{"id":2240,"date":"2018-09-12T11:02:58","date_gmt":"2018-09-12T16:02:58","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2240"},"modified":"2018-09-12T11:02:58","modified_gmt":"2018-09-12T16:02:58","slug":"researcher-melissa-spencer","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/lgmd2a\/2018\/09\/12\/researcher-melissa-spencer\/","title":{"rendered":"LGMD \uc5f0\uad6c\uc6d0: \uba5c\ub9ac\uc0ac \uc2a4\ud39c\uc11c"},"content":{"rendered":"<p>LGMD \"\uc5f0\uad6c \uad00\ub828 \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/p>\n<p><strong>LGMD \uc5f0\uad6c\uc6d0<\/strong>:   \uba5c\ub9ac\uc0ac \uc2a4\ud39c\uc11c<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/09\/Spencer-Melissa.jpg\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-2239 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27225%27%20viewBox%3D%270%200%20300%20225%27%3E%3Crect%20width%3D%27300%27%20height%3D%27225%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/09\/Spencer-Melissa-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" \/><\/a><\/p>\n<p><strong>\uc81c\ud734<\/strong>:  \uce98\ub9ac\ud3ec\ub2c8\uc544 \ub300\ud559\uad50 \ub85c\uc2a4\uc564\uc824\ub808\uc2a4 \ucea0\ud37c\uc2a4<\/p>\n<p><strong>\uc5ed\ud560 \ub610\ub294 \uc9c1\uc704: <\/strong>\u00a0\uc2e0\uacbd\uacfc \uad50\uc218, \uc2e0\uacbd\uadfc\uc721 \ud504\ub85c\uadf8\ub7a8 \ucc45\uc784\uc790, \ub4c0\uc13c \uadfc\uc774\uc601\uc591\uc99d \uc13c\ud130 \uacf5\ub3d9 \ucc45\uc784\uc790<\/p>\n<p><strong>\ud604\uc7ac \uc9c1\ucc45\uc5d0 \uc624\ub974\uae30\uae4c\uc9c0 \uc5b4\ub5a4 \uad50\uc721\uacfc \ud6c8\ub828\uc744 \ubc1b\uc558\ub098\uc694?<\/strong><\/p>\n<p>\uc800\ub294 \uace0\ub4f1\ud559\uad50 \ub54c \uacfc\ud559\uc5d0 \uad00\uc2ec\uc774 \uc5c6\uc5c8\uace0 \ubb34\uc6a9 \uc804\uacf5\uc73c\ub85c \ub300\ud559\uc5d0 \uc785\ud559\ud588\uc2b5\ub2c8\ub2e4.  \uc0ac\uc2e4 \uace0\ub4f1\ud559\uad50\uc5d0\uc11c \uacfc\ud559 \uacfc\ubaa9\uc740 \uc0dd\ub9ac\ud559 \ud55c \uacfc\ubaa9\ubc16\uc5d0 \ub4e3\uc9c0 \uc54a\uc558\uc5b4\uc694.  \ub300\ud559\uc5d0\uc11c \uc77c\ubc18 \uc0dd\ub9ac\ud559 \uc218\uc5c5\uc744 \ub4e3\ub2e4\uac00 \uc774 \uacfc\ubaa9\uc5d0 \ud765\ubbf8\ub97c \ub290\uaef4 \uc804\uacf5\uc744 \ubc14\uafd4 \uc6b4\ub3d9\uc0dd\ub9ac\ud559\uacfc \ube44\uc2b7\ud55c \uc6b4\ub3d9\uc0dd\ub9ac\ud559 \ud559\uc704\ub97c \ubc1b\uc558\uc5b4\uc694. \uc6d0\ub798 \ubaa9\ud45c\ub294 \ubb3c\ub9ac\uce58\ub8cc\uc0ac\uac00 \ub418\ub294 \uac83\uc774\uc5c8\uc9c0\ub9cc \uc11d\uc0ac \ud559\uc704\ub97c \ubc1b\ub294 \ub3d9\uc548 \uc2e4\ud5d8\uc2e4 \uc5f0\uad6c\ub97c \uc811\ud558\uac8c \ub418\uc5b4 \uadf8\ub9cc\ub450\uc9c0 \uc54a\uc558\uc5b4\uc694.<\/p>\n<p><strong>\uc5f0\uad6c \ubd84\uc57c\uc5d0\uc11c \ud2b9\ud788 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc5f0\uad6c\ud558\ub294 \ucee4\ub9ac\uc5b4\ub97c \uc313\uac8c \ub41c \uacc4\uae30\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>1991\ub144 \ub300\ud559\uc6d0\uc744 \uc2dc\uc791\ud588\uc744 \ub54c \uc800\ub294 \uace8\uaca9\uadfc\uc5d0\uc11c \uce7c\ud30c\uc778\uc758 \uc5ed\ud560\uc744 \uc774\ud574\ud558\ub294 \uc544\uc8fc \uae30\ucd08\uc801\uc778 \uacfc\ud559 \ubb38\uc81c\ub97c \uc5f0\uad6c\ud558\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4.  \uadf8\ub7ec\ub358 \uc911 \uc6b0\uc5f0\ud788 \ub4c0\uc13c \uadfc\uc774\uc601\uc591\uc99d\uc5d0 \uad00\ud55c \uc138\ubbf8\ub098\uc5d0 \ucc38\uc11d\ud558\uac8c \ub418\uc5c8\uace0, \uadf8 \uac15\uc5f0\uc744 \ud1b5\ud574 \uce7c\ud30c\uc778\uc774 \uc9c8\ubcd1 \uacfc\uc815\uc5d0 \uad00\uc5ec\ud560 \uc218 \uc788\ub2e4\ub294 \uc0dd\uac01\uc744 \ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc774 \uacbd\uc6b0 \uce7c\ud30c\uc778 1\uacfc 2(\ub2e4\ub978 \ub2e8\ubc31\uc9c8\uc744 \uba39\ub294 \ub2e8\ubc31\uc9c8\uc778 \ud504\ub85c\ud14c\uc544\uc81c)\uac00 \ub108\ubb34 \ud65c\uc131\ud654\ub418\uc5b4 \uadfc\uc721\uc744 \uc539\uc5b4\uba39\ub294\ub2e4\ub294 \uc0dd\uac01\uc774 \ub4e4\uc5c8\uc2b5\ub2c8\ub2e4.  \ub098\uc911\uc5d0 \uce7c\ud30c\uc778 3 \ub3cc\uc5f0\ubcc0\uc774\uac00 LGMD2A\uc758 \uadfc\ubcf8\uc801\uc778 \uc6d0\uc778\uc73c\ub85c \ubc1d\ud600\uc84c\uc744 \ub54c, \uc774 \uacbd\uc6b0\uc758 \ud765\ubbf8\ub85c\uc6b4 \uc810\uc740 <u>\uac10\uc18c<\/u> \ud2b9\uc815 \ud615\ud0dc\uc758 \uce7c\ud30c\uc778(\uce7c\ud30c\uc778 3)\uc774 \uacfc\uc789 \ud65c\ub3d9\ud558\ub294 \uac83\uacfc\ub294 \ub300\uc870\uc801\uc73c\ub85c \ud65c\ub3d9\ud558\ub294 \uac83\uc744 \ubc1c\uacac\ud588\uc2b5\ub2c8\ub2e4.  \uc800\ub294 1994\ub144 \uce7c\ud30c\uc778\uc774 LGMD2A\uc758 \uc6d0\uc778\uc73c\ub85c \ucc98\uc74c \ubc1c\uacac\ub418\uc5c8\uc744 \ub54c \uc774 \uce7c\ud30c\uc778\uc5d0 \ub300\ud574 \uc5f0\uad6c\ud558\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uc5b4\ub5a4 \uc8fc\uc81c\ub97c \uacf5\ubd80\ud558\uace0 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc6b0\ub9ac\ub294 \uce7c\ud30c\uc778 3\uc758 \uc815\uc0c1\uc801\uc778 \uc0dd\ubb3c\ud559\uc801 \uae30\ub2a5\uacfc \uce7c\ud30c\uc778 3 \uc720\uc804\uc790\uc758 \ub3cc\uc5f0\ubcc0\uc774\uac00 \uc5b4\ub5bb\uac8c LGMD2A\ub85c \uc774\uc5b4\uc9c0\ub294\uc9c0 \uc774\ud574\ud558\ub824\uace0 \ub178\ub825\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.  \uc774\ub294 \uc774 \ubd84\uc57c\uc758 \ud070 \ubb38\uc81c\uc785\ub2c8\ub2e4.  \ub2e4\uc591\ud55c \ud558\ub958 \uc9c8\ubcd1 \uacfc\uc815\uc5d0 \ub300\ud55c \uc774\ud574\ub294 \uc5b4\ub290 \uc815\ub3c4 \uc774\ub8e8\uc5b4\uc84c\uc9c0\ub9cc, \uce7c\ud30c\uc778 3\uc758 \uad6c\uccb4\uc801\uc778 \uc0dd\ubb3c\ud559\uc801 \uae30\ub2a5\uc744 \uc544\uc9c1 \uc774\ud574\ud558\uc9c0 \ubabb\ud558\uc5ec \ub3cc\uc5f0\ubcc0\uc774\uac00 \uc9c8\ubcd1\uc744 \uc77c\uc73c\ud0a4\ub294 \uc774\uc720\ub97c \uc644\uc804\ud788 \uc774\ud574\ud560 \uc218 \uc5c6\uc2b5\ub2c8\ub2e4.  \ud604\uc7ac \uc800\ud76c\ub294 \ub450 \uac00\uc9c0 \uce58\ub8cc \uc811\uadfc\ubc95\uc5d0 \uc9d1\uc911\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.  \uc6b0\ub9ac\ub294 LGMD2A\uc758 \ub9c8\uc6b0\uc2a4 \ubaa8\ub378\uc5d0\uc11c \uae0d\uc815\uc801\uc778 \uacb0\uacfc\ub97c \ubcf4\uc774\ub294 \uc57d\ubb3c\uc744 \ud655\uc778\ud588\uc73c\uba70, LGMD2A \uc720\uc804\uc790 \uce58\ub8cc\uc81c\ub97c \uac1c\ubc1c\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.  \ub610\ud55c \uce7c\ud30c\uc778 3 \uce58\ub8cc \uc5f0\ud569(C3)\uc758 \uc790\uae08 \uc9c0\uc6d0\uc758 \uc77c\ud658\uc73c\ub85c \ub9c8\uc6b0\uc2a4 \ubaa8\ub378\uc5d0\uc11c \ubbf8\uc624\uc2a4\ud0c0\ud2f4 \ucc28\ub2e8\uc81c\ub97c \ud14c\uc2a4\ud2b8\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uc5ec\ub7ec\ubd84\uc758 \uc791\uc5c5\uc774 \ud658\uc790\uc5d0\uac8c \uc5b4\ub5a4 \ub3c4\uc6c0\uc774 \ub418\ub098\uc694? \ubcf8\uc9c8\uc801\uc73c\ub85c \ub354 \uacfc\ud559\uc801\uc778\uac00\uc694, \uc544\ub2c8\uba74 \uc77c\ubc18\uc801\uc73c\ub85c LGMD\ub098 MD\ub97c \uc704\ud55c \uce58\ub8cc\ubc95\uc774 \ub420 \uc218 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc6b0\ub9ac\ub294 \uc9c8\ubcd1\uc758 \uadfc\uac04\uc774 \ub418\ub294 \uae30\ucd08 \uacfc\ud559\uc5d0 \ub300\ud55c \uc870\uc0ac\uc640 \uce58\ub8cc\ubc95\uc73c\ub85c \ub354 \ube68\ub9ac \uc804\ud658\ud560 \uc218 \uc788\ub294 \ub2e4\ub978 \uc720\ud615\uc758 \uc5f0\uad6c\ub77c\ub294 \ub450 \uac00\uc9c0 \uc5f0\uad6c \ubc29\uc2dd\uc744 \ubaa8\ub450 \uc218\ud589\ud574 \uc654\uc2b5\ub2c8\ub2e4.  \uc9c8\ubcd1\uc774 \uc65c \ubc1c\uc0dd\ud558\ub294\uc9c0 \uc774\ud574\ud558\uba74 \ub354 \ub098\uc740 \uce58\ub8cc\ubc95\uc744 \uc124\uacc4\ud560 \uc218 \uc788\uc744 \uac83\uc774\ub77c \ubbff\uae30 \ub54c\ubb38\uc5d0 \uae30\ucd08\uc801\uc778 \uacfc\uc815\uc5d0 \ucd08\uc810\uc744 \ub9de\ucdb0 \uc5f0\uad6c\ub97c \uc9c4\ud589\ud588\uc2b5\ub2c8\ub2e4.  \ube44\uc720\ub97c \ub4e4\uc5b4 \uc9c0\ubd95\uc5d0 \uc0c8\ub294 \ubb3c\uc774 \uc788\ub2e4\uace0 \uc0c1\uc0c1\ud574 \ubcf4\uc138\uc694.  \ubc29\uc218\ud3ec\ub97c \uc0ac\uc6a9\ud574 \ub204\uc218\ub97c \ub9c9\uac70\ub098 \uc591\ub3d9\uc774\ub97c \uc0ac\uc6a9\ud574 \ubc14\ub2e5\uc744 \ubcf4\ud638\ud560 \uc218 \uc788\uc9c0\ub9cc, \uad81\uadf9\uc801\uc73c\ub85c \ub204\uc218\ub97c \ud574\uacb0\ud560 \uc218 \uc788\ub2e4\uba74 \uc9d1\uc758 \ud53c\ud574\ub97c \uc904\uc77c \uc218 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\ud658\uc790\ub4e4\uacfc LGMD\uc5d0 \uad00\uc2ec\uc774 \uc788\ub294 \uc0ac\ub78c\ub4e4\uc774 \uc5f0\uad6c(\ubcf8\uc778\uc758 \ud504\ub85c\uc81d\ud2b8\uc640 \uc774 \ubd84\uc57c \uc804\ubc18\uc5d0 \ub300\ud574)\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud558\ub294 \uac83\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>\uc5f0\uad6c\uac00 \ub290\ub9ac\uace0 \ud798\ub4e4\uc9c0\ub9cc \uc5f0\uad6c\ub97c \uc9c0\uc6d0\ud558\uae30 \uc704\ud55c \uc790\uae08\uc774 \ud22c\uc790\ub418\uba74 \uce58\ub8cc\ubc95\uc744 \ucc3e\uc744 \uc218 \uc788\ub2e4\ub294 \uc810\uc744 \uc774\ud574\ud574 \uc8fc\uc168\uc73c\uba74 \uc88b\uaca0\uc2b5\ub2c8\ub2e4. \ub610\ud55c LGMD2A \uce58\ub8cc\ubc95\uc744 \ucc3e\uae30 \uc704\ud574 \uc5f4\uc2ec\ud788 \uc5f0\uad6c\ud558\ub294 \ub180\ub78d\uace0 \uc5f4\uc2ec\ud788 \uc77c\ud558\ub294 \uacfc\ud559\uc790 \ud300(\ud2b9\ud788 \uc774\ub9ac\ub098 \ud06c\ub77c\uba54\ub85c\ubc14, \ub098\ud0c8\ub9ac\uc544 \uc5d0\ub974\ubab0\ub85c\ubc14, \uce58\ub178 \ucfe0\ub9c8\uac00\uc774 \ud06c\ub808\uc138, \uc9c0\uc548 \ub9ac\uc6b0 \ubc15\uc0ac)\uc774 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \ud658\uc790\ub4e4\uc774 \uc54c\uc544\uc8fc\uc168\uc73c\uba74 \uc88b\uaca0\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\ub610\ud55c LGMD\ub294 \ud76c\uadc0 \uc9c8\ud658\uc774\uace0 \uc18c\uaddc\ubaa8 \uc7ac\ub2e8\uc774 \uc774 \ubd84\uc57c\uc758 \ubc1c\uc804\uc744 \uc9c0\uc6d0\ud558\ub294 \uac00\uc7a5 \uc88b\uc740 \ubc29\ubc95\uc740 \uc5f0\uad6c\uc5d0 \uc790\uae08\uc744 \uc9c0\uc6d0\ud558\ub294 \uac83\uc774\uae30 \ub54c\ubb38\uc5d0 C3\uc640 \uac19\uc740 \ub2e8\uccb4\uc758 \uc911\uc694\uc131\uc744 \uc54c\uc544\uc8fc\uc5c8\uc73c\uba74 \ud569\ub2c8\ub2e4.  C3, \uc870\ub358 \ubcf4\uc2ac\uace0, \ubbf8\uc178 \ub8e8\ubca8, \uc820 \ub808\ube44 \ubc15\uc0ac\ub294 \uc6b0\ub9ac\uac00 \uc784\uc0c1\uc2dc\ud5d8\uc744 \uc2dc\uc791\ud560 \uc900\ube44\uac00 \ub418\uc5c8\uc744 \ub54c \ub9e4\uc6b0 \uc911\uc694\ud55c \ub808\uc9c0\uc2a4\ud2b8\ub9ac\ub97c \ud3ec\ud568\ud558\uc5ec \ucee4\ubba4\ub2c8\ud2f0\ub97c \uc9c0\uc6d0\ud558\ub294 \ub370 \ud070 \uc5ed\ud560\uc744 \ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uc774 \ubd84\uc57c\uc5d0\uc11c \uacc4\uc18d \uc77c\ud558\uac8c \ub41c \ub3d9\uae30\ub294 \ubb34\uc5c7\uc778\uac00\uc694? <\/strong><\/p>\n<p>\ud658\uc790\uc640 \ud76c\ub9dd.<\/p>\n<p><strong>\ud658\uc790\ub4e4\uc774 \uc5b4\ub5bb\uac8c \uc5ec\ub7ec\ubd84\uc744 \uaca9\ub824\ud558\uace0 \uc5c5\ubb34\ub97c \ub3c4\uc6b8 \uc218 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc801\uc808\ud55c \ud658\uc790 \ub4f1\ub85d\ubd80\uc5d0 \ub4f1\ub85d\ud558\uc138\uc694(LGMD \ub4f1\ub85d\ubd80 \ubaa9\ub85d\uc740 \uc5ec\uae30\uc5d0\uc11c \ud655\uc778\ud560 \uc218 \uc788\uc2b5\ub2c8\ub2e4: <a href=\"https:\/\/www.lgmd-info.org\/ko\/international-lgmd-patient-registries\/\">https:\/\/www.lgmd-info.org\/international-lgmd-patient-registries\/<\/a>)\ub97c \ud1b5\ud574 \uc5f0\uad6c \ud504\ub85c\uc81d\ud2b8\uc5d0 \ucc38\uc5ec\ud560 \uc218 \uc788\uc2b5\ub2c8\ub2e4.  \uc5f0\uad6c \ud504\ub85c\uc81d\ud2b8\ub294 \ubaa8\uc9d1 \uc2dc \ud658\uc790 \ub808\uc9c0\uc2a4\ud2b8\ub9ac\ub97c \ud1b5\ud574 \uacf5\uc9c0\ub418\uba70 <a href=\"http:\/\/www.clinicaltrials.gov\">www.clinicaltrials.gov<\/a>.<\/p>\n<p>&nbsp;<\/p>\n<p>* \uc774 \uac8c\uc2dc\ubb3c\uc5d0 \uc88b\uc544\uc694\ub97c \ub204\ub974\uace0, \ub313\uae00\uc744 \ub2ec\uace0, \uacf5\uc720\ud558\uc5ec LGMD\uc5d0 \ub300\ud55c \uc778\uc9c0\ub3c4\ub97c \ub192\uc5ec\uc8fc\uc138\uc694!<\/p>\n<p>* \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d(LGMD)\uc5d0 \ub300\ud574 \uc790\uc138\ud788 \uc54c\uc544\ubcf4\uac70\ub098 \ub354 \ub9ce\uc740 \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"\ub97c \uc77d\uc73c\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc2ed\uc2dc\uc624. <a href=\"https:\/\/www.lgmd-info.org\/ko\/\">https:\/\/www.lgmd-info.org\/<\/a><\/p>\n<p><a href=\"https:\/\/www.facebook.com\/hashtag\/curelgmd\">#CureLGMD<\/a><br \/>\n<a href=\"https:\/\/www.facebook.com\/hashtag\/lgmdday2018\">#LgmdDay2018<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSpotlight Interview on Research\u201d LGMD Researcher:\u00a0 \u00a0Melissa Spencer Affiliation:\u00a0 [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2239,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[91,14,92],"tags":[],"class_list":["post-2240","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-researcher-interview","category-lgmd2a","category-researcher"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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