{"id":5356,"date":"2021-06-08T19:13:33","date_gmt":"2021-06-08T19:13:33","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5356"},"modified":"2024-02-09T14:24:05","modified_gmt":"2024-02-09T14:24:05","slug":"individual-with-lgmd-jasmine","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/06\/08\/individual-with-lgmd-jasmine\/","title":{"rendered":"LGMD \uac1c\uc778: \uc790\uc2a4\ubbfc"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><img decoding=\"async\" class=\"lazyload size-medium wp-image-5355 alignright\" src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-300x169.png\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-300x169.png\" alt=\"Jasmine\" width=\"300\" height=\"169\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-200x113.png 200w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-300x169.png 300w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-400x225.png 400w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-600x338.png 600w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-768x432.png 768w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-800x450.png 800w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-1024x576.png 1024w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R-1200x675.png 1200w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD2A-Jasmine-R.png 1280w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p><strong>\uc774\ub984<\/strong>: \uc790\uc2a4\ubbfc<\/p>\n<p><strong>\ub098\uc774<\/strong>: 24\uc138<\/p>\n<p><strong>\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2A\/R1 \uce7c\ud30c\uc778 3 \uad00\ub828<\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>?<\/p>\n<p>\uc800\ub294 \ucd5c\uadfc\uc5d0 24\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\uccab \uc99d\uc0c1\uc740 \uc5b4\ub5a4 \uac83\uc774\uc5c8\ub098\uc694? <\/strong><\/p>\n<p>\ubc1c\uac00\ub77d\uc73c\ub85c \uac77\ub294 \uac83\uc774 \uc81c \uccab \uc99d\uc0c1\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \uc5b4\ub838\uc744 \ub54c\ubd80\ud130 \ud798\uc774 \uc57d\ud55c \uac83\uc744 \ub290\uaf08\uc5b4\uc694. \ucd08\ub4f1\ud559\uad50 \ub54c \uc0c1\ub300 \ud300\uacfc \ub18d\uad6c\ub97c \ud560 \ucc28\ub840\uac00 \ub418\uba74 \ubc14\ub2e5\uc5d0\uc11c \uc77c\uc5b4\ub098 \ucf54\ud2b8 \ubc18\ub300\ud3b8\uc73c\ub85c \ub2ec\ub824\uac00\ub294 \ub370 \uc2dc\uac04\uc774 \uc624\ub798 \uac78\ub838\ub358 \uae30\uc5b5\uc774 \ub0a9\ub2c8\ub2e4. \uc800\ub294 \ubb34\ub98e\uc5d0 \uc190\uc744 \uc5b9\uace0 \uc77c\uc5b4\uc130\uc5b4\uc694. \uc911\ud559\uad50 \ub54c\ub294 \uacc4\ub2e8\uc744 \uc624\ub974\ub0b4\ub9b4 \ub54c \ub2e4\ub9ac\uc5d0 \ud798\uc774 \uc57d\ud574\uc9c0\uae30 \uc2dc\uc791\ud574\uc11c \uacc4\ub2e8\uc744 \ud53c\ud558\uae30 \uc2dc\uc791\ud588\uc5b4\uc694. \uadf8\ub7ec\ub2e4 \uac11\uc790\uae30 \ubcf4\ub3c4\ube14\ub85d\uc744 \ubc1f\uace0 \uc62c\ub77c\uac08 \uc218 \uc5c6\uac8c \ub418\uc5c8\uc8e0. \uacc4\ub2e8\uc744 \uc624\ub97c \ub54c \ubc14\uc9c0\ub85c \ub2e4\ub9ac\ub97c \ub4e4\uc5b4 \uc62c\ub824\uc57c\ub9cc \ud588\uc5b4\uc694.<\/p>\n<p><strong>LGMD\ub97c \uc553\uace0 \uc788\ub294 \ub2e4\ub978 \uac00\uc871\uc774 \uc788\ub098\uc694?<\/strong><strong>?<\/strong><\/p>\n<p>\uc800\ub294 \uac00\uc871 \uc911 LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc720\uc77c\ud55c \uc0ac\ub78c\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n<p>LGMD\uc640 \ud568\uaed8 \uc0b4\uba74\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \uac00\ub2a5\ud55c \ud55c \ub3c5\ub9bd\uc131\uc744 \uc720\uc9c0\ud558\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694? <\/strong><\/p>\n<p>\uc800\ub294 \ucd5c\uadfc \uc870\uc9c0\uc544 \uad70\uc0ac \ub300\ud559\uc5d0\uc11c \uc911\ub4f1 \uad50\uc721 \uc900\ud559\uc0ac \ud559\uc704\ub97c \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uc774\uc81c \ucd5c\uace0\uc758 \"\uc870\uc9c0\uc544 \ub300\ud559\uad50\"\uc5d0\uc11c \uc911\ub4f1 \uad50\uc721\uc744 \uc804\uacf5\ud558\ub294 \uc0c8\ub85c\uc6b4 \ud3b8\uc785\uc0dd\uc774 \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc88b\uc740 \uc18c\uc2dd\uc740 \ud559\uc0ac \ud559\uc704\uc640 \uc11d\uc0ac \ud559\uc704\ub97c \ub3d9\uc2dc\uc5d0 \ucde8\ub4dd\ud560 \uc218 \uc788\ub294 \ubcf5\uc218 \uc804\uacf5 \ud504\ub85c\uadf8\ub7a8\uc744 \ubc1f\uace0 \uc788\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4! \uc800\ub294 \uc218\ud559 \uad50\uc0ac(\uc88b\uc544\ud558\ub294 \uacfc\ubaa9)\uac00 \ub420 \uacc4\ud68d\uc785\ub2c8\ub2e4. \ucd5c\uc885\uc801\uc73c\ub85c\ub294 \uc11d\uc0ac \uacfc\uc815\uc758 \uc9c4\ud589 \uc0c1\ud669\uc5d0 \ub530\ub77c \uc81c \uacbd\ub825 \ubaa9\ud45c\ub97c \uc870\uae08 \ub354 \ubc1c\uc804\uc2dc\ud0ac \uacc4\ud68d\uc785\ub2c8\ub2e4. \ubc31\uc5c5 \ub610\ub294 \ucd5c\uc885 \uc635\uc158\uc73c\ub85c \ub300\ubd80\ubd84\uc758 \uc2dc\uac04\uc744 \uc9d1\uc5d0 \uba38\ubb3c\uba74\uc11c \uc601\uc5b4 \ub610\ub294 \uc218\ud559\uc758 \ud544\uc218 \uacfc\ubaa9\uc744 \uac00\ub974\uce58\ub294 \uc628\ub77c\uc778 \ub300\ud559 \uad50\uc218\uac00 \ub420 \uacc4\ud68d\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \ud604\uc7ac\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><strong>?<\/strong><\/p>\n<p>LGMD\ub97c \uac00\uc9c4 \ub355\ubd84\uc5d0 \uc5b4\ub5a4 \uc0c1\ud669\uc5d0 \uc9c1\uba74\ud558\ub354\ub77c\ub3c4 \ub9e4\uc6b0 \uacb8\uc190\ud558\uace0 \uc778\ub0b4\uc2ec\uc744 \uac16\uac8c \ub418\uc5c8\uc5b4\uc694. \ub610\ud55c, \ud2b9\ud788 \uc9c0\uae08 \uc774 \ub098\uc774\uc5d0 MD\uc640 \ud568\uaed8 \uc774 \uc138\uc0c1\uc744 \ud5e4\uccd0\ub098\uac00\ub294 \ub300\ud559\uc5d0 \ub2e4\ub2c8\ub294 \uc80a\uc740 \uc5ec\uc131\uc73c\ub85c\uc11c \uc9d1\uacfc \uc9d1\uc744 \uc624\uac08 \ub54c \uc81c \uc790\uc2e0\uc744 \uc218\uc6a9\ud558\uae30 \uc704\ud55c \uba4b\uc9c4 \ud301\uc744 \ub9ce\uc774 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4!<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>?<\/p>\n<p>\uc800\ub294 LGMD\uac00 \ub2e4\ub978 \uc7a5\uc560\uc640 \ub2e4\ub974\ub2e4\ub294 \uac83\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \ub118\uc5b4\uc9c0\uba74 \ubc14\ub2e5\uc5d0\uc11c \uc77c\uc5b4\ub0a0 \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \uadf8\ub807\uae30 \ub54c\ubb38\uc5d0 \ud314\uc744 \uc7a1\uace0 \uc77c\uc5b4\ub0a0 \uc218 \uc788\ub3c4\ub85d \ub3c4\uc640\uc8fc\ub294 \uac83\uc740 \uc6b0\ub9ac \ub300\ubd80\ubd84\uc5d0\uac8c \ud6a8\uacfc\uac00 \uc5c6\uc2b5\ub2c8\ub2e4. \ub9d0 \uadf8\ub300\ub85c \ubab8\uc744 \uc77c\uc73c\ucf1c \uc138\uc6b0\ub824\uba74 \ud5c8\ub9ac\ub97c \uc7a1\uc544\ub2f9\uaca8\uc57c\ub9cc \uc11c \uc788\uc744 \uc218 \uc788\ub294 \uc790\uc138\ub97c \ucde8\ud560 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \uc6b0\ub9ac \ubab8\uc774 \uacfc\ub85c\ud558\uba74 \ud68c\ubcf5\ud558\ub294 \ub370 \uba70\uce60\uc774 \uac78\ub9b4 \uc218 \uc788\uc2b5\ub2c8\ub2e4. \ube44\uc7a5\uc560\uc778\ub4e4\uc774 \ud560 \uc218 \uc788\ub294 \uac04\ub2e8\ud55c \uc791\uc5c5\ub3c4 \uc6b0\ub9ac\ub294 \ud560 \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \ub610\ud55c \ud2b9\uc815 \uc791\uc5c5\uc744 \uc2e4\uc81c\ub85c \uc218\ud589\ud558\uae30 \uc804\uc5d0 \uc0dd\uac01\ud574\uc57c \ud569\ub2c8\ub2e4. \uc774 \uc9c8\ubcd1\uc73c\ub85c \uc778\ud574 \uc6b0\ub9ac\ub294 \uac00\uae30 \uc804\uc5d0 \ubaa8\ub4e0 \uc7a5\uc18c\uc5d0 \uc811\uadfc \uac00\ub2a5\ud55c\uc9c0, \ud3b8\uc758\uc2dc\uc124\uc774 \uc788\ub294\uc9c0 \ud655\uc778\ud574\uc57c \ud558\ub294 \uacbd\ud5a5\uc774 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \ub2e4\uc74c\uacfc \uac19\uc740 \uacbd\uc6b0 <\/strong><strong>\"<\/strong><strong>\ub0b4\uc77c \"\uc644\uce58\"\ub41c\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc77c\uae4c\uc694?<\/strong>?<\/p>\n<p>\ub0ae\uc740 \uc758\uc790\uc5d0\uc11c \uc77c\uc5b4\ub098\uace0 \uc2f6\uc740\ub370, \ud604\uc7ac LGMD\uc5d0\uc11c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0 \uc911 \ud558\ub098\uc774\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5355,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,70],"class_list":["post-5356","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Jasmine - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, 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