{"id":5582,"date":"2021-12-12T18:05:10","date_gmt":"2021-12-12T18:05:10","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5582"},"modified":"2024-02-09T14:23:57","modified_gmt":"2024-02-09T14:23:57","slug":"individual-with-lgmd-soralla","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","title":{"rendered":"LGMD \uac1c\uc778: \uc18c\ub784\ub77c"},"content":{"rendered":"

\"Lgmd2a<\/p>\n

LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\" <\/strong><\/p>\n

N<\/strong>ame<\/strong>: \uc18c\ub784\ub77c<\/p>\n

\ub098\uc774<\/strong>: 28<\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2A\/R1 \uce7c\ud30c\uc778 3 \uad00\ub828<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>?<\/p>\n

\uc800\ub294 23\uc0b4\uc5d0 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \uc5b4\ub5a4 \uac83\uc774\uc5c8\ub098\uc694?<\/strong><\/p>\n

\ucc98\uc74c\uc5d0\ub294 \ud558\uccb4\uc5d0 \uac00\ubcbc\uc6b4 \ud798\uc774 \ube60\uc9c0\uace0 \uacc4\ub2e8\uc744 \uc608\uc804\ucc98\ub7fc \ube68\ub9ac \uc624\ub974\uac70\ub098 \uccb4\uc721 \uc2dc\uac04\uc5d0 4\ub4f1\uc11d\uc5d0 \uc549\uc544 \uc788\uc744 \ub54c \ubc14\ub2e5\uc5d0\uc11c \uc77c\uc5b4\ub098\uae30\uac00 \uc5b4\ub824\uc6e0\uc2b5\ub2c8\ub2e4. \uc774\ub7ec\ud55c \uc99d\uc0c1\uc740 11th<\/sup> \uace0\ub4f1\ud559\uad50 3\ud559\ub144 \ub54c\uc694. \ud558\uc9c0\ub9cc \uc800\ub294 23\uc0b4\uc774 \ub418\uc5b4\uc11c\uc57c \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911 LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \uc0ac\ub78c\uc740 \uc5c6\uc2b5\ub2c8\ub2e4. \ub3d9\uc0dd\uc774 \ub458 \uc788\ub294\ub370 \uc544\uc9c1 \uac80\uc0ac\ub97c \ubc1b\uc9c0 \uc54a\uc558\uc9c0\ub9cc 23\uc138\uac00 \ub118\uc5c8\uace0 \ub458 \ub2e4 \ud604\uc7ac\ub85c\uc11c\ub294 \uc798 \uc9c0\ub0b4\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

\uac1c\uc778\uc801\uc73c\ub85c \uc800\uc5d0\uac8c \uac00\uc7a5 \ud070 \ub3c4\uc804\uc740 \uc81c\uac00 \ubcc0\ud574\uac00\ub294 \ubaa8\uc2b5\uc744 \ubc1b\uc544\ub4e4\uc774\ub294 \uac83\uc785\ub2c8\ub2e4. \uc81c\uac00 \uacaa\uace0 \uc788\ub294 \ub9ce\uc740 \ubcc0\ud654\uac00 \uc81c\uac00 \uc120\ud0dd\ud55c \uac83\uc774 \uc544\ub2c8\uba70 \uc81c\uac00 \ud1b5\uc81c\ud560 \uc218 \uc5c6\ub294 \uc77c\uc774\ub77c\ub294 \uac83\uc744 \uae68\ub2ec\uc744 \ub54c\uac00 \ub9ce\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4. \uadf8 \uc911 \ud558\ub098\ub294 \uc81c \uc2a4\uc2a4\ub85c\ub97c \uc9c0\ud0a4\uae30 \uc704\ud55c \ub3c5\ub9bd\uc131\uc744 \uc11c\uc11c\ud788 \uc783\uc5b4\uac00\uace0 \uc788\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \ub9e4\uc6b0 \ub3c5\ub9bd\uc801\uc778 \uc0b6\uc744 \uc0b4\uba74\uc11c \uc138\uc0c1\uc774 \ub0b4 \uac83\uc778 \uac83\ucc98\ub7fc \ub290\uaef4\uc9c0\ub2e4\uac00 \ubbf8\ub798\uc5d0 \ub300\ud55c \ube44\uc804\uc744 \uc783\ub294\ub2e4\ub294 \ub290\ub08c\uc744 \ubc1b\ub294 \uac83\uc774 \uac00\uc7a5 \ud070 \ub3c4\uc804\uc774\uc5c8\uc73c\uba70 \uc55e\uc73c\ub85c\ub3c4 \uadf8\ub7f4 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n

\uc800\uc758 \uac00\uc7a5 \ud070 \uc131\ucde8\ub294 \uc81c \ubaa9\uc18c\ub9ac\ub97c \ucc3e\uc740 \uac83\uc785\ub2c8\ub2e4. \uc800\ub294 \uc81c\uac00 \uc6d0\ud558\ub294 \ub9cc\ud07c \ud070 \ubaa9\uc18c\ub9ac\ub97c \ub0b4\ub294 \uc639\ud638\uc790\ub294 \uc544\ub2c8\uc9c0\ub9cc \uc800\uc640 \uc81c \uc774\uc57c\uae30\uc5d0 \ub300\ud574 \uba87 \ubc88 \uc774\uc57c\uae30\ud55c \uc801\uc774 \uc788\uc2b5\ub2c8\ub2e4. \uc720\ud29c\ube0c \ucc44\ub110\uc744 \ub9cc\ub4e4\uc5b4 \uc81c \uc774\uc57c\uae30\ub97c \uc81c \uc2dc\uac01\uc73c\ub85c \ud480\uc5b4\ub0c8\uace0, \uc7a5\uc560 \uc9c4\ub2e8\uc73c\ub85c \uc911\ub2e8\ub41c \ud559\uc5c5\uc744 \ub9c8\uce58\uae30 \uc704\ud574 \ud559\uad50\ub85c \ub3cc\uc544\uac04 \uc81c \uc790\uc2e0\uc774 \ub9e4\uc6b0 \uc790\ub791\uc2a4\ub7fd\uae30\ub3c4 \ud569\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

\ub2e4\ub978 \uc5b4\ub5a4 \uac83\ub3c4 \ud560 \uc218 \uc5c6\uc5c8\ub358 \ubc29\uc2dd\uc73c\ub85c \uc81c \ub9c8\uc74c\uacfc \uc815\uc2e0, \uc601\ud63c\uc744 \uc5f4\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ud56d\uc0c1 \uacf5\uac10 \ub2a5\ub825\uc774 \ub6f0\uc5b4\ub098\uace0 \ub9c8\uc74c\uc774 \ud06c\ub2e4\uace0 \ubbff\uace0 \uc2f6\uc9c0\ub9cc, \uc548\ud0c0\uae5d\uac8c\ub3c4 \ub9c8\uc74c\uc774 \ub9e4\uc6b0 \uc57d\ud588\uc2b5\ub2c8\ub2e4. \uc5b4\ub838\uc744 \ub54c \uad34\ub86d\ud798\uc744 \ub9ce\uc774 \ub2f9\ud588\uace0 \ud2b8\ub77c\uc6b0\ub9c8\ub3c4 \uacaa\uc5c8\uc8e0. \uc9c0\uae08 \uc774 \uc77c\uc744 \uacaa\uc73c\uba74\uc11c \uacfc\uac70\uc758 \ubaa8\ub4e0 \uac83\uc774 \uc774 \uc2f8\uc6c0\uc744 \uc704\ud574 \uc81c \ub9c8\uc74c\uc744 \uc900\ube44\uc2dc\ucf30\ub2e4\uace0 \ub290\ub08d\ub2c8\ub2e4. \uc81c\uac00 \uc774\ub807\uac8c \ud070 \uc18c\ub9ac\ub85c \uc790\ub791\uc2a4\ub7fd\uac8c \ub9d0\ud558\ub294 \uc774\uc720\ub294 \uc9c0\uae08 \uc81c\uac00 \uc0c1\uc0c1\ud588\ub358 \uac83\ubcf4\ub2e4 \uac10\uc815\uc801\uc73c\ub85c \ub354 \uac15\ud574\uc84c\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4. \ub9cc\uc57d \uc81c\uac00 \uc9c0\uae08\uc758 \uc800\uc5d0 \ub300\ud574 \uc5b4\ub9b0 \uc2dc\uc808\uc758 \uc800\uc5d0\uac8c \uc774\uc57c\uae30\ud55c\ub2e4\uba74 \uc81c \uc790\uc2e0\uc744 \ubbff\uc9c0 \ubabb\ud560 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>?<\/p>\n

\uc6b0\ub9ac\uac00 \uc911\uc694\ud558\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. LGMD\ub294 \uc2e0\uccb4\uc801 \uc7a5\uc560\uc774\uc9c0\ub9cc \uc815\uc11c\uc801, \uc815\uc2e0\uc801, \uc2ec\uc9c0\uc5b4 \uc601\uc801 \uac74\uac15\uc5d0\ub3c4 \ud070 \ud0c0\uaca9\uc744 \uc90d\ub2c8\ub2e4. \uadf8\ub7ec\ub2c8 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc774 \uc790\uc2e0\uc758 \uc9c4\uc2e4\uacfc \uc774\uc57c\uae30\ub97c \uc804\ud558\uace0 \uc5b8\uc820\uac00 \uce58\ub8cc\ubc95\uc744 \ucc3e\uc744 \uc218 \uc788\ub2e4\ub294 \ud76c\ub9dd\uc758 \uba54\uc2dc\uc9c0\ub97c \uc804 \uc138\uacc4\uc5d0 \uc804\ud30c\ud560 \uc218 \uc788\ub3c4\ub85d \ub3c4\uc640\uc8fc\uc138\uc694.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

\ub0b4\uc77c \ub2f9\uc7a5 \uc644\uce58\ub420 \uc218 \uc788\ub2e4\uba74 \ud558\uace0 \uc2f6\uc740 \uc77c, \ubaa8\ud5d8, \ub098\ub4e4\uc774, \uc774\ubca4\ud2b8\uac00 \ub108\ubb34 \ub9ce\uc544\uc694. \ud558\uc9c0\ub9cc \uc81c\uac00 \uacc4\uc18d \ud558\uace0 \uc2f6\uc740 \ud55c \uac00\uc9c0\ub294 \uc644\uce58\ub420 \uc218 \uc788\ub294 \ubaa8\ub4e0 \uc0ac\ub78c\ub4e4\uc774 \ub9c8\ub545\ud788 \ubc1b\uc544\uc57c \ud560 \uae30\ud68c\ub97c \uc5bb\uc744 \uc218 \uc788\ub3c4\ub85d \uc639\ud638\ud558\uace0 \uc5f4\uc2ec\ud788 \ub178\ub825\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \uc774 \ubcd1\uc744 \uc548\uace0 \uc0b4\uba74 \uc544\ubb34 \uc77c\ub3c4 \uc5c6\uc5c8\ub2e4\ub294 \ub4ef\uc774 \uc77c\uc5b4\ub098\uc11c \uc81c \uc0b6\uc744 \uc0b4 \uc218 \uc5c6\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5581,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[70],"class_list":["post-5582","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" 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