{"id":1382,"date":"2016-10-26T14:12:37","date_gmt":"2016-10-26T19:12:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1382"},"modified":"2016-10-26T14:12:37","modified_gmt":"2016-10-26T19:12:37","slug":"amie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2016\/10\/26\/amie\/","title":{"rendered":"LGMD \uac1c\uc778: Amie"},"content":{"rendered":"<p><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n<p><strong>\uc774\ub984<\/strong>:  Amie\u00a0 <strong>\ub098\uc774<\/strong>: 31\uc138<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/10\/LGMD2J-Amie.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1381 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/10\/LGMD2J-Amie-300x169.png\" alt=\"lgmd2j-amie\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>:  LGMD2J (\ud2f0\ud2f0\ub178\ubcd1\uc99d)<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>\uc800\ub294 31\uc0b4\uc5d0 \ud2f0\ud2f0\ub178\ubcd1\uc774\ub77c\uace0\ub3c4 \uc54c\ub824\uc9c4 LGMD2J \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>\uc800\ub294 \ud56d\uc0c1 \ub2e4\ub9ac\uc640 \uac77\ub294 \ub370 \ubb38\uc81c\uac00 \uc788\uc5c8\uc9c0\ub9cc \uc544\ud0ac\ub808\uc2a4\uac74\uc774 \uc9e7\uc544\uc11c \uadf8\ub807\ub2e4\uace0 \ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \uc544\ud0ac\ub808\uc2a4\uac74 \uae38\uc774\ub97c \ub298\ub9ac\ub294 \uc218\uc220\uc744 \ubc1b\uc740 \ud6c4 \uc885\uc544\ub9ac\uac00 \uc704\ucd95\ub418\uc5c8\uc2b5\ub2c8\ub2e4. \ucf54\uc5b4 \uadfc\uc721\uc774 \uc57d\ud574 \ubcf4\uc600\uace0 \uc81c\uc655\uc808\uac1c\ub97c \ub450 \ubc88\uc774\ub098 \ud574\uc11c \uadf8\ub807\ub2e4\uace0 \uc0dd\uac01\ud588\uc8e0. \uc62c\ud574\uac00 \ub418\uc5b4\uc11c\uc57c \ubab8\uc774 \uc57d\ud574\uc9c0\ub294 \uae09\uaca9\ud55c \ubcc0\ud654\ub97c \ub290\uaf08\uace0 \ub354 \uc774\uc0c1 \ubb34\uc2dc\ud560 \uc218 \uc5c6\uc5b4\uc11c \ub2f5\uc744 \ucc3e\ub294 \uac83\uc744 \ubbf8\uc158\uc73c\ub85c \uc0bc\uc558\uc5b4\uc694.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc54c\ub824\uc9c4 \uac00\uc871 \uc911 \uc774 \uc9c8\ubcd1\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc740 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc81c LGMD\uc5d0\ub294 \ub9ce\uc740 \uc5b4\ub824\uc6c0\uc774 \uc788\uc2b5\ub2c8\ub2e4. \ubc29\uc744 \uac00\ub85c\uc9c8\ub7ec \uac77\uae30, \uc549\uc740 \uc790\uc138\uc5d0\uc11c \uc77c\uc5b4\uc11c\uae30, \uacc4\ub2e8\uc774\ub098 \uc624\ub974\ub9c9\uae38 \uc624\ub974\uae30, \ud2b8\ub7ed\uc5d0 \uc624\ub974\uae30, \uad6c\ubd80\ub9ac\uae30, \uade0\ud615 \uc7a1\uae30 \ub4f1 '\uc815\uc0c1\uc801\uc778' \uc77c\uc0c1 \ud65c\ub3d9\uc744 \ud558\ub294 \ub370 \ub9e4\uc77c \uc5b4\ub824\uc6c0\uc744 \uacaa\uc2b5\ub2c8\ub2e4. \ub54c\ub54c\ub85c \uc88c\uc808\uac10\uc744 \ub290\ub084 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \uacc4\uc18d\ub418\ub294 \ud1b5\uc99d \ub54c\ubb38\uc5d0 \ub9ce\uc740 \uac83\uc744 \ub193\uce58\uace0 \uc788\uc2b5\ub2c8\ub2e4. (\ubcc4\ub85c \ud798\ub4e4\uc9c0 \uc54a\uc740\ub370\ub3c4) \ub108\ubb34 \ub9ce\uc774 \ud558\uba74 \uba70\uce60 \ub3d9\uc548 \uc4f0\ub7ec\uc9c0\uae30\ub3c4 \ud574\uc694. \uc911\uc694\ud55c \uac83\uacfc \uadf8\ub807\uc9c0 \uc54a\uc740 \uac83\uc744 \uace8\ub77c\uc11c \uc120\ud0dd\ud574\uc57c \ud574\uc694. \uc774 \ubaa8\ub4e0 \uac83\uc774 \uc81c \uac00\uc871\ub4e4\uc758 \uc0b6\uc5d0\ub3c4 \uc601\ud5a5\uc744 \ubbf8\uce58\uae30 \ub54c\ubb38\uc5d0 \uc81c\uac00 \uc9d0\uc744 \uc9ca\uc5b4\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4. LGMD\ub294 \ud655\uc2e4\ud788 \uc81c \uc790\uc720\ub97c \uc77c\ubd80 \ube7c\uc557\uc544\uac14\uae30 \ub54c\ubb38\uc5d0 \uac10\ub2f9\ud558\uae30 \ud798\ub4e4\uc9c0\ub9cc \uae0d\uc815\uc801\uc778 \ub9c8\uc74c\uac00\uc9d0\uc744 \uc720\uc9c0\ud558\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4!<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc800\uc758 \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 \uc5c4\ub9c8, \uc544\ub0b4, \uc790\ub9e4\uac00 \ub41c \uac83\uc785\ub2c8\ub2e4! \uc800\uc5d0\uac8c\ub294 \uc544\ub984\ub2e4\uc6b4 \ub450 \ub538\uacfc \uba4b\uc9c4 \ub0a8\ud3b8, \uadf8\ub9ac\uace0 \ub204\uad6c\ubcf4\ub2e4 \ub4e0\ub4e0\ud55c \uac00\uc871\uc774 \uc788\uc2b5\ub2c8\ub2e4. \uc81c\uac00 \uae0d\uc815\uc801\uc774\uace0 \"\uc18c\ub140\ucc98\ub7fc \uc2f8\uc6b8 \uc218 \uc788\ub294\" \uc774\uc720\ub294 \ubc14\ub85c \uac00\uc871 \ub355\ubd84\uc785\ub2c8\ub2e4! \ud3c9\uc0dd \uc81c\uac00 \uc6d0\ud588\ub358 \uac83\uc740 \uc5c4\ub9c8\uac00 \ub418\uace0 \uc0ac\ub791\ud558\ub294 \uac00\uc871\uc744 \uac16\ub294 \uac83\uc774\uc5c8\uc5b4\uc694! \uc800\ub294 \ud655\uc2e4\ud788 \ucd95\ubcf5\ubc1b\uc740 \uc0ac\ub78c\uc785\ub2c8\ub2e4!<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>\uc81c \uc9c4\ub2e8\uc740 \uc0c1\ub2f9\ud788 \uc0c8\ub85c\uc6b4 \uac83\uc774\uc9c0\ub9cc, \uc800\ub294 \ud56d\uc0c1 \ub9c8\uc74c\uc18d \uae4a\uc774 \ubb54\uac00 \uc798\ubabb\ub418\uc5c8\ub2e4\ub294 \uac83\uc744 \uc54c\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \uc2e4\uc81c\ub85c \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc758 \uc9c4\ub2e8\uc744 \ubc1b\uae30 \uc804\uc5d0 \uc2a4\uc2a4\ub85c LGMD \uc790\uac00 \uc9c4\ub2e8\uc744 \ub0b4\ub838\uc5b4\uc694. \uadf8\ub798\uc11c \uac80\uc0ac \uacb0\uacfc\uac00 \ub098\uc654\uc744 \ub54c \uc800\ub294 \uc5b4\uc0c9\ud55c \uae30\uc068\uc744 \ub290\uaf08\uc2b5\ub2c8\ub2e4. \ub4dc\ub514\uc5b4 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc73c\ub2c8\uae4c\uc694! \uc544\uc9c1 \ub2f5\uc744 \ucc3e\uc9c0 \ubabb\ud55c \uc774\uc720\uac00 \uc788\uc5b4\uc11c \uc774 \ubcd1\uc5d0 \uac78\ub9b0 \uac83 \uac19\uc544\uc694. \uc800\ub294 \ubaa8\ub4e0 \uc77c\uc5d0\ub294 \uc774\uc720\uac00 \uc788\uace0 \ud0c0\uc774\ubc0d\uc774 \uac00\uc7a5 \uc911\uc694\ud558\ub2e4\uace0 \ubbff\uc2b5\ub2c8\ub2e4. LGMD\ub294 \uc81c \uc9c0\uc5ed\uc5d0\uc11c\ub294 \uc798 \uc54c\ub824\uc9c0\uc9c0 \uc54a\uc740 \ud76c\uadc0\ubcd1\uc774\uae30 \ub54c\ubb38\uc5d0 \uac00\ub2a5\ud55c \ud55c \ub9ce\uc774 \uc5f0\uad6c\ud558\uace0 \uac00\ub2a5\ud55c \ud55c \ub9ce\uc740 \uc0ac\ub78c\ub4e4\uc5d0\uac8c \uc639\ud638\ud558\ub824\uace0 \ud569\ub2c8\ub2e4. \uadfc\uc721\uc740 \uc5c6\uc9c0\ub9cc \uc800\ub294 \uac15\ud558\ub2e4\ub294 \uac83\uc744 \uc54c\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc778\uc0dd\uc758 \uc791\uc740 \uac83\ub4e4\uc744 \uc990\uae30\uba70 \uc21c\uac04\uc21c\uac04\uc744 \uc0b4\uc544\uac11\ub2c8\ub2e4! \ub610\ud55c \ubaa8\ub4e0 \uc0c1\ud669\uc5d0\uc11c \uae0d\uc815\uc801\uc778 \uba74\uc744 \ucd94\uad6c\ud569\ub2c8\ub2e4. \ubd80\uc815\uc801\uc778 \uac83\uc5d0 \uc9d1\uc911\ud558\uae30\uc5d0\ub294 \uc778\uc0dd\uc774 \ub108\ubb34 \uc9e7\uc73c\ub2c8\uae4c\uc694!<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>\uc800\ub294 43,000\uba85 \uc911 1\uba85\uc774 \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc548\ud0c0\uae5d\uac8c\ub3c4 \uc774 \ubcd1\uc5d0 \ub300\ud55c \uce58\ub8cc\ubc95\uc740 \uc544\uc9c1 \uc5c6\uc2b5\ub2c8\ub2e4.  \ud76c\uadc0\ubcd1\uc774\uae30 \ub54c\ubb38\uc5d0 \uc5f0\uad6c \uc790\uae08\uc774 \ubd80\uc871\ud574 \uce58\ub8cc\ubc95 \uac1c\ubc1c\uc774 \ub354\ub38c\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4. LGMD\ub294 \uc5b4\ub290 \uac00\uc871\uc5d0\uac8c\ub098 \ubc1c\uc0dd\ud560 \uc218 \uc788\uc73c\uba70 \ub9e4\uc77c\uc758 \uc0b6\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce69\ub2c8\ub2e4. \uacb0\uad6d \uc774 \ubcd1\uc774 \uc81c \uac77\ub294 \ub2a5\ub825\uc744 \ube7c\uc557\uc544 \uac08 \uac83\uc73c\ub85c \uc608\uc0c1\ub418\uc9c0\ub9cc, \uc800\ub294 \ud560 \uc218 \uc788\ub294 \ud55c \uc774 \ubcd1\uacfc \uc2f8\uc6b8 \uac83\uc785\ub2c8\ub2e4!<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc5b4\ub514\uc11c\ubd80\ud130 \uc2dc\uc791\ud574\uc57c \ud560\uae4c\uc694? \ub538\ub4e4\uc744 \ub514\uc988\ub2c8 \uc6d4\ub4dc\uc5d0 \ub370\ub824\uac00\uc11c \ucf5c\ub85c\ub77c\ub3c4\uc5d0\uc11c \ud558\uc774\ud0b9\uc744 \ud558\uace4 \ud588\uc5b4\uc694! \ud560 \uc218\ub9cc \uc788\ub2e4\uba74 \uacc4\ub2e8\uc744 \uac78\uc5b4\uc11c \uc62c\ub77c\uac08 \uac70\uc608\uc694! \uc1fc\ud551, \ucda4\ucd94\uae30, \uc2ec\uc9c0\uc5b4 \ubaa9\uc695\ud558\uae30 \uac19\uc740 \uc18c\uc18c\ud55c \uc77c\ub4e4\uc774 \uadf8\ub9ac\uc6cc\uc694! \uc790\uc720\uac00 \uc0ac\ub77c\uc9c8 \ub54c\uae4c\uc9c0\ub294 \uc783\uc5b4\ubc84\ub9b0 \uc790\uc720\ub97c \uae68\ub2eb\uc9c0 \ubabb\ud569\ub2c8\ub2e4!<\/p>\n<p>&nbsp;<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694: <a href=\"https:\/\/www.lgmd-info.org\/ko\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Amie\u00a0 Age: 31 yrs old Country: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1381,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[68,16],"class_list":["post-1382","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-titinopathy","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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