{"id":1945,"date":"2018-05-11T10:07:41","date_gmt":"2018-05-11T15:07:41","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1945"},"modified":"2018-05-11T10:07:41","modified_gmt":"2018-05-11T15:07:41","slug":"anamaria","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2018\/05\/11\/anamaria\/","title":{"rendered":"LGMD\ub97c \uc0ac\uc6a9\ud558\ub294 \uac1c\uc778: \uc544\ub098\ub9c8\ub9ac\uc544"},"content":{"rendered":"

LGMD '\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

\uc774\ub984<\/strong>: \uc544\ub098\ub9c8\ub9ac\uc544 \u00a0\u00a0\u00a0AGE<\/strong>25\uc138\"\"<\/a><\/p>\n

\uad6d\uac00<\/strong>: \ub8e8\ub9c8\ub2c8\uc544<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2A\/\ucc99\ucd94\ud1b5\uc99d\uc99d\ud6c4\uad70<\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 \uc62c\ud574 '\uc804\uccb4 \uc5d1\uc19c \uc2dc\ud000\uc2f1' \uc720\uc804\uc790 \uac80\uc0ac\ub97c \ud1b5\ud574 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\uccab \ubc88\uc9f8 \uc99d\uc0c1\uc740 23 \uc138 \ubb34\ub835\uc5d0 \ud604\uae30\uc99d\uc774 \ub0ac\uc744 \ub54c \ubc1c\uc0dd\ud588\uc73c\uba70 \ubaa8\ub4e0 \uc758\uc0ac\ub294 \ub0b4\uc774\ub97c \ud655\uc778\ud558\ub3c4\ub85d \uc548\ub0b4\ud588\uc2b5\ub2c8\ub2e4. \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc640 \ud568\uaed8 \uc784\uc0c1 \uac80\uc0ac\ub97c\ud588\uc9c0\ub9cc \uadf8 \ub2f9\uc2dc\uc5d0\ub294 \ubb38\uc81c\uac00 \uc5c6\uc5c8\ub2e4\ub294 \uc810\uc744 \uc5b8\uae09 \ud560 \uac00\uce58\uac00 \uc788\uc2b5\ub2c8\ub2e4. \uc2dc\uac04\uc774 \uc9c0\ub0a8\uc5d0 \ub530\ub77c \ub098\ub294 \uacc4\ub2e8\uc744 \uc5f4\uc2ec\ud788 \uc624\ub974\uace0 \ubc14\ub2e5\uc774\ub098 \uc758\uc790\uc5d0\uc11c \uc5b4\uc0c9\ud558\uac8c \uc77c\uc5b4\ub098\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4... \uc758\uc0ac\ub4e4\uc740 \uadfc\uc721 \uc0dd\uac80 \ud6c4\uc5d0\ub3c4 \uc800\ub97c \uc9c4\ub2e8\ud558\uc9c0 \ubabb\ud588\uc2b5\ub2c8\ub2e4. \uadf8\ub4e4\uc740 \uc800\uc5d0\uac8c \uadfc\uc774\uc601\uc591\uc99d\uc774 \uc788\uace0 \ub2e4\ub978 \uc720\uc804\uc790 \uac80\uc0ac\ub97c\ud574\uc57c\ud55c\ub2e4\uace0 \ub9d0\ud588\uc9c0\ub9cc \uc5b4\ub5a4 \uac80\uc0ac (\ud3fc\ud398\ubcd1\uacfc \ub4c0\uc13c \/ \ubca0\ucee4\ub294 \uc74c\uc131\uc774\uc5c8\ub2e4)\ub97c \uc54c\uc9c0 \ubabb\ud588\uc2b5\ub2c8\ub2e4. \uadf8\ub798\uc11c \uc815\ubcf4\ub97c \ucc3e\uae30 \uc2dc\uc791\ud588\uace0 \ubd84\uc11d \uacb0\uacfc\ub97c \ub3c5\uc77c\ub85c \ubcf4\ub0c8\uc2b5\ub2c8\ub2e4. \uc13c\ud1a0\uc820\uc5d0\uc11c\ub9cc \ub2f5\ubcc0\uc744 \ubc1b\uc558\uace0 \uadf8\ub4e4\uc740 \uc800\ub97c \uc720\uc804\ud559\uc790\uc5d0\uac8c \ubcf4\ub0c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?\u00a0 <\/strong><\/p>\n

\uc544\ub2c8\uc694, \uac00\uc871 \uc911 LGMD2A \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc800\ubfd0\uc785\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

25\uc0b4\uc758 \ub098\uc774\uc5d0 \ud63c\uc790\uc11c \uacc4\ub2e8\uc744 \uc62c\ub77c\uac08 \uc218 \uc788\ub2e4\uace0 \uc0dd\uac01\ud558\ub294 \uac83\uc774 \uac00\uc7a5 \uc5b4\ub835\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ub8e8\ub9c8\ub2c8\uc544 \ucd9c\uc2e0\uc774\uace0 \uc720\ub7fd \uc5f0\ud569\uc5d0 \uc18d\ud55c \ub098\ub77c\uc774\uae34 \ud558\uc9c0\ub9cc \uac00\ub09c\ud55c \ub098\ub77c\uc774\uace0 \uc7a5\uc560\uac00 \uc788\ub294 \uc0ac\ub78c\ub4e4\uc744 \uc704\ud55c \uc5ec\uac74\uc774 \uac16\ucdb0\uc838 \uc788\uc9c0 \uc54a\uc544\uc11c \uc0ac\ub78c\ub4e4\uc774 \uc81c\uac00 \uacc4\ub2e8\uc744 \ub2e4\ub974\uac8c \uc624\ub974\ub294 \uac83\uc744 \ubcf4\uba74 \uc758\uc2ec\uc2a4\ub7fd\uac8c \uccd0\ub2e4\ubcf4\uace0, \ub54c\ub85c\ub294 \uc65c \uc774\ub807\uac8c \uc624\ub974\ub0d0\uace0 \ubb3b\uae30\ub3c4 \ud569\ub2c8\ub2e4... \ub610 \ub2e4\ub978 \ub3c4\uc804\uc740 \ub118\uc5b4\uc9c0\uba74 \uc2a4\uc2a4\ub85c \uc77c\uc73c\ud0ac \uc218 \uc5c6\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \ud56d\uc0c1 \ub204\uad70\uac00\uc5d0\uac8c \uc758\uc874\ud558\ub294 \uac83\uc740 \uc5b4\ub835\uc2b5\ub2c8\ub2e4 ...<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc544\uce68\uc5d0 \uc77c\uc5b4\ub098\uc11c \uc228\uc744 \uc26c\uace0 \uac78\uc744 \uc218 \uc788\ub2e4\ub294 \uac83\uc774\uc694.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? \u00a0<\/strong><\/p>\n

\uc800\uc640 \uac19\uc740 \ubcd1\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\ub4e4\uc758 \uc778\ud130\ubdf0\ub97c \ubaa8\ub450 \uc77d\uc5c8\ub294\ub370, \ub2e4\ub4e4 \uc790\uc2e0\uc740 \ub354 \ub098\uc740 \ubcd1\uc5d0 \uac78\ub838\ub2e4\uace0 \uc0dd\uac01\ud558\uc9c0\ub9cc \uc800\ub294 \uadf8 \ubc18\ub300\uc778 \uac83 \uac19\uc544\uc694. \uc800\ub294 \ub450\ub824\uc6c0\uc774 \ub9ce\uc740 \uc0ac\ub78c\uc774 \ub418\uc5c8\uc5b4\uc694. \uc608\ub97c \ub4e4\uc5b4, \uc804\ucca0\uc758 \uacc4\ub2e8\uc774 \ub108\ubb34 \ub192\uc544\uc11c \ubb34\uc11c\uc6cc\uc694.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n

\uc6b0\uc120 \uc800\ub294 \ub8e8\ub9c8\ub2c8\uc544\uc5d0 \ub300\ud574, \uadf8\ub9ac\uace0 \uc6b0\ub9ac\uac00 \uc9c4\ub2e8\uc744 \ubc1b\uae30\uac00 \ub9e4\uc6b0 \uc5b4\ub835\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \uac00\ub09c\ud55c \ub098\ub77c\uc785\ub2c8\ub2e4. \uc6b0\ub9ac\ub098\ub77c\uc758 \ucd5c\uc800 \uae09\uc5ec\uac00 \uc5bc\ub9c8\uc778\uc9c0 \uc544\uc138\uc694? 266\uc720\ub85c\uc785\ub2c8\ub2e4. \uc720\uc804\uc790 \uac80\uc0ac\uc5d0 \uc5bc\ub9c8\ub97c \uc9c0\ubd88\ud558\ub294\uc9c0 \uc544\uc138\uc694? 1.660 \uc720\ub85c ... \uc81c \uc5f0\uad6c\uc5d0 \ub530\ub974\uba74 \ub8e8\ub9c8\ub2c8\uc544\uc5d0\ub294 \uadfc\uc774\uc601\uc591\uc99d \ud658\uc790\uac00 \ub9ce\uc9c0\ub9cc \uc758\uc0ac\uc5d0\uac8c \uac08 \uc5ec\uc720\uac00\uc5c6\uace0 \ud2b9\ud788 \uc720\uc804\uc790 \uac80\uc0ac\ub97c \ud560 \uc5ec\uc720\uac00 \uc5c6\ub2e4\uace0\ud569\ub2c8\ub2e4. \uc784\uc0c1 \uc2dc\ud5d8\uc5d0\uc11c \uc77c\ud558\ub294 \uc0ac\ub78c\ub4e4\uc774 \ub8e8\ub9c8\ub2c8\uc544\uc5d0\uc11c \uc628 \uc0ac\ub78c\ub4e4\uacfc \ud568\uaed8 \uc77c\ud558\uc9c0 \uc54a\ub294\ub2e4\ub294 \ub9d0\uc744 \uadf8\ub9cc\ub450\uae30\ub97c \ubc14\ub78d\ub2c8\ub2e4 ...<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc800\ub294 \ubc18\ub4dc\uc2dc \ucd9c\ub9c8\ud574\uc11c \ucd5c\ub300\ud55c \ub9ce\uc740 \uc0ac\ub78c\ub4e4\uc774 \uce58\ub8cc\ub97c \ubc1b\uc744 \uc218 \uc788\ub3c4\ub85d \ub3c4\uc6b8 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

 <\/p>\n

*** \uc774 \uac8c\uc2dc\ubb3c\uc5d0 \uc88b\uc544\uc694\ub97c \ub204\ub974\uace0, \ub313\uae00\uc744 \ub2ec\uace0, \uacf5\uc720\ud558\uc5ec LGMD\uc5d0 \ub300\ud55c \uc778\uc9c0\ub3c4\ub97c \ub192\uc5ec\uc8fc\uc138\uc694!
\n*** \ub354 \ub9ce\uc740 \"LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9 \uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc2ed\uc2dc\uc624. https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n

 <\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u2019 \u00a0 NAME:\u00a0 Anamaria \u00a0\u00a0\u00a0AGE:\u00a0 25 years old […]<\/p>","protected":false},"author":1,"featured_media":1944,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[97],"class_list":["post-1945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-romania"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Anamaria - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2018\/05\/11\/anamaria\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Anamaria - 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