{"id":1638,"date":"2017-12-04T15:59:19","date_gmt":"2017-12-04T21:59:19","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1638"},"modified":"2017-12-04T15:59:19","modified_gmt":"2017-12-04T21:59:19","slug":"deceena","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/12\/04\/deceena\/","title":{"rendered":"LGMD \uac1c\uc778: \ub370\uc2dc\ub098"},"content":{"rendered":"

LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/span><\/p>\n

\uc774\ub984<\/strong><\/span>:\u00a0 <\/span>\ub370\uc2dc\ub098\u00a0 \u00a0\ub098\uc774<\/strong>: 31\uc138\"\"<\/a><\/span><\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/span><\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2A - \uce7c\ud30c\uc778 \ubcd1\uc99d\uc774\ub77c\uace0\ub3c4 \ud568<\/span><\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/span><\/p>\n

\uc800\ub294 29\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/span><\/p>\n

\ub2e4\ub9ac\uc758 \uadfc\ub825 \uc57d\ud654\uac00 \uccab \uc99d\uc0c1\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \ub098\ub294 \uac08 \uc218 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. <\/span>\uacc4\ub2e8 \uc704\ub85c 2008\ub144\uc5d0 \ub458\uc9f8 \uc544\uc774\ub97c \ub0b3\uc740 \ud6c4\ubd80\ud130 \uc815\uc0c1\uc778\ucc98\ub7fc \uc6b4\ub3d9\uc744 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4. \uc758\uc0ac\ub4e4\uc740 \uadf8\uc800 \uc544\uae30\ub97c \ub0b3\uc740 \uac83\ubfd0\uc774\ub77c\uba70 \uc6b4\ub3d9\uc744 \ud558\ub77c\ub294 \uc870\uc5b8\uc744 \ud574\uc92c\uc5b4\uc694. \uc800\ub294 \uaca8\uc6b0 22\uc0b4\uc774\uc5c8\uc9c0\ub9cc \ubb54\uac00 \ub354 \ud070 \ubb38\uc81c\uac00 \uc788\ub2e4\ub294 \uac83\uc744 \uc54c\uc558\uc5b4\uc694. \uc758\uc0ac\ub4e4\uc774 \uc800\ub97c \uc880 \ub354 \uc9c4\uc9c0\ud558\uac8c \ubc1b\uc544\ub4e4\uc600\uc73c\uba74 \uc88b\uc558\uc744 \ud150\ub370 \ud558\ub294 \uc544\uc26c\uc6c0\ub9cc \ub0a8\uc558\uc8e0. \uc218\ub9ce\uc740 \uc758\uc0ac\uc640 \uc804\ubb38\uac00\ub97c \ucc3e\uc544\uac14\uc9c0\ub9cc \ubaa8\ub450 \"\uad1c\ucc2e\ub2e4\"\ub294 \ub9d0\ub9cc \ub4e4\uc5c8\uc8e0. \uacb0\uad6d \uc800\ub294 \"\uc138\uc0c1\uc5d0, \uc65c \uc544\ubb34\ub3c4 \ub2f9\uc2e0\uc744 \ub3c4\uc640\uc8fc\uc9c0 \uc54a\uc558\ub098\uc694?\"\ub77c\ub294 \ub9d0\uc744 \ud55c \uc804\uc778\uc801 \uae30\ubc18\uc758 \uc758\uc0ac\ub97c \ucc3e\uc558\uc2b5\ub2c8\ub2e4. \uadf8\ub294 \uc800\ub97c \ubb3c\ub9ac\uce58\ub8cc\uc5d0 \ubcf4\ub0c8\uace0, \ub9c8\uc9c0\ub9c9 \uce58\ub8cc\uc5d0\uc11c <\/span>\uc77c PT\uac00 \uac00\uc871 \uc911\uc5d0 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub0d0\uace0 \ubb3c\uc5c8\uc2b5\ub2c8\ub2e4. (\uc544\ub2c8\uc694). \uadf8\ub294 \uc800\uc5d0\uac8c \uc5f4\uc131\uc778 \ud615\ud0dc\uac00 \uc788\ub2e4\uace0 \ub9d0\ud558\uba70 \uc758\uc0ac\uc5d0\uac8c \uc801\uc808\ud55c \uac80\uc0ac\uc640 \uc9c4\ub8cc\ub97c \uc758\ub8b0\ud558\ub77c\uace0 \uc81c\uc548\ud588\uc2b5\ub2c8\ub2e4. \uc81c\uac8c \"\uadfc\uc774\uc601\uc591\uc99d\"\uc774\ub77c\ub294 \ub2e8\uc5b4\ub97c \ucc98\uc74c \uc5b8\uae09\ud55c \uc0ac\ub78c\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8 \ud6c4 \uc800\ub294 \ud398\uc774\uc2a4\ubd81\uc5d0\uc11c \uc81c \uc601\uc0c1\uc744 \uc62c\ub9b4 \uc218 \uc788\ub294 \ub180\ub77c\uc6b4 \uadf8\ub8f9\uc744 \ubc1c\uacac\ud588\uc2b5\ub2c8\ub2e4. \uc5bc\ub9c8 \uc9c0\ub098\uc9c0 \uc54a\uc544 \uc800\ub294 \uc790\uc774\ub098\uad50 \uc7ac\ub2e8\uacfc \ud568\uaed8 \uc720\uc804\uc790 \uc5f0\uad6c\uc5d0 \ucc38\uc5ec\ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/span>, \uc81c\ub9ac \uba58\ub378 \ubc15\uc0ac\ub97c \ub9cc\ub0a0 \uc218 \uc788\uc5c8\uace0, \uadf8 \uacb0\uacfc LGMD2A\ub77c\ub294 \ucd5c\uc885 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uc0c8 \uc758\ub8cc \uc11c\ube44\uc2a4 \uc81c\uacf5\uc790\uc758 \ud504\ub85c\uc138\uc2a4<\/span>, \uc720\uc804\uc790 \uac80\uc0ac\ub97c \ubc1b\uae30\uae4c\uc9c0 \uc218\ub144 \ub3d9\uc548 \"\uad1c\ucc2e\ub2e4\"\ub294 \ub9d0\ub9cc \ub4e3\uace0 \uc6b4\ub3d9\uc744 \ud558\ub2e4\uac00 \uc9c4\ub2e8\uc744 \ubc1b\uae30\uae4c\uc9c0 \uc57d 3\uac1c\uc6d4\uc774 \uac78\ub838\uc2b5\ub2c8\ub2e4. \uc9c4\ub2e8\uc744 \ubc1b\uc740 \ud6c4 <\/span>on \ub9c9\ub0b4 \ub538\ub4e4 1st<\/sup> \uc0dd\uc77c \uc601\uc6d0\ud788 \uae30\uc5b5\ub420 \ud558\ub8e8....<\/span><\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694? <\/strong><\/span><\/p>\n

\uc6b0\ub9ac \uac00\uc871 \uc911 LGMD\ub97c \uac00\uc9c4 \uc0ac\ub78c\uc740 \uc544\ubb34\ub3c4 \uc5c6\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\ud604\uc7ac \uc800\uc758 \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \uc544\uc774\ub4e4\uc5d0\uac8c \ud2b9\uc815 \ud65c\ub3d9\uc744 \ud560 \uc218 \uc5c6\uac70\ub098 \ud568\uaed8 \ub6f0\uace0 \ub180 \uc218 \uc5c6\uac70\ub098 \uc2ec\uc9c0\uc5b4 \ub098\uc5f4\ud560 \uc218 \uc5c6\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc124\uba85\ud558\uace0 \uadf8 \uc774\uc720\ub97c \uc124\uba85\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \uc544\uc774\ub4e4\uc758 \uc9c8\ubb38\uc5d0 \ub300\ub2f5\ud558\ub294 \uac83\uc774 \ub54c\ub54c\ub85c \ub9e4\uc6b0 \uc5b4\ub835\uc2b5\ub2c8\ub2e4. \ub450 \ubc88\uc9f8\ub85c \ud070 \uc5b4\ub824\uc6c0\uc740 \uc7a5\uc560\uc778\uc744 \uc704\ud574 \uc7a5\uc560\uc778 \uc8fc\ucc28\uad6c\uc5ed\uc744 \ube44\uc6cc\ub450\uc5b4\uc57c \ud55c\ub2e4\ub294 \ubb34\ub840\ud55c \ub9d0\uc744 \ud558\ub294 \uc0ac\ub78c\ub4e4\uc774 \uc788\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \uc800\ub294 '\uc815\uc0c1\uc778'\ucc98\ub7fc \ubcf4\uc774\uc9c0\ub9cc \uc7a5\uac70\ub9ac\ub97c \uac77\ub294 \ub370 \uc5b4\ub824\uc6c0\uc774 \uc788\uace0 \ub0a8\ud3b8\uc758 \ub3c4\uc6c0 \uc5c6\uc774\ub294 \uacc4\ub2e8\uc774\ub098 \uc5f0\uc11d\uc744 \uc62c\ub77c\uac00\uc9c0 \ubabb\ud569\ub2c8\ub2e4.<\/span><\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\uc81c \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 \ubaa8\ub4e0 \uc0ac\ub78c\uc5d0 \ub300\ud55c \uc0ac\ub791\uacfc \uc5f0\ubbfc\uc744 \ubc30\uc6b4 \uac83\uc774\ub77c\uace0 \ub9d0\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc7a5\uc560\ub97c \uac00\uc9c4 \uc0ac\ub78c\ub4e4\uc774 \uacaa\ub294 \uc815\uc11c\uc801 \uc5b4\ub824\uc6c0\uc774 \uc5bc\ub9c8\ub098 \ud070\uc9c0 \ubab0\ub790\uc5b4\uc694. \ub300\ubd80\ubd84\uc740 \ub2e8\uc21c\ud788 \uc2e0\uccb4\uc801\uc778 \ubb38\uc81c\ub77c\uace0 \uc0dd\uac01\ud558\uc9c0\ub9cc \uadf8\ub807\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc81c \uc606\uc5d0 \uc11c\uc8fc\uae30\ub85c \uacb0\uc815\ud55c \ud30c\ud2b8\ub108\ub97c \ub9cc\ub0ac\uace0 9\uc77c\uc774 \uc9c0\ub09c \uc9c0\uae08\ub3c4 \uacb0\ud63c\uc744 \ud588\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \uc721\uccb4\uc801, \uc815\uc11c\uc801, \uc815\uc2e0\uc801\uc73c\ub85c \uc774 \ub054\ucc0d\ud55c \uc9c8\ubcd1\uc5d0 \uc9c1\uba74\ud558\uac8c \ub420 \uc5b4\ub824\uc6c0\uc744 \uc54c\uba74\uc11c\ub3c4 \uacc4\uc18d\ud574\uc57c \ud558\ub294\uc9c0\uc5d0 \ub300\ud574 \ub9e4\uc6b0 \uc194\uc9c1\ud558\uace0 \uc5b4\ub824\uc6b4 \ub300\ud654\ub97c \ub098\ub234\uc2b5\ub2c8\ub2e4(\uc800\uc5d0\uac8c\ub294). \uadf8\ub294 \uc81c\uac00 \uc9c4\ud589\uc131 \uc2e0\uacbd\uacc4 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc54c\uace0\ub3c4 \uadf8\ub0e5 \ub5a0\ub0a0 \uc218\ub3c4 \uc788\uc5c8\uc9c0\ub9cc, \ubb34\uc870\uac74 \uc0ac\ub791\ud558\uace0 \ubb34\uc870\uac74\uc801\uc778 \uc0ac\ub791\uacfc \uc218\uc6a9\uc758 \uc9c4\uc815\ud55c \uc758\ubbf8\ub97c \uac00\ub974\uccd0 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8\ub294 \uc5b4\ub5a4 \uc0c1\ud669\uc5d0\uc11c\ub3c4, \uc2ec\uc9c0\uc5b4 \ub054\ucc0d\ud558\ub2e4\uace0 \uc0dd\uac01\ub418\ub294 \uc0c1\ud669\uc5d0\uc11c\ub3c4 \ud56d\uc0c1 \ub354 \uae4a\uc774 \uc0ac\ub791\ud558\ub77c\uace0 \uac00\ub974\uccd0\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \uc544\ub984\ub2e4\uc6b4 \uac00\uc815\uc744 \uafb8\ub838\uace0 \uc774\uac83\uc774 \uc800\uc758 \uac00\uc7a5 \ud070 \uc5c5\uc801\uc785\ub2c8\ub2e4. \uc55e\uc73c\ub85c\ub3c4 \uc6b0\ub9ac \uc544\uc774\ub4e4\uc774 \ubcf4\uace0 \ud76c\ub9dd\uc744 \ud488\uace0 \uc0b4\uc544\uac08 \uc218 \uc788\ub3c4\ub85d \uc0ac\ub791\uacfc \uc5f0\ubbfc\uc73c\ub85c \ubaa8\ubc94\uc744 \ubcf4\uc77c \uc218 \uc788\uae30\ub97c \ubc14\ub78d\ub2c8\ub2e4. \uc774 \uc138\uc0c1\uc740 \ub354 \ub098\uc740 \uacf3\uc774 \ub420 \uac83\uc785\ub2c8\ub2e4. <\/span>\ub294 \uc0ac\ub78c\ub4e4\uc740 \uc7a5\uc560\uac00 \uc544\ub2cc \uc0ac\ub78c\uc744 \uc0ac\ub78c\ub2f5\uac8c \ub300\ud588\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? <\/strong><\/span><\/p>\n

LGMD\ub97c \uac16\uac8c \ub418\uba74\uc11c \uc800\ub294 \uc639\ud638\ud558\uace0 \ubaa9\uc18c\ub9ac\ub97c \ub0b4\ub294 \ubc29\ubc95\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc218\ub144 \ub3d9\uc548 \uc758\uc0ac\ub4e4\uc774 \ud2c0\ub838\ub2e4\uace0 \ub9d0\ud558\uba74\uc11c \uc81c \uc790\uc2e0\uc744 \uc639\ud638\ud574\uc57c \ud588\uc2b5\ub2c8\ub2e4. \ub204\uac00 \uadf8\ub807\uac8c \ud558\ub098\uc694? \ubc14\ub85c \uc5ec\uae30 \uc774 \uc18c\ub140! \ub355\ubd84\uc5d0 \uc800\ub294 \uc774\uc81c \uc81c \ubaa9\uc18c\ub9ac\ub97c \ub0bc \uc218 \uc788\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. <\/span>\uc5d0 \ub300\ud55c \ub2e4\ub978 \uc0ac\ub78c\ub4e4. \uc800\ub294 \ub2e4\uc74c\uacfc \uac19\uc774 \ud560 \uc218 \uc5c6\ub294 \uc0ac\ub78c\ub4e4\uc744 \uc9c4\uc2ec\uc73c\ub85c \uc639\ud638\ud569\ub2c8\ub2e4.<\/span>, \ub610\ub294 \ub3c4\uc6c0\uc774 \ud544\uc694\ud560 \uc218 \uc788\ub294 \uc0ac\ub78c\ub4e4. \uc800\ub294 \uc7a5\uc560\ub97c \uc120\ubb3c\uc774\ub77c\uace0 \uc0dd\uac01\ud569\ub2c8\ub2e4. \uc81c\uac8c\ub294 \uc624\ub298\ub0a0\uc758 \uc2e0\ub150\uc744 \uc815\uc758\ud558\uace0 \ud615\uc131\ud558\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub418\ub294 \uae30\ud68c\uac00 \uc8fc\uc5b4\uc84c\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ubd88\ud3b8\ud558\uace0 \uc544\ubb34\ub3c4 \uc6d0\ud558\uc9c0 \uc54a\uc744 \ub54c\uc5d0\ub3c4 \ud56d\uc0c1 \uc81c \ubaa9\uc18c\ub9ac\ub97c \ub0bc \uac83\uc785\ub2c8\ub2e4. \uc800\ub294 \ud56d\uc0c1 \uc758\uc0ac\uc5d0\uac8c \uc9c8\ubb38\ud558\uace0 \uba48\ucd94\uc9c0 \uc54a\uc744 \uac83\uc785\ub2c8\ub2e4. LGMD\ub294 \uc800\ub97c \uc624\ub298\ub0a0\uacfc \uac19\uc740 \ucd94\uc9c4\ub825\uacfc \uacb0\ub2e8\ub825\uc744 \uac16\ucd98 \uce58\uc5f4\ud55c \uc0ac\ub78c\uc73c\ub85c \ub9cc\ub4e4\uc5b4 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/span><\/p>\n

\uc774 \uc9c8\ubb38\uc5d0\uc11c \uc5b4\ub514\uc11c\ubd80\ud130 \uc2dc\uc791\ud574\uc57c \ud560\uc9c0 \ubaa8\ub974\uaca0\uc2b5\ub2c8\ub2e4. \uc8fc\ub85c LGMD\ub97c \uac00\uc9c4 \uc0ac\ub78c\ub4e4\uc740 \uadf8\ub807\uc9c0 \uc54a\uc740 \uc0ac\ub78c\ub4e4\uacfc \ub2e4\ub974\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc5ec\uc804\ud788 \uc228\uc744 \uc26c\uace0 \uc5ec\uc804\ud788 \uac10\uc815\uc744 \uac00\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc5ec\uc804\ud788 \ub611\uac19\uc774 \uc0ac\ub791\ud558\uace0 \ub611\uac19\uc774 \uc544\ud30c\ud569\ub2c8\ub2e4. \uc800\ub294 MD\uac00 \uc5c6\ub294 \uc0ac\ub78c\ub4e4\uacfc \ub611\uac19\uc774 \ud589\ubcf5\ud558\uace0 \uc2f6\uace0 \ub611\uac19\uc740 \uae30\ud68c\ub97c \uac16\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc0ac\ub78c\ub4e4\uc774 \uc0ac\ub78c\uc744 \ub300\ud558\ub294 \ubc29\uc2dd\uc5d0 \ub300\ud574 \uc870\uae08 \ub354 \uc758\uc2dd\ud55c\ub2e4\ub294 \uc810\uc744 \uc81c\uc678\ud558\uba74 \uc800\ub294 \ub2e4\ub974\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\uc81c\uac00 \uac00\uc7a5 \uba3c\uc800 \ud560 \uc77c\uc740 \uc544\uc774\ub4e4\uc5d0\uac8c \ub2ec\ub824\uac00\uc11c \ubc14\ub2e5\uc5d0\uc11c \uc544\uc774\ub4e4\uacfc \uc528\ub984\ud558\uace0, \ud568\uaed8 \ub6f0\uc5b4\uc62c\ub77c \uacf5\uc911\uc73c\ub85c \ub358\uc9c0\ub294 \uac83\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \ub9d0\ub85c \ud45c\ud604\ud560 \uc218 \uc5c6\uc744 \uc815\ub3c4\ub85c \uadf8\ub9ac\uc6cc\uc694. \uac70\uc758 12\uc0b4\uacfc 9\uc0b4\uc774 \ub41c \ud070 \uc544\uc774\ub4e4\uacfc\ub3c4 \uc774\ub807\uac8c \ud560 \uc218 \uc788\uc5c8\uc5b4\uc694.<\/span>, \ud558\uc9c0\ub9cc 6\uc0b4\uacfc 3\uc0b4\uc778 \uc5b4\ub9b0 \ub450 \uc544\uc774\uc640 \ud568\uaed8 \ud560 \uc218\ub294 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8 \ud6c4\uc5d0\ub294 \ub0a8\ud3b8\uc758 \ud488\uc5d0 \uc548\uaca8\uc11c \uc7a0\uc2dc \uba38\ubb3c\ub7ec \uc788\uace4 \ud588\uc2b5\ub2c8\ub2e4. \uadf8\ub7f0 \ub2e4\uc74c \ub2ec\ub9ac\uae30, \uc7a5\uac70\ub9ac \ub2ec\ub9ac\uae30\ub97c \ud574\uc57c \ud588\uc8e0. \ub2ec\ub9ac\uae30\ub294 \uc81c\uac00 \uc120\ud0dd\ud55c \ud65c\ub3d9\uc774\uc5c8\uc9c0\ub9cc \uba87 \ub144 \ub3d9\uc548 \ud560 \uc218 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

 <\/p>\n

* \ub354 \ub9ce\uc740 \"LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9 \uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc2ed\uc2dc\uc624.<\/span>: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0<\/span><\/p>\n

* \uc774 \uac8c\uc2dc\ubb3c\uc5d0 \uc88b\uc544\uc694\ub97c \ub204\ub974\uace0, \ub313\uae00\uc744 \ub2ec\uace0, \uacf5\uc720\ud558\uc5ec LGMD\uc5d0 \ub300\ud55c \uc778\uc9c0\ub3c4\ub97c \ub192\uc5ec\uc8fc\uc138\uc694!<\/span><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Deceena\u00a0 \u00a0Age: 31 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1637,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1638","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Deceena - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2017\/12\/04\/deceena\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Deceena - 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