{"id":1335,"date":"2016-09-27T10:02:53","date_gmt":"2016-09-27T15:02:53","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1335"},"modified":"2016-09-27T10:02:53","modified_gmt":"2016-09-27T15:02:53","slug":"kelci","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","title":{"rendered":"OSOBA Z LGMD: Kelci"},"content":{"rendered":"

LGMD \"Wywiad w \u015bwietle reflektor\u00f3w\"<\/strong><\/p>\n

Nazwa<\/strong>: Kelci \u00a0\u00a0Wiek<\/strong>23 lata\"lgmd2j-kelci\"<\/a><\/p>\n

Kraj<\/strong>: Australia<\/p>\n

Podtyp LGMD<\/strong> (je\u015bli jest znany): LGMD2J - Titinopatia<\/p>\n

 <\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n

Niedawno zdiagnozowano mnie w wieku 23 lat.<\/p>\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n

Na pocz\u0105tku zauwa\u017cy\u0142em, \u017ce musz\u0119 \u015bwiadomie my\u015ble\u0107 o wchodzeniu na chodniki lub p\u00f3\u0142ki. Nast\u0119pnie zauwa\u017cy\u0142em, \u017ce wchodzenie po schodach staje si\u0119 coraz trudniejsze, podobnie jak pokonywanie odleg\u0142o\u015bci.<\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD? <\/strong><\/p>\n

Tak, jedno z rodze\u0144stwa to robi.<\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/p>\n

Najwi\u0119kszym wyzwaniem zwi\u0105zanym z \u017cyciem z LGMD s\u0105 trudno\u015bci w wykonywaniu codziennych czynno\u015bci, takich jak pokonywanie odleg\u0142o\u015bci czy wchodzenie po schodach. Kolejnym wyzwaniem jest dla mnie rzadka posta\u0107 dystrofii mi\u0119\u015bniowej, poniewa\u017c nie ma prawie \u017cadnych informacji, do kt\u00f3rych m\u00f3g\u0142bym si\u0119 odnie\u015b\u0107 lub przewidzie\u0107, co mo\u017ce si\u0119 wydarzy\u0107.<\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n

LGMD jest dla mnie wci\u0105\u017c czym\u015b nowym, poniewa\u017c zdiagnozowano mnie zaledwie 3 miesi\u0105ce temu. Wci\u0105\u017c staram si\u0119 przystosowa\u0107 i zrozumie\u0107, co \u017cycie z LGMD b\u0119dzie oznacza\u0107 dla mojej przysz\u0142o\u015bci. Moim najwi\u0119kszym osi\u0105gni\u0119ciem jest po prostu nauczenie si\u0119, jak zachowa\u0107 pozytywne nastawienie i w\u0142\u0105czy\u0107 dystrofi\u0119 mi\u0119\u015bniow\u0105 do mojego \u017cycia.<\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj: <\/strong><\/p>\n

Wierz\u0119, \u017ce nauczy\u0142am si\u0119 nie bra\u0107 niczego za pewnik i docenia\u0107 to, co si\u0119 ma, p\u00f3ki si\u0119 to ma. To bardzo wa\u017cne, aby pozosta\u0107 pozytywnym!<\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n

My\u015bl\u0119, \u017ce wa\u017cne jest, aby u\u015bwiadomi\u0107 sobie, \u017ce wci\u0105\u017c jeste\u015bmy t\u0105 sam\u0105 osob\u0105, kt\u00f3r\u0105 kiedy\u015b byli\u015bmy. Ludzie powinni r\u00f3wnie\u017c wiedzie\u0107, \u017ce nie ka\u017cdy dzie\u0144 jest taki sam dla osoby z LGMD, niekt\u00f3re dni b\u0119d\u0105 lepsze ni\u017c inne, a to, co mo\u017cemy zrobi\u0107 jednego dnia, mo\u017ce nie by\u0107 w stanie zrobi\u0107 nast\u0119pnego.<\/p>\n

 <\/p>\n

 <\/p>\n

Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105: https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1334,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[51,67],"class_list":["post-1335","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-australia","tag-lgmd2j"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2016-09-27T15:02:53+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Kelci\",\"datePublished\":\"2016-09-27T15:02:53+00:00\",\"dateModified\":\"2016-09-27T15:02:53+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"},\"wordCount\":350,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Australia\",\"LGMD2J\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2J\"],\"inLanguage\":\"pl-PL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\",\"name\":\"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2016-09-27T15:02:53+00:00\",\"dateModified\":\"2016-09-27T15:02:53+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Kelci\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pl-PL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","og_locale":"pl_PL","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","og_description":"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Kelci \u00a0\u00a0Age: 23 yrs. old Country: […]","og_url":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2016-09-27T15:02:53+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Kelci","datePublished":"2016-09-27T15:02:53+00:00","dateModified":"2016-09-27T15:02:53+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"},"wordCount":350,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"thumbnailUrl":"","keywords":["Australia","LGMD2J"],"articleSection":["Individuals with LGMD - Interviews","LGMD2J"],"inLanguage":"pl-PL"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","url":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/","name":"INDIVIDUAL WITH LGMD: Kelci - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage"},"thumbnailUrl":"","datePublished":"2016-09-27T15:02:53+00:00","dateModified":"2016-09-27T15:02:53+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb"},"inLanguage":"pl-PL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/"]}]},{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2016\/09\/27\/kelci\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Kelci"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pl-PL"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/1335","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/comments?post=1335"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/1335\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/media?parent=1335"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/categories?post=1335"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/tags?post=1335"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}