{"id":3088,"date":"2019-11-03T17:49:29","date_gmt":"2019-11-03T23:49:29","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3088"},"modified":"2019-11-03T17:49:29","modified_gmt":"2019-11-03T23:49:29","slug":"individual-with-lgmd-rosamund","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2019\/11\/03\/individual-with-lgmd-rosamund\/","title":{"rendered":"LGMD \uac1c\uc778: \ub85c\uc790\uba3c\ub4dc"},"content":{"rendered":"<div class=\"wp-block-image\"><figure class=\"aligncenter is-resized\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27354%27%20height%3D%27199%27%20viewBox%3D%270%200%20354%20199%27%3E%3Crect%20width%3D%27354%27%20height%3D%27199%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2019\/11\/Unknown-Rosamund-1024x576.png\" alt=\"\" class=\"lazyload wp-image-3089\" width=\"354\" height=\"199\"\/><\/figure><\/div>\n\n\n\n<p><strong>LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/strong><\/p>\n\n\n\n<p><strong>\uc774\ub984<\/strong>:  \ub85c\uc790\uba3c\ub4dc &nbsp;<strong>\ub098\uc774<\/strong>: 43\uc138<\/p>\n\n\n\n<p><strong>\uad6d\uac00<\/strong>: \uc601\uad6d \uc601\uad6d<\/p>\n\n\n\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: Not\n\uc54c \uc218 \uc5c6\uc74c; \uc601\uad6d \uce90\uc2ac\uc758 \uc874 \uc6d4\ud2bc \uadfc\uc774\uc601\uc591\uc99d \uc5f0\uad6c \uc13c\ud130\uc5d0\uc11c \uc544\uc9c1 \ud14c\uc2a4\ud2b8\ub97c \uc9c4\ud589 \uc911\uc785\ub2c8\ub2e4.\n\uc601\uad6d \ub274\uce90\uc2ac\uc758 \uadfc\uc774\uc601\uc591\uc99d \uc5f0\uad6c \uc13c\ud130\uc5d0\uc11c \ud14c\uc2a4\ud2b8\ub97c \uc9c4\ud589 \uc911\uc785\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:\n2017\ub144 2\uc6d4\uc5d0 \uc9c1\uc7a5\uc5d0\uc11c \uac74\uac15\uac80\uc9c4\uc744 \ubc1b\uc740 \ud6c4 \uc758\uc0ac\ub294 \ub2e4\uc74c\uacfc \uac19\uc774 \uc6b0\ub824\ud588\uc2b5\ub2c8\ub2e4.\n\ub0b4 \uadfc\uc721 \uae30\ub2a5. \uadfc\uc774\uc601\uc591\uc99d\uc758 \uc77c\uc885\uc774\ub77c\ub294 \uc81c\uc548\uc740\n2018\ub144 1\uc6d4 \ub7f0\ub358\uc758 \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc5d0\uac8c \uac1c\uc778\uc801\uc73c\ub85c \ube44\uc6a9\uc744 \uc9c0\ubd88\ud558\uace0 \uc9c4\ucc30\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\ub294 \uc81c\uac00 \uae30\uc5b5\ud560 \uc218 \uc788\ub294 \ud55c \uc624\ub7ab\ub3d9\uc548 \uc694\ud1b5\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4. 20\ub300 \ucd08\ubc18\uc5d0 \uc1fc\uc810\ud504\ub97c \ud558\ub2e4\uac00 \ud5c8\ub9ac(\uc694\ucd94 4\ubc88)\uac00 \uace8\uc808\ub418\uc5c8\uace0, \uc0ac\uace0 \uc774\ud6c4 \uc67c\ucabd \uc5c9\ub369\uc774\uac00 \uc544\ud504\uace0 \uc694\ud1b5\uacfc \ubb34\ub98e \ud1b5\uc99d\uc774 \uc810\uc810 \uc2ec\ud574\uc84c\uc2b5\ub2c8\ub2e4. \uc774\uc720 \uc5c6\uc774 \uac00\ub054\uc529 \ub118\uc5b4\uc9c0\uae30\ub3c4 \ud588\uc5b4\uc694. \uc81c\uac00 \uac1c\uc778\uc801\uc73c\ub85c \uc9c4\ub8cc\ub97c \ubc1b\uae30\ub85c \ud55c \uace0\uad00\uc808 \uc804\ubb38\uc758\ub97c \uc81c\uc678\ud558\uace0\ub294 \ubaa8\ub4e0 \uc804\ubb38\uc758\uac00 \ud5c8\ub9ac \uace8\uc808\ub85c \uc778\ud55c \uc99d\uc0c1\uc774\ub77c\uace0 \uc9c4\ub2e8\ud588\uc2b5\ub2c8\ub2e4. \ud584\uc2a4\ud2b8\ub9c1, \ub0b4\uc804\uadfc, \ub300\ud1f4\uc0ac\ub450\uadfc\uc758 \uae30\ub2a5\uc774 \uac70\uc758 \uc815\uc9c0\ub41c \uc0c1\ud0dc\uc600\uc5b4\uc694. \ubb3c\ub9ac\uce58\ub8cc\ud300\uc774 \ub2e4\uc2dc \uc6b4\ub3d9\uc744 \uc2dc\uc791\ud588\uc9c0\ub9cc \uc544\ubb34\ub9ac \uc5f4\uc2ec\ud788 \ud574\ub3c4 \uadfc\ub825\uc744 \ud0a4\uc6b8 \uc218 \uc5c6\uc5c8\uc5b4\uc694. \uadf8\ub54c \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc5d0\uac8c \uc9c4\ucc30\uc744 \ubc1b\uc73c\ub77c\ub294 \uad8c\uc720\ub97c \ubc1b\uc558\uc5b4\uc694.<\/p>\n\n\n\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>\uc9c4\ub2e8\ub418\uc9c0 \uc54a\uc558\uc2b5\ub2c8\ub2e4. \uc81c \uc5b8\ub2c8\ub294 \ub9e4\uc6b0 \uacbd\ubbf8\ud55c\n\ud314\uc758 \uc57d\uc810\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4. <\/p>\n\n\n\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?\n\uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n\n\n\n<p>\uc800\ub294 \ud56d\uc0c1 \ub9e4\uc6b0 \ud65c\ub3d9\uc801\uc774\uace0 \ubc14\uc058\uac8c \uc9c0\ub0b4\ub294 \uac83\uc744 \uc88b\uc544\ud569\ub2c8\ub2e4. \uc800\ub294\n\uc5b4\ub518\uac00\uc5d0 \ub3c4\ucc29\ud558\uae30 \uc704\ud574 \ud56d\uc0c1 \uc798\ub77c\ub0b4\uace4 \ud588\uc8e0.<\/p>\n\n\n\n<p>\uac00\uc7a5 \ud070 \ubb38\uc81c\ub294 \ube60\ub974\uac8c \uc6c0\uc9c1\uc77c \uc218 \uc5c6\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4,\n\uacc4\ub2e8\uc744 \uc624\ub974\uac70\ub098 \uc77c\ubc18\uc801\uc73c\ub85c \uc11c\ub450\ub974\uc9c0 \ubabb\ud55c\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n\n\n\n<p>\ucd9c\ud1f4\uadfc\ud560 \ub54c \uc778\ud30c\ub97c \ub530\ub77c\uc7a1\uc544\uc57c \ud558\ub294 \uacbd\uc6b0,\n\uac00\ubc29\uc744 \ub4e4\uace0 \ub2e4\ub2c8\uac70\ub098 \ub9e4\uc6b0 \ud53c\uace4\ud55c \uacbd\uc6b0 \uc9c0\ud321\uc774\ub97c \uc0ac\uc6a9\ud574\uc57c \ud569\ub2c8\ub2e4.\n\uc775\uc219\ud574\uc838\uc57c \ud569\ub2c8\ub2e4. \uc194\uc9c1\ud788 \ub9d0\uc500\ub4dc\ub9ac\uba74 \uc815\ub9d0 \uc2eb\uc5b4\uc694.<\/p>\n\n\n\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc5b4\ub838\uc744 \ub54c\ubd80\ud130 \uc800\ub294 \ub2e4\uc591\ud55c \uacbd\ud5d8\uc744 \ud558\uace0 \uc990\uae30\uace0 \uc2f6\uc5c8\uc2b5\ub2c8\ub2e4.\n\ub0b4 \uc778\uc0dd. \uc5ec\ud589\ub3c4 \ud558\uace0, \uc6b0\uac04\ub2e4\uc5d0\uc11c \uc790\uc120\ub2e8\uccb4\ub97c \uc704\ud574 \uc77c\ud558\uace0, \ub2e4\uc591\ud55c \uc2a4\ud3ec\uce20\ub97c \uc990\uacbc\uc73c\uba70\n\ub7f0\ub358 \uc62c\ub9bc\ud53d \uc870\uc9c1\uc704\uc6d0\ud68c\uc5d0\uc11c 2012\ub144 \uc62c\ub9bc\ud53d \uacbd\uae30\uc7a5 \uac74\uc124\uc744 \uc704\ud574 \uc77c\ud588\uc2b5\ub2c8\ub2e4.\n\uc7a5\uc18c. \uc800\ub294 \uc0b0\uc5c5 \ubcf4\uac74 \ubc0f \uc548\uc804 \ubd84\uc57c\uc5d0\uc11c \uc77c\ud558\uace0 \uc788\uc73c\uba70 \uc62c\ub9bc\ud53d \uc6b4\ub3d9\uacfc \ud568\uaed8\ud55c \uc2dc\uac04\uc740\n\uc6b4\ub3d9\uc740 \ucd5c\uace0\uc600\uace0 \uadf8 \ub2f9\uc2dc \uc800\ub294 \uc5d0\ub108\uc9c0\uc640\n\ucd9c\ud1f4\uadfc\uc744 \ud558\uace0 \uc628\uc804\ud788 \ucc38\uc5ec\ud560 \uc218 \uc788\uc5c8\uc5b4\uc694. \uc544\ud504\ub9ac\uce74\ub294 \uacbd\ud5d8\uc774\uc790\n\ubc18; \uc9c0\uae08\uc740 \uadf8\ub807\uac8c \ud560 \uc218 \uc5c6\uc744 \uac83 \uac19\uc544\uc11c \uc81c \uac00\uc7a5 \ud070 \uc5c5\uc801\uc740\n\uc81c \uc0b6\uc744 \uc0b4\uc544\uac00\uba70 \uae30\ud68c\ub97c \ub9cc\ub4e4\uace0 \uc7a1\ub294 \uac83\uc785\ub2c8\ub2e4. \uc800\ub294 \ud604\uc7ac \uc601\uad6d\uc5d0\uc11c\n\uc601\uad6d\uc758 \uc8fc\uc694 \uc778\ud504\ub77c \ud504\ub85c\uc81d\ud2b8; \uc800\ub294 \uc8fc\uc694 \ud504\ub85c\uc81d\ud2b8\ub97c \uc88b\uc544\ud574\uc11c\n\uc5ec\uc804\ud788 \uadf8 \uc77c\uc744 \ud558\uace0 \uc5ec\uc804\ud788 \ub9d0\uc744 \ud0c0\ub294 \uac83\uc774 \uc800\uc5d0\uac8c\ub294 \uc131\ucde8\uc785\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \ub2f9\uc2e0\uc774 \ub418\uae30\uae4c\uc9c0 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?\n\uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>\uc800\ub294 \uc5ec\uc804\ud788 \uc81c \uc0b6\uc744 \uc0b4\uc544\uac00\uba70 \uae30\ud68c\ub97c \ub9cc\ub4e4\uace0 \uc788\uc9c0\ub9cc\n\uae30\ud68c\ub97c \ub9cc\ub4e4\uace0 \uc788\uc9c0\ub9cc \uc9c0\uae08\uc740 \ub2e4\ub985\ub2c8\ub2e4. \uc608\uc804\uc5d0\ub294 \uaf64 \ub450\ub824\uc6c0\uc774 \uc5c6\uc5c8\ub294\ub370\uc694.\n\uc774\ub3d9\uc131\uc774 \uc81c\ud55c\ub418\uace0 \ub54c\ub54c\ub85c \ubd88\uc548\uc815\ud558\uace0 \ud53c\uace4\ud558\uba74 \uc790\uc2e0\uac10\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce69\ub2c8\ub2e4. \uadf8\ub798\uc11c\n\uc815\uc2e0 \ucc28\ub9ac\uae30\uac00 \ud798\ub4e4\uc5c8\uc5b4\uc694. \uadfc\uc774\uc601\uc591\uc99d\uc77c\uc9c0\ub3c4 \ubaa8\ub978\ub2e4\ub294 \ub9d0\uc744 \ub4e4\uc5c8\uc744 \ub54c\n\uadfc\uc774\uc601\uc591\uc99d\uc774\ub77c\ub294 \ub9d0\uc744 \ub4e3\uace0 6\uac1c\uc6d4 \ub3d9\uc548 \ub9e4\uc77c \ud63c\uc790\uc11c \uc6b8\uc5c8\uc5b4\uc694. \uc778\ud130\ub137\uc740 \ub180\ub77c\uc6b4\n\ud558\uc9c0\ub9cc \ud574\uac00 \ub420 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \uc9c0\uae08\ubcf4\ub2e4 \uc870\uae08 \ub354 \ub098\ube60\uc84c\uac70\ub098\n\ub0b4\uac00 \ubaa8\ub4e0 \uac83\uc744 \ubc1b\uc544\ub4e4\uc774\uba74 \ub354 \ub098\ube60\uc9c0\uac70\ub098 \uc778\uacf5 \ud638\ud761\uae30\uc5d0 \ud638\ud761\uae30\ub97c \ub2ec\uace0 \ud720\uccb4\uc5b4\uc5d0 \uc549\uc544\uc788\uc744 \uc218 \uc788\uc2b5\ub2c8\ub2e4.\n\uc628\ub77c\uc778\uc5d0\uc11c \uc77d\uace0 \uc788\uc5c8\uc5b4\uc694. \uc800\ub294 \uc544\ubb34\uc5d0\uac8c\ub3c4 \ub9d0\ud558\uc9c0 \uc54a\uc558\uace0, \ubb50\ub77c\uace0 \ub9d0\ud574\uc57c \ud560\uc9c0 \uc5b4\ub5bb\uac8c \uc124\uba85\ud574\uc57c \ud560\uc9c0\n\uc124\uba85\ud560 \ubc29\ubc95\uc774 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4. \ub0a8\ud3b8\uacfc \uc9c1\uc7a5\uc744 \uc783\uc744\uae4c \ubd10 \ub450\ub824\uc6e0\uc5b4\uc694. \uc6d0\ud558\ub294 \uc0ac\ub78c\n\ud2b9\ud788 \uac74\uc124 \ud658\uacbd\uc5d0\uc11c \ub3c4\uc6c0 \uc5c6\uc774\ub294 \uc6c0\uc9c1\uc77c \uc218 \uc5c6\ub294 \uc0ac\ub78c\uc744....\n\uc800\ub294 \uc81c\uac00 \ud1b5\uc81c\ud560 \uc218 \uc5c6\ub294 \ubcc0\ud654\uc5d0 \uc9c1\uba74\ud588\uace0, \uac07\ud600 \uc788\uace0 \ucde8\uc57d\ud558\ub2e4\uace0 \ub290\uaf08\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p>\uc800\ub294 \ubaa8\ub4e0 \uac83\uc744 \ud1b5\uc81c\ud560 \uc218 \uc5c6\ub2e4\ub294 \uac83\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4.\n\ubaa8\ub4e0 \uac83\uc744 \ud1b5\uc81c\ud560 \uc218 \uc5c6\ub2e4\ub294 \uac83\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \uba87 \ub144 \uc804 \ub178\ud2b8\ubd81\uc744 \uc0ac\uc6a9\ud558\ub2e4\uac00 \uc7a0\uc2dc \uc26c\ub294 \uc2dc\uac04\uc5d0\n\uac15\uc544\uc9c0\ub97c \uc0b0\ucc45\uc2dc\ud0a4\uba70 \ud734\uc2dd\uc744 \ucde8\ud588\ub358 \uae30\uc5b5\uc774 \ub0a9\ub2c8\ub2e4. \uae08\uc694\uc77c\uc758 \ud3c9\ubc94\ud55c \uc77c\uc774\uc5c8\uc8e0. \ub9d0\n\uc774\ub978 \uc544\uce68\uc5d0 \uc9d1\uc548\uc77c\uc744 \ub9c8\uce58\uace0 \ub178\ud2b8\ubd81\uc744 \ucf1c\uace0 \uc810\uc2ec\uc2dc\uac04\uc5d0\n\uc810\uc2ec\uc2dc\uac04. 6\uc2dc\ucbe4 \ub178\ud2b8\ubd81\uc744 \ub044\uace0... 7\uc2dc\uc5d0 \uc640\uc778 \ud55c \uc794! \ud48d\uacbd\ub3c4 \uae30\uc5b5\ub098\uc9c0 \uc54a\uace0\n\ub9ce\uc774 \ub610\ub294 \ub0b4 \uac1c\uac00 \uba4d\uccad\ud55c \uac83 \uc678\uc5d0\ub294 \uba4d\uccad\ud55c \uc77c\uc774 \ub9ce\uc558\uace0\n\ubcf4\ud1b5 \uc81c\uac00 \uac15\uc544\uc9c0\uc5d0\uac8c \uc0ac\uacfc\ud558\ub294 \uc77c\uc774 \ub9ce\uc558\uc8e0. \ub098\ub294 \uadf8 \uc0b0\ucc45 \uc911\uc5d0 \uc804\ud654\uae30\uc5d0 \ubd99\uc5b4 \uc788\uc5c8\ub358 \uac83\uc744 \uae30\uc5b5\ud569\ub2c8\ub2e4.\n\uc804\ud654\uae30\uc5d0 \ub9e4\ub2ec\ub838\ub358 \uae30\uc5b5\uc774 \ub0a9\ub2c8\ub2e4. \uc9c0\uae08\uc740 \ub3d9\ubb3c\ub4e4\uacfc \ud568\uaed8\ud560 \ub54c\uba74 \ub3d9\ubb3c\ub4e4\uc5d0\uac8c \uac10\uc0ac\ud558\uac8c \ub429\ub2c8\ub2e4.\n\ub098\ubb34\uc640 \ub0c4\uc0c8, \uc0c8\ub4e4\uc758 \ub178\ub798\uc5d0 \uac10\uc0ac\ud558\uc8e0. \uc800\ub294 \uc9c0\uae08 \uc774 \uc21c\uac04\uc744 \uc990\uae41\ub2c8\ub2e4. \ub098\ub294 \uc18c\uc911\ud788 \uc5ec\uae34\ub2e4.\n\uc2dc\uac01, \uccad\uac01, \uc720\uba38 \uac10\uac01 \ub4f1 \uc81c\uac00 \uc544\uc9c1 \uac00\uc9c0\uace0 \uc788\ub294 \uac83\ub4e4\uc744 \uc18c\uc911\ud788 \uc5ec\uae41\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n\n\n\n<p>\uc800\ub294 \ub18d\ub2f4 \uc0bc\uc544 \uc774\ub97c \ubd88\ud3b8\ud55c \uc0c1\ud0dc\ub77c\uace0 \ud45c\ud604\ud569\ub2c8\ub2e4.\n\ub35c \uba39\uace0 \uc5ec\ubd84\uc758 \ucf00\uc774\ud06c \uc870\uac01\uc744 \ub193\uccd0\uc57c \ud55c\ub2e4\ub294 \ub73b\uc785\ub2c8\ub2e4. \uc9c4\uc9c0\ud558\uac8c\n\ub1cc\ub294 \ub180\ub78d\uc9c0\ub9cc \uc794\uc778\ud569\ub2c8\ub2e4. \uc800\ub294 \uac00\ub054\uc529\n\uc774 \uc9c8\ud658\uc774 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc78a\uace0 \uc6c0\uc9c1\uc774\ub824\uace0 \ud558\uba74 \uadf8\ub0e5 \uad6c\uaca8\uc838 \ubc84\ub9bd\ub2c8\ub2e4. \uc0dd\uac01\ud574\uc57c \ud558\ub294 \uac83\n\uc5b4\ub5bb\uac8c \uac77\uace0 \uc6c0\uc9c1\uc77c\uc9c0 \uc0dd\uac01\ud574\uc57c \ud55c\ub2e4\ub294 \uac83\uc740 \uc9c0\uce58\ub294 \uc77c\uc785\ub2c8\ub2e4. \ub2e4\ud589\ud788\ub3c4 \uc800\ub294\n\uc790\uc5f0 \uc5d0\ub108\uc9c0\uac00 \ub9ce\uc544\uc11c \ud558\ub8e8\ud558\ub8e8\ub97c 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