{"id":3769,"date":"2020-12-03T09:38:38","date_gmt":"2020-12-03T15:38:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3769"},"modified":"2024-02-09T14:24:25","modified_gmt":"2024-02-09T14:24:25","slug":"individual-with-lgmd-saira","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","title":{"rendered":"LGMD\uc640 \ud568\uaed8\ud558\ub294 \uac1c\uc778 - Saira"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><strong><a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2020\/12\/LGMD2B-Saira-S.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-3772 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2020\/12\/LGMD2B-Saira-S-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/strong><\/p>\n<p><strong>\uc774\ub984<\/strong>:  : Saira<\/p>\n<p><strong>\ub098\uc774<\/strong>: 29<\/p>\n<p><strong>\uad6d\uac00<\/strong>: \uc544\ub78d\uc5d0\ubbf8\ub9ac\ud2b8\uc5d0 \uac70\uc8fc\ud558\ub294 \uc778\ub3c4\uc778<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong> (\uc54c\ub824\uc9c4 \uacbd\uc6b0): LGMD 2B\/R2 \ub514\uc2a4\ud398\ub9b0 \uad00\ub828<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n<p>\uc800\ub294 16\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. 2020\ub144 2\uc6d4\uc5d0 \uc720\uc804\uc790 \ud655\uc9c4 \ud310\uc815\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n<p>\uac11\uc790\uae30 \ub118\uc5b4\uc9c0\uac70\ub098 \ubc14\ub2e5\uc5d0 \uc549\uc558\ub2e4\uac00 \uc77c\uc5b4\ub098\ub294 \uac83\uc774 \uccab \ubc88\uc9f8 \uc99d\uc0c1\uc774\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694? <\/strong><\/p>\n<p>\uc544\ub2c8\uc694, \uc81c \uac00\uc871 \uc911 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc740 \uc5c6\uc2b5\ub2c8\ub2e4. LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc800\ubfd0\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?<\/strong><\/p>\n<p>\ud658\uacbd\uc801 \uc7a5\ubcbd\uacfc \ud720\uccb4\uc5b4 \uc811\uadfc\uc131. \ub0b4\uac00 \uac00\uc9c4 \ub2a5\ub825\uc5d0 \ub099\uc778\uc774 \ucc0d\ud788\uc9c0 \uc54a\ub294 \uace0\uc6a9 \uae30\ud68c.  LGMD\uc5d0 \uad00\uc2ec\uc774 \uc788\ub294 \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc758 \ubd80\uc871\uacfc \uc2e0\uc18d\ud55c \uc9c4\ub2e8 \ub300\uc751. LGMD\uc758 \uc9c4\ud589 \uacfc\uc815\uacfc \uc774 \uc9c8\ud658\uacfc \uad00\ub828\ub41c \uc9c0\uc18d\uc801\uc778 \ub3c4\uc804\uc5d0 \ub300\ucc98\ud558\ub294 \ubc29\ubc95. \uc77c\uc0c1\uc801\uc778 \ud65c\ub3d9\uc5d0 \ub3c4\uc6c0\uc774 \ub420 \uc218 \uc788\ub294 \uc7a5\ube44\uc758 \uc885\ub958\uc5d0 \ub300\ud55c \uc548\ub0b4\uac00 \uac70\uc758 \ub610\ub294 \uc804\ud600 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc544\ub78d\uc5d0\ubbf8\ub9ac\ud2b8\uc5d0 \uc788\ub294 \ud68c\uc0ac\uc5d0\uc11c \uc0c8\ub85c\uc6b4 \uc9c1\uc7a5\uc744 \uc2dc\uc791\ud588\ub294\ub370, \ud68c\uc0ac\uc5d0\uc11c \uc800\ub97c \ud3ec\uc6a9\ud558\uae30 \uc704\ud574 \uc7ac\ud0dd\uadfc\ubb34\ub97c \ud5c8\uc6a9\ud574 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uc774\uc81c \uc800\ub294 \ub9e4\uc77c Inclusive\uc5d0\uc11c \uae00\ub85c\ubc8c \uc601\ud5a5\ub825\uc744 \ucc3d\ucd9c\ud558\uace0 \uc628\ub77c\uc778\uacfc \uc624\ud504\ub77c\uc778\uc5d0\uc11c \ub354 \ub9ce\uc740 \uc0ac\ub78c\uc774 \uc138\uc0c1\uc744 \ub354 \uc27d\uac8c \uc774\uc6a9\ud560 \uc218 \uc788\ub3c4\ub85d \uc77c\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? <\/strong><\/p>\n<p>\uc778\uc0dd\uc5d0 \ub300\ud55c \uc0c8\ub85c\uc6b4 \uad00\uc810\uc744 \uac16\uac8c \ub418\uc5c8\uace0 \uc2dc\uac04\uacfc \ud604\uc7ac\uc758 \ub2a5\ub825\uc744 \uc18c\uc911\ud558\uac8c \uc0dd\uac01\ud558\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\ub0b4\uac00 \ub2e4\ub978 \uc0ac\ub78c\ucc98\ub7fc \uc721\uccb4\uc801\uc73c\ub85c \ubaa8\ub4e0 \uac83\uc744 \ud560 \uc218\ub294 \uc5c6\uc9c0\ub9cc, \uadf8\ub807\ub2e4\uace0 \ud574\uc11c \uc6b0\ub9ac \ubaa8\ub450\uac00 \ud3c9\ub4f1\ud558\uac8c \uacf5\uc720\ud558\ub294 \uc138\uc0c1\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce58\ub294 \ub370 \uae30\uc5ec\ud560 \uc218 \uc788\ub294 \uac83\uc774 \uc5c6\ub2e4\ub294 \ub73b\uc740 \uc544\ub2d9\ub2c8\ub2e4.<\/p>\n<p>LGMD\uc758 \ub04a\uc784\uc5c6\ub294 \uc9c0\uc6d0 \ub355\ubd84\uc5d0 \uac00\uc871\uc5d0 \ub300\ud574 \uc774\uc804\ubcf4\ub2e4 \ub354 \uac10\uc0ac\ud558\ub294 \ub9c8\uc74c\uc744 \uac16\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\ub355\ubd84\uc5d0 \ub9e4 \uc21c\uac04\uc744 \ub354\uc6b1 \uc0ac\ub791\ud558\uba70 \uc0b4\uc544\uac08 \uc218 \uc788\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n<p>\ud1f4\ud589\uc131 \uc9c8\ud658\uc774\uae30 \ub54c\ubb38\uc5d0 \uc9c4\ud589\ub418\uae30 \ub54c\ubb38\uc5d0 \uc624\ub298 \ud560 \uc218 \uc788\ub294 \uc77c\uc774 \ub0b4\ub144\uc5d0 \ud560 \uc218 \uc5c6\ub294 \uc77c\uc774 \ub420 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \uadf8\ub798\uc11c \uc800\ub294 \uc9c0\uae08 \ub2f9\uc7a5 \ud560 \uc218 \uc788\ub294 \ubaa8\ub4e0 \uc2e0\uccb4\uc801 \uc6c0\uc9c1\uc784\uc744 \uc990\uae30\ub824\uace0 \ub178\ub825\ud569\ub2c8\ub2e4. \uba38\ub9ac \ube57\ub294 \uac83\ubd80\ud130 \ud63c\uc790\uc11c \ucc28 \ud55c \uc794 \ub9c8\uc2dc\ub294 \uac83\uae4c\uc9c0 \uc18c\uc911\ud788 \uc5ec\uae30\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n<p>\uc800\ub294 \uc774 \uc9c8\ud658\uc774 \ud76c\uadc0 \uc9c8\ud658\uc774\ub77c\ub294 \uc0ac\uc2e4\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \ub204\uad6c\uc5d0\uac8c\ub098 \uc77c\uc5b4\ub0a0 \uc218 \uc788\ub294 \uc77c\uc785\ub2c8\ub2e4. \uc774 \uae00\uc744 \uc77d\uace0 \uc788\ub294 \uc5ec\ub7ec\ubd84\uc774 \uc774 \ubcd1\uc744 \uc553\uace0 \uc788\uc744 \uc218\ub3c4 \uc788\uace0, \uc5ec\ub7ec\ubd84\uc774 \ubaa8\ub974\ub294 \ub204\uad70\uac00\uac00 \uc774 \ubcd1\uc744 \uc553\uace0 \uc788\uc744 \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \ub9ce\uc740 \uc0ac\ub78c\ub4e4\uc774 \uc774 \uadfc\uc721 \uc18c\ubaa8\uc131 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\uc73c\uba70 \uce58\ub8cc\ubc95\uc744 \uae30\ub2e4\ub9ac\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ud32c\ub370\ubbf9\uacfc \uc804 \uc138\uacc4 \uacfc\ud559\uc790\ub4e4\uc774 \ubc31\uc2e0\uc744 \ucc3e\uae30 \uc704\ud574 \uc5b4\ub5bb\uac8c \uacbd\uc7c1\ud558\uace0 \uc788\ub294\uc9c0 \uc608\ub97c \ub4e4\uc5b4\ubcf4\uaca0\uc2b5\ub2c8\ub2e4. \ubc18\uba74 LGMD\uc758 \uacbd\uc6b0 \uc218\uc2ed \ub144 \ub3d9\uc548 \uc5f0\uad6c \uacb0\uacfc\uac00 \ub098\uc624\uc9c0 \uc54a\uace0 \uc788\ub294\ub370, \uc790\uae08 \ubd80\uc871\uc774\ub098 \uc815\ubd80 \uc9c0\uc6d0 \ubd80\uc871\uc774 \uadf8 \uc774\uc720 \uc911 \ud558\ub098\uc785\ub2c8\ub2e4. \uc99d\uc0c1\ubd80\ud130 \uc9c4\ub2e8\uc744 \ubc1b\uace0 LGMD\ub97c \ubc1b\uc544\ub4e4\uc774\uace0 \ud22c\ubcd1 \uc0dd\ud65c\uc744 \uc2dc\uc791\ud55c \ub0a0\uae4c\uc9c0 \uc678\ub85c\uc6b4 \uc5ec\uc815\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \ub0a8\ud3b8\uacfc \uac00\uc871, \uce5c\uad6c\ub4e4\uc758 \uc751\uc6d0\uc740 \ub9e4\uc77c \uc800\uc5d0\uac8c \uc6a9\uae30\ub97c \uc8fc\ub294 \ud798\uc774 \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc804\ubb38\uc758 \ubd80\uc871\uacfc \uc774\uc5d0 \ub300\ud55c \uc801\uc808\ud55c \uc9c0\uc2dd \ubd80\uc871\uc740 \uc81c\uac00 \ubcd1\uc6d0\uc744 \ubc29\ubb38\ud560 \ub54c\ub9c8\ub2e4 \uc9c1\uba74\ud558\ub294 \ubb38\uc81c\uc785\ub2c8\ub2e4. \uc7a5\ubcbd\uc774 \uc5c6\ub294 \ud658\uacbd\uc5d0\uc11c \uacf5\uac10\uc774 \ud544\uc694\ud569\ub2c8\ub2e4. \uc5b4\uc81c\ub294 \uac77\uace0 \uc788\uc5c8\ub294\ub370 \uc624\ub298\uc740 \ud720\uccb4\uc5b4\uac00 \ud544\uc694\ud574\uc694. \uc0ac\ub78c\ub4e4\uc774 LGMD\uc5d0 \ub300\ud574 \uc54c\uac8c \ub41c\ub2e4\uba74 \uc81c \uc0c1\ud0dc\ub97c \uc815\ub2f9\ud654\ud558\uae30\uac00 \ub354 \uc26c\uc6cc\uc9c8 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n<p>\uc81c\uac00 \ub300\ub2f5\ud558\ub294 \uc9c8\ubb38\uc740 \uac00\uc0c1\uc758 \uc9c8\ubb38\uc785\ub2c8\ub2e4. \uc2e4\uc81c\ucc98\ub7fc \ub300\ub2f5\ud558\uace0 \uc2f6\uc5c8\uace0 \uae0d\uc815\uacfc \ud76c\ub9dd\uc73c\ub85c \uadf8 \ub0a0\uc744 \uae30\ub300\ud569\ub2c8\ub2e4.<\/p>\n<p>\uadf8 \ub0a0\uc774 \uc544\uc9c1 \uba40\uc5c8\uc744 \uc218\ub3c4 \uc788\uace0 \uace7 \uc62c \uc218\ub3c4 \uc788\uc2b5\ub2c8\ub2e4. \uc885\uad50\uc801 \uc2e0\ub150\uc5d0 \ub530\ub77c \ubb34\ub98e\uc744 \uafc7\uace0 \uae30\ub3c4\ud558\uace0 \uc2f6\uc5b4\uc694. LGMD\uc640 \ud568\uaed8 \uc0b4\uba74\uc11c \ub354 \uc774\uc0c1 \ud560 \uc218 \uc5c6\uac8c \ub41c \ucda4\uacfc \uc2a4\ucf00\uc774\ud2b8\ub97c \ucd94\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc790\ub3d9\ucc28\ub97c \uc6b4\uc804\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \ub2e4\uc2dc \ub3c5\ub9bd\ud558\uace0 \uc2f6\uc2b5\ub2c8\ub2e4.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":3836,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3769","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-12-03T15:38:38+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD &#8211; 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