{"id":2727,"date":"2019-06-12T14:29:32","date_gmt":"2019-06-12T19:29:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2727"},"modified":"2019-06-12T14:29:32","modified_gmt":"2019-06-12T19:29:32","slug":"individual-with-lgmd-jillena","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/","title":{"rendered":"LGMD \uac1c\uc778: \uc9c8\ub808\ub098"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD\n\"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n\n\n\n

\uc774\ub984<\/strong>: : Jillena\n \ub098\uc774<\/strong>: 32\uc138<\/p>\n\n\n\n

\uad6d\uac00<\/strong>: United\n\ubbf8\uad6d<\/p>\n\n\n\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2A-\ucc99\uc218\ud1b5\uc99d\uc758 \ud55c \ud615\ud0dc<\/p>\n\n\n\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\uae4c? <\/strong>:<\/p>\n\n\n\n

\uc800\ub294 21\uc0b4\uc5d0 \ucc98\uc74c LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.\n21\uc0b4\uc5d0 \ucc98\uc74c \uc9c4\ub2e8\ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \uba87 \ub2ec \uc804\uc5d0 \uc720\uc804\uc801\uc73c\ub85c\nLGMD2A \uc544\ud615\uc744 \ud655\uc778\ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694? <\/strong>:<\/p>\n\n\n\n

\ub458\uc9f8 \uc544\uc774\ub97c \ub0b3\uace0 \ub098\uc11c \uc800\ub294\n\uacc4\ub2e8\uc774 \ud798\ub4e4\uc5b4\uc9c0\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4. \uc0ac\uc2e4 \uc800\ub294 \uacc4\ub2e8\uc744 \uae30\uc5b4 \uc62c\ub77c\uac00\uace4 \ud588\uc8e0. I\n\ucc99\ucd94\uce21\ub9cc\uc99d\uc774 \uc788\uc5c8\uae30 \ub54c\ubb38\uc5d0 \uacc4\ub2e8\uc744 \uc624\ub974\uae30 \ud798\ub4e4\uc5b4\ud558\ub294 \uac83\uc744 \ucc99\ucd94\uce21\ub9cc\uc99d \ud0d3\uc73c\ub85c\ub9cc \uc0dd\uac01\ud588\uc8e0.\n\ud558\uc9c0\ub9cc \ub458\uc9f8 \uc544\uc774\ub97c \ub0b3\uace0 \ub098\uc11c \ub2e4\ub9ac\ub97c \uc5f0\uc11d\uae4c\uc9c0 \uc27d\uac8c \ub4e4\uc5b4 \uc62c\ub9b4 \uc218 \uc5c6\uc5c8\uc5b4\uc694.\n\uc27d\uac8c \ub4e4\uc5b4 \uc62c\ub9b4 \uc218 \uc5c6\uc5c8\uc5b4\uc694. \ub610\ud55c \uc800\ub294 \ud56d\uc0c1 \ub9c8\ub978 \uccb4\ud615\uc774\uc5c8\uc9c0\ub9cc\n\uc774\uc720\ub97c \ubab0\ub790\uc5b4\uc694. \uc5b4\uba38\ub2c8\ub294 \ubb54\uac00 \uc798\ubabb\ub418\uc5c8\ub2e4\uace0 \uc0dd\uac01\ud558\uc168\uace0 \uc800\uc5d0\uac8c \uc758\uc0ac\ub97c \ub9cc\ub098\uc790\uace0 \uc124\ub4dd\ud558\uc168\uc5b4\uc694.\n\uc758\uc0ac\uc5d0\uac8c<\/p>\n\n\n\n

\ub2e4\ub978 \uac00\uc871 \uad6c\uc131\uc6d0\uc774 \uc788\uc2b5\ub2c8\uae4c?\n\uac00\uc9c0\uace0 \uc788\ub098\uc694?<\/strong><\/p>\n\n\n\n

\uc81c \uac00\uc871 \uc911 LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc5c6\uc9c0\ub9cc \uc5b4\uba38\ub2c8\uc5d0\uac8c\ub294 \uc2e0\uccb4 \uc7a5\uc560\ub97c \uac00\uc9c4 \ud615\uc81c\uac00 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ud76c\ub294 \uadf8\uac00 \ub4c0\uc13c \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\uc5c8\ub2e4\uace0 \uc0dd\uac01\ud569\ub2c8\ub2e4.<\/p>\n\n\n\n

\uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2ed\ub2c8\uae4c?\nLGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uacaa\ub294 \uc5b4\ub824\uc6c0 <\/strong>:<\/p>\n\n\n\n

\uccab \ubc88\uc9f8\ub294 \uc81c \uac00\uc871\uc774 \uacaa\uc5b4\uc57c\ud558\ub294 \uc5b4\ub824\uc6c0\uc785\ub2c8\ub2e4.\n\uc81c\uac00 \uc774 \ubcd1\uc5d0 \uac78\ub9ac\uc9c0 \uc54a\uc558\ub2e4\uba74 \uacaa\uc9c0 \uc54a\uc558\uc744 \uc77c\uc785\ub2c8\ub2e4. \ub450 \ubc88\uc9f8\ub294 \uc608\uc804\ucc98\ub7fc \uadf8\ub0e5 \uac00\uace0, \uac00\uace0, \uac08 \uc218 \uc5c6\ub2e4\ub294 \uc0ac\uc2e4\uc785\ub2c8\ub2e4.\n\ud560 \uc218 \uc5c6\ub2e4\ub294 \uc0ac\uc2e4\uc785\ub2c8\ub2e4. \ud314\uacfc \ub2e4\ub9ac\uac00 \uc57d\ud574\uc838\uc11c \ub9ce\uc740 \uc77c\uc744 \ud558\ub294 \ub370 \uc9c0\ucce4\uc5b4\uc694.<\/p>\n\n\n\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694? <\/strong>:<\/p>\n\n\n\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ucd5c\uadfc\uc758 \ud0dc\ub3c4 \ubcc0\ud654\uc785\ub2c8\ub2e4. I\n\uc81c \uc9c8\ubcd1\uacfc \uc6b4\uba85\uc5d0 \ub300\ud574 \ubd80\uc815\uc801\uc73c\ub85c \uc0dd\uac01\ud558\ub294 \uac83\uc740 \ub204\uad6c\uc5d0\uac8c\ub3c4 \ub3c4\uc6c0\uc774 \ub418\uc9c0 \uc54a\ub294\ub2e4\ub294 \uac83\uc744 \uae68\ub2ec\uc558\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ub2e4\ub978 \uc548\uacbd\uc73c\ub85c \uc138\uc0c1\uc744 \ubc14\ub77c\ubcf4\uba70\n\ub2e4\ub978 \uc548\uacbd\uc744 \uc4f0\uace0 \uc0b4\uae30\ub85c \uacb0\uc2ec\ud588\uc744 \ubfd0\ub9cc \uc544\ub2c8\ub77c \uadf8 \uc548\uacbd\uc744\n\uc81c\uac00 \ub9cc\ub4e0 \ud398\uc774\uc2a4\ubd81 \ud398\uc774\uc9c0\uc5d0\uc11c \uc81c \uc778\uc0dd \uc5ec\uc815\uc744 \ud1b5\ud574 \uc804 \uc138\uacc4\uc640 \uacf5\uc720\ud558\uae30\ub85c \ud588\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n

LGMD\uc758 \uc601\ud5a5\uc740\n\uc9c0\uae08\uc758 \ub2f9\uc2e0\uc774 \ub418\uae30\uae4c\uc9c0 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n\n\n\n

\uc81c\uac00 \uc774 \ubcd1\uc5d0 \uac78\ub838\ub2e4\ub294 \uc0ac\uc2e4\uc744 \ubc1b\uc544\ub4e4\uc774\uace0\n\ube44\ucc38\ud574\uc9c8 \ud544\uc694\uac00 \uc5c6\ub2e4\ub294 \uc0ac\uc2e4\uc744 \ubc1b\uc544\ub4e4\uc774\uace0 \ub098\uc11c \uc800\ub294 \ud398\uc774\uc2a4\ubd81\uc5d0 \ud398\uc774\uc9c0\ub97c \ub9cc\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \uae0d\uc815\uc801\uc778 \uc0ac\ub78c\uc774 \ub418\ub294 \ubc29\ubc95\uc5d0 \ub300\ud55c \uc870\uc5b8\uc744\n\uc870\uc5b8\uc744 \ud558\uae30 \uc2dc\uc791\ud588\uc5b4\uc694. \uadf8 \ud6c4\ub85c \ud6e8\uc52c \ub354 \ub9ce\uc544\uc84c\uc5b4\uc694. \uc9c0\uae08\uc740 \ud398\uc774\uc2a4\ubd81 \uce5c\uad6c\uac00 \ub108\ubb34 \ub9ce\uc544\uc11c\n\uba4b\uc9c4 \uc9c0\uc6d0 \uc2dc\uc2a4\ud15c\uc774 \ub418\uc5c8\uc8e0. \ub610\ud55c, \uc800\ub294 MDA\ub97c \uc704\ud55c \ubaa8\uae08 \ud589\uc0ac\uc5d0\uc11c \uc81c \uc774\uc57c\uae30\ub97c \uacf5\uc720\ud588\uc2b5\ub2c8\ub2e4.\n\ubaa8\uae08 \ud589\uc0ac\uc5d0\uc11c \uc81c \uc774\uc57c\uae30\ub97c \uacf5\uc720\ud588\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc774\uc81c\n\ubaa8\ub4e0 \uc0ac\ub78c\uc774 \uc790\uc2e0\uc758 \uac00\uce58\ub97c \uc54c\uc544\uc8fc\uae38 \ubc14\ub77c\ub294 \uc0ac\ub78c\uc73c\ub85c \uc131\uc7a5\ud588\uc2b5\ub2c8\ub2e4! 10\ub144 \uc804, \uc800\ub294\n\ub2e4\ub978 \uc0ac\ub78c\uc740 \ub9d0\ud560 \uac83\ub3c4 \uc5c6\uace0 \uc81c \uc790\uc2e0\uc5d0 \ub300\ud574\uc11c\ub3c4 \uad00\uc2ec\uc774 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n

\uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \uac83\nLGMD \uc18c\uac1c <\/strong>:<\/p>\n\n\n\n

\uc800\ub294 \ub8e8\uac8c\ub9ad\ubcd1\uc774 \ub300\ubd80\ubd84 \ub3c5\ub9bd\uc131\uc744 \ube7c\uc557\uc544\uac00\uae30 \ub54c\ubb38\uc5d0\n\ub2e4\ub8e8\uae30 \ub9e4\uc6b0 \uc5b4\ub824\uc6b4 \uc9c8\ubcd1\uc774\ub77c\ub294 \uac83\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \ub098\uc774\uac00 \ub4e4\uba74\n\ub098\uc774\uac00 \ub4e4\uba74 \uadfc\uc721\uc774 \uc57d\ud574\uc838 \uc774\ub3d9\uc131\uc774 \uac10\uc18c\ud569\ub2c8\ub2e4. \uc815\ub9d0 \ud798\ub4e4\uc8e0,\n\ud2b9\ud788 \uc544\uc774\uac00 \uc14b\uc774\ub77c\uba74 \ub354\ub354\uc6b1 \ud798\ub4e4\uc8e0.<\/p>\n\n\n\n

\ub9cc\uc57d \ub2f9\uc2e0\uc758 LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74\n\ub0b4\uc77c \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc77c\uae4c\uc694? <\/strong>:<\/p>\n\n\n\n

\uc800\ub294 \uac00\uc871\uacfc \ud568\uaed8\n\uac00\uc871\uacfc \ud568\uaed8 \ucf5c\ub85c\ub77c\ub3c4\uc758 \uc0b0\uc73c\ub85c \ud558\uc774\ud0b9\uc744 \uac00\uaca0\uc2b5\ub2c8\ub2e4!<\/p>\n\n\n\n

* \ub354 \ub9ce\uc740 \"LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucc38\uc5ec\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9 \uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc2ed\uc2dc\uc624. https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight interview\u201d Name:  Jillena  Age: 32 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2728,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Jillena - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jillena - 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