{"id":7771,"date":"2024-01-23T16:10:30","date_gmt":"2024-01-23T16:10:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=7771"},"modified":"2024-02-09T14:23:45","modified_gmt":"2024-02-09T14:23:45","slug":"individual-with-lgmd-kelsey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2024\/01\/23\/individual-with-lgmd-kelsey\/","title":{"rendered":"LGMD \uac1c\uc778: \ucf08\uc2dc"},"content":{"rendered":"

\"Lgmd2a<\/p>\n

\uc774\ub984<\/strong>: \ucf08\uc2dc<\/p>\n

\ub098\uc774<\/strong>: \u00a041<\/p>\n

\uad6d\uac00<\/strong>: \ubbf8\uad6d<\/p>\n

LGMD \ud558\uc704 \uc720\ud615:<\/strong>\u00a0 LGMD2A\/R1 \uce7c\ud398\uc778 3 \uad00\ub828<\/p>\n

\uba87 \uc0b4\uc5d0 \uc9c4\ub2e8\ubc1b\uc73c\uc168\ub098\uc694?<\/strong>?<\/p>\n

\uace0\ub4f1\ud559\uad50\ub97c \uc878\uc5c5\ud55c \ud6c4\uc778 18\uc138. \uc2e0\uacbd\uacfc \uc804\ubb38\uc758\uc5d0\uac8c \uacf5\uc2dd\uc801\uc73c\ub85c \uc9c4\ub2e8\uc744 \ubc1b\uae30 \uc804\uae4c\uc9c0 5~7\ub144 \ub3d9\uc548 \uc99d\uc0c1\uc774 \uc788\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\uccab \uc99d\uc0c1\uc740 \uc5b4\ub5a4 \uac83\uc774\uc5c8\ub098\uc694? <\/strong><\/p>\n

\uc911\ud559\uad50 \ub54c \uc18c\ud504\ud2b8\ubcfc\uc744 \ud558\ub2e4\uac00 2\ub8e8\uae4c\uc9c0 \ub4a4\uccd0\uc838 \uc788\ub358 \uc120\uc218\uac00 \ud648\ud50c\ub808\uc774\ud2b8\ub85c \ub2ec\ub824\uc624\ub358 \uc800\ub97c \ub530\ub77c\uc7a1\uc558\ub358 \uae30\uc5b5\uc774 \uc0dd\uc0dd\ud569\ub2c8\ub2e4. \uc800\ub294 \uc2e0\uccb4\uc801\uc73c\ub85c \ub290\ub824\uc11c \uadf8\ub77c\uc6b4\ub4dc\uc5d0\uc11c \uc77c\uc5b4\uc11c\uae30\uac00 \uc810\uc810 \ub354 \ud798\ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. \uce5c\uad6c\ub4e4\uc774 \uac00\ub054 \ub208\uce58\ub97c \ucc44\uace0 \ubb34\uc2a8 \uc77c\uc774\ub0d0\uace0 \ubb3c\uc5c8\uc9c0\ub9cc \uc800\ub294 \ubb50\ub77c\uace0 \ub300\ub2f5\ud574\uc57c \ud560\uc9c0 \ubab0\ub790\uc5b4\uc694. \uc9c8\ubb38\uc744 \ubc1b\uac70\ub098 \ub2e4\ub978 \uc0ac\ub78c\ucc98\ub7fc \ubcf4\uc774\uc9c0 \uc54a\uae30 \uc704\ud574 \ucd5c\ub300\ud55c \uc99d\uc0c1\uc744 \uc228\uae30\ub824\uace0 \ub178\ub825\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

\ub2e4\ub978 \uac00\uc871 \uc911\uc5d0 LGMD\ub97c \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\uc774 \uc788\ub098\uc694? <\/strong><\/p>\n

\ub124, \uc81c \uc624\ube60\ub3c4 LGMD 2a\ub97c \uc553\uace0 \uc788\uc73c\uba70 \uac00\uc7a5 \uba3c\uc800 \uc99d\uc0c1\uc744 \ubcf4\uc600\uc2b5\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \uc800\ud76c\ub294 \uac00\uc871\ub825\uc0c1 \uc774 \ud76c\uadc0 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\ub294 \uc720\uc77c\ud55c \ub450 \uc0ac\ub78c\uc785\ub2c8\ub2e4. \uc624\ube60\ub294 1992\ub144 \ucc98\uc74c\uc5d0 \ub0a8\uc131\uc5d0\uac8c\ub9cc \ub098\ud0c0\ub098\ub294 \ub2e4\ubc1c\uc131 \uacbd\ud654\uc99d\uc758 \ud55c \ud615\ud0dc\uc778 \ubca0\ucee4 MD\ub85c \uc798\ubabb \uc9c4\ub2e8\ubc1b\uc558\uc2b5\ub2c8\ub2e4. \ubd80\ubaa8\ub2d8\uacfc \uc758\uc0ac \ubaa8\ub450 \uc800\ub3c4 \uc774 \uc9c8\ud658\uc5d0 \uac78\ub9b4 \uc218 \uc788\ub2e4\uace0 \uc0dd\uac01\ud558\uc9c0 \uc54a\uc558\uae30 \ub54c\ubb38\uc5d0 \uc9c4\ub2e8\uc774 \ub2a6\uc5b4\uc84c\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0dd\ud65c\ud558\uba74\uc11c \uac00\uc7a5 \uc5b4\ub824\uc6b4 \uc810\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

\uc800\uc5d0\uac8c \uac00\uc7a5 \ud070 \uc5b4\ub824\uc6c0\uc740 \ub3c5\ub9bd\uc131\uc744 \uc783\uc740 \uac83\uc785\ub2c8\ub2e4. \ud2b9\ud788 \uc9d1\uc744 \ube44\uc6b8 \ub54c \ud654\uc7a5\uc2e4 \uc774\uc6a9, \uce68\ub300\uc5d0\uc11c \uc77c\uc5b4\ub098\uace0 \ub0b4\ub9ac\uae30, \uc0e4\uc6cc\ud558\uae30 \ub4f1 \uac04\ub2e8\ud55c \uc77c\uc744 \ud558\ub294 \uac83\uc774 \ub108\ubb34 \uc5b4\ub824\uc6cc\uc84c\uc2b5\ub2c8\ub2e4. \ube44\ud589\uae30, \uc790\ub3d9\ucc28, \ubc30\ub97c \ud0c0\uace0 \uc27d\uac8c \uc5ec\ud589\ud560 \uc218 \uc788\ub294 \uc790\uc720\ub294 \ubaa8\ub450 LGMD\ub85c \uc778\ud574 \ub204\ub9b4 \uc218 \uc5c6\ub294 \ud2b9\uad8c\uc785\ub2c8\ub2e4. \uc774\ub7ec\ud55c \uc5b4\ub824\uc6c0\uc740 \uc800\ub97c \uac1c\uc778\uc801\uc73c\ub85c, \uc9c1\uc5c5\uc801\uc73c\ub85c, \uc7ac\uc815\uc801\uc73c\ub85c \uc81c\ud55c\ud569\ub2c8\ub2e4.<\/p>\n

\uac00\uc7a5 \ud070 \uc131\uacfc\ub294 \ubb34\uc5c7\uc778\uac00\uc694? <\/strong><\/p>\n

\ub8e8\uac8c\ub9ad\ubcd1\uc744 \uc553\uace0 \uc788\ub294 \uccad\ub144\ub4e4\uc758 \uacbd\ud5d8\uc5d0 \uad00\ud55c \ub17c\ubb38\uc744 \uc644\uc131\ud55c \uac83\uc740 \uc81c \uc778\uc0dd\uc5d0\uc11c \uac00\uc7a5 \ud798\ub4e4\uace0 \ubcf4\ub78c\ucc2c \uacbd\ud5d8 \uc911 \ud558\ub098\uc600\uc2b5\ub2c8\ub2e4. \uc800\uc640 \ube44\uc2b7\ud55c \uc0c1\uc2e4\uc744 \uacaa\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc758 \uc9c0\uadf9\ud788 \uac1c\uc778\uc801\uc774\uace0 \uace0\ud1b5\uc2a4\ub7ec\uc6b4 \uc774\uc57c\uae30\ub97c \ub4e3\uace0 \uc9c8\ubcd1\uc758 \uc815\uc11c\uc801 \uce21\uba74\uc5d0 \ub300\ud574 \uae00\uc744 \uc4f0\uba74\uc11c \uc0c1\ub2f4 \ubc0f \uc778\uac04 \ubc1c\ub2ec \ubc15\uc0ac \ud559\uc704\ub97c \ucde8\ub4dd\ud558\uace0 \uc800\uc640 \ube44\uc2b7\ud55c \uc5b4\ub824\uc6c0\uc744 \uacaa\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc758 \uc5b4\ub824\uc6c0\uc744 \ub354 \uae4a\uc774 \uc774\ud574\ud558\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc800\ub294 \ub9cc\uc131 \uc9c8\ud658\uc744 \uc553\uace0 \uc788\ub294 \uc0ac\ub78c\ub4e4\uc744 \uc804\ubb38\uc801\uc73c\ub85c \uce58\ub8cc\ud558\ub294 \uc815\uc2e0 \uac74\uac15 \uc0c1\ub2f4 \ubd84\uc57c\uc5d0\uc11c \uc77c\ud558\ub294 \uac83\uc744 \uc88b\uc544\ud569\ub2c8\ub2e4. 11\ub144 \ub3d9\uc548\uc758 \ub0a8\ud3b8\uacfc\uc758 \uad00\uacc4\uc640 4\uc0b4 \ub09c \uc544\ub4e4\uc758 \uc721\uc544\ub3c4 \uc81c\uac00 \uac10\uc0ac\ud558\uac8c \uc0dd\uac01\ud558\ub294 \uc131\uacfc \uc911 \ud558\ub098\uc785\ub2c8\ub2e4.<\/p>\n

LGMD\uac00 \uc9c0\uae08\uc758 \uc790\uc2e0\uc744 \ub9cc\ub4dc\ub294 \ub370 \uc5b4\ub5a4 \uc601\ud5a5\uc744 \ubbf8\ucce4\ub098\uc694? <\/strong><\/p>\n

LGMD\uc640 \ud568\uaed8 \uc0b4\uba74\uc11c \uc778\uac04\uc774\ub77c\ub294 \uac83\uc774 \ubb34\uc5c7\uc744 \uc758\ubbf8\ud558\ub294\uc9c0\uc5d0 \ub300\ud574 \ub9ce\uc740 \uac83\uc744 \ubc30\uc6e0\uc2b5\ub2c8\ub2e4. \ud574\uac00 \uc9c0\ub294 \uac83\uc740 \ud53c\ud560 \uc218 \uc5c6\ub4ef\uc774 \uc870\ub9cc\uac04 \ubaa8\ub4e0 \uc0ac\ub78c\uc5d0\uac8c \ub3c5\ub9bd\uc774 \ubd88\uac00\ub2a5\ud574\uc9d1\ub2c8\ub2e4. \uc2ec\uac01\ud55c \uc9c8\ubcd1\uc774\ub098 \uc7a5\uc560\ub294 \uc6b0\ub9ac \ubaa8\ub450\uc5d0\uac8c \ub2e5\uce60 \uac83\uc785\ub2c8\ub2e4. \uc544\ub984\ub2e4\uc6c0, \uc80a\uc74c, \ub2a5\ub825\uc5d0 \ub300\ud55c \uc6b0\ub9ac\uc758 \ubb38\ud654\uc801 \uacbd\uc678\uc2ec\uc740 \uc774\ub7ec\ud55c \ud604\uc2e4\uc744 \uace0\ub824\ud558\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4. LGMD \uc9c4\ub2e8\uc744 \ubc1b\uc740 \ud6c4 '\uc815\uc0c1'\uc744 \uc783\uc740 \uc800\ub294 \uac1c\uc778\uc801\uc73c\ub85c \ub9ce\uc740 \uace0\ud1b5\uacfc \uad74\uc695\uc744 \uacaa\uc5c8\uace0, \uadf8 \ub355\ubd84\uc5d0 \ud68c\ubcf5\ud0c4\ub825\uc131\uacfc \uc678\uc0c1 \ud6c4 \uc131\uc7a5\uc5d0 \ub300\ud574 \uacf5\ubd80\ud558\uac8c \ub418\uc5c8\uc73c\uba70, \uc9c0\uae08\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc744 \uc0c1\ub2f4\ud560 \ub54c \uc774\ub97c \ud65c\uc6a9\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uace0\ud1b5\uc740 \uc2ac\ud514\uacfc \uc2ac\ud514\uacfc \uac19\uc740 \uc5b4\ub824\uc6b4 \uac10\uc815\uc744 \ub118\uc5b4 \uc5f0\ubbfc\uacfc \uce5c\uc808\uacfc \uac19\uc740 \uac15\ub825\ud55c \uac10\uc815\uacfc \uc5f0\uacb0\ub418\ub3c4\ub85d \uc6b0\ub9ac\ub97c \ucd08\ub300\ud569\ub2c8\ub2e4. \ub9c8\ud06c \uc0ac\ube44\uce74\uc2a4 \ubc15\uc0ac\uc758 \ub9d0\uc744 \ube4c\ub9ac\uc790\uba74, \"\uc218\ub3d9\uc801\uc73c\ub85c \uacaa\uc5c8\ub358 \uace0\ud1b5\uc744 \ub2a5\ub3d9\uc801\uc73c\ub85c \ub9c8\uc2a4\ud130\ud558\ub294 \ubc95\"\uc744 \ubc30\uc6b4 \ub355\ubd84\uc5d0 \uc81c \uc0b6\uc5d0 \uc758\ubbf8\uc640 \ubaa9\uc801\uc774 \uc0dd\uacbc\uc2b5\ub2c8\ub2e4.<\/p>\n

LGMD\uc5d0 \ub300\ud574 \uc804 \uc138\uacc4\uc5d0 \uc54c\ub9ac\uace0 \uc2f6\uc740 \ub0b4\uc6a9<\/strong>?<\/p>\n

\uc800\ub294 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc774 \ud604\ub300 \uc0ac\ud68c\uc5d0\uc11c \uc7a5\uc560\uc778\uc774 \uacaa\ub294 \ubc30\uc81c\uc5d0 \ub300\ud574 \uc54c\uc558\uc73c\uba74 \ud569\ub2c8\ub2e4. \ub2e4\uc74c\uc774 \uc788\uc2b5\ub2c8\ub2e4. still<\/strong> \ud720\uccb4\uc5b4 \uce5c\ud654\uc801\uc774\uc9c0 \uc54a\uc740 \uc2dd\ub2f9, \uc0c1\uc810, \uc0ac\ubb34\uc2e4\uc774 \ub108\ubb34 \ub9ce\uc544\uc694. \ube44\ud589\uae30\ub97c \ud0c0\uace0 \uc5ec\ud589\ud558\ub824\uba74 \uc804\ub3d9 \ud720\uccb4\uc5b4\ub97c \ud3ec\uae30\ud574\uc57c \ud558\ubbc0\ub85c \ub3c5\ub9bd\uc801\uc73c\ub85c \uc6c0\uc9c1\uc77c \uc218 \uc5c6\uc2b5\ub2c8\ub2e4. \uc804\ub3d9 \ud720\uccb4\uc5b4\uac00 \ub4e4\uc5b4\uac08 \uc218 \uc788\ub294 \uc790\ub3d9\ucc28\ub97c \ub80c\ud2b8\ud558\ub294 \uac83\uc740 \uc5b4\ub835\uace0 \ube44\uc6a9\uc774 \ub9ce\uc774 \ub4ed\ub2c8\ub2e4. \uba85\uc808\uc774\ub098 \uc0dd\uc77c\uc744 \ucd95\ud558\ud558\uae30 \uc704\ud574 \uac00\uc871\uacfc \uce5c\uad6c\ub4e4\uc758 \uc9d1\uc5d0 \uac08 \uc218\ub3c4 \uc5c6\uc2b5\ub2c8\ub2e4. \uc7a5\uc560\ub97c \uac00\uc9c0\uace0 \uc0b4\uc544\uac00\ub294 \ub370 \ub4dc\ub294 \ube44\uc6a9\uc740 \uc7ac\uc815\uc801, \uc0ac\ud68c\uc801, \uc815\uc11c\uc801\uc73c\ub85c \uc5c4\uccad\ub0a9\ub2c8\ub2e4. \uc81c \ud76c\ub9dd\uc740 \ub2e4\ub978 \uc0ac\ub78c\ub4e4\uc774 \uc790\uc2e0\uc774 \uac00\uc9c4 \uc120\ubb3c\uc5d0 \uac10\uc0ac\ud560 \uc218 \uc788\ub3c4\ub85d \uc778\uc2dd\uc744 \ub192\uc774\uace0, \uc874\uc7ac\ud558\ub294 \ubd88\uc758\uc640 \ucc28\ubcc4\uc744 \uc218\uc815\ud558\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub418\ub294 \uac83\uc785\ub2c8\ub2e4.<\/p>\n

\ub0b4\uc77c LGMD\uac00 \"\uc644\uce58\"\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \ubb34\uc5c7\uc778\uac00\uc694?<\/strong>?<\/p>\n

\ub9cc\uc57d \uc81c\uac00 '\uc644\uce58'\ub420 \uc218 \uc788\ub2e4\uba74 \uac00\uc7a5 \uba3c\uc800 \ud558\uace0 \uc2f6\uc740 \uc77c\uc740 \uba85\ub839\uc5d0 \ub530\ub77c \ubab8\uc744 \uc6c0\uc9c1\uc77c \uc218 \uc788\ub294 \ub2a5\ub825\uc5d0 \ub9cc\uc871\ud558\ub294 \uac83\uc785\ub2c8\ub2e4. \ubc14\ub2e5\uc5d0 \uc549\uc544 \uc544\uc774\uc640 \ub180\uc544\uc8fc\uace0 \ucc98\uc74c\uc73c\ub85c \uc544\uc774 \uce68\ub300\uc5d0 \ud568\uaed8 \ub204\uc6cc\ubcf4\uace0 \uc2f6\uc5b4\uc694. \ub0a8\ud3b8\uc744 \uc790\uc5f0\uc2a4\ub7fd\uace0 \uc628\uc804\ud788 \uc548\uc544\uc8fc\uace0 \uc2f6\uace0, \ub0a8\ud3b8\uc758 \ub808\ud06c\ub9ac\uc5d0\uc774\uc158 \ucd95\uad6c\ud300\uc5d0\uc11c \ub6f0\uace0 \uc2f6\uc5b4\uc694. \ucc98\uc74c\uc73c\ub85c \uc870\uce74\ub4e4\uc758 \ubc29\uc744 \ubcf4\ub7ec \uacc4\ub2e8\uc744 \uc624\ub974\uace0, \uc8fc\ub9d0\uc5d0\ub294 1,300\ub9c8\uc77c \ub5a8\uc5b4\uc9c4 \uacf3\uc5d0 \uc0ac\ub294 \uc5ec\ub3d9\uc0dd\uc744 \ub9cc\ub098\ub7ec \uac00\uace0 \uc2f6\uc2b5\ub2c8\ub2e4. LGMD\uac00 \uc5c6\uc5c8\ub2e4\uba74 \uc774\ub7f0 \uac04\ub2e8\ud55c \uc77c\ub4e4\uc740 \uafc8\ub3c4 \uafb8\uc9c0 \ubabb\ud588\uc744 \uac83\uc785\ub2c8\ub2e4.<\/p>","protected":false},"excerpt":{"rendered":"

Name: Kelsey Age: \u00a041 Country: \u00a0United States LGMD Sub-Type:\u00a0 LGMD2A\/R1 […]<\/p>","protected":false},"author":3,"featured_media":7770,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[123],"class_list":["post-7771","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states-lgmdr1"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Kelsey - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ko\/individuals-with-lgmd-interviews\/2024\/01\/23\/individual-with-lgmd-kelsey\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" 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