{"id":1506,"date":"2017-07-28T08:37:52","date_gmt":"2017-07-28T13:37:52","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1506"},"modified":"2017-07-28T08:37:52","modified_gmt":"2017-07-28T13:37:52","slug":"nicole","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/","title":{"rendered":"LGMD \uac1c\uc778: Nicole"},"content":{"rendered":"

\uc774\ub984:<\/strong> \ub2c8\ucf5c \ub098\uc774: 37<\/p>\n

\uad6d\uac00:<\/strong> \ubbf8\uad6d\"\"<\/a><\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2J (\ud2f0\ud2f0\ub178\ubcd1\uc99d)<\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 24\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\uc5b4\ub838\uc744 \ub54c \uc800\ub294 \uc6b4\ub3d9\uc744 \uc798\ud558\uc9c0 \ubabb\ud588\uace0 \ud56d\uc0c1 \uc81c\uac00 \uc5b4\uc124\ud504\ub2e4\uace0 \uc0dd\uac01\ud588\uc5b4\uc694. \ucd08\ub4f1\ud559\uad50\uc640 \uc911\ud559\uad50 \ub54c \uc2a4\ud3ec\uce20\ub97c \ud558\ub824\uace0 \ud588\uc9c0\ub9cc \ud56d\uc0c1 \uc870\uc9c1\uc801\uc778 \uc2a4\ud3ec\uce20 \ud300\uc5d0 \uac00\uc785\ud558\uae30\uc5d0\ub294 \ub108\ubb34 \uc190\uc7ac\uc8fc\uac00 \uc5c6\ub294 \uac83 \uac19\uc558\uc5b4\uc694. \uacc4\ub2e8\uc5d0\uc11c \ub118\uc5b4\uc9c0\uae30 \uc2dc\uc791\ud55c \uace0\ub4f1\ud559\uad50 \ub54c\uae4c\uc9c0\ub294 \ubaa8\ub4e0 \uac83\uc774 '\uc815\uc0c1'\uc73c\ub85c \ubcf4\uc600\ub294\ub370, 10\ub300 \ucd08\ubc18\uc5d0 \ubc1c\ub05d\uc73c\ub85c \uac77\uae30 \uc2dc\uc791\ud558\uba74\uc11c \uacc4\ub2e8\uc5d0\uc11c \ub118\uc5b4\uc9c0\ub294 \uc77c\uc774 \uc7a6\uc544\uc84c\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc81c\uac00 \uadf8\uc800 \uadf9\ub2e8\uc801\uc778 \uc5bc\uac04\uc774\ub77c\uace0 \ubbff\uace0 \uc2f6\uc5c8\uc9c0\ub9cc, \ub9c8\uc74c \ud55c\uad6c\uc11d\uc5d0\ub294 \ud56d\uc0c1 \uc81c\uac00 '\uc815\uc0c1'\uc774 \uc544\ub2c8\ub77c\uace0 \ub9d0\ud558\ub294 \ubb34\uc5b8\uac00\uac00 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. 2003\ub144\uc5d0 \uc800\ub294 \ubab8\ub9e4\ub97c \uac00\uafb8\uae30 \uc704\ud574 \ub2ec\ub9ac\uae30\ub97c \uc2dc\uc791\ud574\uc57c\uaca0\ub2e4\ub294 \uc6d0\ub300\ud55c \uc0dd\uac01\uc744 \ud588\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc800\ub294 \ud55c \ube14\ub85d\uc744 1\/4\ub3c4 \ubabb \uac00 #3\uc744 \uba87 \ubd84 \ub9cc\uc5d0 \uc644\uc8fc\ud588\uc8e0. \uadf8 \uc21c\uac04 \uc800\ub294 \ubb34\uc5b8\uac00 \uc798\ubabb\ub418\uc5c8\ub2e4\ub294 \ub0b4\uba74\uc758 \uc791\uc740 \ubaa9\uc18c\ub9ac\uc5d0 \uadc0\ub97c \uae30\uc6b8\uc774\uae30 \uc2dc\uc791\ud588\uace0, \uc758\uc0ac\uc640 \uc0c1\ub2f4\ud560 \ub54c\uac00 \ub418\uc5c8\ub2e4\uace0 \uc0dd\uac01\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\ub97c \uc553\uace0 \uc788\ub294 \ub2e4\ub978 \uac00\uc871\uc774 \uc788\ub098\uc694?<\/strong>: <\/strong><\/p>\n

\uc81c \ub3d9\uc0dd Paul\ub3c4 LGMD 2J\ub97c \uac00\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0b4\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \uc81c \ub9c8\uc74c\uacfc \ubab8\uc774 \uc77c\uce58\ud558\uc9c0 \uc54a\ub294\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \ub9c8\uc74c\uc740 \"\uac00\uc790!\"\ub77c\uace0 \ub9d0\ud558\uc9c0\ub9cc \ubab8\uc740 \"\ubb34\uc2a8 \uc0dd\uac01\uc73c\ub85c \uadf8\ub7f0 \uc9d3\uc744 \ud574?\"\ub77c\uace0 \ube44\uba85\uc744 \uc9c0\ub985\ub2c8\ub2e4. \ub9c8\uc74c\uc18d\uc73c\ub85c\ub294 \uacc4\ub2e8\uc744 \uc624\ub974\uace0, \ud0ac \ud790\uc744 \uc2e0\uace0, \uc778\ub3c4\ub97c \uc6b0\uc544\ud558\uac8c \uac77\uace0, \uc2dd\ub8cc\ud488\uc744 \ub4e4\uace0, \ub9c8\ub77c\ud1a4\uc744 \ub6f8 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc81c \ubab8\uc740 \uadf8\ub807\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uacc4\ub2e8\uc744 \ud53c\ud558\uace0 \ud50c\ub7ab\uc288\uc988\ub97c \uc2e0\uc5b4\uc57c\ub9cc \ud569\ub2c8\ub2e4. \uc606 \uc0ac\ub78c \uc5c6\uc774 \uc778\ub3c4\ub97c \uac77\ub294 \uac83\ub9cc\uc73c\ub85c\ub3c4 \uc124\uba85\ud560 \uc218 \uc5c6\ub294 \ubd88\uc548\uac10\uc744 \ub290\ub07c\uba70, \uc2dd\ub8cc\ud488\uc744 \uac00\ub4dd \ub4e4\uace0 \uc9d1\uc73c\ub85c \ub4e4\uc5b4\uac00\ub294 \uac83\uc740 \ub9c8\uce58 \uc0b0\uc744 \ub450 \uc190\uc73c\ub85c \uc62e\uae30\ub294 \uac83 \uac19\uc740 \ub290\ub08c\uc785\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \ub9c8\ub77c\ud1a4\uc744 \ub6f0\ub294 \uac83\uc740 \ucf54\ub07c\ub9ac\ub97c \uc9d1\uc5d0\uc11c \ud6c8\ub828\uc2dc\ud0a4\ub294 \uac83\ub9cc\ud07c\uc774\ub098 \uc5b4\ub824\uc6b8 \uac83\uc785\ub2c8\ub2e4. \ub9c8\uc74c\uc740 \ucda9\ubd84\ud788 \ud560 \uc218 \uc788\ub2e4\uace0 \uc0dd\uac01\ud558\uc9c0\ub9cc \ubab8\uc740 \uadf8\uc5d0 \ub530\ub77c \ubc18\uc751\ud558\uc9c0 \uc54a\uc544\uc694. \ub610\ud55c \ud55c \ubc88\ub3c4 \uac00\ubcf8 \uc801 \uc5c6\ub294 \uacf3\uc5d0 \ucd08\ub300\ub97c \ubc1b\uc73c\uba74, \ud2b9\ud788 \ud63c\uc790 \uac00\ub294 \uacbd\uc6b0\uc5d0\ub294 \uc5c4\uccad\ub09c \ub450\ub824\uc6c0\uc774 \uc5c4\uc2b5\ud569\ub2c8\ub2e4. \ud589\uc0ac\uc5d0 \ucd08\ub300\ub97c \ubc1b\uac70\ub098 \uc5c5\ubb34\uc0c1 \ubbf8\ud305\uc774 \uc788\uac70\ub098 \ud55c \ubc88\ub3c4 \uac00\ubcf8 \uc801\uc774 \uc5c6\ub294 \uacf3\uc73c\ub85c \uac00\uc57c \ud560 \ub54c Google \uc5b4\uc2a4\uac00 \uac00\uc7a5 \uac00\uae4c\uc6b4 \uce5c\uad6c\ub77c\ub294 \uac83\uc744 \uc54c\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uac74\ubb3c \ubc30\uce58\ub97c Google \uc5b4\uc2a4\ub85c \ud655\uc778\ud569\ub2c8\ub2e4. \uc8fc\ucc28\uc7a5\uc740 \uc5b4\ub514\uc5d0 \uc788\ub098\uc694? \uc815\ubb38\uae4c\uc9c0 \uc5bc\ub9c8\ub098 \uac78\uc5b4\uac00\uc57c \ud558\ub098\uc694? \uc785\uad6c\uc5d0 \uacc4\ub2e8\uc774\ub098 \uacbd\uc0ac\uac00 \uc788\ub098\uc694? \uc9c0\ud615\uc744 \ud0d0\uc0c9\ud558\ub294 \ub370 \ubc29\ud574\uac00 \ub420 \ub9cc\ud55c \uc694\uc18c\uac00 \uc788\ub098\uc694? \uc0ac\uc804 \uc870\uc0ac\uac00 \ub3c4\uc6c0\uc774 \ub418\uae34 \ud558\uc9c0\ub9cc '\uc0c8\ub85c\uc6b4 \uc7a5\uc18c'\uc5d0\uc11c \uc624\ub294 \ub450\ub824\uc6c0\uc740 \uc774\ub7ec\ud55c \uc120\uc81c\uc801 \uc870\uce58\ub97c \ud1b5\ud574 \uc57d\uac04 \uc904\uc5b4\ub4e4 \ubfd0, \uc2e4\uc81c\ub85c \ub3c4\ucc29\ud55c \ud6c4\uc5d0\ub294 \uc608\uc0c1\uce58 \ubabb\ud55c \uc7a5\uc560\ubb3c\uc774 \uc788\uc744 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \uc800\uc5d0\uac8c\ub294 \ubc14\ub85c \uadf8\ub54c\uac00 \uc9c4\uc815\ud55c \ub450\ub824\uc6c0\uc774 \uc2dc\uc791\ub418\ub294 \uc21c\uac04\uc785\ub2c8\ub2e4. \uc704\uc758 \uac01\uac01\uc758 \uc5b4\ub824\uc6c0\ubcf4\ub2e4 \ub354 \ud070 \uc5b4\ub824\uc6c0\uc740 \ub3c4\uc6c0\uc744 \uc694\uccad\ud574\uc57c \ud55c\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc778\uc815\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \uba70\uce60, \uba87 \ub2ec, \uba87 \ub144\uc774 \uc9c0\ub098\uba74\uc11c \uc4f0\ub808\uae30 \ubc84\ub9ac\uae30, \uc804\uad6c \uad50\uccb4\ud558\uae30, \ub09c\uac04 \uc5c6\uc774 \uacc4\ub2e8 \uc624\ub974\ub0b4\ub9ac\uae30, \ubd99\uc7a1\uc744 \uac83 \uc5c6\uc774 \ubcf4\ub3c4 \uc704\ub85c \uc62c\ub77c\uac00\uae30, \uc758\uc790\uc5d0\uc11c \uc77c\uc5b4\ub098\uae30, \uc2ec\uc9c0\uc5b4 \ubc29\uc744 \uac00\ub85c\uc9c8\ub7ec \uac77\uae30 \ub4f1 \uac00\uc7a5 \uac04\ub2e8\ud55c \uc791\uc5c5\ub3c4 \uc810\uc810 \ub354 \uc5b4\ub824\uc6cc\uc9c4\ub2e4\ub294 \uac83\uc744 \uae68\ub2ec\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\ubab8\ub9cc \uc6c0\uc9c1\uc774\uace0 \ub9c8\uc74c\ub9cc \ube44\ud611\uc870\uc801\uc774\ub77c\uba74 \ub354 \uc26c\uc6b8 \ud150\ub370 \ud558\ub294 \uc0dd\uac01\uc774 \uc790\uc8fc \ub4ed\ub2c8\ub2e4. \ub2f9\uba74\ud55c \uc5c5\ubb34\uac00 \uc77c\uc0c1\uc801\uc778 \uc0dd\ud65c\uc758 \uc77c\ubd80\ub77c\uace0 \uc0dd\uac01\ud558\uba74 \ub3c4\uc6c0\uc744 \uc694\uccad\ud558\uae30\uac00 \uc5b4\ub835\uc2b5\ub2c8\ub2e4.<\/p>\n

\uc800\ub294 LGMD\uac00 \uc774\uae38 \uc218 \uc5c6\ub2e4\ub294 \uac83\uc744, \uc774 \ubcd1\uc744 \uc774\uae38 \uc218 \uc788\ub294 \ubc29\ubc95\uc774 \uc788\ub2e4\ub294 \uac83\uc744 \uc2a4\uc2a4\ub85c \uc99d\uba85\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uadf8\ub7f0 \uc21c\uac04\uc774 \uc624\uba74 \uc800\ub294 \uc81c \uc790\uc2e0\uc744 \ub108\ubb34 \ubab0\uc544\ubd99\uc774\uace0 \uacb0\uad6d\uc5d0\ub294 \uce68\ub300\uc5d0 \ub204\uc6cc \ud55c\ub3d9\uc548 \uace0\ud1b5\uc5d0 \uc2dc\ub2ec\ub9ac\uac8c \ub420 \uc904 \uc54c\uba74\uc11c\ub3c4 \ubb34\ub9ac\ud55c \uc77c\uc744 \ud558\uac8c \ub429\ub2c8\ub2e4. \uc800\uc5d0\uac8c \uc774 \ubcd1\uc740 \uc8fc\uae30\uc801\uc785\ub2c8\ub2e4. \ub354 \ub9ce\uc774 \ud560\uc218\ub85d \ub354 \ub9ce\uc774 \uc544\ud30c\uc694. \uadf8\ub7ec\ub2e4 \ubcf4\uba74 \uc81c \ub2a5\ub825\uc774 \ubd80\uc871\ud558\ub2e4\ub294 \uc790\ucc45\uac10\uc5d0 \ub2e4\uc2dc \ud55c \ubc88 \ubb34\ub9ac\ud558\uac8c \ubab8\uc744 \uc6c0\uc9c1\uc774\uac8c \ub418\uace0\uc694.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uccb4\ub825\uacfc \uc815\uc2e0\ub825 \uce21\uba74\uc5d0\uc11c \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 2013\ub144\uc5d0 5K \uceec\ub7ec\ub7f0\uc744 \uc644\uc8fc\ud55c \uac83\uc785\ub2c8\ub2e4. \"\ud560 \uc218 \uc788\ub2e4\"\ub77c\ub294 \ub9d0\ubcf4\ub2e4 \"\ub354 \uc774\uc0c1 \ubabb \uac00\uaca0\ub2e4\"\ub77c\ub294 \ub9d0\uc744 \ub354 \uc790\uc8fc \ud588\uc744\uc9c0\ub3c4 \ubaa8\ub985\ub2c8\ub2e4. \uacb0\uc2b9\uc120\uc744 \uac00\uc7a5 \ub2a6\uac8c \ud1b5\uacfc\ud55c \uc0ac\ub78c\uc774\uc5c8\uc744\uc9c0 \ubaa8\ub974\uc9c0\ub9cc, \uc800\ub294 \ub2e8 \ud55c \ubc88\ub3c4 \ucf54\ub108\ub97c \ub3cc\uc9c0 \uc54a\uace0 \ub808\uc774\uc2a4\ub97c \uc2dc\uc791\ud558\uace0 \uc644\uc8fc\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

\uac1c\uc778\uc801\uc73c\ub85c \uc800\ub294 \ucd5c\uadfc\uc758 \uacb0\uc815\uc774 \ub9e4\uc6b0 \uc790\ub791\uc2a4\ub7fd\uc2b5\ub2c8\ub2e4. LGMD\ub97c \uac00\uc9c0\ub824\uba74 \ub2e4\ub978 \uc0ac\ub78c\uc758 \ub3c4\uc6c0\uc774 \ub9ce\uc774 \ud544\uc694\ud558\uace0, \uc2dc\uac04\uc774 \uc9c0\ub0a0\uc218\ub85d \uadf8 \ud544\uc694\uc131\uc740 \ub354\uc6b1 \ucee4\uc9c8 \uac83\uc785\ub2c8\ub2e4. \uc800\ub294 \uc774 \uc0ac\uc2e4\uc744 \uc778\uc815\ud558\uc9c0\ub9cc \uc81c \uc0b6\uc758 \ubc29\uc2dd\uc774 \uc774 \uc7a5\uc560\ub97c \uc815\uc758\ud558\ub294 \uac83\uc740 \ud5c8\uc6a9\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ucd5c\uadfc\uc5d0 \uc81c\uac00 \uc544\ub294 \ubaa8\ub4e0 \uc0ac\ub78c\ub4e4\uacfc \uac70\uc758 900\ub9c8\uc77c \ub5a8\uc5b4\uc9c4 \uacf3\uc5d0\uc11c \ud63c\uc790 \uc774\uc0ac\ub97c \ud588\uc2b5\ub2c8\ub2e4. '\uadfc\uc721'\uc744 \ub4a4\ub85c\ud558\uace0 \ubaa8\ub4e0 \uc9d0\uc744 \uc2f8\uc11c \ud63c\uc790\uc11c \ub0a0\uc544\uac00\uc57c\ub9cc \uc81c\uac00 \uc5bc\ub9c8\ub098 \uc720\ub2a5\ud55c \uc0ac\ub78c\uc778\uc9c0 \uc54c\uc544\ubcfc \uc218 \uc788\uaca0\ub2e4\uace0 \uacb0\uc2ec\ud588\uc8e0.<\/p>\n

\uc9c1\uc5c5\uc801\uc73c\ub85c \uc800\ub294 \uba54\ub9b4\ub79c\ub4dc\uc758 100\ub300 \uc5ec\uc131 \ubc0f 100\ub300 \uc18c\uc218\uacc4 \uae30\uc5c5 \uc18c\uc720\uc8fc \uc911 \ud55c \uba85\uc73c\ub85c \uc120\uc815\ub418\uc5c8\uc2b5\ub2c8\ub2e4. MD\uac00 \ub41c \uccab\ub0a0\ubd80\ud130 \uc9c1\uc5c5\uc801 \uc815\uccb4\uc131\uc744 \uc720\uc9c0\ud558\ub294 \uac83\uc744 \ucd5c\uc6b0\uc120 \uacfc\uc81c\ub85c \uc0bc\uc558\uae30 \ub54c\ubb38\uc5d0 \uc800\ub294 \uc81c \uc77c\uc5d0 \ub300\ud574 \ub9e4\uc6b0 \uc790\ub791\uc2a4\ub7fd\uac8c \uc0dd\uac01\ud569\ub2c8\ub2e4. \ub610\ud55c 2016\ub144\uc5d0\ub294 MDA \uc6a9\uae30\uc0c1\uc744 \uc218\uc0c1\ud558\ub294 \uc601\uad11\uc744 \ub204\ub838\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? <\/strong><\/p>\n

LGMD\ub294 \ub2e4\ub978 \uc0ac\ub78c\uc5d0 \ub300\ud55c \uc5f0\ubbfc\uacfc \uacf5\uac10 \ub2a5\ub825\uc5d0 \ud070 \uc601\ud5a5\uc744 \ubbf8\ucce4\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ubab8\uc774 \uc88b\uc9c0 \uc54a\ub2e4\ub294 \uac83\uc758 \uc758\ubbf8\ub97c \ucda9\ubd84\ud788 \uc774\ud574\ud569\ub2c8\ub2e4. \uc9c0\uc18d\uc801\uc73c\ub85c \uc544\ud504\uace0 \uace0\ud1b5\uc2a4\ub7ec\uc6cc\ud558\ub294 \uac83\uc774 \uc9c0\uce60 \uc218 \uc788\ub2e4\ub294 \uac83\uc744 \uc774\ud574\ud569\ub2c8\ub2e4. \ud3c9\uc18c\uc5d0 \uc81c \uc790\uc2e0\uc5d0 \ub300\ud55c \uc778\ub0b4\uc2ec\uc744 \uc783\uae30\ub3c4 \ud558\uc9c0\ub9cc, LGMD \uc9c4\ub2e8\uc744 \ubc1b\uae30 \uc804\uc5d0\ub294 \uc5c6\uc5c8\ub358 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc5d0 \ub300\ud55c \uc778\ub0b4\uc2ec\uc744 \uac16\uac8c \ub418\uc5c8\ub2e4\uace0 \uc0dd\uac01\ud569\ub2c8\ub2e4.<\/p>\n

\uc774 \uc9c4\ub2e8\uacfc \ud568\uaed8 \uc624\ub294 \ubaa8\ub4e0 \uc5b4\ub824\uc6c0 \ub54c\ubb38\uc5d0 \uc800\ub294 \uc81c \ud55c\uacc4\uc5d0 \ub300\ud574 \uc720\uba38 \uac10\uac01\uc744 \uc720\uc9c0\ud558\uae30 \uc704\ud574 \uc5f4\uc2ec\ud788 \ub178\ub825\ud569\ub2c8\ub2e4. \uac00\uc871\uacfc \uce5c\uad6c\ub4e4(\ubb3c\ub860 \ub098 \uc790\uc2e0\ub3c4 \ub9c8\ucc2c\uac00\uc9c0\uc9c0\ub9cc)\uc758 \uc815\uc11c\uc801, \uc721\uccb4\uc801 \ubd80\ub2f4\uc744 \ub35c\uc5b4\uc904 \uc218 \uc788\ub2e4\uba74 \"\uc624\ub298\uc740 \uace8\ubb34\uc5d0 \ub4e4\uc5b4\uac00\ub824\ub294 \ubb38\uc5b4\ucc98\ub7fc \ub290\uaef4\uc838\"\ub77c\ub294 \ub9d0 \ub300\uc2e0 \"\uc624\ub298\uc740 \uae30\ubd84\uc774 \ub054\ucc0d\ud574\"\ub77c\ub294 \ub9d0\ub85c \ucd5c\uc120\uc744 \ub2e4\ud558\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4.<\/p>\n

\ub610\ud55c \ucc3d\uc758\uc801\uc73c\ub85c \uc0c1\ud669\uc5d0 \uc811\uadfc\ud558\ub294 \ub2a5\ub825\ub3c4 \ud0a4\uc6e0\uc2b5\ub2c8\ub2e4. \"\ub09c \uc548 \ub3fc\"\ub77c\uace0 \uc18d\uc0ad\uc774\ub294 \uc791\uc740 \ubaa9\uc18c\ub9ac\uc5d0 \uc791\uc740 \ud798\uc744 \uc2e4\uc5b4\uc8fc\uace0, \ubaa8\ub4e0 \uac83\uc744 \"\uc0c9\ub2e4\ub978 \uae38\uc744 \ud0dd\ud560 \uc218\ub294 \uc788\uc9c0\ub9cc \ud560 \uc218 \uc788\ub2e4\"\ub85c \ubc14\uafb8\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4. \uc7a5\uc560\uac00 \uc788\ub294 \uc0ac\ub78c\uacfc \uac19\uc740 \ubc29\uc2dd\uc73c\ub85c A \uc9c0\uc810\uc5d0\uc11c B \uc9c0\uc810\uc73c\ub85c \uc774\ub3d9\ud560 \uc218\ub294 \uc5c6\uc9c0\ub9cc, \uc544\ubb34\ub9ac \ud130\ubb34\ub2c8\uc5c6\ub294 \ubc29\ubc95\uc774\ub77c\ub3c4 \uc77c\uc744 \uc644\uc218\ud560 \uc218 \uc788\ub294 \ubc29\ubc95\uc744 \ucc3e\uc544\ub0bc \uac83\uc785\ub2c8\ub2e4.<\/p>\n

\uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong> LGMD<\/strong>:<\/p>\n

\uc800\ub294 \"\uc601\uac10\"\uc774 \uc544\ub2d9\ub2c8\ub2e4: \uc81c\uac00 LGMD\ub97c \uc553\uace0 \uc788\ub2e4\uace0 \ud574\uc11c \ubaa8\ub4e0 \uc0ac\ub78c\ub4e4\uc5d0\uac8c \uc601\uac10\uc744 \uc8fc\ub294 \uac83\uc740 \uc544\ub2d9\ub2c8\ub2e4. \uc81c\uac00 LGMD\ub97c \uc553\uace0 \uc788\ub294 \ub204\uad70\uac00\uc5d0\uac8c \uc720\uba38\uc640 \uacb0\ub2e8\ub825\uc744 \uac00\uc9c0\uace0 \uc9c4\ub2e8\uc5d0 \uc811\uadfc\ud558\ub3c4\ub85d \uc601\uac10\uc744 \uc904 \uc218 \uc788\uc744\uae4c\uc694? \ubb3c\ub860\uc774\uc8e0. \ud558\uc9c0\ub9cc \uc81c\uac00 LGMD\ub97c \uc553\uace0 \uc788\ub2e4\uace0 \ud574\uc11c \uc120\ucc9c\uc801\uc73c\ub85c \uc601\uac10\uc744 \uc8fc\ub294 \uac83\uc740 \uc544\ub2d9\ub2c8\ub2e4. \uc800\ub294 LGMD\ub97c \uac00\uc9c4 \uc5ec\uc131\uc774\uace0 \uc778\uc0dd\uc758 \uc218\ub9ce\uc740 \ub3c4\uc804\uc5d0 \uc801\uc751\ud558\ub294 \ubaa8\ub4e0 \uc0ac\ub78c\ub4e4\uacfc \ub9c8\ucc2c\uac00\uc9c0\ub85c \uc81c \uc0c1\ud669\uc5d0 \uc801\uc751\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ud314\uc774 \ubd80\ub7ec\uc9c4 \uc0ac\ub78c\uc740 \uc9e7\uc740 \uae30\uac04 \ub3d9\uc548 \ub2e4\ub978 \uc77c\uc744 \ud558\ub294 \ubc29\ubc95\uc744 \ubc30\uc6cc\uc57c \ud569\ub2c8\ub2e4. \ub9c8\ucc2c\uac00\uc9c0\ub85c \uc800\ub3c4 \ub9e4\uc77c \uc801\uc751\ud558\uace0 \ub2e4\uc2dc \uc801\uc751\ud558\ub294 \ubc29\ubc95\uc744 \ubc30\uc6b0\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\uc640 \ud314\uc774 \ubd80\ub7ec\uc9c4 \uc0ac\ub78c\uc758 \uc720\uc77c\ud55c \ucc28\uc774\uc810\uc740 \uacb0\uad6d \uae41\uc2a4\ub97c \ud480\uace0 \ud314\uc758 \ubaa8\ub4e0 \uae30\ub2a5\uc744 \ud68c\ubcf5\ud55c\ub2e4\ub294 \uc810\uc785\ub2c8\ub2e4. LGMD\ub294 \uc810\uc9c4\uc801\uc774\uae30 \ub54c\ubb38\uc5d0 \uc0c1\ud669\uc774 \uc9c4\ud589\ub428\uc5d0 \ub530\ub77c \ud56d\uc0c1 \uc7ac\uc870\uc815\ud574\uc57c \ud560 \ub54c\uac00 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub098(\ub610\ub294 \ub2e4\ub978 \uc0ac\ub78c\uc758) \ub2a5\ub825\uc5d0 \ub300\ud574 \uac00\uc815\ud558\uc9c0 \ub9c8\uc138\uc694:\u00a0 <\/strong>\uc549\uc544\uc788\uc744 \ub54c\ub294 '\uc815\uc0c1'\uc73c\ub85c \ubcf4\uc774\ub294 \uc0ac\ub78c\uc774 \uc11c \uc788\uc744 \ub54c\ub294 \uc5b4\ub5a4 \uc5b4\ub824\uc6c0\uc744 \uacaa\uc744\uc9c0 \ubaa8\ub974\uae30 \ub54c\ubb38\uc5d0 \ud310\ub2e8\uc744 \uc720\ubcf4\ud558\uc138\uc694. \ud720\uccb4\uc5b4\ub97c \ud0c0\uac70\ub098 \ubcf4\uc870 \uc7a5\uce58\ub97c \uc0ac\uc6a9\ud558\ub294 \uc0ac\ub78c\uc744 \ubcfc \ub54c, \uccad\uac01 \uc7a5\uc560\uac00 \uc788\ub2e4\uac70\ub098 \ubcf4\uc0b4\ud54c\uc744 \ubc1b\uc544\uc57c \ud55c\ub2e4\uace0 \uc0dd\uac01\ud558\uac70\ub098 \ub3d9\uc815\uc774\ub098 \ub3d9\uc815\uc744 \uc6d0\ud55c\ub2e4\uace0 \uc0dd\uac01\ud558\uc9c0 \ub9c8\uc138\uc694. \uc774\uac83\uc774 \uc6b0\ub9ac\uc758 '\uc815\uc0c1'\uc774\uba70, \ud798\ub4e4\uae30\ub294 \ud558\uc9c0\ub9cc \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uacfc \ub2e4\ub974\uac8c \uccad\uac01 \uc7a5\uc560\ub97c \uac00\uc9c4 \uc0ac\ub78c\ub4e4\uc744 \ub300\ud560 \ud544\uc694\ub294 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub0b4\uac00 \ub3c4\uc6c0\uc774 \ud544\uc694\ud558\uac70\ub098 \uc6d0\ud558\uc9c0 \uc54a\ub294\ub2e4\uace0 \uac00\uc815\ud558\uc9c0 \ub9c8\uc138\uc694: LGMD\uc640 \ud568\uaed8 \uc0b4\ub2e4 \ubcf4\uba74 \ub2e8\uc21c\ud574 \ubcf4\uc774\ub294 \uc77c\uc5d0\ub3c4 \ub3c4\uc6c0\uc744 \uc694\uccad\ud574\uc57c \ud560 \ub54c\uac00 \uc788\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc81c\uac00 \ub3c4\uc6c0\uc774 \ud544\uc694\ud558\ub2e4\uace0 \uac00\uc815\ud558\ub294 \uac83\uc740... \uc74c, \ubaa8\uc695\uc801\uc778 \uc77c\uc785\ub2c8\ub2e4. \ubb3c\ub860 \uc81c\uac00 \uc6d0\ud558\ub294 \ub9cc\ud07c \ube68\ub9ac \ub610\ub294 \uc6b0\uc544\ud558\uac8c \ubb34\uc5b8\uac00\ub97c \ud574\ub0b4\uc9c0 \ubabb\ud560 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uadf8\ub807\ub2e4\uace0 \uc81c\uac00 \ud560 \uc218 \uc5c6\ub2e4\ub294 \ub73b\uc740 \uc544\ub2d9\ub2c8\ub2e4. \uc81c\uac00 \ud574\ubcfc\uac8c\uc694 - \ub3c4\uc6c0\uc774 \ud544\uc694\ud558\uba74 \uc694\uccad\ud560\uac8c\uc694. \uadf8\ub807\uac8c \uac04\ub2e8\ud569\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \uc81c\uac00 \uac10\ub2f9\ud560 \uc218 \uc5c6\uc744 \uac83 \uac19\uc740 \uc77c\uc5d0 \ub3c4\uc804\ud558\uace0 \uc2f6\uc73c\uba74 \uadf8\ub807\uac8c \ud558\uc138\uc694! \uacb0\uacfc\uac00 \uc88b\uc9c0 \uc54a\ub354\ub77c\ub3c4 \uc0c1\uad00\uc5c6\uc5b4\uc694. \uc81c\uac8c\ub294 \uc2e4\ud328\uac00 \uc544\ub2c8\uc5d0\uc694. \uc81c\uac00 \ub178\ub825\ud588\ub2e4\ub294 \ub73b\uc774\uace0, \uc5b4\ub5a4 \ub0a0\uc740 \uadf8\uac83\uc73c\ub85c \ucda9\ubd84\ud558\uc8e0.<\/p>\n

\uc9c8\ubb38\ud558\ub294 \uac83\uc744 \ub450\ub824\uc6cc\ud558\uc9c0 \ub9c8\uc138\uc694:\u00a0 <\/strong>\uc9c0\uc2dd\uc774 \ud798\uc785\ub2c8\ub2e4. \uc9c0\uc2dd\uc740 \uc774\ud574\uc785\ub2c8\ub2e4. \uc9c0\uc2dd\uc740 \uc5f0\ubbfc\uc785\ub2c8\ub2e4. MD\uc5d0 \ub300\ud55c \uc9c8\ubb38\uc740 \ubd88\ucf8c\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \ub098\ub97c \uccd0\ub2e4\ubcf4\uba70 \ub0b4 \uc77c\uc0c1\uc774 \uc5b4\ub5a4\uc9c0 \uad81\uae08\ud574\ud558\ub294 \uac83\uc740 \ubd88\ucf8c\ud569\ub2c8\ub2e4. \ub2e4\uc74c\uacfc \uac19\uc740 \uc9c8\ubb38\uc740 \ubd88\ucf8c\uac10\uc744 \uc90d\ub2c8\ub2e4. \uac00\uc815 <\/em>\uc81c \uc0b6\uc774 \uc5b4\ub5a4\uc9c0 \uc544\uc2dc\uc796\uc544\uc694. \uc81c \uc5b4\ub824\uc6c0\uc744 \uc774\ud574\ud574 \uc8fc\uc2e4 \uac70\ub77c \uae30\ub300\ud558\uc9c0 \uc54a\uc544\uc694. LGMD\uc640 \ud568\uaed8 \uc0b4\uc544\ubcf8 \uc801\ub3c4 \uc5c6\ub294\ub370 \uc5b4\ub5bb\uac8c \uc54c\uaca0\uc5b4\uc694? \ubb50\ub4e0 \ubb3c\uc5b4\ubcf4\uc138\uc694! MD\uc5d0 \ub300\ud574 \uc798 \uc544\ub294 \uc0ac\ub78c\ub4e4\uacfc \ud568\uaed8 \uc788\uc73c\uba74 \uc81c \uc0b6\uc774 \uc870\uae08 \ub354 \ud3b8\ud574\uc9c0\uc9c0\ub9cc, \ubb3c\uc5b4\ubcf4\uc9c0 \uc54a\uc73c\uba74 \uc54c \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \uc678\uba74\ud558\uac70\ub098 \ub3d9\uc815\ud558\uc9c0 \ub9d0\uace0 \uc790\uc2e0\uc744 \uc18c\uac1c\ud558\uace0 \uad81\uae08\ud55c \uc810\uc774 \uc788\uc73c\uba74 \ubb34\uc5c7\uc774\ub4e0 \ubb3c\uc5b4\ubcf4\uc138\uc694.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\ub2ec\ub9ac\uae30. \ub7ec\ub2dd\ud654\ub97c \uc2e0\uace0 \ub2e4\ub9ac\uc640 \ud3d0\uac00 \ud5c8\ub77d\ud558\ub294 \ud55c \ucd5c\ub300\ud55c \ube68\ub9ac, \ucd5c\ub300\ud55c \uba40\ub9ac \ub6f0\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8 \ud6c4\uc5d0\ub294 \uba4b\uc9c4 \ud558\uc774\ud790\uc744 \uc2e0\uace0 \ubc24\uc0c8\ub3c4\ub85d \ucda4\uc744 \ucd94\uace4 \ud588\uc8e0. \ucda4... \ucda4\uc774 \uac00\uc7a5 \uadf8\ub9ac\uc6cc\uc694!<\/p>\n

 <\/p>\n

\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name: Nicole\u00a0\u00a0 AGE: 37 COUNTRY: United States LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":1505,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[78],"class_list":["post-1506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Nicole - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Nicole - 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