{"id":3178,"date":"2020-01-12T12:52:48","date_gmt":"2020-01-12T18:52:48","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3178"},"modified":"2020-01-12T12:52:48","modified_gmt":"2020-01-12T18:52:48","slug":"natasha","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2020\/01\/12\/natasha\/","title":{"rendered":"LGMD \uac1c\uc778: \ub098\ud0c0\uc0e4"},"content":{"rendered":"<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271024%27%20height%3D%27576%27%20viewBox%3D%270%200%201024%20576%27%3E%3Crect%20width%3D%271024%27%20height%3D%27576%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2020\/01\/LGMD1D-Natasha-1024x576.png\" alt=\"\" class=\"lazyload wp-image-3179\"\/><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\"<\/h3>\n\n\n\n<p><strong>\uc774\ub984<\/strong>:  \ub098\ud0c0\uc0e4&nbsp;\n<strong>\ub098\uc774<\/strong>:\n25\uc138<\/p>\n\n\n\n<p><strong>\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n\n\n\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>:   LGMD D1 DNAJB6 \uad00\ub828 (\uc774\uc804 LGMD \uc720\ud615\n1D)<\/p>\n\n\n\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\ub294 23\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\ud76c \uc544\ud615\uc740 \ub2a6\uac8c \ubc1c\ubcd1\ud574\uc11c \uc9c0\uae08\uc740 \uc99d\uc0c1\uc774 \uc5c6\uc9c0\ub9cc, \uc790\ub77c\uba74\uc11c \uc0ac\uc18c\ud55c \uc77c\ub4e4\uc774 \uc788\uc5c8\ub294\ub370 \uc9c4\ub2e8\uc744 \uc54c\uace0 \ub098\ub2c8 \ub354 \uc774\ud574\uac00 \ub418\ub124\uc694.  \uc5b4\ub838\uc744 \ub54c \uc800\ub294 \ub610\ub798 \uce5c\uad6c\ub4e4\ub9cc\ud07c \ube68\ub9ac \ub2ec\ub9ac\uc9c0 \ubabb\ud588\uace0, \uc608\ub97c \ub4e4\uc5b4 \uc190\uc744 \uc0ac\uc6a9\ud558\uc9c0 \uc54a\uace0 \ubc14\ub2e5\uc5d0\uc11c \uc77c\uc5b4\ub098 \ucda4\uc744 \ucd94\ub294 \ub370 \uc5b4\ub824\uc6c0\uc744 \uacaa\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>\ub124, \uc81c \uc544\ubc84\uc9c0, \uc0bc\ucd0c(\uc544\ubc84\uc9c0 \ucabd), \uce5c\ud560\uc544\ubc84\uc9c0\uac00\n\ud560\uc544\ubc84\uc9c0 \ubaa8\ub450 \uac19\uc740 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?\n\uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uc800\uc5d0\uac8c \uac00\uc7a5 \ud070 \ub3c4\uc804\uc740 \uc5b8\uc820\uac00\ub294\n\uc774\ub3d9\uc131\uc774 \uc9c0\uae08\ubcf4\ub2e4 \uc904\uc5b4\ub4e4\uace0 \ud604\uc7ac \uc81c\uac00 \uc88b\uc544\ud558\ub294 \ud65c\ub3d9\uc801\uc778 \ub77c\uc774\ud504\uc2a4\ud0c0\uc77c\uc744\n\uc9c0\uae08\ucc98\ub7fc \ud65c\ub3d9\uc801\uc778 \ub77c\uc774\ud504\uc2a4\ud0c0\uc77c\uc744 \uc774\uc5b4\uac08 \uc218 \uc5c6\uc744\uc9c0\ub3c4 \ubaa8\ub978\ub2e4\ub294 \ub450\ub824\uc6c0\uc785\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n\n\n\n<p>\uac00\uc7a5 \ud070 \uc131\uacfc\uac00 \ubb34\uc5c7\uc778\uc9c0 \uc798 \ubaa8\ub974\uaca0\uc2b5\ub2c8\ub2e4\ub9cc... \uc81c\uac00 \uc720\uc9c0\ud574 \uc628 \uac00\uc871\uacfc \uc6b0\uc815\uc758 \uc720\ub300\ub97c \uaf3d\uc544\uc57c \ud560 \uac83 \uac19\uc2b5\ub2c8\ub2e4.  \ub610\ud55c \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d 1D\ud615(LGMD1D) \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uac1c\uc778\ub4e4\uc774 \ub9cc\ub098\uace0, \uad00\ub828 \uc18c\uc2dd\uc744 \ud1b5\ud569\ud558\uace0, \uc5f0\uad6c \ubc1c\uc804\uc744 \uc704\ud55c \ubaa8\uae08 \ud65c\ub3d9\uc744 \ud3bc\uce60 \uc218 \uc788\ub294 \uc911\uc2ec \uc7a5\uc18c\ub97c \uc720\uc9c0\ud558\ub294 \uac83\uc744 \uc0ac\uba85\uc73c\ub85c \ud558\ub294 \ube44\uc601\ub9ac \uacf5\uc775 \uc7ac\ub2e8\uc778 LGMD-1D DNAJB6 \uc7ac\ub2e8\uc744 \ud1b5\ud574 \uc6b0\uc138\ud55c \ud615\ud0dc\uc758 LGMD\ub97c \uc704\ud574 \uc6b0\ub9ac\uac00 \uad6c\ucd95\ud55c \ucee4\ubba4\ub2c8\ud2f0\uc640 \uad6c\ucd95 \uc911\uc778 \ucee4\ubba4\ub2c8\ud2f0\ub3c4 \ube7c\ub193\uc744 \uc218 \uc5c6\uc8e0.&nbsp; <a href=\"https:\/\/lgmd1d.org\">https:\/\/lgmd1d.org<\/a> &nbsp;\ub610\ud55c \uc0c1\uc5fc\uc0c9\uccb4 \uc6b0\uc131 \ud615\ud0dc\uc758 LGMD\ub85c \uc9c4\ub2e8\ubc1b\uc740 \ubaa8\ub4e0 \ud658\uc790\ub97c \uc704\ud55c \ud658\uc790 \ub808\uc9c0\uc2a4\ud2b8\ub9ac\ub97c \uad6c\ucd95\ud588\uc2b5\ub2c8\ub2e4.&nbsp; <\/p>\n\n\n\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \ub2f9\uc2e0\uc774 \ub418\uae30\uae4c\uc9c0 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?\n\uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n\n\n\n<p>\uc800\ub294 \ud56d\uc0c1 \ubbf8\ub798\ub97c \uc0dd\uac01\ud558\uace0, \uc9c0\uae08 \ub0b4 \ud589\ub3d9\uc774 \ub0b4 \ubab8\uacfc \uc0ac\ub791\ud558\ub294 \uc0ac\ub78c\ub4e4, \ud0a4\uc6b0\uace0 \uc2f6\uc740 \uac00\uc871\uc5d0\uac8c\n\ub0b4 \ubab8\uacfc \uc0ac\ub791\ud558\ub294 \uc0ac\ub78c\ub4e4, \uadf8\ub9ac\uace0 \ub0b4\uac00 \ud0a4\uc6b0\uace0 \uc2f6\uc740 \uac00\uc871\uc5d0\uac8c \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\uce60\uc9c0 \ud56d\uc0c1 \uc0dd\uac01\ud558\uac8c \ub429\ub2c8\ub2e4.  \ub355\ubd84\uc5d0 \uc778\ub0b4\uc2ec\uc744 \uac16\uace0 \ub35c \uc721\uccb4\uc801\uc73c\ub85c\n\uc721\uccb4\uc801\uc73c\ub85c \ub35c \uaca9\ub82c\ud55c \ub77c\uc774\ud504\uc2a4\ud0c0\uc77c\uc744 \uc720\uc9c0\ud558\ub824\uace0 \ub178\ub825\ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n\n\n\n<p>\uc6b0\ub9ac\ub294 \uacc4\uc18d\ud574\uc11c\n\uc18c\ubb38\uc744 \ud37c\ub728\ub9ac\uace0 \uce58\ub8cc\uc5d0 \ub3c4\uc6c0\uc774 \ub418\ub294 \ubc29\uc2dd\uc73c\ub85c \uc5f0\uacb0\ud574\uc57c \ud569\ub2c8\ub2e4.  \uc608\ub97c \ub4e4\uc5b4, \uc0c1\uc5fc\uc0c9\uccb4 \uc6b0\uc131 LGMD\n(LGMD 1\ud615) \ud658\uc790 \ub4f1\ub85d\uc740 \uce58\ub8cc\ubc95\uc744 \uc5f0\uad6c\ud558\uace0 \ucc3e\ub294 \ub370 \ud544\uc218\uc801\uc785\ub2c8\ub2e4.<\/p>\n\n\n\n<p><strong>\ub9cc\uc57d \ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74\n\uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc785\ub2c8\uae4c?<\/strong>:<\/p>\n\n\n\n<p>\ub0b4\uc77c \uc644\uce58\ub418\uba74 \ucd95\ud558 \ucda4\uc744 \ucd94\ub7ec \uac08 \uac70\uc608\uc694!!! <\/p>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<p>\ub354 \ub9ce\uc740 'LGMD \uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0'\ub97c \uc77d\uac70\ub098 \ub2e4\uc74c \uc778\ud130\ubdf0\uc5d0 \ucd9c\uc5f0\uc744 \uc2e0\uccad\ud558\ub824\uba74 \ub2e4\uc74c \uc6f9\uc0ac\uc774\ud2b8\ub97c \ubc29\ubb38\ud558\uc138\uc694: <a href=\"https:\/\/www.lgmd-info.org\/ko\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD &#8220;SPOTLIGHT INTERVIEW&#8221; Name:&nbsp; Natasha&nbsp; Age: 25 years old Country: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":3179,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,102,104],"tags":[],"class_list":["post-3178","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd-d1-dnajb6-related","category-lgmd1d"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Natasha - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2020\/01\/12\/natasha\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" 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