{"id":1722,"date":"2018-02-26T21:26:04","date_gmt":"2018-02-27T03:26:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1722"},"modified":"2018-02-26T21:26:04","modified_gmt":"2018-02-27T03:26:04","slug":"aleksandra","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2018\/02\/26\/aleksandra\/","title":{"rendered":"LGMD \uac1c\uc778: \uc54c\ub809\uc0b0\ub4dc\ub77c"},"content":{"rendered":"<p><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\" - \uc5b4\uba38\ub2c8\uc758<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/02\/LGMD2D-Aleksandra.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1720 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/02\/LGMD2D-Aleksandra-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a> \uad00\uc810<\/strong><\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\uc5b4\uba38\ub2c8 \uc774\ub984:\u00a0 <\/strong>\uc54c\ub809\uc0b0\ub4dc\ub77c<\/p>\n<p><strong>\uad6d\uac00:<\/strong> \u00a0\u00a0\ub124\ub35c\ub780\ub4dc<\/p>\n<p><strong>\uc190\uc758 LGMD \ud558\uc704 \uc720\ud615:<\/strong>\u00a0 LGMD2D<!--more--><\/p>\n<p>&nbsp;<\/p>\n<p><strong>\uc544\ub4e4\uc740 \uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\uae4c?<\/strong>:<\/p>\n<p>\uc81c \uc544\ub4e4\uc740 3\uc0b4 \uc0dd\uc77c \uc77c\uc8fc\uc77c \uc804\uc5d0 CK \uc218\uce58 \uc0c1\uc2b9\uc73c\ub85c \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.  \ucc98\uc74c\uc5d0\ub294 \uc544\ub4e4\uc774 \ub4c0\uc13c \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\ub2e4\uace0 \ub4e4\uc5c8\uc2b5\ub2c8\ub2e4.  \ud558\uc9c0\ub9cc \uadfc\uc721 \uc0dd\uac80\uc744 \uc758\ub8b0\ud55c \uacb0\uacfc \uc2e4\uc81c\ub85c\ub294 LGMD2D\ub77c\ub294 \uc0ac\uc2e4\uc744 \uc54c\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uadf8\uc758 \uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>\uc81c \uc544\ub4e4\uc740 \ud0dc\uc5b4\ub0a0 \ub54c\ubd80\ud130 \uc800\ud608\uc555\uc774 \uc788\uc5c8\uace0 \ud638\ud761\uae30 \uac10\uc5fc\uc774 \ub9ce\uc558\uc2b5\ub2c8\ub2e4. \uc544\ub4e4\uc774 \uae30\uc5b4 \ub2e4\ub2c8\uae30 \uc2dc\uc791\ud588\uc744 \ub54c \uc81c \uce5c\uad6c\uc640 \uc911\uad6d \uce68\uc220\uc0ac\ub294 \uc544\ub4e4\uc758 \uae30\uc5b4 \ub2e4\ub2c8\ub294 \ubc29\uc2dd\uc774 \uc774\uc0c1\ud558\ub2e4\uace0 \ub9d0\ud558\uba70 CK \uc218\uce58\ub97c \ud655\uc778\ud574 \ubcf4\ub77c\uace0 \uc870\uc5b8\ud588\uc2b5\ub2c8\ub2e4. 3\uc0b4 \ub54c \uc758\uc0ac\ub294 \uc544\uc774\uac00 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc54c\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \ud070 \ub204\ub098\uac00 HLHS\ub85c \uc138\uc0c1\uc744 \ub5a0\ub0ac\uace0 \uc800\ub294 \ub9c9\ub0b4\ub97c \uc784\uc2e0\ud55c \uc9c0 8\uac1c\uc6d4\uc9f8\uc600\uae30 \ub54c\ubb38\uc5d0 \ud070 \ucda9\uaca9\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. LGMD2D \uc720\ud615\uc774\ub77c\ub294 \uac83\uc744 \uc54c\uae30\uae4c\uc9c0 \uac70\uc758 1\ub144\uc774 \uac78\ub838\uace0 \uc800\ub294 \uc544\uc774\ub97c \uc0b4\ub9ac\uae30 \uc704\ud574 \ubb34\uc2a8 \uc77c\uc774\ub4e0 \ud560 \uc900\ube44\uac00 \ub418\uc5b4 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ud56d\uc0c1 \ub9d0\ud588\uc8e0:  \uc9c0\uad6c \ubc18\ub300\ud3b8\uc73c\ub85c \uac08 \uc218\ub9cc \uc788\ub2e4\uba74 \uadf8\ub807\uac8c \ud558\uaca0\ub2e4\uace0\uc694!<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc544\ub2c8\uc694, \uc800\ud76c \uac00\uc871 \uc911 LGMD2D \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc5c6\uc9c0\ub9cc \ub9c9\ub0b4\ub538\uc774 \uc544\uc9c1 \ud655\uc9c4 \ud310\uc815\uc744 \ubc1b\uc9c0\ub294 \uc54a\uc558\uc9c0\ub9cc \ube44\uc2b7\ud55c \uc99d\uc0c1\uc744 \ubcf4\uc774\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \ub3c4\uc804\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?<\/strong>:<\/p>\n<p>\uc800\ub141\ub9c8\ub2e4 \uc778\ud130\ub137\uc5d0\uc11c \uc815\ubcf4\ub97c \uac80\uc0c9\ud558\uba70 \uc2dc\uac04\uc744 \ubcf4\ub0c8\uc2b5\ub2c8\ub2e4. \uc544\uc774\ub4e4\uc774 \uc7a0\ub4e4\uc790\ub9c8\uc790 \uc800\ub294 \uc544\ub4e4\uc744 \uc704\ud55c \uce58\ub8cc\ubc95\uc744 \ucc3e\uae30 \uc704\ud574 \ud544\uc0ac\uc801\uc73c\ub85c \ub178\ub825\ud588\uc2b5\ub2c8\ub2e4.  \ub124\ub35c\ub780\ub4dc\uc5d0\ub294 LGMD2D \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc544\uc774\uac00 11\uba85 \uc815\ub3c4\ubc16\uc5d0 \uc5c6\uc5c8\uace0, \ub124\ub35c\ub780\ub4dc\uc5d0\uc11c\ub294 \ud76c\uadc0 \uc9c8\ud658\uc774 '\ubc29\uce58'\ub418\uace0 \uc788\ub2e4\ub294 \uac83\uc744 \uc54c\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4.   \uadf8\ub798\uc11c LGMD2D \ubd80\ubaa8 \uadf8\ub8f9\uc744 \uc124\ub9bd\ud588\uace0 \uc9c0\uae08\uc740 \ub124\ub35c\ub780\ub4dc\uc758 LGMD2D \ud658\uc544 \uac00\uc871 \ub300\ubd80\ubd84\uc744 \uc54c\uace0 \uc788\uc2b5\ub2c8\ub2e4.  \ubaa8\ub4e0 \uc5f0\uad6c\ube44\ub294 \ub300\uaddc\ubaa8 \ud658\uc790 \uadf8\ub8f9\uc5d0 \uc9c0\uc6d0\ub429\ub2c8\ub2e4.   \uadf8\ub798\uc11c \uc800\ud76c\ub294 \uc758\uc0ac\uc640 \ud568\uaed8 \ub9e4\ub144 \uce58\ub8cc\uac00 \ub420 \ub54c\uae4c\uc9c0\uc758 \uae30\uac04 \ub3d9\uc548 4\uac1c\uc758 \ud2b8\ub799 \uacc4\ud68d\uc744 \uc138\uc6e0\uc2b5\ub2c8\ub2e4:<\/p>\n<ul>\n<li>\ud55c\uacc4\uac00 \uc544\ub2cc \uac00\ub2a5\uc131\uc744 \uc0dd\uac01\ud558\uba70 \ubc1d\uc740 \uc544\uc774\ub2f5\uac8c \uac00\uc815\uacfc \ud559\uad50\uc5d0\uc11c \ub9e4\uc77c\uc758 \uc6f0\ube59\uc744 \ub3cc\ubcf4\uace0 \uc788\uc2b5\ub2c8\ub2e4;<\/li>\n<li>\uc6b0\ub9ac\ub294 \ubaa8\ub4e0 \uc801\uc751\uc774 \uac00\ub2a5\ud55c \uc9d1\uc744 \uc9c0\uc5c8\uc2b5\ub2c8\ub2e4;<\/li>\n<li>\uc6b0\ub9ac\ub294 \uc2dc\uac04\uc744 \uc880 \ub354 \ubc8c\uae30 \uc704\ud574 \ubcd1\uc758 \uc18d\ub3c4\ub97c \ub2a6\ucd94\uae30 \uc704\ud574 \uc815\ud615 \ubd84\uc790 \uc694\ubc95\uacfc \ud504\ub808\ub4dc\ub2c8\uc190\uc744 \ud22c\uc5ec\ud588\uc2b5\ub2c8\ub2e4.<\/li>\n<li>\ub9c8\uc9c0\ub9c9\uc73c\ub85c \uc81c \uc544\ub4e4\uc740 \ub9e4\uc8fc \uc2ec\ub9ac \uce58\ub8cc, \uc74c\uc545 \uce58\ub8cc, \ubbf8\uc220 \uc218\uc5c5 \ub4f1 \ub2e4\uc591\ud55c \uce58\ub8cc\ub97c \ubc1b\uc73c\uba70 \uc2a4\uc2a4\ub85c\ub97c \ubc1b\uc544\ub4e4\uc774\uace0 \ubcc0\ud654\ud560 \uc218 \uc788\ub294 \ub3c4\uad6c\ub97c \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4.<\/li>\n<\/ul>\n<p>\ubd80\ubaa8\ub85c\uc11c \uc800\ub294 \uc774\uac83\uc774 \uc774\uc720\uac00 \uc788\uc5b4\uc11c \uc6b0\ub9ac \uc0b6\uc5d0 \ucc3e\uc544\uc654\uace0 \uc6b0\ub9ac\ub97c \ub3c4\uc640\uc8fc\ub294 \uac00\uc7a5 \ud5cc\uc2e0\uc801\uc778 \uc758\uc0ac\uac00 \uc788\ub2e4\uace0 \ubbff\uc2b5\ub2c8\ub2e4!  \uc644\uce58\ub77c\ub294 \ubaa9\uc801\uc9c0\ub97c \ud5a5\ud55c \uc6b0\ub9ac\uc758 \uc5ec\uc815\uc774\uba70, 24\uc2dc\uac04 \uc5f0\uc911\ubb34\ud734\ub85c \ub05d\uc774 \uc5c6\ub294 \uc77c\uc774\uc9c0\ub9cc \ud3ec\uae30\ud558\uc9c0 \uc54a\uc744 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\ubd80\ubaa8\ub85c\uc11c \uc800\ub294 \uc774\ub7f0 \uc77c\uc774 \uc6b0\ub9ac \uc778\uc0dd\uc5d0 \ucc3e\uc544\uc628 \ub370\ub294 \uc774\uc720\uac00 \uc788\uace0, \uc6b0\ub9ac\ub97c \ub3c4\uc640\uc8fc\ub294 \uac00\uc7a5 \ud5cc\uc2e0\uc801\uc778 \uc758\uc0ac\ub4e4\uc774 \uc788\ub2e4\uace0 \ubbff\uc2b5\ub2c8\ub2e4! \ubaa9\uc801\uc9c0\uac00 \uc788\ub294 \uc5ec\uc815\uc785\ub2c8\ub2e4. \uc800\ud76c\ub294 10\ub144 \uc804\uc5d0 \uba58\ub378 \uad50\uc218\ub2d8\uc744 \ub9cc\ub0ac\uc2b5\ub2c8\ub2e4. \uadf8\uc758 \ud300\uc774 \ucca0\uc800\ud558\uac8c \uc5b4\ub9b0\uc774 \uc911\uc2ec\uc73c\ub85c \uc77c\ud558\ub294 \ubaa8\uc2b5\uc5d0 \uae4a\uc740 \uc778\uc0c1\uc744 \ubc1b\uc558\uc5b4\uc694. \uadf8\ub4e4\uc740 \uc81c \uc544\ub4e4\uc774 \uc5b4\ub5bb\uac8c \uc9c0\ub0b4\uace0 \uc788\ub294\uc9c0, \ubcd1\uc5d0 \ub300\ud574 \uc5b4\ub5a4 \uc0dd\uac01\uc744 \uac00\uc9c0\uace0 \uc788\ub294\uc9c0 \ub4f1 \uc544\ub4e4\uc5d0\uac8c\uc11c \ub9ce\uc740 \uac83\uc744 \ubc30\uc6b0\ub824\uace0 \uc5f4\uc2ec\uc774\uc5c8\uc8e0. \uc5b8\uc820\uac00 \uc544\ub4e4\uc774 \uc784\uc0c1\uc2dc\ud5d8\uc5d0 \ucc38\uc5ec\ud560 \uc218 \uc788\uae30\ub97c \ubc14\ub77c\uba70 \uba87 \ub144 \ub3d9\uc548 \ub2e4\uc2dc \ucc3e\uc558\ub294\ub370, \uadf8 \uc0ac\uc774 \uc544\ub4e4\uc740 \ucd5c\uace0\uc758 \uc758\ub8cc\uc9c4\uacfc \ud5cc\uc2e0\uc801\uc778 \uc190\uae38\uc744 \ubc1b\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \uadc0\ud558\uc640 \uadc0\ud558\uc758 \uac00\uc871\uc5d0\uac8c \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>\uc81c \uc544\ub4e4\ubfd0\ub9cc \uc544\ub2c8\ub77c \ubaa8\ub4e0 \ud658\uc790\ub4e4\uc758 \uc810\uc9c4\uc801\uc778 \uadfc\uc721 \ud30c\uad34 \uacfc\uc815\uc744 \uba48\ucd94\uace0 \uc2f6\uc5c8\uc2b5\ub2c8\ub2e4. 2015\ub144\ubd80\ud130 2017\ub144\uae4c\uc9c0 \uc784\uc0c1\uc2dc\ud5d8\uc5d0 \ucc38\uc5ec\ud588\uace0 \uadf8 \uacb0\uacfc\ub294 \ud76c\ub9dd\uc801\uc774\uc5c8\uc73c\uba70 \ub9e4\uc77c \uce58\ub8cc\ubc95\uc5d0 \uac00\uae4c\uc6cc\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ucc38\uc5ec\ud558\uac8c \ub418\uc5b4 \ud070 \uc601\uad11\uc774\uc5c8\uc73c\uba70 \uac00\uae4c\uc6b4 \ubbf8\ub798\uc5d0 LGMD2D\uac00 \uba48\ucd9c \uc218 \uc788\uc744 \uac83\uc774\ub77c \ubbff\uc2b5\ub2c8\ub2e4. \ud76c\ub9dd\uc774 \uc788\uc2b5\ub2c8\ub2e4! \ub0b4\uc154\ub110 \uc5b4\ub9b0\uc774 \ubcd1\uc6d0\uc758 \ud300\uc740 \ub9e4\uc6b0 \ud5cc\uc2e0\uc801\uc785\ub2c8\ub2e4. \uc5f0\uad6c\uc2e4\uc744 \ub458\ub7ec\ubcf4\uba74\uc11c \uc9c0\uc9c4\uc5d0 \uc548\uc804\ud558\uac8c \uc9c0\uc5b4\uc9c4 \uc5f0\uad6c\uc2e4\uacfc \ud5e4\ud30c\ud544\ud130 \ub4f1 \uc218\ub9ce\uc740 \uc548\uc804 \uc218\uce59\uc744 \uc9c0\ud0a4\uba70 \uce58\ub8cc\ub97c \uc18c\uc911\ud788 \uc5ec\uae30\ub294 \ubaa8\uc2b5\uc744 \ubcf4\uc558\uc2b5\ub2c8\ub2e4. \uace7 LGMD2D\ub97c \uce58\ub8cc\ud560 \uc218 \uc788\ub294 \ubc29\ubc95\uc774 \ub098\uc62c \uac83\uc785\ub2c8\ub2e4. \uadf8 \ub3d9\uc548 \uc6b0\ub9ac\ub294 \ubaa8\ub4e0 \uc774\uc815\ud45c\ub97c \ucd95\ud558\ud558\ub294 \ubc95\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \uc544\uc774\uac00 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc744 \ub54c \uc774 \uc0ac\uc2e4\uc744 \uc54c\uc558\ub354\ub77c\uba74 \uc88b\uc558\uc744 \ud150\ub370\uc694! \uc784\uc0c1\uc2dc\ud5d8\uc740 \uc5ec\ub7ec \uac00\uc9c0 \uba74\uc5d0\uc11c \uc800\ud76c\ub97c \ubcc0\ud654\uc2dc\ucf30\uace0 \uc800\ud76c\ub97c \ub9e4\uc6b0 \uac10\uc0ac\ud558\uace0 \uacb8\uc190\ud558\uac8c \ub9cc\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \ub610\ud55c \uce5c\uad6c\uc640 \uc0c8\ub85c\uc6b4 \uac00\uc871, \ubbf8\ub798\uc640 \uc0b4\uc544\uac08 \ud798\uc744 \uc5bb\uac8c \ud574\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uc138\uc0c1\uc774 LGMD\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uac83<\/strong>:<\/p>\n<p>\uc804 \uc138\uacc4\uc5d0 \uce58\ub8cc\uc758 \ud76c\ub9dd\uc774 \uc788\ub2e4\ub294 \uac83\uc744 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc548\ud0c0\uae5d\uac8c\ub3c4 \uc5ec\uc804\ud788 \uc0c8\ub85c\uc6b4 \uc5f0\uad6c\uc5d0 \ub300\ud574 \ub9d0\ud558\uc9c0 \uc54a\uac70\ub098 \ubaa8\ub974\ub294 \uc758\uc0ac\ub4e4\uc774 \uc788\uc2b5\ub2c8\ub2e4.  \ud76c\uadc0 \uc9c8\ud658\uc740 \ud658\uc790\uc5d0\uac8c \uac00\uc7a5 \ucd5c\uc2e0\uc758 \uc815\ubcf4\ub97c \uc81c\uacf5\ud574\uc57c \ud569\ub2c8\ub2e4.  \uc6b0\ub9ac\ub294 \uc804 \uc138\uacc4\uc801\uc73c\ub85c \ud611\ub825\ud574\uc57c \ud569\ub2c8\ub2e4. \uc800\ub294 \ud56d\uc0c1 \uc81c \uc544\ub4e4\uc5d0\uac8c \uad6d\ub9bd\uc5b4\ub9b0\uc774\ubcd1\uc6d0\uc758 \ub9ce\uc740 \uc758\uc0ac\ub4e4\uc774 \uce58\ub8cc\ubc95\uc744 \uc5f0\uad6c\ud558\uace0 \uc788\uc73c\uba70, \uc544\ub4e4\uc5d0\uac8c \ubbf8\ub798\uac00 \uc788\ub2e4\uace0 \ub9d0\ud574\uc654\uc2b5\ub2c8\ub2e4.  \ud070 \uacfc\uc81c\ub294 \uc7ac\ud22c\uc5ec\ub97c \uc704\ud55c \ud56d\uccb4\ub97c \uadf9\ubcf5\ud558\uace0 \ubaa8\ub4e0 \ud658\uc790\uc5d0\uac8c \uce58\ub8cc\uc81c\ub97c \ud22c\uc5ec\ud560 \uc218 \uc788\ub294 \uc790\uae08\uc744 \ub9c8\ub828\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \ubaa8\ub4e0 \ud658\uc790\ub4e4\uc5d0\uac8c \uc2dc\uac04\uc774 \ucd09\ubc15\ud569\ub2c8\ub2e4! \uadf8\ub4e4\uc740 \uc6b0\ub9ac\uc758 \uc601\uc6c5\uc785\ub2c8\ub2e4. \uc81c \uc544\ub4e4\uc740 \ucd5c\uace0\uc758 \uc804\uc0ac\uc785\ub2c8\ub2e4.  \uc0ac\ub78c\ub4e4\uc774 \uc2e0\uacbd\uadfc\uc721 \uc9c8\ud658\uc744 \uce58\ub8cc\ud558\ub294 \uc774 \uc0c8\ub85c\uc6b4 \ubc29\ubc95\uc5d0 \ud22c\uc790\ud574 \uc8fc\uae38 \ubc14\ub77c\uba70, \uc6b0\ub9ac\ub294 \uadf8 \uc5b4\ub290 \ub54c\ubcf4\ub2e4 \uce58\ub8cc\ubc95\uc5d0 \uac00\uae4c\uc6cc\uc84c\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\ub0b4\uc77c \uc544\ub4e4\uc758 LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74, \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc77c\uae4c\uc694?<\/strong>:<\/p>\n<p>\uc800\ub294 \uc5c4\ub9c8\ub85c\uc11c \uc758\uc0ac\ub4e4\uc5d0\uac8c \uc804 \uc138\uacc4 \ud76c\uadc0 \uc9c8\ud658\uc744 \uce58\ub8cc\ud558\uae30 \uc704\ud574 \ud568\uaed8 \ub178\ub825\ud574\uc57c \ud558\uba70 \uc720\uc804\uc790 \uce58\ub8cc\uac00 \uc0c8\ub85c\uc6b4 \uce58\ub8cc\ubc95\uc774 \ub420 \uac83\uc774\ub77c\uace0 \ub9d0\ud560 \uac83\uc785\ub2c8\ub2e4.<br \/>\n\uc81c \uc544\ub4e4\uc740 \ud39c\uc2f1 \ub300\ud68c\uc5d0 \ucc38\uac00\ud558\uace0 \ub2ec\ub9ac\uae30\ub97c \ud560 \uac83 \uac19\uc544\uc694. \ucd5c\uadfc\uc5d0 \uc544\ub4e4\uc774 \uafc8\uc5d0\uc11c \uac00\ub054 \ub2ec\ub9ac\uae30\ub97c \ud55c\ub2e4\uace0 \ud588\uc5b4\uc694.<\/p>\n<p>&nbsp;<\/p>\n<p>* \ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc9c0\uc6d0\ud558\ub824\uba74 \uc6f9\uc0ac\uc774\ud2b8(https:\/\/www.lgmd-info.org\/spotlight-interviews)\ub97c \ubc29\ubb38\ud558\uc138\uc694.<\/p>\n<p>* \uc774 \uac8c\uc2dc\ubb3c\uc5d0 \uc88b\uc544\uc694\ub97c \ub204\ub974\uace0, \ub313\uae00\uc744 \ub2ec\uace0, \uacf5\uc720\ud558\uc5ec LGMD\uc5d0 \ub300\ud55c \uc778\uc9c0\ub3c4\ub97c \ub192\uc5ec\uc8fc\uc138\uc694!<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSpotlight Interview\u201d \u2013 A Mother&#8217;s Perspective \u00a0 Mother\u2019s Name:\u00a0 [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1720,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[90],"class_list":["post-1722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-the-netherlands"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Aleksandra - LGMD Awareness Foundation<\/title>\n<meta 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