace0 \uc788\ub294 \ub450 \ubc88\uc9f8\ub85c \ud070 \uc5b4\ub824\uc6c0\uc740 \uc774 \ubcd1\uc774 \ubbf8\ub798\uc5d0 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\uce60\uc9c0 \ubaa8\ub978\ub2e4\ub294 \uc810\uc785\ub2c8\ub2e4. \uc0ac\ub78c\ub9c8\ub2e4 \uc9c4\ud589 \uc815\ub3c4\uc640 \uc18d\ub3c4\uac00 \ub2e4\ub974\uae30 \ub54c\ubb38\uc5d0 \uc2e0\uccb4\uc801\uc73c\ub85c \uc5b4\ub5a4 \uc0c1\ud0dc\uac00 \ub420\uc9c0 \uc54c \uc218 \uc5c6\uae30 \ub54c\ubb38\uc5d0 \ubbf8\ub798\uc5d0 \ud544\uc694\ud55c \uac83\uc774 \ubb34\uc5c7\uc778\uc9c0 \uc608\uce21\ud558\uac70\ub098 \ubbf8\ub798\ub97c \uacc4\ud68d\ud558\uae30\uac00 \uc5b4\ub835\uc2b5\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc800\ub294 \uc628\uc804\ud55c \uc0b6\uc744 \uc0b4\uae30 \uc704\ud574 \ub9e4\uc6b0 \uc5f4\uc2ec\ud788 \uc77c\ud558\uae30 \ub54c\ubb38\uc5d0 \ud55c \uac00\uc9c0 \uc131\ucde8\ub97c \uaf3d\uae30\uac00 \uc5b4\ub835\uc2b5\ub2c8\ub2e4. \uac00\ub054\uc740 \ubcd1\ub9c8\uc640 \uc2f8\uc6b0\uba70 \uce68\ub300\uc5d0\uc11c \uc77c\uc5b4\ub098\ub294 \uac83\ub9cc\uc73c\ub85c\ub3c4 \ud070 \uc131\ucde8\ub97c \uc774\ub8ec \uac83\ucc98\ub7fc \ub290\uaef4\uc9c0\uae30\ub3c4 \ud569\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc800\ub294 \ub450 \uc544\uc774(\uce5c\uc790\uc2dd\uacfc \uc785\uc591\uc544)\uc758 \uc5c4\ub9c8\uc774\uae30 \ub54c\ubb38\uc5d0 \uc544\uc774\ub4e4\uc758 \uc131\uc7a5\uc744 \uc9c0\ucf1c\ubcf4\ub294 \uac83\uc774 \ud070 \uae30\uc068\uc774\uace0 \uc5c4\uccad\ub09c \uc131\ucde8\uac10\uc744 \uc90d\ub2c8\ub2e4. \ub610\ud55c \uac70\uc758 10\ub144 \ub3d9\uc548 \ubcf8\ub2f9 \uc0ac\uc81c\ub85c \uc77c\ud558\uba74\uc11c \uc0ac\ub78c\ub4e4\uc758 \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc2dc\uae30\ub97c \ud568\uaed8\ud560 \uc218 \uc788\ub294 \ud070 \uc601\uad11\uc744 \ub204\ub838\uc2b5\ub2c8\ub2e4. \uc81c\uac00 \uadf8 \ud798\ub4e0 \uc2dc\uae30\ub97c \ud5e4\uccd0\ub098\uac00\ub294 \ub370 \uc870\uae08\uc774\ub77c\ub3c4 \ub3c4\uc6c0\uc774 \ub418\uc5c8\uc744\uc9c0 \ubaa8\ub978\ub2e4\ub294 \uc0dd\uac01\uc5d0 \uc790\ubd80\uc2ec\uc744 \ub290\ub08d\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

LGMD\ub294 \uc81c \uc0b6\uc5d0 \uc5ec\ub7ec\ubaa8\ub85c \uc601\ud5a5\uc744 \ubbf8\ucce4\uc2b5\ub2c8\ub2e4. \uc81c \ud658\uacbd\uc5d0 \uc801\uc751\ud558\ub294 \ubc95\uc744 \uac00\ub974\uccd0\uc8fc\uc5c8\uc8e0. \uc774 \ubcd1\uc744 \uc553\uace0 \uc788\uc73c\uba74 \uc790\uc5f0\uc2a4\ub7fd\uac8c \ud2c0\uc5d0 \ubc15\ud78c \uc0ac\uace0\uc5d0\uc11c \ubc97\uc5b4\ub098\ub294 \ubc95\uc744 \ubc30\uc6b0\uac8c \ub41c\ub2e4\uace0 \uc0dd\uac01\ud574\uc694.<\/p>\n

\ub610\ud55c \uba38\ubb3c\ub7ec \uc788\uc73c\uba74 \ub3c4\uc6c0\uc774 \ub418\uc9c0 \uc54a\uace0 \uac74\uac15\uc5d0\ub3c4 \uc88b\uc9c0 \uc54a\uc740 '\uac07\ud600 \uc788\ub294 \ub290\ub08c'\uc774 \ub4e4\uae30 \ub54c\ubb38\uc5d0 \uba38\ubb3c\ub7ec \uc788\uc9c0 \ub9d0\ub77c\ub294 \uad50\ud6c8\ub3c4 \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4. LGMD\ub294 \ub610\ud55c \uc778\uc0dd\uc758 \ubaa8\ub4e0 \uc0ac\uc18c\ud55c \uac83\uc5d0 \uac10\uc0ac\ud560 \uc218 \uc788\ub294 \uc120\ubb3c\ub3c4 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \ubb34\uc5c7\ubcf4\ub2e4\ub3c4 LGMD\ub294 \uc81c \uc790\uc2e0\uc744 \ub108\ubb34 \uc2ec\uac01\ud558\uac8c \uc0dd\uac01\ud558\uc9c0 \uc54a\uc744 \uc218 \uc788\ub294 \ub2a5\ub825\uc744 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \ub9c9\ub0b4\ub538\uc740 \uc81c\uac8c '\uba4d\uccad\ud558\ub2e4'\ub294 \ub9d0\uc744 \uc790\uc8fc \ud558\ub294\ub370, \uc778\uc0dd\uc740 \ub108\ubb34 \uc9e7\uace0 \ubd88\ud655\uc2e4\ud558\uae30 \ub54c\ubb38\uc5d0 \uc7a0\uc2dc \uba48\ucd94\uace0 \uc6c3\uc744 \uc218 \uc788\ub294 \uc5ec\uc720\ub97c \uac16\uc9c0 \uc54a\ub294 \uac8c \uc88b\ub2e4\uace0 \uc0dd\uac01\ud574\uc694. \uc81c \uc778\uc0dd\uc758 \uc88c\uc6b0\uba85 \uc911 \ud558\ub098\ub294 \ub2e4\uc74c\uacfc \uac19\uc2b5\ub2c8\ub2e4: \"\uacc4\ud68d 'A'\uac00 \uc2e4\ud328\ud558\uba74 \uc54c\ud30c\ubcb3\uc5d0 25\uac1c\uc758 \uae00\uc790\uac00 \ub354 \uc788\ub2e4!\"\uc785\ub2c8\ub2e4. J<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n

\uc774 \uc9c8\ud658\uc740 \ubaa8\ub4e0 \uc0ac\ub78c\uc5d0\uac8c \ub2e4\ub974\uac8c \uc601\ud5a5\uc744 \ubbf8\uce58\uba70 \uac19\uc740 \uc0ac\ub78c\uc774\ub77c\ub3c4 \uadf8\ub0a0\uacfc \uc8fc\ubcc0 \ud658\uacbd\uc5d0 \ub530\ub77c \ub2e4\ub974\uac8c \uc601\ud5a5\uc744 \ubbf8\uce69\ub2c8\ub2e4. \ub530\ub77c\uc11c \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d \ud658\uc790\uc5d0\uac8c\ub294 \ub54c\ub54c\ub85c \ub9ce\uc740 \ubd88\uc548\uac10\uc774 \uc788\uc744 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \ube44\uc7a5\uc560\uc778\uc5d0\uac8c\ub294 \uac04\ub2e8\ud558\uace0 \uc77c\uc0c1\uc801\uc73c\ub85c \ubcf4\uc774\ub294 \uc791\uc5c5\uc774 \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d \ud658\uc790\uc5d0\uac8c\ub294 \uacfc\uc815 \ubc0f\/\ub610\ub294 \uc2e0\uccb4\uc801 \uc7a5\uc560\ub85c \uc778\ud574 \uc555\ub3c4\uc801\uc73c\ub85c \ubcf4\uc77c \uc218 \uc788\uc2b5\ub2c8\ub2e4. \uc81c\uac00 \uc138\uc0c1, \uce5c\uad6c, \uac00\uc871, \uac04\ubcd1\uc778\uc5d0\uac8c \ud560 \uc218 \uc788\ub294 \ub9d0\uc740 \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d \ud658\uc790\ub97c \uc2e0\uccb4\uc801\uc73c\ub85c\ubfd0\ub9cc \uc544\ub2c8\ub77c \uc815\uc11c\uc801, \uc2ec\ub9ac\uc801\uc73c\ub85c\ub3c4 \uc0ac\ub791\ud558\uace0 \uc9c0\uc9c0\ud558\ub294 \uac83\uc774 \uc911\uc694\ud558\uba70, \ube44\ub85d \uadf8\ub4e4\uc774 \ub290\ub07c\ub294 \uac10\uc815\uacfc \uadf8 \uc774\uc720\ub97c \uc644\uc804\ud788 \uc774\ud574\ud558\uc9c0 \ubabb\ud560\uc9c0\ub77c\ub3c4 \ub9c8\ucc2c\uac00\uc9c0\ub77c\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc624\ub298 \uc544\uce68\uc5d0 \uc77c\uc5b4\ub0ac\ub294\ub370 \uc544\ubb34\ub7f0 \uc99d\uc0c1\uc774 \uc5c6\ub2e4\uba74 \uc758\uc2ec\ud560 \uc5ec\uc9c0 \uc5c6\uc774 \ubc14\ub85c \ud574\ubcc0\uc73c\ub85c \ud5a5\ud560 \uac83\uc785\ub2c8\ub2e4!<\/p>\n

 <\/p>\n

\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694(https:\/\/www.lgmd-info.org\/spotlight-interviews).<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name:\u00a0 Anna \u00a0\u00a0Age: \u00a0\u00a036 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1376,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[38,36],"class_list":["post-1378","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-canada","tag-lgmd2i"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Anna - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/10\/11\/anna\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Anna - 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