{"id":1463,"date":"2017-06-07T10:06:12","date_gmt":"2017-06-07T15:06:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1463"},"modified":"2017-06-07T10:06:12","modified_gmt":"2017-06-07T15:06:12","slug":"jill","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/06\/07\/jill\/","title":{"rendered":"LGMD \uac1c\uc778: Jill"},"content":{"rendered":"<p><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n<p><strong>NAME:<\/strong> \uc9c8 \ub098\uc774: 42<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/06\/LGMD1B-Jill-V.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1462 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/06\/LGMD1B-Jill-V-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><br \/>\n<strong>\uad6d\uac00<\/strong>: \ubbf8\uad6d<br \/>\n<strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>\uc0c1\uc5fc\uc0c9\uccb4 \uc6b0\uc131 \uc5d0\uba38\ub9ac-\ub4dc\ub808\ud4cc\uc2a4 \uadfc\uc774\uc601\uc591\uc99d(LMNA \ub3cc\uc5f0\ubcc0\uc774\/LGMD1B) : \uc0c1\uc5fc\uc0c9\uccb4 \uc6b0\uc131 \uc5d0\uba38\ub9ac-\ub4dc\ub808\ud4cc\uc2a4 \uadfc\uc774\uc601\uc591\uc99d(LMNA \ub3cc\uc5f0\ubcc0\uc774\/LGMD1B)<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\uae4c?<\/strong>:<br \/>\n\uc800\ub294 4\uc0b4 \ub54c \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong><br \/>\n\ud0dc\uc5b4\ub0ac\uc744 \ub54c \uc800\ub294 \uc57d\uac04 \uc791\uc558\uace0 \uc774\ubaa8\ub4e4\uc740 \uc81c \uc5c9\ub369\uc774\uc640 \ub2e4\ub9ac\uc5d0 \uc9c0\ubc29\uacfc \uadfc\uc721\uc774 \ucda9\ubd84\ud558\uc9c0 \uc54a\ub2e4\uace0 \uc0dd\uac01\ud588\ub2e4\uace0 \uae30\uc5b5\ud569\ub2c8\ub2e4. \uc800\ub294 \uc801\uc808\ud55c \ub098\uc774\uc5d0 \uc549\uace0, \uae30\uace0, \uac77\ub294 \ub4f1 \ucd08\uae30\uc5d0\ub294 \ubcc4\ub2e4\ub978 \ubb38\uc81c\uac00 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. \uc720\uce58\uc6d0\uc5d0 \ub4e4\uc5b4\uac00\uba74\uc11c \ub2e4\ub978 \uc544\uc774\ub4e4\ubcf4\ub2e4 \ud6e8\uc52c \ub354 \uc790\uc8fc \ub118\uc5b4\uc84c\uace0 \ub2e4\ub978 \uc544\uc774\ub4e4\uc744 \ub530\ub77c\uc7a1\ub294 \ub370 \uc5b4\ub824\uc6c0\uc744 \uacaa\uc5c8\uc2b5\ub2c8\ub2e4. \uce74\ub2c8\ubc1c\uc758 '\ud0f1\ud0f1 \ud558\uc6b0\uc2a4'\uc5d0\uc11c \ub611\ubc14\ub85c \uc11c \uc788\uae30\uac00 \ub9e4\uc6b0 \uc5b4\ub824\uc6e0\uace0, \ubaa9\uc774 \uc57d\ud574\uc11c \ubc94\ud37c\uce74\ub3c4 \uc990\uae30\uc9c0 \ubabb\ud588\ub358 \uae30\uc5b5\uc774 \ub0a9\ub2c8\ub2e4.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><br \/>\n\uc544\ubc84\uc9c0\uc640 \ub450 \ud615\uc81c, \ud55c \uc790\ub9e4\ub294 \ubaa8\ub450 EDMD\ub97c \uc553\uace0 \uc788\uc9c0\ub9cc \uc911\uc99d\ub3c4\ub294 \ub9e4\uc6b0 \ub2e4\uc591\ud569\ub2c8\ub2e4. \ud55c \uc790\ub9e4\ub294 \uc601\ud5a5\uc744 \ubc1b\uc9c0 \uc54a\uc558\uc2b5\ub2c8\ub2e4. \uc81c \uc678\ud560\uba38\ub2c8\uc640 \uc99d\uc870\ud560\uba38\ub2c8\ub3c4 \uc774 \uc9c8\ud658\uc744 \uc720\uc804\ubc1b\uc740 \uac83\uc73c\ub85c \uc758\uc2ec\ub418\uc9c0\ub9cc, \ub108\ubb34 \uacbd\ubbf8\ud574\uc11c \uc0dd\uc804\uc5d0\ub294 \uc804\ud600 \ubab0\ub790\uc5b4\uc694.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\ub098\uc694?<\/strong><br \/>\n\uc81c \ub610\ub798\ub77c\uba74 \ud070 \uc5b4\ub824\uc6c0 \uc5c6\uc774 \ud560 \uc218 \uc788\uc5b4\uc57c \ud560 \uc77c\ub4e4\uc744 \ud558\uace0 \uc2f6\uc5b4\uc11c \uc88c\uc808\ud569\ub2c8\ub2e4. \uc608\ub97c \ub4e4\uc5b4, \uc9d1\uc548\uc77c\uc744 \ub530\ub77c\uc7a1\ub294 \uac83\uc740 \ub9e4\uc6b0 \uc5b4\ub835\uace0, \uc5f4\uc2ec\ud788 \uc77c\ud574\ub3c4 \uc9d1\uc774 \uc81c\uac00 \uc0c1\uc0c1\ud558\ub294 \ubaa8\uc2b5\ub300\ub85c \ub418\uc9c0 \uc54a\uc544\uc694.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><br \/>\n\uc81c\uac00 \uac00\uc7a5 \ud070 \uc131\ucde8\ub97c \uc774\ub8ec \uac83\uc740 10\ub300 \ub54c \uc81c \uc790\uc2e0\uc758 \uc9c4\ub2e8\uc744 \ubc1c\uacac\ud558\uace0 \uc544\ubc84\uc9c0\uc758 \uc2ec\uc7a5 \uc804\ubb38\uc758\uc5d0\uac8c \uc720\uc804\uc801 \uc9c8\ud658\uc73c\ub85c \uc2ec\uc7a5\ubc15\ub3d9\uae30\ub97c \uc774\uc2dd\ud574\uc57c \ud55c\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc54c\ub9b0 \uac83\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \uc774 \ub355\ubd84\uc5d0 \uc544\ubc84\uc9c0\ub294 \uaca8\uc6b0 44\uc138\uc758 \ub098\uc774\uc5d0 \ubaa9\uc228\uc744 \uad6c\ud560 \uc218 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \ub355\ubd84\uc5d0 18\ub144 \ub3d9\uc548 \uc544\ubc84\uc9c0\ub97c \ub354 \uc0ac\ub791\ud560 \uc218 \uc788\ub294 \uae30\ud68c\ub97c \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><br \/>\n\uadf8 \ub355\ubd84\uc5d0 \ubb38\uc81c\ub97c \ud574\uacb0\ud558\uae30 \uc704\ud574 \ub2e4\ub978 \uc0ac\ub78c\uc5d0\uac8c \uc758\uc9c0\ud558\uae30\ubcf4\ub2e4\ub294 \uc2a4\uc2a4\ub85c\uc5d0\uac8c \uc758\uc9c0\ud558\ub294 \ubc95\uc744 \ubc30\uc6e0\uc5b4\uc694. \uc544\uc8fc \ud76c\uadc0\ud55c \uc9c8\ud658\uc744 \uc553\uace0 \uc788\ub2e4\uba74 \uc2a4\uc2a4\ub85c\ub97c \uc639\ud638\ud574\uc57c \ud55c\ub2e4\ub294 \uac83\uc744 \uc544\uc8fc \uc77c\ucc0d \uae68\ub2ec\uc558\uc8e0. \ub610\ud55c \uadfc\uc721 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\uc5c8\uae30 \ub54c\ubb38\uc5d0 \ud559\uc5c5\uc5d0 \ub354\uc6b1 \uc5f4\uc911\ud560 \uc218 \uc788\uc5c8\uc8e0. \ud559\ubd80\uc5d0\uc11c\ub294 \uc720\uc804\ud559\uc744 \uc804\uacf5\ud588\uace0, \ub300\ud559\uc6d0\uc5d0\uc11c\ub294 \ubb38\uc608\ucc3d\uc791\uc744 \uacf5\ubd80\ud588\uc2b5\ub2c8\ub2e4. \uace0\ub4f1 \uad50\uc721\uc5d0\uc11c\uc758 \uc131\ucde8\uac00 \uc5c6\uc5c8\ub2e4\uba74 \uc81c \uc778\uc0dd\uc758 \ubaa9\uc801\uc744 \ucc3e\ub294 \ub370 \uc5b4\ub824\uc6c0\uc744 \uacaa\uc5c8\uc744\uc9c0\ub3c4 \ubab0\ub77c\uc694.<\/p>\n<p><strong>\uc138\uc0c1\uc774 LGMD\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uac83\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><br \/>\n\uc0ac\ub78c\ub4e4\uc774 \uc5d0\uba38\ub9ac \ub4dc\ub77c\uc774\ud37c\uc2a4(Emery-Dreifuss MD, EDMD)\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uc810\uc774\ub77c\uba74, \uc544\ub9c8\ub3c4 \uc81c\uac00 \ub0b4\uba74\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uacfc \ub611\uac19\ub2e4\ub294 \uac83\uc744 \uc0ac\ub78c\ub4e4\uc774 \uc54c\uc558\uc73c\uba74 \uc88b\uaca0\uc2b5\ub2c8\ub2e4. \uc800\ub3c4 \uac19\uc740 \uc0c1\ucc98\ub97c \ub290\ub07c\uace0, \uac19\uc740 \uafc8\uc744 \uafb8\uace0, \ubb34\uc5c7\ubcf4\ub2e4\ub3c4 \uc778\uc0dd\uc5d0\uc11c \uacbd\ud5d8\ud560 \uc218 \uc788\ub294 \ubaa8\ub4e0 \uac83\uc5d0 \ud3ec\ud568\ub418\uae30\ub97c \uc6d0\ud569\ub2c8\ub2e4. \uc800\ub294 12\ub144 \uac00\uae4c\uc774 \ud589\ubcf5\ud558\uac8c \uacb0\ud63c \uc0dd\ud65c\uc744 \ud574\uc654\uace0, 11\uc0b4\uae4c\uc9c0 \uc544\ub4e4\uc744 \ud0a4\uc6e0\uc73c\uba70, \ubb34\uc5c7\ubcf4\ub2e4\ub3c4 \uac77\uc9c0 \ubabb\ud558\ub354\ub77c\ub3c4 \uc774\ub7ec\ud55c \uc0b6\uc758 \ubaa9\ud45c\ub97c \ub2ec\uc131\ud560 \uc218 \uc788\ub2e4\ub294 \uac83\uc744 \uc0ac\ub78c\ub4e4\uc774 \uc774\ud574\ud574 \uc8fc\uc5c8\uc73c\uba74 \ud569\ub2c8\ub2e4.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 '\uc644\uce58'\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc77c\uae4c\uc694?<\/strong><br \/>\n\uc800\ub294 \uc2e0\uc0dd\uc544\uc5d0\uac8c \uc81c\uacf5\ub418\ub294 \uc720\uc804\uc790 \uac80\uc0ac\uc5d0 EDMD\uac00 \ud3ec\ud568\ub418\ub3c4\ub85d \uc639\ud638\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc81c\uac00 \uacaa\uc740 \uc5b4\ub824\uc6c0\uc744 \ubbf8\ub798 \uc138\ub300\uac00 \uacaa\uc9c0 \uc54a\uc558\uc73c\uba74 \ud558\ub294 \uac83\uc774 \uac00\uc7a5 \ud070 \ubc14\ub78c\uc774\uba70, \uac1c\uc785\ud558\uae30 \uac00\uc7a5 \uc88b\uc740 \uc2dc\uae30\ub294 \ucd9c\uc0dd \uc2dc\uc785\ub2c8\ub2e4.<\/p>\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694: <a href=\"https:\/\/www.lgmd-info.org\/ko\/spotlight-interviews\/\" target=\"_blank\" rel=\"nofollow noopener noreferrer\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n<div><\/div>","protected":false},"excerpt":{"rendered":"<p>LGMD &#8220;Spotlight Interview&#8221; NAME: Jill AGE: 42 COUNTRY: USA LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1462,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[74,43,16],"class_list":["post-1463","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b","tag-emery-dreifuss","tag-lgmd1b","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/06\/07\/jill\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD &#8220;Spotlight Interview&#8221; NAME: Jill AGE: 42 COUNTRY: USA LGMD [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/06\/07\/jill\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" 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