{"id":1952,"date":"2018-05-30T12:41:54","date_gmt":"2018-05-30T17:41:54","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1952"},"modified":"2018-05-30T12:41:54","modified_gmt":"2018-05-30T17:41:54","slug":"cure-lgmd2i-foundation","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/lgmd2i\/2018\/05\/30\/cure-lgmd2i-foundation\/","title":{"rendered":"\uc870\uc9c1: CureLGMD2i \uc7ac\ub2e8"},"content":{"rendered":"<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27960%27%20height%3D%27720%27%20viewBox%3D%270%200%20960%20720%27%3E%3Crect%20width%3D%27960%27%20height%3D%27720%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/05\/Cure-LGMD2i-Foundation-1.jpg\" alt=\"\" class=\"lazyload wp-image-1953\"\/><\/figure>\n\n\n<p><strong>\uc870\uc9c1 \uc774\ub984<\/strong>:         CureLGMD2i \uc7ac\ub2e8<\/p>\n<p><strong>\uc6f9 \uc0ac\uc774\ud2b8:<\/strong>\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0<u><a href=\"http:\/\/www.curelgmd2i.com\" target=\"_blank\" rel=\"noopener noreferrer\">www.curelgmd2i.com<\/a><\/u><\/p>\n<p><strong>\ud398\uc774\uc2a4\ubd81:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong> <u><a href=\"http:\/\/www.facebook.com\/CureLGMD2i\/\" target=\"_blank\" rel=\"noopener noreferrer\">www.facebook.com\/CureLGMD2i\/<\/a><\/u><\/p>\n<p>\u00a0<\/p>\n<p><strong>\uc870\uc9c1\uc774 \uc911\uc810\uc744 \ub450\uace0 \uc788\ub294 LGMD \ud558\uc704 \uc720\ud615\uc740 \ubb34\uc5c7\uc778\uac00\uc694?\u00a0 <\/strong><\/p>\n<p>LGMD2i\uc640 \ub514\uc2a4\ud2b8\ub85c\uae00\ub9ac\uce78 \ubcd1\uc99d(FKRP)<\/p>\n<p><strong>\ud558\uc704 \uc720\ud615\uc5d0 \ucd08\uc810\uc744 \ub9de\ucd94\ub294 \uacbd\uc6b0 \ub808\uc9c0\uc2a4\ud2b8\ub9ac\uac00 \uc788\uc73c\uba70 \ud658\uc790\ub294 \uc5b4\ub5bb\uac8c \uac00\uc785\ud560 \uc218 \uc788\ub098\uc694? <\/strong><\/p>\n<p>FKRP \ub808\uc9c0\uc2a4\ud2b8\ub9ac <a href=\"https:\/\/www.fkrp-registry.org\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.fkrp-registry.org<\/a><\/p>\n<p><strong>\uadc0\uc0ac\ub294 \ube44\uc601\ub9ac \ub2e8\uccb4\uc778\uac00\uc694? \uadf8\ub807\ub2e4\uba74 \uc5b4\ub5a4 \uc720\ud615\uc778\uac00\uc694?\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong><\/p>\n<p>\uc608, \ubbf8\uad6d\uc5d0 \uae30\ubc18\uc744 \ub454 501(c)(3) \uba74\uc138 \uacf5\uc775 \uc790\uc120 \ub2e8\uccb4\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\uc870\uc9c1\uc744 \ub9cc\ub4e4\uac8c \ub41c \uacc4\uae30<\/strong>:<\/p>\n<p>CureLGMD2i\ub294 2011\ub144 \ube0c\ub77c\uc870 \uac00\uc871\uc774 \uc5b4\ub9b0 \ub538\uc778 \uc0ac\ub9cc\ub2e4\uac00 LGMD2i \uc9c4\ub2e8\uc744 \ubc1b\uc740 \ud6c4 \uc0ac\ub9cc\ub2e4 J. \ube0c\ub77c\uc870 \uc7ac\ub2e8\uc774\ub77c\ub294 \uc774\ub984\uc73c\ub85c \ucc98\uc74c \uc124\ub9bd\ud588\uc2b5\ub2c8\ub2e4. \uc774\ub4e4\uc740 2i \uc5f0\uad6c\ub97c \uc704\ud574 \ud2b9\ubcc4\ud788 \uae30\uae08\uc744 \ubaa8\uae08\ud558\ub294 \ub2e4\ub978 \ub2e8\uccb4\uac00 \uc5c6\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uae68\ub2eb\uace0 \uc774 \ud76c\uadc0\ud558\uace0 \uc9c4\ud589\uc131 \uc9c8\ud658\uc758 \uce58\ub8cc\ubc95\uc744 \uc704\ud55c \uae30\uae08\uacfc \uc778\uc2dd\uc744 \ub192\uc774\uae30 \uc704\ud574 \uc774 \ube44\uc601\ub9ac \uc7ac\ub2e8\uc744 \uc124\ub9bd\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uc870\uc9c1\uc758 \ubbf8\uc158\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>LGMD2i\uc758 \uc131\uacf5\uc801\uc778 \uce58\ub8cc\ubc95 \ub610\ub294 \uce58\ub8cc\uc81c\ub97c \uac1c\ubc1c\ud558\uae30 \uc704\ud55c \uc778\uc2dd \ud655\uc0b0\uacfc \uacfc\ud559\uc801 \uc5f0\uad6c \uc9c0\uc6d0\uc744 \uc704\ud55c \uae30\uae08\uc744 \ub9c8\ub828\ud569\ub2c8\ub2e4.<\/p>\n<p><strong>\uc870\uc9c1\uc774 \uc81c\uacf5\ud558\ub294 \uc11c\ube44\uc2a4<\/strong><\/p>\n<p>\uc544\uc774\uc624\uc640\uc5d0\uc11c \uc5f4\ub9b0 \ub514\uc2a4\ud2b8\ub85c\uae00\ub9ac\uce78\ubcd1 \uac00\uc871 \ucee8\ud37c\ub7f0\uc2a4 \ubc0f \uc5f0\uad6c \ud504\ub85c\uc81d\ud2b8\uc5d0 \uc7ac\uc815\uc801 \uc9c0\uc6d0\uc744 \uc81c\uacf5\ud558\uc5ec LGMD2i\uc758 \uc9c4\ud589 \uc0c1\ud669, \uc57d\ubb3c \uac1c\ubc1c \ubc0f \uc131\uacf5\uc801\uc778 \uc720\uc804\uc790 \uce58\ub8cc \ud504\ub85c\uadf8\ub7a8\uc744 \uad6c\ucd95\ud558\uae30 \uc704\ud55c \uc5f0\uad6c \ud504\ub85c\uc81d\ud2b8\uc5d0 \ub300\ud55c \uc774\ud574\ub97c \ub192\uc600\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\ud604\uc7ac\uae4c\uc9c0 CureLGMD2i \uc7ac\ub2e8\uc740 LGMD2i \uce58\ub8cc\ubc95\uc744 \ud655\ub9bd\ud558\uae30 \uc704\ud574 \uc801\uadf9\uc801\uc73c\ub85c \ub178\ub825\ud558\uace0 \uc788\ub294 \uc5f0\uad6c \ud504\ub85c\uadf8\ub7a8\uc5d0 $400,000\ub2ec\ub7ec \uc774\uc0c1\uc744 \uc9c0\uc6d0\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uadc0\uc0ac\uc758 \uac00\uc7a5 \uc790\ub791\uc2a4\ub7ec\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>\uac00\uc7a5 \ucd5c\uadfc\uc5d0\ub294 2i \ubd84\uc57c\uc758 \ucd5c\uace0 \uacfc\ud559\uc790\ub4e4\uacfc \uae30\uc5c5\ub4e4\uc774 \ubaa8\uc5ec \uc804\uc784\uc0c1 \uc5f0\uad6c\uc640 \uc784\uc0c1\uc2dc\ud5d8 \uc900\ube44 \uc0c1\ud669\uc5d0 \ub300\ud55c \uc5c5\ub370\uc774\ud2b8\ub97c \uc81c\uacf5\ud558\ub294 \"Into the Clinic\" \uc720\uc804\uc790 \uce58\ub8cc \ud68c\uc758\ub97c UMass\uc5d0\uc11c \ud6c4\uc6d0\ud588\uc2b5\ub2c8\ub2e4.  \uc774 \ud68c\uc758\ub97c \ud1b5\ud574 LGMD2i \uc720\uc804\uc790 \uce58\ub8cc \uc6b4\uc601 \uadf8\ub8f9\uc774 \ub9cc\ub4e4\uc5b4\uc838 \ud5a5\ud6c4 \uc784\uc0c1\uc2dc\ud5d8\uc744 \uc218\ub9bd\ud558\ub294 \ub370 \ub3c4\uc6c0\uc744 \uc8fc\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uadc0\uc0ac\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uac00 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uac83\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc800\ud76c\ub294 \uc138\uae08 \uacf5\uc81c \uac00\ub2a5\ud55c \uae30\ubd80\uae08\uc744 \ubc1b\ub294 \uc720\uc77c\ud55c \ub2e8\uccb4\ub85c, 100%\ub294 \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d 2I\ud615 \uc5f0\uad6c \uad00\ub828 \ud504\ub85c\uc81d\ud2b8\uc5d0 \uc9c1\uc811 \uc0ac\uc6a9\ub429\ub2c8\ub2e4.<\/p>\n<p><strong>\uc0ac\ub78c\ub4e4\uc774 \uc870\uc9c1\uc744 \uc9c0\uc6d0\ud558\ub294 \ub370 \uc5b4\ub5bb\uac8c \ucc38\uc5ec\ud560 \uc218 \uc788\uc744\uae4c\uc694?<\/strong><\/p>\n<p>\ud604\uc7ac \uc800\ud76c\ub294 LGMD2i\uc758 \ud5a5\ud6c4 \uc720\uc804\uc790 \uce58\ub8cc \uc784\uc0c1\uc2dc\ud5d8\uc744 \uc9c0\uc6d0\ud558\uae30 \uc704\ud55c \uae30\uae08 \ubaa8\uae08\uc744 \uc704\ud574 \ud398\uc774\uc2a4\ubd81\uc5d0\uc11c \ub300\ub300\uc801\uc778 \ud64d\ubcf4\ub97c \ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ub098\ub9cc\uc758 \ud398\uc774\uc2a4\ubd81 \ubaa8\uae08 \ud398\uc774\uc9c0\ub97c \ub9cc\ub4e4\uc5b4 \"\ud589\ub3d9\uc73c\ub85c \ubd04\" - \uce5c\uad6c\/\uac00\uc871\uc5d0\uac8c LGMD2i\uac00 \uc790\uc2e0\uc5d0\uac8c \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub294\uc9c0, \uc644\uce58\ub418\uba74 \ubb34\uc5c7\uc744 \ud560 \uac83\uc778\uc9c0 \uc774\uc57c\uae30\ud558\uace0 CureLGMD2i\ub97c \uc9c0\uc6d0\ud558\uae30 \uc704\ud55c \uae30\ubd80\ub97c \uc694\uccad\ud558\uc138\uc694. \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\uc5d0\uc11c \uae30\ubd80 \ud0ed\uc744 \uacf5\uc720\ud560 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. <a href=\"https:\/\/curelgmd2i.com\/donations\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/curelgmd2i.com\/donations<\/a><\/p>\n<p><strong>\uc870\uc9c1\uc5d0 \uc5f0\ub77d\ud558\ub294 \uac00\uc7a5 \uc88b\uc740 \ubc29\ubc95\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>\ucf08\ub9ac \ube0c\ub77c\uc870\uc5d0\uac8c \uc774\uba54\uc77c(kbrazzo@yahoo.com)\ub85c \ubb38\uc758\ud558\uac70\ub098 \ud398\uc774\uc2a4\ubd81 \ud398\uc774\uc9c0\ub97c \ud1b5\ud574 \uba54\uc2dc\uc9c0\ub97c \ubcf4\ub0b4\uc8fc\uc138\uc694. <a href=\"https:\/\/www.facebook.com\/CureLGMD2i\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.facebook.com\/CureLGMD2i\u00a0<\/a><\/p>\n<p><strong>\ucd94\uac00\ud558\uace0 \uc2f6\uc740 \ub0b4\uc6a9\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>LGMD2i \ud655\uc9c4 \ud310\uc815\uc744 \ubc1b\uc740 \uacbd\uc6b0 \ub2e4\uc74c \uc8fc\uc18c\uc5d0\uc11c \uae00\ub85c\ubc8c FKRP \ub808\uc9c0\uc2a4\ud2b8\ub9ac\uc5d0 \ub4f1\ub85d\ud558\uc2dc\uae30 \ubc14\ub78d\ub2c8\ub2e4. <a href=\"https:\/\/www.fkrp-registry.org\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.fkrp-registry.org<\/a>\u00a0 \u00a0 #S\uac15\ub825\ud55c \uc22b\uc790!<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>","protected":false},"excerpt":{"rendered":"<p>NAME OF ORGANIZATION:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 CureLGMD2i Foundation WEBSITE:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0www.curelgmd2i.com FACEBOOK:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 www.facebook.com\/CureLGMD2i\/ [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1953,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,35,95],"tags":[36],"class_list":["post-1952","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd2i","category-organization","tag-lgmd2i"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>ORGANIZATION: CureLGMD2i Foundation - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/ko\/lgmd2i\/2018\/05\/30\/cure-lgmd2i-foundation\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" 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content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" 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