{"id":5588,"date":"2022-01-07T02:44:43","date_gmt":"2022-01-07T02:44:43","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5588"},"modified":"2024-02-09T14:23:57","modified_gmt":"2024-02-09T14:23:57","slug":"individual-with-lgmd-sophia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2022\/01\/07\/individual-with-lgmd-sophia\/","title":{"rendered":"LGMD \uac1c\uc778: \uc18c\ud53c\uc544"},"content":{"rendered":"

\"<\/p>\n

LGMD \"\uc2a4\ud3ec\ud2b8\ub77c\uc774\ud2b8 \uc778\ud130\ubdf0\" <\/strong><\/h2>\n

\uc774\ub984<\/strong>: \uc18c\ud53c\uc544<\/p>\n

\ub098\uc774<\/strong>: \u00a08<\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n

LGMD \ud558\uc704 \uc720\ud615<\/strong>: LGMD 2A\/R1 \uce7c\ud30c\uc778 3 \uad00\ub828<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>?<\/p>\n

\uc800\ub294 6\uc0b4 \ub54c \uc720\uc804\uc790 \ud608\uc561 \uac80\uc0ac\ub97c \ud1b5\ud574 \uacf5\uc2dd\uc801\uc73c\ub85c \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \ubb34\uc5c7\uc774\uc5c8\ub098\uc694?<\/strong>?<\/p>\n

\uc800\ub294 4.5\uc0b4 \ub54c \ud3d0\ub834\uc5d0 \uac78\ub838\uace0 \uc624\ub7ab\ub3d9\uc548 \uc544\ud320\uae30 \ub54c\ubb38\uc5d0 \uc5c4\ub9c8\uac00 \uc800\ub97c \ub370\ub9ac\uace0 \ud608\uc561 \uac80\uc0ac\ub97c \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uac04 \ud6a8\uc18c \uc218\uce58\uac00 \ub9e4\uc6b0 \ub192\uc544\uc11c \uc758\uc0ac\ub4e4\uc740 \uadf8 \uc774\uc720\ub97c \ucc3e\uae30 \uc2dc\uc791\ud588\uc5b4\uc694. \uc800\ub294 \ub610\ud55c \ubc1c\uac00\ub77d\uc73c\ub85c \uac77\uae30 \uc2dc\uc791\ud588\uc2b5\ub2c8\ub2e4. 1\ub144 \ubc18 \ub3d9\uc548 \ub9ce\uc740 \ubcd1\uc6d0\uc744 \ub4e4\ub77d\uac70\ub9ac\uba70 \uc624\uc9c4\uc744 \ubc1b\uae30\ub3c4 \ud588\uc5b4\uc694. \ubb34\uc12d\uae30\ub3c4 \ud588\uc9c0\ub9cc \uc815\ub9d0 \uc6a9\uac10\ud588\uc5b4\uc694.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694? <\/strong><\/p>\n

\uc800\ud76c\uac00 \uc54c\uae30\ub85c\ub294 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

\uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \uba40\ub9ac \uac78\uc5b4\uc57c \ud574\uc11c \ub2e4\ub9ac\uac00 \ub9e4\uc6b0 \ud53c\uace4\ud558\uace0, \uc544\uc774\ub4e4\uc774 \ub180\uba74\uc11c \ud558\ub294 \uac83\uc744 \ubcf4\uba74 \ub2e4\ub9ac\uc640 \ud314\uc774 \ud53c\uace4\ud558\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \uc800\ub3c4 \uc608\uc804\uc5d0\ub294 \ubabd\ud0a4\ubc14\ub97c \ud560 \uc218 \uc788\uc5c8\uc5b4\uc694. \uadf8\ub798\uc11c \uc2ac\ud504\uae30\ub3c4 \ud574\uc694. \uac00\uc871\ub4e4\uc740 \ud56d\uc0c1 \uc81c\uac00 \ud560 \uc218 \uc788\ub294 \ubc29\ubc95\uc744 \ucc3e\uc544\uc11c \ub3c4\uc640\uc8fc\uc9c0\ub9cc, \uc81c \ub610\ub798\uc758 \ub2e4\ub978 \uc544\uc774\ub4e4\uc774 \uc800\ucc98\ub7fc \ube68\ub9ac \uc9c0\uce58\uc9c0 \uc54a\uace0 \ub6f0\uace0 \ub178\ub294 \uac83\uc744 \ubcf4\ub294 \uac83\uc740 \uc5ec\uc804\ud788 \ud798\ub4e4\uc5b4\uc694.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n

3\uba85\uc758rd<\/sup> \uc0c8 \ud559\uad50\uc758 1\ud559\ub144 \uc218\uc5c5\uc5d0\uc11c \uc81c LGMD2A\uc5d0 \ub300\ud574 \uc774\uc57c\uae30\ud588\uc5b4\uc694. \uc800\ub294 \ub2e4\ub978 \uc544\uc774\ub4e4\uc774 \uc9c4\ub2e8\uc744 \ubc1b\uace0 \uce58\ub8cc\ubc95\uc744 \ucc3e\uae30 \uc704\ud574 \ub9ce\uc740 \uc5b4\ub824\uc6c0\uc744 \uacaa\uc9c0 \uc54a\ub3c4\ub85d \uc778\uc2dd\uc744 \ud655\uc0b0\ud558\ub294 \ub370 \ub3c4\uc6c0\uc744 \uc8fc\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc800\ub294 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\uc9c0\ub9cc \uc11c\ucee4\uc2a4 \ucea0\ud504\uc640 \ud5c8\ub9ac \uad7d\ud788\uae30\ub97c \ud560 \uc218 \uc788\uc5b4\uc694. \ud798\ub4e4 \uac70\ub77c\ub294 \uac78 \uc54c\uba74\uc11c\ub3c4 \uc0c8\ub85c\uc6b4 \uac83\uc744 \uc2dc\ub3c4\ud558\ub294 \uac83\uc744 \uba48\ucd94\uc9c0 \uc54a\uc544\uc694. \uce5c\uad6c\ub4e4\uacfc \ud568\uaed8 \ub180\uae30 \uc704\ud574 \uc804\uae30 \uc790\uc804\uac70 \ud0c0\ub294 \ubc95\ub3c4 \ubc30\uc6e0\uc5b4\uc694.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n

\ub355\ubd84\uc5d0 \uc6a9\uae30\uac00 \uc0dd\uacbc\uc5b4\uc694. \uc0ac\ub78c\ub4e4 \uc55e\uc5d0\uc11c \uc4f0\ub7ec\uc9c0\ub294 \uac83\uc5d0 \ub300\ud55c \ub450\ub824\uc6c0\uc774\ub098 \ubcd1\uc6d0 \ubc29\ubb38\uc5d0 \ub300\ud55c \ub450\ub824\uc6c0\uc5d0 \ub9de\uc11c\uba74\uc11c \uc800\ub97c \uac15\ud558\uac8c \ub9cc\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \uc0ac\ub78c\ub4e4\uc758 \uc7a5\uc560\ub97c \ubcf4\uac70\ub098 \uccd0\ub2e4\ubcf4\ub294 \uac83\uc774 \uc544\ub2c8\ub77c \uadf8\ub4e4\uc744 \ubd05\ub2c8\ub2e4. \ub610\ud55c \uc81c \uc790\uc2e0\uc744 \uc788\ub294 \uadf8\ub300\ub85c \ubc1b\uc544\ub4e4\uc774\ub294 \ubc95\uc744 \ubc30\uc6b0\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>?<\/p>\n

\uc800\ucc98\ub7fc \uadfc\uc774\uc601\uc591\uc99d\uc774 \uc788\uc5b4\ub3c4 \ud589\ubcf5\ud55c \uc0b6\uc744 \uc0b4 \uc218 \uc788\uace0, \ubd80\ubaa8\ub2d8\ub4e4\uc740 \uc800\uc640 \uac19\uc740 \uc544\uc774\ub4e4\uc774 \ud589\ubcf5\ud560 \uc218 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc54c\uc544\uc57c \ud569\ub2c8\ub2e4. \uc800\ub294 \ud720\uccb4\uc5b4\ub97c \uac00\uc9c0\uace0 \uc788\uc9c0\ub9cc, \ud544\uc694\ud560 \ub54c \ud720\uccb4\uc5b4\ub97c \uc0ac\uc6a9\ud558\uace0 \ub3cc\uc544\ub2e4\ub2d0 \uc218 \uc788\ub294 \ubc29\ubc95\uc744 \ucc3e\uc558\uc5b4\uc694. \ud56d\uc0c1 \uc26c\uc6b4 \uc77c\uc740 \uc544\ub2c8\uba70 \ubab8\uc774 \uc6d0\ud558\ub294 \ub300\ub85c \uc6c0\uc9c1\uc774\uc9c0 \uc54a\uc744 \ub54c\ub294 \ub450\ub835\uae30\ub3c4 \ud569\ub2c8\ub2e4. \uc800\uc640 \uac19\uc740 \uc544\uc774\ub4e4\uc774 \uce58\ub8cc\ubc95\uc744 \uae30\ub2e4\ub9ac\uace0 \uc788\ub2e4\ub294 \uc0ac\uc2e4\uc744 \uc138\uc0c1\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc5b4\uc694.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

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