{"id":2697,"date":"2019-04-01T16:00:07","date_gmt":"2019-04-01T21:00:07","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2697"},"modified":"2019-04-01T16:00:07","modified_gmt":"2019-04-01T21:00:07","slug":"individual-with-lgmd-tasha","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2019\/04\/01\/individual-with-lgmd-tasha\/","title":{"rendered":"LGMD \uac1c\uc778: \ud0c0\uc0e4"},"content":{"rendered":"<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271024%27%20height%3D%27576%27%20viewBox%3D%270%200%201024%20576%27%3E%3Crect%20width%3D%271024%27%20height%3D%27576%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2019\/04\/LGMD2B-Tasha-C-1024x576.png\" alt=\"\" class=\"lazyload wp-image-2698\"\/><\/figure>\n\n\n\n<p><strong>\"LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8\n\uc778\ud130\ubdf0\"<\/strong><\/p>\n\n\n\n<p><strong>\uc774\ub984:<\/strong>&nbsp; Tasha &nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<strong>\ub098\uc774<\/strong>: 27<\/p>\n\n\n\n<p><strong>\uad6d\uac00:<\/strong> United\n\ubbf8\uad6d<\/p>\n\n\n\n<p>LGMD \ud558\uc704 \uc720\ud615: LGMD2B<\/p>\n\n\n\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\ub294 12\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uc800\ub294 6\uc0b4\uc774\uc5c8\uc5b4\uc694.<sup>th<\/sup> \ud559\ub144 \ub54c\n\ucd08\ub4f1\ud559\uad50 \ub54c\uc600\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n\n\n\n<p>\ucd08\uae30 \uc99d\uc0c1\uc740 \uc81c\uac00 \uc5b4\ub838\uc744 \ub54c\uc600\uc2b5\ub2c8\ub2e4. \uc5c4\ub9c8\uac00 \uc124\uba85\ud588\ub4ef\uc774\n\ud480\uc78e\uc5d0 \uac78\ub824 \ub118\uc5b4\uc9c0\uace4 \ud588\uc5b4\uc694. \uc18c\ud504\ud2b8\ubcfc\uc744 \ud560 \ub54c \uc81c\ub300\ub85c \ub6f0\uc9c0 \ubabb\ud588\uc744 \ub54c\n\uc18c\ud504\ud2b8\ubcfc\uc744 \ud560 \ub54c \uc81c\ub300\ub85c \ub2ec\ub9b4 \uc218 \uc5c6\uc744 \ub54c \ubb54\uac00 \uc798\ubabb\ub418\uc5c8\ub2e4\ub294 \uac83\uc744 \uc54c\uc544\ucc28\ub838\uc8e0. \uc800\ub294\n\uc5b4\uae68\ub97c \ub4a4\ub85c \uc816\ud788\uace0 \ubc30\ub97c \ub0b4\ubc00\uace0 \ubc1c\ub05d\uc73c\ub85c \ub6f0\uace4 \ud588\uc8e0. \uc774\ub807\uac8c\n\uc800\ub294 \"\ubc18\uc9dd \ubc1c\uac00\ub77d\"\uc774\ub77c\ub294 \ubcc4\uba85\uc744 \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4. \ub610\ud55c \uc624\ub978\ud314\uc774\n\ud314\uafc8\uce58\uae4c\uc9c0 \uace7\uac8c \ud3b4\uc9c0\uc9c0 \uc54a\ub294 \uac83\ub3c4 \ubc1c\uacac\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc800\ubfd0\uc785\ub2c8\ub2e4. \ub098\ub294\n\ub2e4\ub978 \uc0ac\ub78c\ub3c4 \uac78\ub9ac\uc9c0 \uc54a\uae30\ub97c \ubc14\ub78d\ub2c8\ub2e4. <\/p>\n\n\n\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?\n\uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n\n\n\n<p>LGMD\ub97c \uc0ac\uc6a9\ud558\ub294 \ub370 \uc788\uc5b4 \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \uc774\ub3d9\uc131\uc785\ub2c8\ub2e4. 21\uc138\uae4c\uc9c0\ub9cc \ud574\ub3c4\n21\uc0b4\uae4c\uc9c0\ub294 \uacc4\ub2e8\uc744 \ud798\ub4e4\uc774\uc9c0 \uc54a\uace0 \uc62c\ub77c\uac08 \uc218 \uc788\uc5c8\uace0 \uc2ec\uc9c0\uc5b4\ub294\n\uba87 \uac1c\ub294 \uac74\ub108\ub6f8 \uc218\ub3c4 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc 20\ub300\uac00 \ub418\uba74\uc11c\ubd80\ud130 \uc81c \uc99d\uc0c1\uc740\n\ub208\uc5d0 \ub744\uac8c \uc545\ud654\ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc774\uc81c 27\uc0b4\uc774\uace0 \uace0\ub974\uc9c0 \uc54a\uc740 \ud45c\uba74\uacfc \uacc4\ub2e8\uc5d0\uc11c \uc5b4\ub824\uc6c0\uc744 \uacaa\uace0 \uc788\uc73c\uba70\n\uc790\uc8fc \ub118\uc5b4\uc9d1\ub2c8\ub2e4. \uacc4\ub2e8\uc5d0 \ub09c\uac04\uc774 \uc5c6\uc73c\uba74 \uc800\ub294\n\uae30\uc5b4 \uc62c\ub77c\uac00\uc57c \ud569\ub2c8\ub2e4. \ubcf4\ud589\ub85c\uc5d0 \uc57d\uac04\uc758 \uacbd\uc0ac\uac00 \uc788\ub294 \uacbd\uc6b0, \uc800\ub294\n\ub2e4\ub9ac\ub97c \uace7\uac8c \ud3b4\uace0 \uc544\uc8fc \ub290\ub9b0 \uac78\uc74c\uc73c\ub85c \uacbd\uc0ac\ub97c \uc62c\ub77c\uac11\ub2c8\ub2e4. \ubd88\ud589\ud788\ub3c4 \uacc4\ub2e8\uc740\n\uacc4\ub2e8\uc740 \uacf5\uacf5\uc7a5\uc18c\uc5d0\uc11c \uc800\ub97c \ubd88\uc548\ud558\uac8c \ud569\ub2c8\ub2e4. \uacf5\uacf5\uc7a5\uc18c\uc5d0\uc11c\ub294 \uac00\uae09\uc801 \uacc4\ub2e8\uc744 \ud53c\ud558\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4.\n\uacf5\uacf5\uc7a5\uc18c. 4\ub144 \uc804\uc5d0 \uc9d1\uc744 \uc0c0\ub294\ub370 \ud2b9\ubcc4\ud788 \uacc4\ub2e8\uc774 \uc788\ub294 \uc9d1\uc744 \uc0c0\uc5b4\uc694.\n\uc9d1\uc744 \uc0c0\uc5b4\uc694. \uc774\ub807\uac8c \ud558\uba74 \ub0b4 \uc9d1\uc5d0\uc11c \uc0ac\uc801\uc73c\ub85c \uacc4\ub2e8\uc744 \uacc4\uc18d \uc774\uc6a9\ud560 \uc218 \uc788\uace0\n\uc77c\uc0c1 \uc0dd\ud65c\uc5d0\uc11c \uacc4\ub2e8 \uac77\uae30\ub97c \uacc4\uc18d\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\uc758 \uac00\uc7a5 \ud070 \ub3c4\uc804\n\ud558\uc9c0\ub9cc \uc9d1\uc5d0 \uacc4\ub2e8\uc774 \uc788\ub294 \uacbd\uc6b0 \uc138\ud0c1 \ubc14\uad6c\ub2c8\ub97c \ub4e4\uace0\n\uacc4\ub2e8\uc785\ub2c8\ub2e4. \uadf8\ub798\uc11c \uc800\ub294 \uc138\ud0c1 \ubc14\uad6c\ub2c8\ub97c \uc62e\uae30\ub294 \ubc29\ubc95\uc744 \uc218\uc815\ud588\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ubb34\ub98e\uc744 \uafc7\uace0 \uc138\ud0c1 \ubc14\uad6c\ub2c8\ub97c \ub4e4\uace0\n\ubc14\uad6c\ub2c8\ub97c \ud55c \ubc88\uc5d0 \ud55c \uacc4\ub2e8\uc529 \ub4e4\uc5b4 \uc62c\ub9bd\ub2c8\ub2e4(\uc774 \ubc29\ubc95\uc774 \uc800\uc5d0\uac8c \uac00\uc7a5 \uc798 \ub9de\ub294 \uac83 \uac19\uc2b5\ub2c8\ub2e4). \ud55c \uac00\uc9c0\n\ub0a8\ud3b8\uacfc \uc800\ub294 \uc57d\uac04 \uae34\uc7a5\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.\n\uc544\uc774\ub4e4\uc744 \uc704\ud574 \uc2dc\ub3c4\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \uc81c \uc99d\uc0c1\uc774 \uc545\ud654\ub420 \uc218 \uc788\uace0 \uc544\uae30\ub97c \uc5c5\uace0\n\uc544\uae30\ub97c \uc5c5\uace0 \uacc4\ub2e8\uc744 \uc624\ub974\ub0b4\ub9ac\ub294 \uac83\uc740 \uc774\uc0c1\uc801\uc774\uc9c0 \uc54a\ub2e4\ub294 \uac83\uc744 \uc54c\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ub610\ud55c \ub0ae\uc740 \uc758\uc790\ub098 \uc18c\ud30c\uc5d0\uc11c\n\ub0ae\uc740 \uc758\uc790\ub098 \uc18c\ud30c\uc5d0\uc11c <\/p>\n\n\n\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\uc758 \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 \uac04\ud638\ud559 \ud559\uc704\ub97c \ubc1b\uc740 \uac83\uc785\ub2c8\ub2e4.\n\ud559\uc704\ub97c \ubc1b\uc740 \uac83\uc785\ub2c8\ub2e4. \uc6b0\ub9ac \ubaa8\ub450 \uac04\ud638\uc0ac\ub85c\uc11c \uc5bc\ub9c8\ub098 \ubc14\uc05c\uc9c0 \uc798 \uc54c\uc9c0\ub9cc\n\ud604\uc7a5\uc5d0\uc11c \uc218\uac04\ud638\uc0ac\ub85c \uacc4\uc18d \uc77c\ud560 \uc218 \uc788\uc5b4\uc11c \uc815\ub9d0 \uac10\uc0ac\ud558\uac8c \uc0dd\uac01\ud569\ub2c8\ub2e4.\n\uc800\ub294 \uc7ac\ud65c \ubd80\uc11c\uc5d0\uc11c \uc77c\ud558\uba74\uc11c \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc744 \ub3c4\uc6b8 \uc218 \uc788\ub294 \uae30\uc068\uc744 \ub204\ub9ac\uace0 \uc788\uc2b5\ub2c8\ub2e4.\n\uc7a5\uc560\ub97c \uac00\uc9c4 \uc0ac\ub78c\ub4e4\uc744 \ub3c4\uc6b8 \uc218 \uc788\uace0 \uc5ec\ub7ec \uac00\uc9c0 \uba74\uc5d0\uc11c \uadf8\ub4e4\uacfc \uacf5\uac10\ud560 \uc218 \uc788\ub294 \uc7ac\ud65c \ubd80\uc11c\uc5d0\uc11c \uc77c\ud558\ub294 \uac83\uc774 \uc990\uac81\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p>\ub610\ud55c, \uc800\ub294 \ud1a0\ub2c8\ub77c\ub294 \uba4b\uc9c4\n\ud1a0\ub2c8\ub77c\ub294 \ub0a8\ud3b8\uc744 \ub9cc\ub0ac\uc2b5\ub2c8\ub2e4. \ud1a0\ub2c8\ub294 \uc2dd\ub2e8, \uc6b4\ub3d9, \uac74\uac15 \ud301\uc73c\ub85c \uc800\ub97c \ub3c4\uc640\uc8fc\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4.\n\uc81c \uccb4\uc911 \uc720\uc9c0\ub97c \uc704\ud574 \ub178\ub825\ud569\ub2c8\ub2e4. \ud1a0\ub2c8\ub294 \ub610\ud55c \uc2dc\uac04\uc744 \ub0b4\uc5b4 MD\uc5d0 \ub300\ud574 \uc5f0\uad6c\ud558\uace0 \uc9c4\ud589 \uc18d\ub3c4\ub97c \ub2a6\ucd94\uae30 \uc704\ud574\n\uc9c4\ud589\uc744 \ub2a6\ucd94\uae30 \uc704\ud574 \ubb34\uc5c7\uc744 \ud560 \uc218 \uc788\ub294\uc9c0 \uc5f0\uad6c\ud569\ub2c8\ub2e4. \uadf8\ub294 \ud56d\uc0c1 \uc81c\uac8c \uc190\uc744 \ub0b4\ubc00\uc5b4 \uc8fc\uac70\ub098 \ub3c4\uc640\uc90d\ub2c8\ub2e4.\n\uacc4\ub2e8\uc744 \uc62c\ub77c\uac08 \uc218 \uc788\ub3c4\ub85d \ud56d\uc0c1 \ub3c4\uc640\uc90d\ub2c8\ub2e4. \uadf8\ub294 \ub2e8 \ud55c \ubc88\ub3c4 \ubd88\ud3c9\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.\n\uacc4\ub2e8\uc744 \uc624\ub974\uac70\ub098 \uc800\uc640 \ud568\uaed8 \uac77\ub294 \ub3d9\uc548 \ub2e4\ub978 \uacbd\ub85c\ub97c \ud0dd\ud558\ub294 \uac83\uc5d0 \ub300\ud574 \ud55c \ubc88\ub3c4 \ubd88\ud3c9\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. I\n\uc815\ub9d0 \ucd95\ubcf5\ubc1b\uc740 \uc0ac\ub78c\uc785\ub2c8\ub2e4!<\/p>\n\n\n\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \ub2f9\uc2e0\uc774 \ub418\uae30\uae4c\uc9c0 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?\n\uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>LGMD\ub294 \uc800\ub97c \uc9c0\uae08\uc758 \uc0ac\ub78c\uc73c\ub85c \ub9cc\ub4e4\uc5b4\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4.\n\uc9c0\uae08\uc758 \uc800\ub85c \ub9cc\ub4e4\uc5b4\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub97c \ub354 \uacb8\uc190\ud558\uac8c \ub9cc\ub4e4\uc5b4 \uc8fc\uc5c8\ub2e4\uace0 \ub9d0\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ud56d\uc0c1 \ub9d0\ud558\uace4 \ud569\ub2c8\ub2e4.\nLGMD \uc9c4\ub2e8\uc744 \ubc1b\uc9c0 \uc54a\uc558\ub2e4\uba74 \uc800\ub294 \uc544\ub9c8 \ub300\ub2e8\ud55c \uc0ac\ub78c\uc774 \ub418\uc5c8\uc744 \uac83\uc785\ub2c8\ub2e4.\n\uc5b4\ub5a4 \uc2a4\ud3ec\uce20\ub3c4 \ud560 \uc218 \uc788\uace0, \ubd88\uac00\ub2a5\ud574 \ubcf4\uc774\ub294 \ubaa9\ud45c\ub3c4 \ub2ec\uc131\ud560 \uc218 \uc788\uace0, \uc790\uae30 \uc911\uc2ec\uc801\uc778\n\uc790\uae30 \uc911\uc2ec\uc801\uc785\ub2c8\ub2e4. LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc800\ub294 \ub9e4\uc77c \uac15\ud574\uc838\uc57c \ud569\ub2c8\ub2e4. \uc774\uac83\uc740 \uc721\uccb4\uc801\uc73c\ub85c\ubfd0\ub9cc \uc544\ub2c8\ub77c\n\uc721\uccb4\uc801\uc73c\ub85c\ubfd0\ub9cc \uc544\ub2c8\ub77c \uc815\uc2e0\uc801\uc73c\ub85c\ub3c4\uc694. \uc5b4\ub5bb\uac8c \ubcf4\uba74 \uace0\uc9d1\uc774 \ub354 \uc138\uc9c4 \uac83 \uac19\uc544\uc694.\n\ub2e4\ub978 \uc0ac\ub78c\uc758 \ub3c4\uc6c0\uc774 \ud544\uc694\ud558\uae30 \uc804\uae4c\uc9c0\ub294 \ud63c\uc790\uc11c \ubaa8\ub4e0 \uc77c\uc744 \ud574\ub0b4\ub824\uace0 \ub178\ub825\ud558\uae30 \ub54c\ubb38\uc774\uc8e0.\n\uc800\ub294 \uc758\ud559\ubc15\uc0ac \ud559\uc704\ub97c \uac00\uc9c4 RN\uc774 \ub418\ub294 \uac83\uc774 \ud658\uc790\ub4e4\uc5d0\uac8c '\uc778\uc0dd\uc5d0\uc11c \uc5b4\ub5a4 \uc77c\uc774 \ub2e5\uce58\ub354\ub77c\ub3c4\n\uc778\uc0dd\uc5d0 \uc5b4\ub5a4 \uc77c\uc774 \ub2e5\uccd0\ub3c4 \uc138\uc0c1\uc758 \uc885\ub9d0\uc774 \uc544\ub2c8\uba70, \uc218\uc815\uc774\n\uc218\uc815\ub9cc \ud558\uba74 \ub429\ub2c8\ub2e4. \uc800\ub294 \uc758\ud559\ubc15\uc0ac \ud559\uc704\ub97c \ucde8\ub4dd\ud568\uc73c\ub85c\uc368 \ud558\ub098\ub2d8 \uc544\ubc84\uc9c0\ub97c \ub354 \uc758\uc9c0\ud558\uac8c \ub418\uc5c8\ub2e4\uace0 \uad73\uac8c \ubbff\uc2b5\ub2c8\ub2e4.\n\ud558\ub098\ub2d8 \uc544\ubc84\uc9c0\ub97c \ub354 \uc758\uc9c0\ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8\ubd84\uc774 \uc800\ub97c \uce58\ub8cc\ud574 \uc8fc\uc2dc\uae30\ub97c \uae30\ub3c4\ud558\uba74\uc11c \ub3d9\uc2dc\uc5d0 \uadf8\ubd84\uc774 \uc800\ub97c \uc0ac\uc6a9\ud574 \uc8fc\uc2dc\uae30\ub97c \uae30\ub3c4\ud569\ub2c8\ub2e4.\n\uc800\ub97c \uc0ac\uc6a9\ud574 \uc8fc\uc2dc\uae30\ub97c \uae30\ub3c4\ud569\ub2c8\ub2e4. \uc6b0\ub9ac \ubaa8\ub450\ub294 \"\uac15\ud574\uc9c0\uae30 \uc804\uae4c\uc9c0\ub294 \uc6b0\ub9ac\uac00 \uc5bc\ub9c8\ub098\n\uac15\ud574\uc9c0\uae30 \uc804\uae4c\uc9c0\ub294 \uc6b0\ub9ac\uac00 \uc5bc\ub9c8\ub098 \uac15\ud55c\uc9c0 \ubaa8\ub978\ub2e4.\"\ub77c\ub294 \ub9d0\uc744 \uc54c\uace0 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