{"id":1651,"date":"2018-01-08T10:22:50","date_gmt":"2018-01-08T16:22:50","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1651"},"modified":"2018-01-08T10:22:50","modified_gmt":"2018-01-08T16:22:50","slug":"jill-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/","title":{"rendered":"LGMD \uac1c\uc778: Jill"},"content":{"rendered":"

LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0<\/strong><\/span><\/p>\n

\uc774\ub984<\/strong><\/span>:\u00a0 \u00a0 Jill\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0\u00a0\ub098\uc774<\/strong>: 33\uc138\"\"<\/a><\/span><\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/span><\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2i<\/span><\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/span><\/p>\n

\uc800\ub294 27\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/span><\/p>\n

\ucd08\ub4f1\ud559\uad50 \uc2dc\uc808, \uc800\ub294 \ud56d\uc0c1 \uac00\uc7a5 \ub2a6\uac8c \uacb0\uc2b9\uc120\uc744 \ud1b5\uacfc\ud558\ub294 \uc544\uc774\uc600\uc2b5\ub2c8\ub2e4. <\/span>\uccb4\uc721\uad00. \ub2e4\ub9ac \uacbd\ub828\uc774 \uc2ec\ud574 \ud559\uad50 \ud65c\ub3d9\uc5d0 \ucc38\uc5ec\ud558\uc9c0 \ubabb\ud588\ub358 \uae30\uc5b5\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc800\ub294 \ub304\uc2a4 \ud300\uc5d0 \uc788\uc5c8\uace0 <\/span>\uc288\ud37c \ub178\uba40 \uc5b4\ub9b0 \uc2dc\uc808. 2008\ub144 23\uc0b4\uc5d0 \uccab \uc544\uc774\ub97c \ucd9c\uc0b0\ud55c \ud6c4, \uc800\ub294 \ud53c\ub85c\uc640 \ud1b5\uc99d\uc73c\ub85c \uc751\uae09\uc2e4\uc744 \ub4e4\ub77d\uac70\ub9ac\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4. \ub0a8\ud3b8\uc5d0\uac8c \"\ub098\uc5d0\uac8c \ubb54\uac00 \ubb38\uc81c\uac00 \uc788\ub294\ub370 \uc5b8\uc820\uac00\ub294 \uadf8 \uc6d0\uc778\uc744 \uc54c\uac8c \ub420 \uac83\"\uc774\ub77c\uace0 \ub9d0\ud588\ub358 \uae30\uc5b5\uc774 \ub0a9\ub2c8\ub2e4. 2010\ub144 \ub458\uc9f8 \ub538\uc744 \ucd9c\uc0b0\ud55c \ud6c4 \uc800\ub294 \uc720\uc544\uc640 \uc2e0\uc0dd\uc544\ub97c \ud0a4\uc6b0\uba74\uc11c \uc721\uccb4\uc801\uc73c\ub85c \ud798\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \ub354 \uc774\uc0c1 \ud070 \ud798\uc744 \ub4e4\uc774\uc9c0 \uc54a\uace0\ub294 \uacc4\ub2e8\uc744 \uc624\ub97c \uc218 \uc5c6\uc5c8\uc5b4\uc694. \uadf8\ub798\ub3c4 \"\uc774\uac8c \ubc14\ub85c \ud53c\uace4\ud55c \uc5c4\ub9c8\ub4e4\uc774 \ub290\ub07c\ub294 \uac10\uc815\uc778\uac00 \ubcf4\ub2e4\"\ub77c\uace0 \uc0dd\uac01\ud588\uc8e0. \uadf8\ub7ec\ub2e4 2011\ub144\uc5d0 \uc800\ub294 \ubc14\uc774\ub7ec\uc2a4\uc5d0 \uac10\uc5fc\ub418\uc5b4 \uace0\uc5f4\uc774 \uce58\uc19f\uc740 \ud6c4 \ud6a1\ubb38\uadfc\uc735\ud574\uc99d\uc5d0 \uac78\ub838\uc2b5\ub2c8\ub2e4. \uadf9\uc2ec\ud55c \uc1e0\uc57d\uac10\uc73c\ub85c \ubcd1\uc6d0\uc5d0 \uac14\ub354\ub2c8 CPK \uc218\uce58\uac00 11,000\uc774 \ub098\uc654\uc5b4\uc694. \uadf8\uc81c\uc11c\uc57c \uc81c\ub300\ub85c \ub41c \ubcd1\uc6d0\uc744 \ucc3e\uc558\uace0 LGMD2I\ub77c\ub294 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \ub9ce\uc740 \ubd84\ub4e4\ucc98\ub7fc \uc800\ub3c4 \uc9c4\ub2e8\uc744 \ubc1b\uae30\uae4c\uc9c0 \uae34 \uc5ec\uc815\uc774\uc5c8\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/span><\/p>\n

\uc544\ub2c8\uc694, \uc800\ub294 \ub3d9\ud615\uc811\ud569 \uc5f4\uc131 \uc720\uc804\uc790\uc5ec\uc11c \ubd80\ubaa8\ub2d8 \ubaa8\ub450 \ubcf4\uc778\uc790\uc600\uc2b5\ub2c8\ub2e4. \ub2e4\ud589\ud788 \uc81c \ud615\uc81c\uc640 \uc790\ub9e4\ub294 \uc601\ud5a5\uc744 \ubc1b\uc9c0 \uc54a\uc558\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\uc81c\uac00 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc744 \ub54c \uc81c \ub538\ub4e4\uc740 \uc544\uae30\uc600\uc5b4\uc694. 1\ub144 \ud6c4 \ub0a8\ud3b8\uc740 \ub1cc\uc554 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uac00\uc871\uc744 \ub3cc\ubcfc \uc218 \uc5c6\uc744\uae4c \ubd10 \ub450\ub824\uc6e0\uc5b4\uc694. \uc6b0\ub9ac\uc5d0\uac8c \ubb34\uc2a8 \uc77c\uc774 \uc77c\uc5b4\ub0a0\uc9c0 \uac71\uc815\ud558\uba70 \ub9ce\uc740 \uc2dc\uac04\uc744 \ubcf4\ub0c8\uc5b4\uc694. \uc800\ub294 \uc9c0\uae08 \uc774 \uc21c\uac04\uc5d0 \uc9d1\uc911\ud558\uace0 \uc88b\uc740 \uc2dc\uac04\uc744 \uc990\uae30\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4. \"\uc815\uc2e0\uc744 \uc9d1\uc911\"\ud558\uace0 \uc1e0\ud1f4\ub97c \uc608\uc0c1\ud558\uc9c0 \uc54a\uac70\ub098 \uc88c\uc808\uacfc \uace0\ud1b5\uc5d0 \ube60\uc9c0\uc9c0 \uc54a\ub294 \uac83\uc774 \uc5b4\ub824\uc6b8 \uc218 \uc788\uc2b5\ub2c8\ub2e4. <\/span>\uc5d0 \uce68\ub300\uc5d0\uc11c. \ud558\uc9c0\ub9cc \uc800\ub294 \uc624\ub298 \uc5ec\uae30 \uc788\uc2b5\ub2c8\ub2e4. \uc81c \ub0a8\ud3b8\uc740 \uc624\ub298 \uc5ec\uae30 \uc788\uc2b5\ub2c8\ub2e4. \uc81c \uc544\uc774\ub4e4\uc740 \ub180\ub78d\uace0 \ud68c\ubcf5\ub825\uc774 \ub6f0\uc5b4\ub0a9\ub2c8\ub2e4. \uadf8\ub798\uc11c \uc800\ub294 \uac10\uc0ac\ud558\uba70 \uacc4\uc18d \uc0b4\uc544\uac00\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\uac1c\uc778\uc801\uc73c\ub85c \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 \ud589\ubcf5\uc785\ub2c8\ub2e4. \uc5b4\ub824\uc6b4 \uc0c1\ud669 \uc18d\uc5d0\uc11c\ub3c4 \ud589\ubcf5\ud574\uc9c0\uae30 \uc704\ud574 \uc815\ub9d0 \uc5f4\uc2ec\ud788 \ub178\ub825\ud588\uc2b5\ub2c8\ub2e4. \uc815\ub9d0 \uc790\ub791\uc2a4\ub7fd\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ub9e4\uc77c \ud589\ubcf5\uc744 \uc120\ud0dd\ud558\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/span><\/p>\n

\uc9c4\ub2e8 \ud6c4 \ub354 \uc758\ubbf8 \uc788\ub294 \uc0b6\uc744 \uc0b4\uace0 \uc788\ub2e4\uace0 \ub290\ub08d\ub2c8\ub2e4. \uc800\ub294 \uc81c \uc0ac\ub78c\ub4e4\uc744 \ub354 \uac15\ub82c\ud558\uac8c \uc0ac\ub791\ud569\ub2c8\ub2e4. \uc800\ub294 \uc18d\ub3c4\ub97c \ub2a6\ucd94\ub294 \ubc95\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \uadf8\ub798\uc57c\ub9cc \ud558\uae30 \ub54c\ubb38\uc5d0, \uadf8\ub9ac\uace0 \uadf8\uac83\uc774 \uc778\uc0dd\uc744 \uc0b4\uc544\uac00\ub294 \ub098\uc05c \ubc29\ubc95\uc740 \uc544\ub2c8\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4. \ub610\ud55c \ub9cc\uc131 \uc9c8\ud658, \ud1b5\uc99d, \uc2ac\ud514 \ub4f1 \ub208\uc5d0 \ubcf4\uc774\uc9c0 \uc54a\ub294 \uc9c8\ubcd1\uc73c\ub85c \uac8c\uc73c\ub984\uc774\ub098 \ub178\ub825 \ubd80\uc871\uc73c\ub85c \uc624\ud574\ubc1b\uae30 \uc26c\uc6b4 \uc0ac\ub78c\ub4e4\uc744 \uc774\ud574\ud558\uace0 \uacf5\uac10\ud560 \uc218 \uc788\ub294 \uae30\ud68c\ub97c \uac16\uac8c \ub41c \uac83\ub3c4 \uac10\uc0ac\ud55c \uc77c\uc785\ub2c8\ub2e4. \ud798\ub4e4\uc5b4\ud558\ub294 \uc5ec\ub7ec\ubd84\uc744 \ubcf4\uba70 \uc548\ud0c0\uae5d\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/span><\/p>\n

\uc800\ub294 LGMD\uac00 \uc720\uc804\uc801\uc73c\ub85c \uc720\uc804\ub418\ub294 \uc9c8\ubcd1\uc774\uba70 '\uc601\uc591 \uacb0\ud54d'\uc774\ub098 \ud5ec\uc2a4\uc7a5\uc5d0 \uac00\uc9c0 \uc54a\uc544\uc11c \uc0dd\uae30\ub294 \uc9c8\ubcd1\uc774 \uc544\ub2c8\ub77c\ub294 \uc0ac\uc2e4\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc774\uac83\uc740 \uc0ac\ub78c\ub4e4\uc774 \uc120\ud0dd\ud558\ub294 \uc9c8\ubcd1\uc774 \uc544\ub2d9\ub2c8\ub2e4. \uc9c4\ud589\uc131 \uc9c8\ud658\uc774\uba70 \uce58\ub8cc\ubc95\uc774 \uc5c6\uc2b5\ub2c8\ub2e4. \uae0d\uc815\uc801\uc778 \ud0dc\ub3c4\ub97c \uc720\uc9c0\ud558\uace0 \ud65c\ub3d9\uc801\uc778 \uc0dd\ud65c\uc744 \uc720\uc9c0\ud558\ub294 \uac83\uc740 \ub3c4\uc6c0\uc774 \ub418\uc9c0\ub9cc \uc9c4\ud589\uc744 \uba48\ucd94\uac8c \ud558\uc9c0\ub294 \ubabb\ud569\ub2c8\ub2e4. \uc81c \uc0dd\uac01\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc5d0\uac8c \uac00\uc7a5 \uc88b\uc740 \ub9d0\uc740 \"\ud798\ub4e4\ub2e4\ub294 \uac83\uc744 \uc54c\uc9c0\ub9cc \uc815\ub9d0 \uc798\ud558\uace0 \uc788\ub2e4\"\ub294 \ub9d0\uc785\ub2c8\ub2e4. \uc55e\uc73c\ub85c \uce58\ub8cc\ubc95\uc774\ub098 \uce58\ub8cc\uc81c\ub97c \ucc3e\uac8c \ub41c\ub2e4\uba74 \uc815\ub9d0 \uc88b\uc744 \uac83 \uac19\uc2b5\ub2c8\ub2e4. \ud76c\ub9dd\uc744 \uc783\uc9c0 \uc54a\ub294 \uac83\uc774 \uc88b\uc2b5\ub2c8\ub2e4.<\/span><\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/span><\/p>\n

\ub538\ub4e4\uc744 \ud559\uad50\uc5d0 \ud0dc\uc6cc\uc8fc\uace0, \uc131\ub300\ud55c \ud30c\ud2f0\ub97c \uc5f4\uace0, \uc6b0\ub9ac\uac00 \uac00\uc7a5 \uc88b\uc544\ud558\ub294 \ud638\uc218 \uc8fc\ubcc0\uc5d0\uc11c \uac00\uc871 \uc790\uc804\uac70\ub97c \ud0c0\uae30\ub3c4 \ud569\ub2c8\ub2e4.<\/span><\/p>\n

 <\/p>\n

 <\/p>\n

* \ub354 \ub9ce\uc740 \"LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"\ub97c \uc77d\uac70\ub098 \ud5a5\ud6c4 \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2f9\uc0ac \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694. <\/span>\uc5d0\uc11c https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0<\/span><\/p>\n

* \uc774 \uac8c\uc2dc\ubb3c\uc5d0 \uc88b\uc544\uc694\ub97c \ub204\ub974\uace0, \ub313\uae00\uc744 \ub2ec\uace0, \uacf5\uc720\ud558\uc5ec LGMD\uc5d0 \ub300\ud55c \uc778\uc9c0\ub3c4\ub97c \ub192\uc5ec\uc8fc\uc138\uc694!<\/span><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight Interview Name:\u00a0 \u00a0 Jill\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1650,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1651","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jill - 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