{"id":419,"date":"2015-03-12T21:50:04","date_gmt":"2015-03-13T02:50:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=312"},"modified":"2015-03-12T21:50:04","modified_gmt":"2015-03-13T02:50:04","slug":"donavon","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2015\/03\/12\/donavon\/","title":{"rendered":"LGMD \uac1c\uc778: \ub3c4\ub098\ubcf8"},"content":{"rendered":"

03\/12\/2015:<\/p>\n

\uc774\ub984<\/strong>: \ub3c4\ub098\ubcf8\u00a0 \ub098\uc774<\/strong>: 52\"LGMD2D<\/a><\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD2D<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 16\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\uc800\ub294 \ube68\ub9ac \ub2ec\ub9b4 \uc218 \uc5c6\uc5c8\uace0 \uacc4\ub2e8\uc744 \uc624\ub974\ub294 \ub370\ub3c4 \ubb38\uc81c\uac00 \uc788\uc5c8\uc5b4\uc694. \ub18d\uc7a5\uc5d0\uc11c \uc0b4\uc558\uae30 \ub54c\ubb38\uc5d0 \uc9d1\uc548\uc77c\uc744 \ud560 \ub54c \uc0ac\ub8cc \ud3ec\ub300\ub3c4 \uc81c\ub300\ub85c \ub4e4\uc9c0 \ubabb\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\ub124, \ub124 \uc790\ub9e4\uc640 \ub450 \uc870\uce74\uac00 LGMD\ub97c \uc0ac\uc6a9\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc218\ub144 \ub3d9\uc548 \uc81c\uac00 \ud544\uc694\ub85c \ud588\ub358 \ubaa8\ub4e0 \ub3c4\uc6c0\uc740 \ub9e4\ub144 \uacc4\uc18d\ub418\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ud6cc\ub96d\ud55c \uc544\ub0b4\uc640 \uc218\ub144 \ub3d9\uc548 \uc800\ub97c \ub3c4\uc640\uc900 \ud6cc\ub96d\ud55c \uce5c\uad6c\ub4e4\uc5d0\uac8c \ub9e4\uc6b0 \uac10\uc0ac\ud569\ub2c8\ub2e4. \uc81c \uc5ec\ub3d9\uc0dd \ubaa8\ub2c8\uce74\ub294 2012\ub144\uc5d0 LGMD \ud569\ubcd1\uc99d\uc73c\ub85c \uc138\uc0c1\uc744 \ub5a0\ub0ac\uae30 \ub54c\ubb38\uc5d0 \uc81c\uac00 \uc810\uc810 \uc57d\ud574\uc9c0\uace0 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \ub298 \ub9c8\uc74c \ud55c\uad6c\uc11d\uc5d0 \uac04\uc9c1\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uadfc\uc774\uc601\uc591\uc99d\uc73c\ub85c \uc720\uc804\uc790 \uce58\ub8cc\ub97c \ubc1b\uc740 \ucd5c\ucd08\uc758 \uc0ac\ub78c\uc785\ub2c8\ub2e4. \uc720\uc804\uc790 \uacb0\ud568\uc774 \ud655\uc778\ub41c \ud6c4 \ub9e4\ub2ec \uc758\uc0ac\uc5d0\uac8c \uc804\ud654\ub97c \uac78\uc5c8\uace0 \uccab \ubc88\uc9f8 \uc784\uc0c1\uc2dc\ud5d8\uc774 \uc2dc\uc791\ub418\uc5c8\uc744 \ub54c \uc800\ub294 \uc790\uc6d0\ud588\uc2b5\ub2c8\ub2e4. \uc720\uc804\uc790 \uce58\ub8cc\ub294 \ubbf8\uad6d \uc0c1\uc6d0\uc5d0\uc11c \uc99d\uc5b8\ud558\uba74\uc11c \uc800\uc5d0\uac8c \ub9ce\uc740 \uae30\ud68c\ub97c \uc5f4\uc5b4\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc6cc\uc2f1\ud134 DC\uc5d0\uc11c \ucd5c\ucd08\uc758 MD \ucf00\uc5b4 \ubc95\uc548 \ub85c\ube44\ub97c \ub3c4\uc654\uc2b5\ub2c8\ub2e4. \ub610\ud55c 6\ub144 \ub3d9\uc548 \uad6d\ub9bd\ubcf4\uac74\uc6d0\uc758 \uac10\ub3c5\uc704\uc6d0\ud68c\uc5d0\uc11c \ud65c\ub3d9\ud558\uae30\ub3c4 \ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \ud604\uc7ac\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong>:<\/strong><\/p>\n

\uadfc\uc774\uc601\uc591\uc99d \ub54c\ubb38\uc5d0 \uc77c\uc790\ub9ac\ub97c \uad6c\ud558\uae30 \uc704\ud574 \ub354 \uc5f4\uc2ec\ud788 \uc2f8\uc6cc\uc57c \ud588\ub358 \uac83 \uac19\uc544\uc694... \uc5b4\ub5a4 \uc0ac\ub78c\ub4e4\uc740 \uc81c\uac00 \uadfc\uc774\uc601\uc591\uc99d\uc774 \uc788\ub2e4\ub294 \uc18c\uc2dd\uc744 \ub4e3\uac70\ub098 \ud720\uccb4\uc5b4\ub97c \ud0c4 \uc800\ub97c \ubcf4\uace0 \uc544\ubb34\uac83\ub3c4 \ud560 \uc218 \uc5c6\ub2e4\uace0 \uc0dd\uac01\ud558\uc8e0. \uadf8 \uacb0\uacfc \uc800\ub294 \uc0b6\uc758 \uc5ec\ub7ec \uce21\uba74\uc5d0\uc11c \ub9e4\uc6b0 \ub2e8\ud638\ud558\uace0 \ub099\uad00\uc801\uc778 \uc811\uadfc \ubc29\uc2dd\uc744 \uac1c\ubc1c\ud588\uc2b5\ub2c8\ub2e4. \ub2e4\ub978 \uc7a5\uc560\uc778\ub4e4\uc774 \ub9e4\uc77c \uacaa\ub294 \uc5b4\ub824\uc6c0\uc744 \uc54c\uae30 \ub54c\ubb38\uc5d0 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc744 \ub2e4\ub974\uac8c \ubcf4\uac8c \ub418\uc8e0. \uc5b8\uc820\uac00 \uc81c\uac00 \uc0b4\uc544 \uc788\ub294 \ub3d9\uc548 \uce58\ub8cc\ubc95\uc774 \uc5c6\ub2e4\uba74 \ucc9c\uad6d\uc5d0\ub294 \uc9c8\ubcd1\uc774 \uc5c6\uc744 \uac83\uc774\uae30 \ub54c\ubb38\uc5d0 \uc81c\uac00 \uae30\ub3c5\uad50\uc778\uc778 \uac83\uc5d0 \uac10\uc0ac\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n

\uc800\ub294 \uc6b0\ub9ac\uac00 \uce58\ub8cc\ubc95\uc774\ub098 \uc644\uce58\uc5d0 \ub9e4\uc6b0 \uac00\uae4c\uc6cc\uc84c\ub2e4\uace0 \ubbff\uc2b5\ub2c8\ub2e4. \uc800\ub294 1999\ub144\uc5d0 \ucd5c\ucd08\uc758 \uc720\uc804\uc790 \uce58\ub8cc \uc2dc\ud5d8\uc5d0 \ucc38\uc5ec\ud588\uc73c\uba70, \ud608\uc561 \uc2dc\uc2a4\ud15c\uc744 \uc0ac\uc6a9\ud558\uc5ec \uc0c8\ub85c\uc6b4 \ubca1\ud130\ub97c \uc804\ub2ec\ud560 \ub2e4\uc74c \uc720\uc804\uc790 \uce58\ub8cc \uc2dc\ud5d8\uc774 \uc2dc\uc791\ub418\ub294 \uac83\uc744 \ubcf4\uac8c \ub418\uc5b4 \ub9e4\uc6b0 \uae30\uc069\ub2c8\ub2e4.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\ubc34\uc744 \uc6b4\uc804\ud558\ub294 \ub300\uc2e0 \uc2b9\uc6a9\ucc28\ub098 \ud53d\uc5c5\ud2b8\ub7ed\uc744 \uc6b4\uc804\ud569\ub2c8\ub2e4. \uc5b8\uc820\uac00 \ub610 \ub2e4\ub978 \ud3f0\ud2f0\uc545 GTO\ub97c \uac16\uace0 \uc2f6\uc5b4\uc694.<\/p>","protected":false},"excerpt":{"rendered":"

03\/12\/2015: Name: Donavon\u00a0 Age: 52 Country: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":313,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[29,16],"class_list":["post-419","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Donavon<\/title>\n<meta name=\"description\" content=\"Donavon, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2015\/03\/12\/donavon\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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