{"id":5172,"date":"2021-05-17T20:23:28","date_gmt":"2021-05-17T20:23:28","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5172"},"modified":"2024-02-09T14:24:21","modified_gmt":"2024-02-09T14:24:21","slug":"5172","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","title":{"rendered":"LGMD \uac1c\uc778: \ub9c8\ub9ac\uc544"},"content":{"rendered":"
\"Lgmd1b<\/span><\/div>

\u00a0<\/strong><\/p>\n

\uc774\ub984<\/strong>: Maria \ub098\uc774<\/strong>: 29\uc138<\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 1B<\/p>\n

 <\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>:<\/p>\n

\ucc98\uc74c\uc5d0 \uc800\ub294 2\uc0b4 \ub54c SMA \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uadf8 \ud6c4 15\uc0b4\uc5d0 \uc0ac\uc9c0 \uac70\ub4e4 \uadfc\uc774\uc601\uc591\uc99d\uc73c\ub85c \uc7ac\uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>:<\/p>\n

\ubd80\ubaa8\ub2d8\uc740 \uc81c\uac00 17\uac1c\uc6d4\uae4c\uc9c0 \uac77\uc9c0 \ubabb\ud588\ub2e4\uace0 \ud558\uc168\uc5b4\uc694. \uc800\ub294 \ub4a4\ub6b1\uac70\ub9ac\uba70 \uac78\uc5c8\uace0 \uc720\uc544\uae30\uc5d0\ub294 \uc549\uc740 \uc790\uc138\uc5d0\uc11c \uc77c\uc5b4\ub098\uae30 \uc704\ud574 \ud314\uc744 \uc0ac\uc6a9\ud558\uae30\ub3c4 \ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\uc544\ub2c8\uc694, \uac00\uc871 \uc911 LGMD\ub97c \uc0ac\uc6a9\ud558\ub294 \uc0ac\ub78c\uc740 \uc800\ubfd0\uc785\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uc815\uc2e0\uc801\uc73c\ub85c\uc694: \uc815\uc0c1\uc801\uc778 \uc0b6\uc744 \uc0b4\uc9c0 \ubabb\ud55c\ub2e4\ub294 \uac00\uc815\uc774 \uc800\uc5d0\uac8c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc785\ub2c8\ub2e4. \uc721\uccb4\uc801\uc73c\ub85c\ub3c4\uc694: \ubab8\uc774 \uc57d\ud574\uc84c\uc744 \ub54c \uc774\ub97c \ubc1b\uc544\ub4e4\uc774\ub294 \ubc95\uc744 \ubc30\uc6b0\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\uba74\ud5c8\uc99d\uacfc \uc81c \ucc28\ub97c \uc5bb\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8 \uacfc\uc815\uc740 2\ub144\uc774\ub77c\ub294 \uae34 \uc2dc\uac04\uc774 \uac78\ub838\uc2b5\ub2c8\ub2e4. \ub05d\uc774 \ubcf4\uc774\uc9c0 \uc54a\ub294 \uac83 \uac19\uc558\uc5b4\uc694. \uc81c \ucc28\uac00 \uc0dd\uae30\uba74\uc11c \uc81c \uc0b6\uc774 \ubc14\ub00c\uc5c8\uace0 \uac00\ub2a5\ud55c \ud55c \ub3c5\ub9bd\uc801\uc73c\ub85c \uc9c0\ub0bc \uc218 \uc788\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

\uadf8\uac83\uc740 \ud655\uc2e4\ud788 \uc81c \uc131\uaca9\uacfc \uc800\ub97c \ud615\uc131\ud588\uc2b5\ub2c8\ub2e4. \uc800\uc758 \uce58\uc5f4\ud55c \uc131\uaca9\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc5d0\uac8c \uc6b0\ub9ac\uac00 \ud560 \uc218 \uc788\ub2e4\ub294 \uac83\uc744 \ubcf4\uc5ec\uc8fc\uaca0\ub2e4\ub294 \uacb0\uc2ec\uc5d0\uc11c \ube44\ub86f\ub41c \uac83\uc785\ub2c8\ub2e4. \uc800\uc758 \uc5f4\uc815\uc801\uc778 \uba74\uc740 \uc5b4\ub838\uc744 \ub54c\ubd80\ud130 \uacc4\uc18d \uc2f8\uc6cc\uc628 \ub370\uc11c \ube44\ub86f\ub41c \uac83\uc774\uc8e0. \uc7a5\uc560\ub97c \uac00\uc9c0\uace0 \uc790\ub77c\uba74\uc11c \uc800\ub294 \uc0c1\uc0c1\ud560 \uc218 \uc788\ub294 \uadf8 \uc774\uc0c1\uc758 \ubaa8\uc2b5\uc73c\ub85c \uc131\uc7a5\ud588\uc2b5\ub2c8\ub2e4. \uc774 \ubcd1\uc774 \uc800\ub97c \ubaa8\ub450\uac00 \uc544\ub294 \ub9c8\ub9ac\uc544\ub85c \ub9cc\ub4e4\uc5b4 \uc8fc\uc5c8\ub2e4\ub294 \uac83\uc744 \uc54c\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>:<\/p>\n

\ud76c\uadc0 \uc9c8\ud658\uc73c\ub85c \uac04\uc8fc\ub418\uc5b4 \uce58\ub8cc\ubc95\uc774\ub098 \uce58\ub8cc\uc81c\uac00 \uc5c6\ub2e4\ub294 \uac83\uc744 \uc0ac\ub78c\ub4e4\uc5d0\uac8c \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \ub610\ud55c \uc0b0 \uc815\uc0c1\uc5d0\uc11c MS\uac00 \uc544\ub2c8\ub77c\uace0 \uc678\uce58\uace0 \uc2f6\uc2b5\ub2c8\ub2e4!<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>:<\/p>\n

\ub2e4\uc12f \uba85\uc758 \uc870\uce74\ub4e4\uc744 \ub370\ub9ac\ub7ec \ub2ec\ub824\uac00\uace4 \ud588\uc8e0. \uc1fc\ud551\ubab0\uc5d0 \uac00\uc11c \uc637\uc774 \ub108\ubb34 \ub9d0\ub77c\uc11c \uc548 \ub9de\ub294\ub2e4\uace0 \uac71\uc815\ud560 \ud544\uc694 \uc5c6\uc774 \uc637\uc744 \uace0\ub974\uace4 \ud588\uc8e0. \uadf8\ub9ac\uace0 \ud37c\ud305\uc744 \ud558\ub7ec \uac00\uaca0\uc8e0. \uc81c \uc5b4\ub9b0 \uc2dc\uc808\uc758 \ud070 \ubd80\ubd84\uc744 \ucc28\uc9c0\ud588\ub358 \uadf8 \uc2dc\uc808\uc774 \uc815\ub9d0 \uadf8\ub9ac\uc6cc\uc694. \uc544\ubc84\uc9c0\ub294 \uc5b4\ub838\uc744 \ub54c \uac70\uc758 \ub9e4\uc8fc \uc800\uc640 \uc5ec\ub3d9\uc0dd\ub4e4\uc744 \ub370\ub9ac\uace0 \uace8\ud504\uc7a5\uc5d0 \uac00\uc168\uae30 \ub54c\ubb38\uc5d0 \uace8\ud504\ub294 \uc81c\uac00 \uac00\uc7a5 \uc88b\uc544\ud558\ub294 \uc77c \uc911 \ud558\ub098\uac00 \ub418\uc5c8\uc8e0.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5173,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[],"class_list":["post-5172","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD:\u00a0 Maria - 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