{"id":7666,"date":"2023-04-02T16:22:56","date_gmt":"2023-04-02T16:22:56","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=7666"},"modified":"2024-02-09T14:23:49","modified_gmt":"2024-02-09T14:23:49","slug":"individual-with-lgmd-jacob","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/lgmd2d\/2023\/04\/02\/individual-with-lgmd-jacob\/","title":{"rendered":"LGMD \uac1c\uc778: \uc81c\uc774\ucf65"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><strong> <img decoding=\"async\" class=\"lazyload aligncenter size-medium wp-image-6107\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/04\/LGMD2D-Jacob-D-300x169.png\" alt=\" \" width=\"300\" height=\"169\" \/><\/strong><\/p>\n<p><strong>\uc774\ub984<\/strong>:  Jacob<\/p>\n<p><strong>\ub098\uc774<\/strong>6\uc138<\/p>\n<p><strong>\uad6d\uac00<\/strong>:  \ubbf8\uad6d<\/p>\n<p><strong>LGMD \ud558\uc704 \uc720\ud615<\/strong>:  LGMD2D\/R3<\/p>\n<p>* * * <em>\uc81c\uc774\ucf65\uc758 \ubd80\ubaa8\ub2d8, \uc870\uc26c\uc640 \ub808\uc774\uccbc\uc774 \uc644\uc131\ud588\uc2b5\ub2c8\ub2e4.<\/em><\/p>\n<p><strong>\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>?<\/p>\n<p>\uc81c\uc774\ucf65\uc740 5\uc0b4 \ub54c LGMD2D\/R3 \uc9c4\ub2e8\uc744 \ubc1b\uc558\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>\u00a0<\/strong><strong>\uccab \uc99d\uc0c1\uc740 \uc5b4\ub5a4 \uac83\uc774\uc5c8\ub098\uc694?<\/strong><\/p>\n<p>\uc81c\uc774\ucf65\uc758 \ud6a1\ubb38\uadfc\uc735\ud574\uc99d \uc9c4\ub2e8\uc740 2021\ub144 \uc5ec\ub984\uc5d0 \ubc1c\uc0dd\ud55c \uc0ac\ub840 \uc774\ud6c4 \ubc1c\uacac\ub418\uc5c8\uc2b5\ub2c8\ub2e4. \ud604\uc7ac \uc81c\uc774\ucf65\uc758 \uc8fc\uc694 \uc99d\uc0c1\uc740 \uac00\ub054\uc529 \ub098\ud0c0\ub098\ub294 \ud6a1\ubb38\uadfc\uc735\ud574\uc99d\uacfc \uc720\uc0ac\ud55c \uc2e0\ud638\uc778 \uc9c4\ud55c \uc18c\ubcc0\uacfc \ucda9\ubd84\ud55c \uc218\ubd84 \ubcf4\ucda9 \uc5c6\uc774 \ub108\ubb34 \ud65c\ub3d9\ud558\uba74 \ub2e4\ub9ac\uac00 \uc544\ud504\uae30 \uc2dc\uc791\ud558\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\u00a0<\/strong><strong>\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694?<\/strong><\/p>\n<p>\uc800\ud76c \uac00\uc871 \uc911\uc5d0 LGMD\ub098 \ub2e4\ub978 \ud615\ud0dc\uc758 \uadfc\uc774\uc601\uc591\uc99d\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc740 \uc5c6\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n<p>\uc2dc\uac04\uc774 \uc9c0\ub0a8\uc5d0 \ub530\ub77c \uc81c\uc774\ucf65\uc758 \ubcd1\uc138\uac00 \uc545\ud654\ub418\ub294 \uac83\uc5d0 \ub300\ud55c \uac71\uc815\uc774 \uacc4\uc18d\ub418\uace0, \uc808\uc2e4\ud788 \ud544\uc694\ud55c \uce58\ub8cc\ub098 \uc644\uce58\ub97c \uae30\ub2e4\ub9ac\ub294 \ub3d9\uc548 \uadf8 \uce58\ub8cc\ub098 \uc644\uce58\uac00 \uc5b8\uc81c \uc774\ub8e8\uc5b4\uc9c8\uc9c0 \uc54c \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \ud6a1\ubb38\uadfc\uc735\ud574\uc99d\uc774 \ucc98\uc74c \ubc1c\uc0dd\ud55c \uc774\ud6c4 \uc81c\uc774\ucf65\uc740 \ud558\ub8e8\uc5d0 \uc57d 48\uc628\uc2a4\uc758 \ubb3c\uc744 \ub9c8\uc2dc\ub294\ub370, \uc6b0\ub9ac\ub294 \ub9e4\uc77c \uc218\ubd84\uc744 \uc12d\ucde8\ud558\ub294 \uac83\uc774 \uc5bc\ub9c8\ub098 \uc911\uc694\ud55c\uc9c0 \uc81c\uc774\ucf65\uc5d0\uac8c \ub04a\uc784\uc5c6\uc774 \uc0c1\uae30\uc2dc\ucf1c\uc57c \ud569\ub2c8\ub2e4. 6\uc138 \uc5b4\ub9b0\uc774\ub294 \ub9d0\ud560 \uac83\ub3c4 \uc5c6\uace0 \ub204\uad6c\uc5d0\uac8c\ub098 \ub9ce\uc740 \uc591\uc785\ub2c8\ub2e4! \ub610\ud55c \uc758\uc0ac\uc758 \uad8c\uace0\uc640 \uadfc\uc721\uc5d0 \ubb34\ub9ac\ub97c \uc8fc\uace0 \ubcd1\uc758 \uc9c4\ud589\uc744 \uac00\uc18d\ud654\ud560 \uc218 \uc788\ub2e4\ub294 \uc6b0\ub824\uc5d0 \ub530\ub77c \ud604\uc7ac\ub85c\uc11c\ub294 \uc81c\uc774\ucf65\uc774 \ud300 \uc2a4\ud3ec\uce20\uc5d0 \ucc38\uac00\ud558\ub294 \uac83\uc744 \ud5c8\uc6a9\ud558\uc9c0 \uc54a\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc81c\uc774\ucf65\uc740 \ubaa8\ub4e0 \uce5c\uad6c\ub4e4\uc774 \uc77c \ub144 \ub0b4\ub0b4 \uc2a4\ud3ec\uce20 \ud300\uc5d0\uc11c \ub6f0\ub294 \ub098\uc774\uc785\ub2c8\ub2e4. \uc774 \ub098\uc774\uc5d0 \ub610\ub798 \uce5c\uad6c\ub4e4\uacfc\uc758 \ub3d9\uc9c0\uc560, \uc2a4\ud3ec\uce20\ub9e8\uc2ed, \ud611\ub3d9\uc2ec\uc740 \uc544\ub4e4\uc774 \uc131\uc7a5\ud558\ub294 \ub370 \ub9e4\uc6b0 \uc911\uc694\ud569\ub2c8\ub2e4. \uc790\ub140\uac00 \uc774\ub7ec\ud55c \uc5b4\ub824\uc6c0\uc5d0 \uc9c1\uba74\ud558\ub294 \uac83\uc744 \uc9c0\ucf1c\ubcf4\ub294 \uac83\uc740 \ubd80\ubaa8\ub85c\uc11c \uac00\uc2b4 \uc544\ud508 \uc77c\uc785\ub2c8\ub2e4.<\/p>\n<p><strong>\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong><\/p>\n<p>\uc81c\uc774\ucf65\uc758 \ud604\uc7ac \uac00\uc7a5 \ud070 \uc5c5\uc801\uc740 \ud3ec\uae30\ud558\uc9c0 \uc54a\ub294\ub2e4\ub294 \uac83\uc785\ub2c8\ub2e4. \uadf8\ub294 \ud56d\uc0c1 \ucd5c\uc120\uc744 \ub2e4\ud558\uace0 \uc5f4\uc2ec\ud788 \ub178\ub825\ud558\ub294 \uac15\uc778\ud558\uace0 \ub611\ub611\ud558\uba70 \uacb0\ub2e8\ub825 \uc788\ub294 \uc18c\ub144\uc785\ub2c8\ub2e4. \uadf8\ub294 \uc790\uc2e0\uc758 \uac00\uc7a5 \uac15\ud55c \ud2b9\uc131 \uc911 \ud558\ub098\ub77c\ub294 \uc790\ubd80\uc2ec\uc744 \uac00\uc9c0\uace0 \uc788\uc73c\uba70 \uc790\uc2e0\uc744 \"\uce58\uc5f4\ud558\ub2e4\"\uace0 \ud45c\ud604\ud558\ub294 \uac83\uc744 \uc88b\uc544\ud569\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694?<\/strong><\/p>\n<p>LGMD\ub294 \uc9c4\ub2e8 \uc774\ud6c4 \uc81c\uc774\ucf65\uc5d0\uac8c \uc601\ud5a5\uc744 \ubbf8\ucce4\uc2b5\ub2c8\ub2e4. \uadf8\ub294 \ud734\uc2dd\uc774 \ud544\uc694\ud560 \ub54c \uc790\uc2e0\uc758 \ubab8\uc5d0 \uadc0\ub97c \uae30\uc6b8\uc774\ub294 \ub370 \ub354 \uc2e0\uacbd\uc744 \uc501\ub2c8\ub2e4. \ud2b9\ud788 \uccb4\uc721 \uc2dc\uac04\uc774\ub098 \uc26c\ub294 \uc2dc\uac04\uc5d0 \ud734\uc2dd\uc774 \ud544\uc694\ud558\uba74 \uc120\uc0dd\ub2d8\uc5d0\uac8c \uc8fc\uc800\ud558\uc9c0 \uc54a\uace0 \ud734\uc2dd\uc744 \uc694\uccad\ud569\ub2c8\ub2e4. \uc81c\uc774\ucf65\uc758 \uc120\uc0dd\ub2d8\ub4e4\uc740 \uc81c\uc774\ucf65\uc774 \uc5b4\ub9b0 \ub098\uc774\uc5d0 \uc774\ub7f0 \ud589\ub3d9\uc744 \ud558\ub294 \uac83\uc774 \uc790\ub791\uc2a4\ub7fd\uace0 \uc778\uc0c1\uc801\uc774\ub77c\ub294 \ub9d0\uc744 \ub9ce\uc774 \ud558\uc168\uc5b4\uc694.<\/p>\n<p>\uc81c\uc774\ucf65\uc758 \ubd80\ubaa8\ub85c\uc11c \uc800\ud76c\uc5d0\uac8c\ub294 \uc0c8\ub85c\uc6b4 \uc6d0\ub3d9\ub825\uacfc \ubaa9\uc801\uc774 \uc0dd\uacbc\uc2b5\ub2c8\ub2e4. \ubc14\ub85c \uc81c\uc774\ucf65\uc744 \ud3ec\ud568\ud55c \uc804\uccb4 LGMD \ucee4\ubba4\ub2c8\ud2f0\uac00 \uac01 \ud658\uc790\uc5d0\uac8c \ud544\uc694\ud558\uace0 \ub9c8\ub545\ud55c \uce58\ub8cc\ub97c \ubc1b\uc744 \uc218 \uc788\ub3c4\ub85d \ub3d5\ub294 \uac83\uc785\ub2c8\ub2e4. \uc6b0\ub9ac\ub294 \uc774 \ud76c\uadc0 \uc9c8\ud658\uc5d0 \ub300\ud55c \uc778\uc2dd\uc744 \ub192\uc774\uae30 \uc704\ud574 \uc639\ud638\uc790\uac00 \ub418\uc5c8\uace0, \uc6b0\ub9ac\uac00 \ud560 \uc218 \uc788\ub294 \ud55c \ucee4\ubba4\ub2c8\ud2f0\ub97c \ub3d5\uae30 \uc704\ud574 \ucd5c\uc120\uc744 \ub2e4\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><strong>LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>?<\/p>\n<p>\uc6b0\ub9ac\ub294 LGMD\uac00 \uac00\ub2a5\ud55c \ud55c \ube68\ub9ac \uce58\ub8cc\ubc95\uacfc \uce58\ub8cc\uc81c\uac00 \uc808\uc2e4\ud788 \ud544\uc694\ud55c \uc911\uc99d \ud76c\uadc0 \uc9c8\ud658\uc774\ub77c\ub294 \uc0ac\uc2e4\uc744 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0\uc790 \ud569\ub2c8\ub2e4. \uc774 \uc9c8\ud658\uc740 \uc2dc\uac04\uc774 \uc9c0\ub0a0\uc218\ub85d \uc545\ud654\ub418\ubbc0\ub85c \uc2dc\uac04\uc774 \uac00\uc7a5 \uc911\uc694\ud569\ub2c8\ub2e4. \uc774 \uc9c8\ubcd1\uc5d0 \ub300\ud55c \uc778\uc2dd\uc774 \uc774 \uc0ac\uba85\uc744 \ucd94\uc9c4\ud558\ub294 \ub370 \uc788\uc5b4 \ud575\uc2ec\uc785\ub2c8\ub2e4. \ub354 \ub9ce\uc740 \uc0ac\ub78c\ub4e4\uc774 \uc774 \uc9c8\ubcd1\uacfc \uadf8 \uc2ec\uac01\uc131\uc5d0 \ub300\ud574 \uc54c\uac8c \ub420\uc218\ub85d \ub354 \ub9ce\uc740 \uc5f0\uad6c\uc640 \uc784\uc0c1\uc2dc\ud5d8\uc73c\ub85c \uc774\uc5b4\uc9c8 \uac83\uc785\ub2c8\ub2e4. \uc6b0\ub9ac\uc758 \uc0ac\ub791\ud558\ub294 \uac00\uc871\ub4e4\ub3c4 \ub2e4\ub978 \ud76c\uadc0\uc9c8\ud658 \ubc0f \ube44\ud76c\uadc0\uc9c8\ud658 \ud658\uc790\uc640 \ub9c8\ucc2c\uac00\uc9c0\ub85c \uce58\ub8cc \uc635\uc158\uc774 \ud544\uc694\ud569\ub2c8\ub2e4.<\/p>\n<p><strong>\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n<p>\uc81c\uc774\ucf65\uc740 \uc9c0\uc5ed \ud300\uc5d0\uc11c \ub18d\uad6c\ub97c \ud560 \uc218 \uc788\uae30\ub97c \ubc14\ub78d\ub2c8\ub2e4. \ub0b4\uc77c \uc644\uce58\ub41c\ub2e4\uba74 \uacfc\ub3c4\ud55c \uc218\ubd84 \uc12d\ucde8\ub098 \uc9c0\ub098\uce5c \ud65c\ub3d9\uc73c\ub85c \uc778\ud55c \ub2e4\ub9ac \ud1b5\uc99d, \ud6a1\ubb38\uadfc\uc735\ud574\uc99d\uc5d0 \ub300\ud55c \uac71\uc815 \uc5c6\uc774 \ud300 \uc2a4\ud3ec\uce20\ub97c \uc990\uae30\uace0 \uc2f6\uc744 \uac83\uc785\ub2c8\ub2e4.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":7668,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[29,122,16],"class_list":["post-7666","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d","tag-lgmdr3","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Jacob - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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