{"id":5212,"date":"2021-03-03T18:35:03","date_gmt":"2021-03-03T18:35:03","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5212"},"modified":"2024-02-09T14:24:22","modified_gmt":"2024-02-09T14:24:22","slug":"individual-with-lgmd-kae","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/03\/03\/individual-with-lgmd-kae\/","title":{"rendered":"LGMD \uac1c\uc778: Kae"},"content":{"rendered":"
\"Lgmd2b<\/span><\/div>

\uc774\ub984<\/strong>: Kae\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \ub098\uc774<\/strong>: 29\uc138<\/p>\n

\uad6d\uac00<\/strong>: \uce90\ub098\ub2e4<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2B\/R2 \ub514\uc2a4\ud398\ub9b0 \uad00\ub828 \/ \ubbf8\uc694\uc2dc \uadfc\ubcd1\uc99d<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\ub098\uc694?<\/strong><\/p>\n

\uc800\ub294 17\uc0b4 \ub54c LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \uc5b4\ub5a4 \uac83\uc774\uc5c8\ub098\uc694?<\/strong><\/p>\n

\ubc1c\ub05d\uc73c\ub85c \uac77\uac70\ub098, \ub192\uc774 \ub6f0\uac70\ub098, \ud55c \ubc88\uc5d0 \ub450 \uacc4\ub2e8\uc529 \uc624\ub974\uac70\ub098, \ube60\ub974\uac8c \ucd9c\ubc1c\ud560 \uc218 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n

14\uc138 \uc804\ud6c4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\ub124, \uc81c \uc624\ube60\ub3c4 LGMD\ub97c \uac00\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc774\ub77c\uace0 \uc0dd\uac01\ud558\uc2dc\ub098\uc694?<\/strong><\/p>\n

\uac00\uc7a5 \ud070 \uacfc\uc81c\ub294 \uc548\uc804\uacfc \ub3c5\ub9bd\uc131\uc774\uba70, \uadf8\ub2e4\uc74c\uc73c\ub85c \uc0ac\ud68c\uc801\/\uc5f0\uc560\uc801\/\uace0\uc6a9 \uce21\uba74\uc774 \ub4a4\ub97c \uc774\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n

18\uc138\uc5d0 \uc9d1\uc744 \ub098\uc640 \ud559\uc0ac \ud559\uc704\uc640 \uc815\uc2dd \uc6b4\uc804\uba74\ud5c8\ub97c \ucde8\ub4dd\ud558\uace0 \ub0b4 \ucc28\ub97c \uc18c\uc720\ud558\uace0 \ud504\ub9ac\ub79c\uc11c\/\uc639\ud638 \ud65c\ub3d9\uc744 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

\uac10\uc0ac\ub97c \ud1b5\ud574 \uc778\uc0dd\uc758 \uc791\uc740 \uac83\ub4e4\uc744 \ub2f9\uc5f0\ud558\uac8c \uc5ec\uae30\uc9c0 \uc54a\uac8c \ub418\uc5c8\uc5b4\uc694... \uc800\ub294 \ub9e4\uc77c \uac10\uc0ac\uc640 \ub9c8\uc74c\ucc59\uae40\uc744 \uc2e4\ucc9c\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc81c\uac00 \uc0c1\uc0c1\ud588\ub358 \uac83\ubcf4\ub2e4 \ub354 \uc720\ub2a5\ud558\uace0 \uac15\ud558\ub2e4\ub294 \uac83\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc774\uc81c \uc5ed\uacbd\uc744 \uc798 \uadf9\ubcf5\ud558\uace0 \ub300\ucc98\ud558\uba70 \uc774 \uc5ec\uc815 \ub355\ubd84\uc5d0 \ud6e8\uc52c \ub354 \uc601\uc801\uc778 \uc0ac\ub78c\uc774 \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \ub610\ud55c \uc815\uc2e0 \uac74\uac15\uc744 \uc6b0\uc120\uc2dc\ud558\uace0 \ub0b4\uac00 \ud1b5\uc81c\ud560 \uc218 \uc788\ub294 \uac83\uc5d0 \uc9d1\uc911\ud558\ub294 \uac83\uc758 \uac00\uce58\ub3c4 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc138\uc0c1\uc5d0 \uc5b4\ub5a4 \uc810\uc744 \uc54c\ub9ac\uace0 \uc2f6\uc73c\uc2e0\uac00\uc694?<\/strong><\/p>\n

\uace0\ub9bd\ub418\uace0 \ub208\uc5d0 \ubcf4\uc774\uc9c0 \uc54a\ub294 \uc9c8\ubcd1\/\uc7a5\uc560\uc77c \uc218 \uc788\uc2b5\ub2c8\ub2e4... \uc6b0\ub9ac\uac00 \uadf8\uac83\uc5d0 \ub300\ud574 \uc774\uc57c\uae30\ud558\uc9c0 \uc54a\ub294\ub2e4\uace0 \ud574\uc11c \uc6b0\ub9ac\uac00<\/p>\n

\ud798\ub4e4\uc5b4\ud558\uc9c0 \uc54a\uace0 \uc815\uc2e0\uc801\/\uc815\uc11c\uc801\uc73c\ub85c\ub3c4 \uc601\ud5a5\uc744 \ubbf8\uce58\uc9c0 \uc54a\uae30\ub97c \ubc14\ub78d\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \ub354 \ub9ce\uc740 \uac83\uc744 \ubcf4\uace0 \uc2f6\uc2b5\ub2c8\ub2e4<\/p>\n

\uc6b0\ub9ac\uc758 \uc7a5\uc560\ub97c \uc778\uc815\ud558\uace0 \uc774\ud574\ud574 \uc8fc\uc168\uc73c\uba74 \ud569\ub2c8\ub2e4.<\/p>\n

\ub0b4\uc77c LGMD\ub97c '\uce58\ub8cc'\ud560 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n

\ucda4\uc744 \ucd94\uace0 \uc2f6\uc5b4\uc694!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5213,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-5212","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Kae - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/03\/03\/individual-with-lgmd-kae\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta 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