{"id":1176,"date":"2016-04-08T12:01:28","date_gmt":"2016-04-08T17:01:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1176"},"modified":"2016-04-08T12:01:28","modified_gmt":"2016-04-08T17:01:28","slug":"mary","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/04\/08\/mary\/","title":{"rendered":"OSOBA Z LGMD: Mary"},"content":{"rendered":"<p>04\/08\/2016 &#8211;\u00a0LGMD \u201cSpotlight Interview\u201d<\/p>\n<p><strong>NAZWA<\/strong>:\u00a0 Mary\u00a0\u00a0 <strong>Wiek<\/strong>: 46<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG.png\" rel=\"attachment wp-att-1177\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1177 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/04\/LGMD2A-Mary-BG-300x169.png\" alt=\"LGMD2A - Mary BG\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>KRAJ<\/strong>: Stany Zjednoczone<\/p>\n<p><strong>Podtyp LGMD<\/strong>: LGMD2A \/ kalpainopatia<\/p>\n<p>&nbsp;<\/p>\n<p><strong>W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n<p>I was diagnosed with LGMD when I was 25 years old.<\/p>\n<p><strong>Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n<p>My first symptoms were being unable to rise from a seated position without placing weight on my arms for support and difficulty in climbing stairs.<\/p>\n<p><strong>Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong><\/p>\n<p>No, I am the only family member to ever be diagnosed with LGMD.<\/p>\n<p><strong>Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/p>\n<p>The greatest challenges for me are trying to remain independent with daily activities.\u00a0 The disease progression is slow but not being able to do what you once were able to do is hard to adjust to.<\/p>\n<p><strong>Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n<p>My greatest accomplishment was marrying my husband. I became a widow in 2014.\u00a0 He was one of my greatest supporters.\u00a0 He inspired me to be the best person I could be.\u00a0 My family and friends are encouraging and a great support.<\/p>\n<p><strong>Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj:<\/strong><\/p>\n<p>I take nothing for granted.\u00a0 Each day is a gift \u2013 some better than others.\u00a0 I became more outgoing once my mobility became limited as I still want to experience and be active in life despite my diagnosis.<\/p>\n<p><strong>Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n<p>LGMD is a muscle wasting disease.<\/p>\n<p>Help those you can, become educated and treat everyone respectfully.<\/p>\n<p><strong>Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/p>\n<p>If a cure was found tomorrow, I would run, dance and jump!\u00a0 All the things that I can no longer physically do would be top priorities!<\/p>\n<p>&nbsp;<\/p>\n<p>Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105: https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"<p>04\/08\/2016 &#8211;\u00a0LGMD \u201cSpotlight Interview\u201d NAME:\u00a0 Mary\u00a0\u00a0 Age: 46 COUNTRY: United [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,16],"class_list":["post-1176","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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