{"id":1408,"date":"2017-02-10T08:43:25","date_gmt":"2017-02-10T14:43:25","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1408"},"modified":"2017-02-10T08:43:25","modified_gmt":"2017-02-10T14:43:25","slug":"andrea-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/","title":{"rendered":"OSOBA Z LGMD: Andrea"},"content":{"rendered":"

LGMD \"WYWIAD W \u015aWIETLE REFLEKTOR\u00d3W\"<\/p>\n

Nazwa<\/strong>: Andrea \u00a0Wiek<\/strong>: 42 lata\"\"<\/a><\/p>\n

Kraj<\/strong>: Stany Zjednoczone<\/p>\n

Podtyp LGMD<\/strong>: Wrodzona MD kolagenu 6 (po\u015brednia w spektrum mi\u0119dzy CMD Bethlema i Ullricha)<\/p>\n

A<\/strong>W JAKIM WIEKU ZDIAGNOZOWANO U CIEBIE CHOROB\u0118?<\/strong>:<\/p>\n

W wieku 6 lat po raz pierwszy zdiagnozowano u mnie chorob\u0119 zwyrodnieniow\u0105 staw\u00f3w. Mia\u0142em 40 lat, kiedy otrzyma\u0142em prawid\u0142ow\u0105 diagnoz\u0119 CMD kolagenu 6 w wyniku bezp\u0142atnego badania diagnostycznego przeprowadzonego przez National Institutes of Health (NIH). Odk\u0105d pami\u0119tam, my\u015bla\u0142am, \u017ce cierpi\u0119 na LGMD, ale dop\u00f3ki nie zostanie przeprowadzona diagnostyka genetyczna, diagnoza nie jest pe\u0142na ani dok\u0142adna. Cz\u0119sto zdarza si\u0119, \u017ce najpierw diagnozuje si\u0119 LGMD, a p\u00f3\u017aniej stwierdza COL6 CMD.<\/p>\n

W<\/strong>JAKIE BY\u0141Y PIERWSZE OBJAWY<\/strong>:<\/p>\n

Jako niemowl\u0119 nigdy nie raczkowa\u0142em, tylko chodzi\u0142em. Oko\u0142o 18 miesi\u0105ca \u017cycia moja g\u0142owa zacz\u0119\u0142a przechyla\u0107 si\u0119 w prawo i mia\u0142em bardzo ograniczony zakres ruchu po tej stronie. Zdiagnozowano u mnie Torticollis i przeszed\u0142em trzy operacje uwolnienia mi\u0119\u015bni, pierwsz\u0105 w wieku 22 miesi\u0119cy, przycinaj\u0105c tylko w centrum, pod szyj\u0105. Druga i trzecia operacja, w wieku 6 i 12 lat, polega\u0142y na przyci\u0119ciu mi\u0119\u015bni za uchem i u podstawy szyi. Torticollis jest powszechny w mojej postaci MD.<\/p>\n

W wieku nastoletnim pog\u0142\u0119bia\u0142a si\u0119 u mnie skolioza, mia\u0142em kolana zwr\u00f3cone do wewn\u0105trz i chodzi\u0142em lekko na palcach z powodu przykurcz\u00f3w, kt\u00f3re uniemo\u017cliwia\u0142y mi wyprostowanie n\u00f3g. Moje ramiona by\u0142y lekko przykurczone w \u0142okciach. Jako dziecko mia\u0142em poobijane kolana, poniewa\u017c cz\u0119sto upada\u0142em. Z trudem wstawa\u0142em z pod\u0142ogi i mia\u0142em trudno\u015bci z wchodzeniem po schodach.<\/p>\n

CZY MASZ INNYCH CZ\u0141ONK\u00d3W RODZINY, KT\u00d3RZY CHORUJ\u0104 NA LGMD?\u00a0\u00a0 <\/strong><\/p>\n

Moja starsza o oko\u0142o sze\u015b\u0107 lat siostra, Cheryl, zosta\u0142a zdiagnozowana razem ze mn\u0105 w 1980 roku. To ona odda\u0142a tkank\u0119 mi\u0119\u015bniow\u0105 do naszej wst\u0119pnej diagnozy. Zmar\u0142a jednak ponad 7 lat przed zmian\u0105 naszej diagnozy na COL6 CMD.<\/p>\n

W<\/strong>CO UWA\u017bASZ ZA NAJWI\u0118KSZE WYZWANIE W \u017bYCIU Z LGMD?<\/strong>:<\/p>\n

Zm\u0119czenie jest dla mnie codzienn\u0105 przeszkod\u0105. Nieinwazyjna wentylacja za pomoc\u0105 dwupoziomowego urz\u0105dzenia (Trilogy 100) i codzienne rozci\u0105ganie mi\u0119\u015bni oddechowych za pomoc\u0105 CoughAssist pozwala mi bra\u0107 g\u0142\u0119bsze oddechy podczas snu i w ci\u0105gu dnia. Jednak moje cia\u0142o jest teraz bardziej m\u0119cz\u0105ce we wszystkich codziennych czynno\u015bciach. Podstawowe rzeczy, kt\u00f3re przeci\u0119tny cz\u0142owiek uwa\u017ca za oczywiste, teraz zaczynaj\u0105 by\u0107 konsekwentnymi po\u017ceraczami energii.<\/p>\n

Obecnie nie jestem w stanie wsta\u0107 z krzes\u0142a o standardowej wysoko\u015bci bez pe\u0142nej pomocy. Na drugim miejscu plasuj\u0105 si\u0119 moje zmagania z zak\u0142adaniem skarpet i but\u00f3w. Chodz\u0119 tylko w pomieszczeniach i robi\u0119 to bardzo powoli i ostro\u017cnie, opieraj\u0105c si\u0119 o \u015bcian\u0119 i meble. Zawsze dostosowywa\u0142em swoje otoczenie i sposoby robienia rzeczy, wi\u0119c te wyzwania przez wi\u0119kszo\u015b\u0107 dni wydaj\u0105 si\u0119 bardziej niedogodno\u015bciami. S\u0105 moj\u0105 normalno\u015bci\u0105. M\u00f3j w\u00f3zek inwalidzki pomaga mi w wykonywaniu czynno\u015bci poza domem.<\/p>\n

W<\/strong>JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE?<\/strong>:<\/p>\n

Moje najwi\u0119ksze osi\u0105gni\u0119cie to po\u0142\u0105czenie dw\u00f3ch rzeczy. Pierwsz\u0105 z nich by\u0142oby przekszta\u0142cenie tragedii \u015bmierci mojej siostry z powodu niewydolno\u015bci oddechowej w organizacj\u0119, kt\u00f3r\u0105 za\u0142o\u017cy\u0142em, Breathe with MD. Poprzez Breathe with MD dziel\u0119 si\u0119 informacjami, aby pom\u00f3c w edukacji na temat os\u0142abienia mi\u0119\u015bni oddechowych za po\u015brednictwem mojej strony internetowej (http:\/\/www.breathewithmd.org\/index.html<\/a>), media spo\u0142eczno\u015bciowe (Facebook.com\/BreathewithMD Twitter: @BreatheMD) oraz zamkni\u0119t\u0105 grup\u0119 na Facebooku \"Breathe with MD Support Group\". Breathe with MD uczy powszechnych b\u0142\u0119d\u00f3w interwencji i zarz\u0105dzania oraz wyposa\u017ca osoby \u017cyj\u0105ce z chorob\u0105 wyniszczaj\u0105c\u0105 mi\u0119\u015bnie, aby by\u0142y rzecznikami w\u0142asnej w\u0142a\u015bciwej opieki oddechowej. Wi\u0105\u017ce si\u0119 z tym bycie koronowanym Ms. Wheelchair Tennessee 2017.<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ: <\/strong><\/p>\n

Moja choroba pomog\u0142a mi w rozwi\u0105zywaniu problem\u00f3w. My\u015bl\u0119 te\u017c, \u017ce post\u0119puj\u0105cy charakter choroby i stopniowa utrata funkcji pomog\u0142y mi lepiej radzi\u0107 sobie ze strat\u0105. W miar\u0119 jak choroba si\u0119 pogarsza, trac\u0119 coraz wi\u0119cej funkcji i smuc\u0119 si\u0119 ka\u017cd\u0105 strat\u0105. Sprawia to, \u017ce moje \u017cycie nabiera perspektywy i nie przejmuj\u0119 si\u0119 drobiazgami tak bardzo, jak wtedy, gdy by\u0142em w pe\u0142ni sprawny.<\/p>\n

W<\/strong>CO \u015aWIAT POWINIEN WIEDZIE\u0106 O LGMD?<\/strong>:<\/p>\n

Chc\u0119, aby ludzie zrozumieli, \u017ce mo\u017ce ona wp\u0142ywa\u0107 na mi\u0119\u015bnie oddechowe, nawet je\u015bli jej podtyp nie wp\u0142ywa na oddychanie. Nie musi to oznacza\u0107, \u017ce dana osoba b\u0119dzie musia\u0142a przej\u015b\u0107 na wentylacj\u0119 wspomagan\u0105; mo\u017ce po prostu potrzebowa\u0107 mechanicznie wspomaganego kaszlu (MAC) z powodu s\u0142abego i\/lub nieefektywnego kaszlu.<\/p>\n

Gdy choroba post\u0119puje, wp\u0142ywaj\u0105c na mi\u0119\u015bnie w okolicy brzucha, mo\u017ce os\u0142abi\u0107 przepon\u0119 i jej mi\u0119\u015bnie pomocnicze mi\u0119dzy \u017cebrami. Powoduje to, \u017ce dana osoba ma ograniczon\u0105 zdolno\u015b\u0107 do brania g\u0142\u0119bokich oddech\u00f3w. Z biegiem czasu ten wzorzec przewlek\u0142ego p\u0142ytkiego oddychania pozwala na gromadzenie si\u0119 produktu odpadowego z powietrza, kt\u00f3rym oddychamy, dwutlenku w\u0119gla, do potencjalnie niebezpiecznego poziomu. To zawsze zaczyna si\u0119 podczas snu. Kiedy nie anga\u017cujesz si\u0119 w aktywno\u015b\u0107, kt\u00f3ra powoduje wysi\u0142ek fizyczny, nie pozwalasz swojemu cia\u0142u na zadyszk\u0119. Jest to g\u0142\u00f3wny spos\u00f3b, w jaki os\u0142abienie mi\u0119\u015bni oddechowych mo\u017ce pozosta\u0107 ukryte przez wiele lat. Cia\u0142o kompensuje to, ale gdy dana osoba jest przezi\u0119biona, jej pr\u00f3g mo\u017ce zosta\u0107 osi\u0105gni\u0119ty, a to szybko przeradza si\u0119 w infekcj\u0119 dr\u00f3g oddechowych i potencjalnie zapalenie p\u0142uc. W tym momencie mo\u017ce rozwin\u0105\u0107 si\u0119 kryzys oddechowy, kt\u00f3ry wysy\u0142a ich na ostry dy\u017cur.<\/p>\n

Nie chc\u0119 nikogo straszy\u0107, ale proaktywno\u015b\u0107 to sprawdzony spos\u00f3b na unikni\u0119cie hospitalizacji i inwazyjnej wentylacji. Zach\u0119cam wszystkich z jak\u0105kolwiek form\u0105 choroby wyniszczaj\u0105cej mi\u0119\u015bnie do uzyskania podstawowej oceny uk\u0142adu oddechowego i odbywania regularnych wizyt kontrolnych u lekarza specjalizuj\u0105cego si\u0119 w oddychaniu pacjent\u00f3w z chorobami nerwowo-mi\u0119\u015bniowymi. My\u015blenie o tym mo\u017ce by\u0107 przera\u017caj\u0105ce, ale s\u0105 setki innych pacjent\u00f3w, kt\u00f3rzy chc\u0105 wesprze\u0107 Ci\u0119 w tej cz\u0119\u015bci podr\u00f3\u017cy. Mo\u017cesz ich spotka\u0107 w grupie wsparcia Breath with MD.<\/p>\n

I<\/strong>GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106?<\/strong>:<\/p>\n

Chcia\u0142bym pobawi\u0107 si\u0119 w gonitw\u0119 z moim czasami nadpobudliwym psem Roscoe, a potem wyj\u015b\u0107 na piaszczyst\u0105 pla\u017c\u0119 na wyspie Sanibel i schyli\u0107 si\u0119, by zebra\u0107 muszelki.<\/p>\n

* * * *
\nAby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” Name:\u00a0 \u00a0Andrea \u00a0Age: \u00a042 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1407,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[71],"class_list":["post-1408","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-united-states-col6-cmd"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “SPOTLIGHT INTERVIEW” Name:\u00a0 \u00a0Andrea \u00a0Age: \u00a042 yrs. old Country: […]\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-02-10T14:43:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Andrea\",\"datePublished\":\"2017-02-10T14:43:25+00:00\",\"dateModified\":\"2017-02-10T14:43:25+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\"},\"wordCount\":1071,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"United States; COL6 CMD\"],\"articleSection\":[\"Individuals with LGMD - Interviews\"],\"inLanguage\":\"pl-PL\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\",\"url\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\",\"name\":\"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2017-02-10T14:43:25+00:00\",\"dateModified\":\"2017-02-10T14:43:25+00:00\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Andrea\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pl-PL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/","og_locale":"pl_PL","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation","og_description":"LGMD “SPOTLIGHT INTERVIEW” Name:\u00a0 \u00a0Andrea \u00a0Age: \u00a042 yrs. old Country: […]","og_url":"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2017-02-10T14:43:25+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"5 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Andrea","datePublished":"2017-02-10T14:43:25+00:00","dateModified":"2017-02-10T14:43:25+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/"},"wordCount":1071,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage"},"thumbnailUrl":"","keywords":["United States; COL6 CMD"],"articleSection":["Individuals with LGMD - Interviews"],"inLanguage":"pl-PL"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/","url":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/","name":"INDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage"},"thumbnailUrl":"","datePublished":"2017-02-10T14:43:25+00:00","dateModified":"2017-02-10T14:43:25+00:00","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#breadcrumb"},"inLanguage":"pl-PL","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/"]}]},{"@type":"ImageObject","inLanguage":"pl-PL","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2017\/02\/10\/andrea-2\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Andrea"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pl-PL"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/1408","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/comments?post=1408"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/1408\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/media?parent=1408"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/categories?post=1408"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/tags?post=1408"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}